Hypothyroid Mom’s Story of Hope: Her Miracle Babies

What Can Cause A Miscarriage? Dangers of Hypothyroidism And Pregnancy. Miracle Baby is Born.

“To know the road ahead, ask those coming back.”

-Chinese proverb

One thought that has repeatedly struck me is how much easier my journey might have been if somehow, magically, some of the things I know now I could have known when I was first diagnosed with hypothyroidism, or when my body first whispered a warning to me that something was wrong. Instead, I had to learn those things the hard way. I hope that by sharing my story, my readers who suffer from this disease, and those who suspect they have it, might benefit from my experiences and what I have learned. If my story on Hypothyroid Mom saves the life of even one baby, I will have realized my mission.

I was diagnosed with hypothyroidism after the birth of my first son in 2006. I trusted my doctors and assumed they were the experts on hypothyroidism, especially when I became pregnant again in late 2008. This will forever be one of the biggest regrets of my life. Under their care my TSH (thyroid stimulating hormone) soared far above the safe range for pregnancy endangering the life of my fetus and I miscarried at 12 weeks pregnancy. The day I lost my baby to hypothyroidism, I vowed to research everything there was to know about this disease and warn women everywhere about the dangers. After over three years of intense research and a quest to find the top thyroid health experts, I am in the best health ever. I got pregnant naturally with my second son and gave birth to him in October 2010. Dreams do come true for hypothyroid moms.

WHAT WORKED FOR THIS HYPOTHYROID MOM

1. Get Thyroid Testing Prior To Trying To Conceive

I had the great fortune of coming across a book by best-selling author and thyroid patient advocate Mary Shomon called Living Well with Hypothyroidism: What Your Doctor Doesn’t Tell You…That You Need to Know. I loved the book so much I read it in a few days. I realized for the first time in reading Mary’s book that my doctors had no clue about hypothyroidism. I then read her book “The Thyroid Hormone Breakthrough” that helped me understand why I had miscarried due to my under-active thyroid, and how to make sure it didn’t happen again.

Consultation services with Mary changed my life. Using her United States and International Thyroid Top Doctors Directory, I found the thyroid doctor of my dreams.

My doctor did extensive laboratory testing including TSH, Free T4, Free T3, and thyroid antibodies. Her goal was to get my TSH in the range of 1.0-2.0 mIU/L pre-conception. This is in keeping with the Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum:1

RECOMMENDATION 15 – Treated hypothyroid patients (receiving thyroid hormone replacement medication) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the non-pregnant reference range) reduce the risk of TSH elevation during the first trimester.

I also started taking a prenatal vitamin several months prior to getting pregnant and throughout my pregnancy. If you are hypothyroid and taking thyroid hormone replacement, you should not take your prenatal vitamin with iron within three to four hours of taking your thyroid medication. This is because iron interferes with the absorption of thyroid hormone. I took mine at separate times of the day.

Do not assume your doctor has done a full thyroid blood panel. Read my post Top 5 Reasons Doctors Fail To Diagnose Hypothyroidism. Be an advocate for yourself and insist on proper testing. Be sure your doctor is not relying strictly on blood tests for diagnosis and treatment, but also includes an extensive look at your symptoms, medical history, family history and physical examination. The key is finding a great doctor that treats the patient not the lab results.

2. Chart Your Fertility Cycle

While some lucky people get pregnant almost as soon as they start trying, it takes longer for many couples. One good way of increasing your odds is to chart your fertility cycle using your basal body temperature. I am fortunate that I monitored my basal body temperature because I discovered immediately that my cycles were not normal. My basal body temperature was far below the normal range, typical of people with hypothyroidism. I was also ovulating late in my cycle, and my cycles were varying in length.

I was fortunate that a friend recommended Suzanne Connole, acupuncture specialist in New York City. Her Traditional Chinese Medicine approach combining acupuncture and Chinese herbs worked like magic. Soon my fertility cycles looked more like the ideal normal cycle, with predictable ovulation dates and consistent cycle lengths. I was amazed to see my fertility charts literally change before my eyes under Suzanne’s care. Thank you Suzanne for all you have done for me.

Dr. Sami David is the fertility guru to celebrities in New York City. He is a leading reproductive endocrinologist specializing in safe, alternative methods for treating infertility. He wrote an incredible book called Making Babies: A Proven 3-Month Program for Maximum Fertility with Jill Blakeway, Licensed Acupuncturist and founder of The YinOva Center in New York City. The very first month that I followed the recommendations in this book, I got pregnant. I have recommended this book to friends who were struggling with fertility, and they too got pregnant within the first few months of trying it. This book may just bring an end to IVF.

3. Confirm Your Pregnancy As Soon As Possible

Do NOT wait for a missed period to test for pregnancy and do NOT wait for your first pre-natal visit with your OB/GYN to test your thyroid.

I will forever remember Mary Shomon’s tip during one of my phone consultation services with her. She told me to buy the biggest box of pregnancy tests I could find. She recommended that I try to confirm my pregnancy as early as possible and to contact my doctor as soon as possible for thyroid testing. You bet I followed her instructions, and I went out and bought boxes and boxes of pregnancy tests. The store cashier must have thought I was nuts! You better believe that as soon as I started trying to conceive, my goal was to confirm my pregnancy as early as possible.

In the first part of the pregnancy, the fetus relies completely on the mother to provide the thyroid hormones for its development. In a person with healthy thyroid function, her body is able to meet the extra demands of pregnancy to provide the fetus with the necessary hormones. In a woman with thyroid dysfunction, her body may not be able to meet the increased demand for thyroid hormone during pregnancy. According to the Endocrine Society’s 2007 Clinical Guidelines for the Management of Thyroid Dysfunction during Pregnancy and Postpartum, thyroid replacement dosage usually needs to be incremented by 4-6 week gestation and may require a 30-50% increase in dosage.2

Most OB/GYN practitioners do not schedule the first prenatal visit until around 8 weeks pregnancy. Do NOT wait this long to have your thyroid tested. Insist on being seen sooner and have your thyroid tested. If you are currently under the care of a doctor for your thyroid dysfunction, contact them immediately as soon as you confirm your pregnancy.

4. Ensure Your Thyroid Levels Are Monitored Regularly Throughout Your Pregnancy

Given that I had miscarried before due to my hypothyroidism, I was naturally very concerned during this pregnancy. I remember well my doctor Dr. Adrienne Clamp giving me hope. She said, “You will not miscarry your baby to hypothyroidism on my watch!” That’s the type of thyroid doctor you need. She regularly tested my thyroid levels and maintained my TSH levels within the trimester-specific pregnancy ranges. I have no words to properly express my thanks to Dr. Clamp for all she has done for me.

Don’t just accept “you are fine” from your doctor. Ask the specific lab results and the normal lab ranges. Be thyroid aware.

According to the Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease during Pregnancy and Postpartum:3

RECOMMENDATION 2 – Trimester-specific reference ranges for TSH are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

RECOMMENDATION 16 – In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further dose adjustments are often required.

RECOMMENDATION 17 – In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation.

My Miracle Boys

I was diagnosed with hypothyroidism following the birth of my first son in 2006. However, my hypothyroid symptoms started well before then. I can trace my symptoms back to when I was a teenager. My symptoms got much worse after my pregnancy however I know that my thyroid was not functioning properly even before the birth of my first son. My doctors never tested my thyroid levels during my pregnancy with my first son nor did I have any idea to ask for testing. It is a miracle that he was born healthy and strong.

What Can Cause A Miscarriage? Hypothyroidism and Pregnancy. Hypothyroid Mom's Miracle Baby.

I launched my blog Hypothyroid Mom during October Miscarriage Awareness Month in memory of the baby I lost to hypothyroidism and in dedication to my two boys who beat the odds and made it to the world. My miracle boys are proof that dreams do come true for Hypothyroid Moms.

A special thank you to Thyroid UK for including Hypothyroid Mom on their Web of Stories video channel. I am touched.

This is Part 5 of my 5-part series entitled “Miscarriage Awareness Month: The Dangers of Hypothyroidism and Pregnancy”.

Part 1 Have You Suffered A Miscarriage? Your Thyroid Could Be To Blame

Part 2 What Every Pregnant Woman Needs To Know About Hypothyroidism

Part 3 Miscarriage in New York City…Be Thyroid Aware

Part 4 Hashimoto’s Disease: The Danger of Thyroid Antibodies and Pregnancy

Hypothyroid Mom’s Top Resources

What about you?

Are you a hypothyroid mom? Did you have a miracle baby? Tell us your story.

Are you trying to conceive? Did you know the dangers of hypothyroidism and pregnancy?

Are you pregnant right now with hypothyroidism? Is your doctor monitoring your thyroid regularly?

References:

  1. Stagnaro-Green, A., Abalovich, M., Alexander, E., Azizi, F., Mestman, J., Negro, R., Nixon, A., Pearce, E.N., Soldin, O.P., Sullivan, S., and Wiersinga, W. Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum. Retrieved from http://thyroidguidelines.net/pregnancy
  2. The Endocrine Society. Management of Thyroid Dysfunction During Pregnancy and Postpartum: An Endocrine Society Clinical Practice Guideline. Journal of Clinical Endocrinology & Metabolism 2007; 92(8)(Supplement):S1-S47
  3. Stagnaro-Green, A., Abalovich, M., Alexander, E., Azizi, F., Mestman, J., Negro, R., Nixon, A., Pearce, E.N., Soldin, O.P., Sullivan, S., and Wiersinga, W. Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum. Retrieved from http://thyroidguidelines.net/pregnancy

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About Dana Trentini

Who knew that little butterfly-shaped thyroid gland at the base of my neck could affect my life so completely? I founded Hypothyroid Mom in memory of the unborn baby I lost to hypothyroidism. Winner of two 2014 WEGO Health Activist Awards: Health Activist Hero & Best In Show Twitter. *Hypothyroid Mom includes Affiliate links. Connect with me on Google+

Comments

  1. Lisa Marini says:

    I have hypothyroidism and I am struggling to get pregnant. You have given me hope. Thank you. I hope you’re safe from the hurricane.

    Thank you kindly

    Lisa

    • Dana Trentini says:

      Thank you Lisa for commenting. There is hope for hypothyroid moms like us. Just be sure to take charge of your thyroid health. Try the steps in this post and keep in touch with me. If I help a hypothyroid mom realize her dream of having a baby, I will have realized my mission. Best of luck to you. The hurricane is hitting us hard right now. The winds are roaring and the Hudson River is flooding the nearby areas. The NYC skyline is normally beautifully lit with color. Tonight it is eerily dark.

      • I’m in the Uk and have been diagnosed with hypothyroidism for about 18months now. My level is consistently 4.8 which my dr insists is ‘normal’ unfortunately in the UK getting a referral to a thyroid specialist isn’t easy and I’m only under the care of my GP. I’m currently trying for a baby, which my dr knows and hasn’t said anything about increasing my dose. At least now I am armed and ready with the info he isn’t giving me (or more likely doesn’t know).

        • Dana Trentini says:

          Fiona,

          I am so happy you found my article. Yes please bring a copy of the American Thyroid Association guidelines for pregnancy that clearly state that TSH should be less than 2.5 for hypothyroid women planning to conceive and in first trimester. Best wishes.

        • My Tsh level is 4.8 and 4.0 and neither tests results will allow my dr to treat me in the uk despite my many problems :(

          • Katrina K. says:

            I’m sorry! That’s awful, I felt terrible when my TSH was around 4-5. It’s around 1.5 now on 137.5 mcg and I feel normal for the first time in my adult life. I have a friend in Turkey and she said they don’t even do doses like that. Can you get a different doctor?

          • Fiona Armon says:

            hi Clare,

            my dr told me that I have borderline hypothyroidism even though my TSH was 6, so I ditched him and found a naturopath who has helped me heap!

            there is hope
            Fiona from New Zealand

        • Hi Sweetheart

          …4.8is much to high I can assure its almost impossible to get pregnant with a level of even 3. Bring your levels to a 2 .. 2.5 is okay.. as well. But when you eventually become pregnant it can throw that 2.5 off balance fast. Normal to your body will vary.. some people even need it below 2.. listen to your rhythm. Be patient with your body… if you are tak8ng fertility med like clomid.. understand that it can throw your thyroid off balance I needed mines near one. Because my level 2 thyroid spiked to 4 wt a lowww dose clomid.. yikes!

          Take a robitussen or musnix to thin and increase cervical and if I were you I will take 81mg of baby aspirin. To help.. check iron…

          The book she recommended Making Babies is Amazing.. whats also great is Taking Charge of Your Fertility by Toni Wieshler. … plenty of Baby Dust to all the women ttc.

          My dreams are now wavering btw thyroid cancer and endometriosis.. and my ttc dreams. Im 23 yr.. :) .. I opted to try 6month max of ttc n fertility treatment and then give up and go ahead wt cancer treatment. As senseless as it may sound I want my baby first b4 my important glands out… much love…

      • I have a thyroid disease bit iam not taking any meds for my disease and I was wondering how I cld get pregnant with oit taking meds?

      • i have a question. how soon did were you able to find out you were pregnant. i suffer from hypothyroid too. i think i may be pregnant now because ive missed my period for one but ive also been nauseous/vomiting, and dizzy for the past week. i got myself one of those dollar store pregnancy test but i still test negative… any advice?

    • Krystin says:

      I was diagnosed with hypothyroidism when I was eight years old. We have been struggling to get pregnant for years now and have all but lost hope. I am so happy I came across your website today. It has lifted my spirits again. Thank you so much for sharing.
      -Krystin

      • I was diagnosed with Hashimoto’s after visiting fertility doctors. They would not do IVF until my TSH levels were below a 2. This was two years after visiting an endocrinologist who never tested for the thyroid antibodies. After a year of IUI’s, one cycle of IVF we had no luck in conceiving. After being on synthroid (FINALLY) for about 5 months I conceived naturally. My miracle baby is now 8 weeks old…sleeping peacefully next to me right now. I wish you the best of luck and know that my thoughts are with you!

        • Thank you so much for your words of encouragement, and HUGE congratulations on your baby girl :) I am so in love with this site. I have been on synthroid for fifteen years now. I am seeing a lot of people say that someone with Hashimoto’s disease should not have a normal TSH level if they are trying to conceive. (Which is where most doctors accommodate your medicine to be.) Should I ask my doctor about this?
          -Krystin

  2. Gloria Franchi says:

    DANA
    I RECOGNISE THOSE BEAUTIFUL BABIES. THEY ARE MY NEPHEWS. THERE ARE SOME WHO MAY READ YOUR STORY AND THEN WALK AWAY WITH A SMILE FOR YOUR SHARING, NOT TRULY REALIZING THAT THEY SHOULD SPREAD THE WORD. YOUR WORDS ARE SO FULFILLING TO THOSE OF US WHO HAVE LOST CHILDREN. NOT ONLY WERE YOU ABLE TO HAVE CHILDREN – YOU WERE ABLE TO SAVE OUR LIVES. I SAY OUR LIVES BECAUSE YOU AND YOUR CHILDREN ARE PART OF OUR LIFE SUPPORT SYSTEM. THE EFFORT YOU SUSTAINED AND THE GOING FORWARD AND SPEAKING OUT TO HELP OTHERS WITH THIS CAUSE IS ONLY A SMALL EXAMPLE OF THE LOVE YOU HAVE SHOWN YOUR FAMILY. THANK YOU FOR SHARING. I AM HOPING THAT THOSE WHO ARE PRIVILEGED ENOUGH TO READ YOUR BLOGS ARE AS WONDERFUL AS YOU ARE IN SHARING THIS INFORMATION WITH OTHERS. I KNOW THAT THIS IS YOUR MESSAGE AND I HOPE THAT OTHERS UNDERSTAND THAT THEY MUST SHARE.
    GLORIA FRANCHI

    • Dana Trentini says:

      Thank you Gloria for commenting. I appreciate it very much. Your message is important. There are 300 million people worldwide with thyroid dysfunction, but only half are aware of their condition. The only way to find those women who suffer from thyroid problems who don’t know they have it is to spread the word to everyone you know. Hopefully this message will find them. Thank you for sharing Gloria :)

  3. Hi again Dana,
    This is groundbreaking information. I work in the fitness industry and over the last several years have met countless women who are working out so they can eat! Women with thyroid problems, as you know, top the list as far as having difficulty keeping the weight down. They are forever trying to work off their weight. It breaks my heart since I can enjoy food. Several other symptoms seem to come up to accompany most of the women that have issues conceiving as well. Based on my own observation, most of these women are on medication for hypothyroidism and still can’t keep the weight off, let alone get pregnant. My heart goes out to them. Again, based on my own observations, medications they are taking aren’t really helping. Do you have a flyer or written information I can give to them to educate and enlighten? I too may possibly have a hidden illness that has plagued me all my life and was never diagnosed. Will be soon. Not hypothyroidism.

    • Dana Trentini says:

      Thank you for sharing Johann. As a professional in the fitness industry, I am sure you meet a lot of people who suffer from hypothyroidism struggling to lose weight. There are countless people who have the condition but don’t know they have it. Then there are those that are treated for hypothyroidism but still struggle with symptoms such as weight gain. When I was diagnosed following the birth of my first son, I struggled with weight gain. The pounds were packing on yet I was exercising and eating well. Although I was diagnosed, my doctor did not succeed in helping me alleviate my symptoms with the drug Synthroid (T4 only drug) that I was being prescribed. It wasn’t until I changed to a new doctor who did a full thyroid blood panel including free T3 and thyroid antibodies and was prescribed Nature-throid, which includes a combination of T4 and T3 hormones, that I started losing weight. The problem is that not all doctors conduct a full thyroid blood panel and most prescribe T4 only drugs (which don’t work for all people). I will be writing in depth about this in my posts throughout the month of November. It is up to us to be thyroid aware and to know even more about this condition than our doctors. If necessary change to a doctor who is truly thyroid aware. Please share my blog with your fitness clients. I would love for them to join me. Your idea of creating written material is a good one for me to consider to include for my blog. Best of luck to you.

  4. Thank you. Looking forward to a hand out for clients:)

  5. Dana Trentini says:

    Thank you Johann. You will be the first to know when I create a written flyer or newsletter. Thanks for the great idea.

  6. My name is Paul, Dana’s husband and father of the two miracle babies. I married my wife for her brains (she just happens to be very beautiful with a lovely personality.) When we were dating I was impressed with how much Dana would study for self improvement. She was the first science major I ever dated and I was intrigued by how someone could be so interested in a major like neuro science. She was always taking courses and doing independent research. She really did have her choice of any profession she wanted. She had two University degrees when I met her and I had one. I went back to school to upgrade and got my second. She then went back to school and picked up not one but two more – at which point I said “I give up you win!” Why am I saying all of this?? It’s because I want everyone who reads Dana’s blog to understand that you are dealing with a person who “eats books for breakfast” and truly enjoys the love of research. When she has a free moment of time she will dash through a Charles Dickens 600 page novel here and there.

    I am truly impressed with how Dana has filtered the universe of scientific findings, tips, Eastern and Western medicine, midwife learnings, and everyday common sense to come up with a regimen that worked well for her (us). I am also so impressed with how she is going to such effort to give this up to the world to be helpful and to provide insights that many other women/couples may not otherwise have come across.

    Good for you Dana – certain things in my life hit me with a certainty that I am compelled to act upon no matter what. You were one of them … and now we are four.

    • Dana Trentini says:

      Thank you Paul for your beautiful comment. This is my husband. He knows very well the struggles that I have been through with hypothyroidism. It has been an uphill battle to get proper diagnosis and treatment. I took it upon myself to research everything I could about this condition to heal myself and to have our second son. I am fortunate to have a supportive husband who has been by my side the entire way. I hope everyone is so fortunate.

  7. I just came upon your website. I was diagnosed with Hypothyroidism following a miscarriage and infertility. Fortunately, I managed to give birth to two healthy daughters prior to that miscarriage. I am now wondering about having them tested. At what age do you think it is appropriate and what would some signs be of hypothyroidism in children. Thank you for all of the wonderful information.

    • Dana Trentini says:

      It is great to hear from you Amy. I too worry about passing my thyroid condition to my boys and I encourage all hypothyroid moms to watch their children for signs. Any age would be appropriate for testing. Watch your children and know the typical signs of hypothyroidism. If your instincts tell you something is wrong then get them tested. The signs for children are very similar to adults. I created a post that will give you a sense of what to look for in your little ones.
      http://hypothyroidmom.com/300-hypothyroidism-symptoms-yes-really/

  8. Dana-
    Thank you for this great information. I was diagnosed with Hashimoto’s disease after the birth of my first child in December, 2010. While learning about thyroid disease since my diagnosis, I suspect that I, too, had signs of the disease long before I was diagnosed. I thank god every day that my daughter is healthy and thriving. We are planning on a second child soon, and I am devouring every piece of information that I can find to try to ensure a healthy pregnancy, but I am so nervous this time. Your story gives me hope. Thank you.

    • Dana Trentini says:

      Good to hear from you Katie. I am happy you found Hypothyroid Mom. There is hope to have beautiful healthy babies. It’s really about getting as healthy as possible prior to conception. Now that you are being proactive and doing your research you have great chances of being so healthy prior to conception that you will get pregnant and have a beautiful baby. Knowledge is power. Best of luck.

  9. Hello
    Nice site with loads of useful info.
    Do you know if there is any increased risk for the child born of a woman with thyroid problems and antibodies to develop same kind of problems?

    Kind regards

    Lars

    • Dana Trentini says:

      Hi Lars,

      You ask a good question. First, there is a hereditary factor with thyroid disorders so the children of women and men with hypothyroidism are at risk of inheriting thyroid conditions. I have many readers with Hashimoto’s for example who trace Hashimoto’s throughout their family. The inherited thyroid condition does not necessarily appear at birth but may be triggered in childhood or adulthood. In women there are three primary times when she is vulnerable to develop a thyroid condition: puberty, pregnancy, and menopause. Many readers have reported that their condition began with pregnancy, for example, and that when they look at their family history there are other members of the family with thyroid conditions. I for one have had hypothyroidism symptoms since I was a child that worsened with puberty and then I was at my worst after my first son was born, when it was finally diagnosed. My brother and mother both have hypothyroidism too.

      Also there is research that maternal hypothyroidism increases the risk of congenital hypothyroidism in the newborn. A quote from this New York Times article: “Women who have an underactive (“low”) thyroid, including those who develop the problem during pregnancy, are at increased risk for delivering babies with congenital (newborn) hypothyroidism.”

      http://health.nytimes.com/health/guides/disease/hypothyroidism/print.html

  10. Jessica says:

    I have had thyroid issues since after the birth of my first son. First Hyperthyroid, then had surgery as it wasnt controllable by medication…. now I am hypothyroid and treated with replacement hormones. I tested my Thyroid function in november as my fiance and i were ttc and my results were normal…. I just re-tested and my TSH was 77…. the same week I tested TF I found out i was 5wks pregnant…. I am terrified I will lose my baby, or that my painfully low thyroid levels have irreversibly affected her brain development…. I will be crushed if anything happens to my baby and its because of my thyroid :(

    • Dana Trentini says:

      Hi Jessica,

      First off congratulations on your pregnancy. What has your doctor recommended for your TSH at 77. You must work with your doctor closely to get that lowered. I see you posted this on May 19. Has your TSH come down? If not please call your doctor.

      • Jessica says:

        I have seen an Endocrinologist already, he’s asked me to take a slightly higher dose for a week to help boost my thyroid levels and then get re-tested. I’m seeing my OBGYN tomorrow for the first time and will be asking him to test to make sure it is in fact coming down!

        • Dana Trentini says:

          Jessica, so happy to hear that. Please be an advocate for you and your baby and insist on testing until your TSH gets in range. Push and push and push for help.

          • Hi Dana and Jessica,

            First, thank you Dana for this very informative website. I am learning a lot of valuable information, even more than what I get from my own doctor (when I asked him a question about its effects on pregnancy, he said “well, you can research that on your own!”) I have had hypothyroidism for over 6 years. My levels have been stable on 88mcg of Synthroid for years until very recently as we were starting fertility treatments and had to decrease to 75mcg. Slight increments in medication would make my TSH fluctuate a lot, and could not get my TSH within normal limits, although my free T4 and T3 were normal. We decided to go ahead with IVF with TSH of 0.18, free T4 of 1.5 and T3 of 84 (on 75mcg). Now, after 5-6 weeks since my last blood test and I am 5 weeks pregnant, my TSH jumped to 12, although my free T4 remains normal at 1.

            Jessica, I was wondering how much your doctor had to increase your medication, and how was your follow up blood test?

            My doc wants me to take 100mcg, but I am worried that if this is not enough, I will be prolonging being hypothyroid while pregnant and worried it might affect my baby, since the blood test is not until after 3-4 weeks. Does this increase seem sufficient, considering the big jump of my TSH? Based on your research, and as a patient who has gone through this, is there a higher risk of being too conservative on increasing the dosage? Is 3 weeks too long to wait to recheck levels?

            Thank you.

  11. Dana, Thank you for sharing your story. Is there a chance you can clarify whether or not you have been diagnosed with Hashimoto’s Disease?
    Thanks,
    Jackie

    • Dana Trentini says:

      Hi Jackie,

      Both my TPO-Ab and TgAb for Hashimoto’s came back negative which should mean that I don’t have Hashimoto’s. However there are a percentage of people who turn up with negative antibodies who have Hashimoto’s. Here is an article to describe this. So my doctor is of the opinion that my next step is to have a thyroid ultrasound to confirm whether or not I have Hashimoto’s. I know that in my case I have inherited this condition because both my mother and brother have it, however now by getting an ultrasound I will know if the cause is Hashimoto’s or not. In any case, I still learn all I can about Hashimoto’s and make sure to have all the testing that have been linked to Hashimoto’s just in case. I’ve also gone gluten free just in case. Hashimoto’s is considered the number one cause of hypothyroidism in the US so I am cautious even though my antibodies came back negative.

      http://thyroidbook.com/blog/page/14/

  12. Lindsay Robert says:

    Thank you so very much for your blog. I have had 3 recurrent ‘unexplained’ miscarriages since the birth if my 2 year old son. In my last pregnancy I was put on thyroid medication, but I do not believe I was monitored closely enough. Sadly, I lost my precious twins at 12 weeks. I am now actively seeing both an endocrinologist as well as a reproductive endocrinologist in preparation for my next pregnancy. I know something is not right with my thyroid, as I have been exhibiting hypothyroid symptoms for years. I wish like hell I had fought harder for testing and monitoring after they told me my tsh was ‘off’.
    Again, thank you so much for your blog. It is so very inspiring!

    • Dana Trentini says:

      Lindsay,

      I wrote Hypothyroid Mom to help find women like you. There is so much research linking thyroid diseases to miscarriage and still birth. I have several readers who were never able to have children only now to find out why. It’s very tragic. However my message is that there is hope to have beautiful healthy babies. It’s about being as thyroid health as possible prior to conception. Miracle babies do happen. My boys are proof that miracles do happen for us. Best wishes to you to have more babies.

      Lindsay I am in the Top 10 Change The World The Next Global Thought Leader competition. Voting ends this Thursday. My mission is universal thyroid screening in pregnancy to help save babies. I would appreciate your vote. Here is an article with a link at the bottom to my voting page. Thank you!

      http://hypothyroidmom.com/help-save-babies-mandatory-thyroid-screening-in-pregnancy/

  13. Melissa says:

    Hi! I was just diagnosed with an under active thyroid today. I had a healthy pregnancy with my first child. Got pregnancy while breastfeeding when she was 10 months old & lost the baby. I knew something was wrong the 2nd time because I felt so awful. It is now June and I’ve just been diagnosed with an interactive thyroid. I doubt they tested me while I was pregnant. My number is at around a 4.9. Can you tell me where I should be at to maintain a healthy pregnancy? We want to start trying this month but now I’m afraidi need to regulate my thyroid levels before we try. My dr put me on synthroid & says it has nothing to do with a healthy pregnancy ????
    Thx.

  14. rose makena says:

    miscarried at 10 weeks ,now on 50mcg levoxy and ttc,this info has opened my eyes

    • Dana Trentini says:

      Rose,

      I wrote this article in hopes of finding women like you to empower you with the knowledge you need to conceive and to carry a healthy pregnancy. There is hope to have beautiful babies despite hypothyroidism.

      You must listen to the radio show where I was interviewed by thyroid advocate Mary Shomon about fertility and pregnancy. Great show. Here is the recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

      • Ann Sussane says:

        Hi Dana,
        Thanks for sharing your real story and this blog is very informative. we are ttc for last 3 years. I am ovulating properly on 17th day and quality of egg is also good (24mm) . i did laproscopy and there is no problem with ovaries, uterus and tubes. Last month, I found that my thyroid level is 7.3 and doctor told me that it is borderline and he put me in thyronorm 25mcg . Last year, i had thyroid level of 4.04 and doctor told me that it is normal. Am i taking the right dosage now? my husband is perfectly fine when tested.your comments will really help us.

  15. Hi Dana, can you tell me if hypothyroidism can cause you to have low progesterone? I had a loss in march. I went in at 6 wks pregnancy because i didnt feel normal. They never checked my thyroid during that pregnancy but told me I had low progesterone. At 8 wks they found no heartbeat. A cple months later I went back for some bloodwork cause I still felt sick. They confirmed I was hypothyroid. I am now on synthroid (50mcg) for a month. They tested me and my tsh went from a 4.9 to a 2.1. But my progesterone was only a 6. Now I tried to time it so it was after ovulation but my periods haven’t been normal lately. Turns out I tested on day 21 of my cycle but started my period the next day on day 22. So it was normal to be lower right before my period (I guess). Anyway, I asked my doc if I should be on progesterone supplements before TTC again cause I want to be proactive and they don’t think it’s necessary. They just want me to come in and test my levels the minute I get pregnant, then supplement if necessary. What are your thoughts? Thx so much, Melissa

    • Dana Trentini says:

      Hi Melissa,

      Sex hormones and thyroid hormones are intricately connected and low progesterone is a common problem for hypothyroid women which can also cause miscarriage so absolutely there could be a link for you. I tracked my fertility cycles and found my temperature dipping after ovulation. I found the book “Making Babies” by Dr. Sami David that I mention in this article helpful in increasing my body temperature so that my temperature didn’t dip (there were specific tips in the book to boost progesterone) and that alone worked to get me pregnant. Worth reading the book. Absolutely you should discuss low progesterone with your doctor.

      I was interviewed by thyroid advocate Mary Shomon about fertility and pregnancy for thyroid patients. Great show with lots of helpful tips. Here is a recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  16. Katherine says:

    Thank you for doing what you can to inform people about this issue. I’m 29 weeks into my pregnancy tomorrow. I had my TSH levels tested in my first and second trimesters, and was told by my GP all was fine. My levels were 3.56 (about 6 weeks) then they were 4.09 (mid second trimester). My midwife at the hospital I’m going to deliver at asked that I check my TSH levels again and also test for antibodies. I was told I’m positive for antibodies when the results came in. I had no idea at the time what any of this meant. It was only when I acquired a hardcopy of my thyroid results recently that I noticed there were clinical notes suggesting I have a Free T4 test and that I may possibly suffer from hypothyroidism. I’m still in shock that my GP failed to mention what the endocrinologist said in those notes. I have since been frantically researching online and everything I come across has put me in a state of distress. I was pregnant not long after trying and have no history of miscarriage. I dont even know if I have a family history of thyroid disfunction. My mother said she isn’t aware of any issues. Like most mothers, I have done all the right things thus far to ensure the health of my daughter is taken care of to the best of my ability, but all this has really thrown me off. Knowing that those first 12 weeks are crucial to brain development and that no treatment at all can lead to all sorts of complications…well now I’m worried sick about what might occur. I keep reading online that thyroid issues are common in pregnancy and with women in general, that with ongoing monitoring of thyroid levels and use of medication you can have a normal pregnancy. This far ahead into my pregnancy, now in the third trimester, I don’t know where this leaves me. I feel so helpless and anxious! It has been difficult for me to find online much anecdotal examples of women in similar situations as me that went on to have normal pregnancies and have normal children. It seems everyone has been administered medication. I have an appointment to speak to an endocrinologist in about a week. I’m so scared right now. Trying to be strong for my baby but finding it hard.

  17. None of this is new to me since I’ve been hypothyroid now due to my thyroid having been “killed” over 20 years ago. I just have one comment.

    Before marriage I had several serious boyfriends and we had a lot of sex (of which now I am ashamed). We used zero “protection.” The entire time I was on Syncrap, I mean, Synthroid, and either never conceived or, as one time, did indeed conceive and lost that child to early miscarriage. I can now look back and say it was the Synthroid and the standard TSH test that rendered me infertile for years.

    Many years later I asked to be put on desiccated thyroid (Armour at that time). I have since married and I am EXTREMELY fertile. We are now pregnant with our 7th child in 9 years, no twins, no losses. I am so grateful for natural thyroid and for doctors who know what to test (Free T3 and Free T4) and how to treat (NOT BY TSH!!! My TSH is <.006 and has been for years and I'm nowhere near hyper).

    Endocrinologists don't know everything. Oftentimes they don't know enough when it comes to thyroid. Be your own advocate. Read, learn, understand your body. Find someone who will listen and give you the meds you need and who will treat you by your Frees and your symptoms. Don't be enslaved to TSH. It will keep you sick.

    • Dana Trentini says:

      Hi Katy, thanks for sharing your story. I too found a switch to natural desiccated thyroid changed my life. Thanks to it I am now living well with hypothyroidism.

  18. Melissa says:

    Wow! This last comment has me so worried. Does synthroid cause infertility?

    • Dana Trentini says:

      Hi Melissa,

      Hypothyroidism has been connected in the research to infertility. The issue is that Synthroid and Levothyroxine drugs in general contain one hormone T4 only. Some people do great on these drugs but many of us do not. For many of us our bodies just don’t convert the T4 hormone in these drugs to the active T3 hormone our bodies need leaving us with symptoms such as infertility. I too found that natural desiccated thyroid improved all my hypothyroid symptoms and I believe thanks to it I have my second son today. We’re all different in terms of which medication is right for us but if you are suffering hypothyroid symptoms and you are on a Levothyroxine drug like Synthroid, there are other options.

      http://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/

  19. Melissa, no, I don’t believe that Synthroid in and of itself will cause infertility. The problem with Synthroid and similar T4 meds is that the doctor prescribing such a med usually bases all his testing and treating on TSH alone, and TSH does not tell the whole story.

    Until I was seen by a new doctor, this was the way I was treated. My new doctor dug deeper and tested the Frees, just as any good doctor should. That revealed to him that my body was not easily able to convert the T4 in Synthroid to the T3 the body needs. That is CRUCIAL for health – the body has to be able to convert it! Any doctor who refuses these tests is not worth your money.

    He put me on a natural med that contained both T4 and T3 and he tests and treats based solely on my Frees and my symptoms. We ignore TSH altogether because T3 meds (and sometimes even T4 meds!) can and do suppress TSH, making it no longer a reliable measure of thyroid hormone.

    Like I said, my TSH is less than .006 and I’m nowhere near hyper. I am actually at the bottoms of the ranges on my Frees.

    So again, it’s not Synthroid per se that causes trouble, it’s the TSH only testing and treating that does. Hope that helps. :)

  20. Oh, I wanted to add one more thing, Melissa. With my last baby, my TSH shot up to 7. With the baby before her, it was 39. With the baby before her, it was 13.

    It’s normal for the body to suddenly – almost instantly – need an increase of thyroid hormone once pregnant. I was able to regulate mine so much faster because I was on T3/T4, whereas a T4 only med takes 4-6 weeks to regulate, unfortunately.

    Regardless, Mary Shomon has an article on her page with a study saying that a woman’s thyroid needs increase by 40% (?) at the onset of pregnancy and recommends increasing one’s dose immediately even before seeing the doc the first time.

    • Dana Trentini says:

      Hi Katy,

      The fetus depends entirely on the mother for thyroid hormone in the first 12 weeks of pregnancy at which time our TSH can rise quickly to meet the needs of the baby. This why it’s so important for hypothyroid women to get thyroid testing as soon as possible in pregnancy because many of us require an increase in medication dosage in pregnancy. I was interviewed by Mary Shomon recently about fertility and pregnancy and we talked about this same thing.

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  21. Thx for clarifying. I just found out I have an under active thyroid a month ago. My TSH was a 4.9 and after being on synthroid for less than a month it’s a 2.1. My doc tested my T3 & T4 and just says they are normal. I’m also concerned I have low progesterone. Anyway, we will be trying again after a loss a few months back & I thought I was doing the right thing by taking synthroid. But after reading your comment, I was worried it could affect my fertility.

    • Make sure he’s testing FREE T4 and FREE T3 and not the Totals. And make sure you are at a good place in the ranges…not bottoming out and preferably at least midrange. Blessings to you!!!

      • What were your symptoms if you don’t mind me asking? I’m only seeing my OB about all of this. Guess I should get into an Endo?!

      • Hi, I just got tested today & below is my result. Can I get some feedback from you all? We are going to start TTC soon.
        Name Value Ref Range
        T4 Free 1.2 ng/dL (0.8 – 1.8)
        T3 Total 62 ng/dL (60 – 180)
        TSH 1.560 uIU/mL (0.200 – 4.780)
        Progesterone Level 7.8 ng/mL

        • Hey Melissa, my symptoms when I’m hypo are the typical fatigue, brain fog, constipation, weight gain, bloating, depression, etc. Too many to list, really. ;)

          As for your labs I’d really want to see the Free T3 since the total T3 is almost bottomed out. The FT4 is 4 points higher than the bottom of the range and 6 points lower than the top, so I’d want to aim for 1/2 of the range if it were me. I personally think your TSH is still too high so a med increase would help lower that.

          Just to repeat – your body doesn’t function off T4. It must convert it to T3. Without knowing your FT3, it’s really pretty impossible knowing how your body is converting it and what the actual thyroid levels in your body are. You know?

          But the most important question is: how do you feel?

        • Dana Trentini says:

          Hi Melissa, it’s so important to have your Free T3 tested as opposed to the Total T3. Also testing should include Free T3, Reverse T3, thyroid antibodies, adrenals, full iron panel, D3, sex hormones, B12, magnesium, zinc, selenium at a minimum.

          I was interviewed by thyroid advocate Mary Shomon recently about fertility and pregnancy. Excellent show. Here is the recording:

          http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  22. Hi there! Your articke really gives me hope. Im 26 years old and a month ago i got diagnosed with hoshimotos thyroiditis after noticing ive developed a goitier. My antibodies are at 1000, my tsh is at 20, my lymphocytes were 50%. My endo has put me on levothyroxin & selenium aswell as a few herbal drops ‘lizorm’ for lowering antibodies. I have been taking my meds for a month now and am experiencing heart palpitations frequently, maybe thats my body getting used to the pills even though ny dose is low at 50mcg. My husband and I decided to TTC a month ago but with all this thyroid stuff ive put it off as im afraid of having a m/c so i want to only start TTC when my thyroid levels are stable. I really hope i will be able to concieve! Ive wanted this for so long and i cant believe that at the time i was most ready for a baby i got diagnosed with hashimoto’s :-( i wanted to ask if you perhaps have any more advice for me in regards to what more i can do to ensure i am able to concieve?
    Thanks you in advance!
    Lena

    • Dana Trentini says:

      Lena,

      WOW at a TSH of 20 I can only imagine the symptoms you experienced. First, the American Thyroid Association guidelines for pregnancy recommend a TSH less than 2.5 when trying to conceive. Bring a copy to your doctor.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■ RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      ■ RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      I was interviewed recently by thyroid advocate Mary Shomon about fertility and pregnancy. Great show. Here is the recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

      There are many potential underlying issues causing Hashimoto’s that should be tested including sex hormones, adrenals, iron, D3, B12, selenium, food intolerances especially gluten, bacterial/viral/fungal infections.

      http://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/

      I have several readers who went gluten-free with Hashimoto’s and their thyroid antibody numbers reduced. Worth trying for several months.

  23. valene wolfe says:

    I had hyperthyroidism when I was 17, and a year later it was gone. Doctor said if anything always test for thyroid problems. I had two babies since then. Then one day in 2009 I fainted at work. My body was screaming at me, it kept wanting to literally shut down. My doctor was assuming hypoglycemic. I had to have sugar testing, which were normal. But I had to eat every two hours, carbs, whatever or I would feel fainty. My mom told me ask doctor to test my thyroid, but he almost didn’t. Lucky he did and test came extremely high for hypothyroidism.

    I wasn’t in a committed relationship, a friend and I wanted a baby, but no luck. So in my head I told myself I can never have babies again. It was very hard to digest. I loved being pregnant and always dreamt of having more kids. Again wasn’t a committed relationship, talks of starting something, and I fell pregnant. My regular doctor was no help but my obgyn was AMAZING and on top of my testing. Gave birth to healthy baby girl May of 2012.

    I am now married to someone new and we have been trying. Back with my regular doctor, called to see how my thyroids are, he never called back :( Now that its time for my exam, I informed I am trying to get pregnant so I want my thyroids checked. Wish me luck. :) Great article too :)

  24. I am pregnant . 7 weeks passed. My tsh level is 6.5. How it effects the development of my Baby?

    • Dana Trentini says:

      ABC,

      The American Thyroid Association issued guidelines for pregnancy recommending a TSH less than 2.5 in the first trimester. Contact your doctor right away and bring a copy of these guidelines that I attached below. Your TSH is too high based on these guidelines and your thyroid medication may need to be increased.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■ RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      ■ RECOMMENDATION 16

      In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further LT4 dose adjustments are often required. Level B-USPSTF

      ■ RECOMMENDATION 17

      In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation.

      http://thyroidguidelines.net/pregnancy/results

  25. hi I am so happy for u and I respect ur mission,i was dxg with hashimoto 5 month ago started on low dose of 25mcg bcz I was dxg with subclinical my initial tsh was 4.2 than came to 1.9 than to 2.5 , I never conceive , I am so depressed I tried superovulation , I had good number of eggs,i have normal periods and normal ovulation which I do monitor , I don’t know along this line where is the problem , I am thinking to test for natural killer cell as 50% of the ppl with hashimoto have an immune problem and this is my self researched none of the doctors I have seen suggested too , if u have any other idea please do help me
    I am so depress
    meme

    • Dana Trentini says:

      Meme,

      There are many potential triggers for Hashimoto’s including gluten intolerance (I have readers who reduced their Hashimoto’s antibodies by going gluten free), nutrient deficiencies (be sure to get testing for ferritin, D3, B12, magnesium, zinc, selenium), sex hormone abnormalities, adrenals (best test is saliva for cortisol), Candida, bacterial/viral infections, heavy metal toxicity. They should all be checked to see if they help.

      http://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/

      You should also read the book I mention in this article “Making Babies” by Dr. Sami David. I literally got pregnant the same month I read that book and used the supplements recommended.

  26. I am in complete disbelief! I have terrible thyroid bloodwork, tsh was 20 now its 14.3 my antibodies are at 1000! i went to my dr yesterday because my period was 7 days late and i have been feeling crampy and not myself, he did a bloodtest and i am officially 5 weeks pregnant today! im in aboslute shock as almost ALL the drs told me it will be impossible to concieve till i regulate my thyroid and my dh and i were not even trying!!!!!!!! i only came off my pill yasmin last month after taking it for 10 years!!!!!! i cannot believe this happend, it must be a miracle! dr have said i must come in every 4 weeks for bloodtests to check my tsh and antibodies and he increased my dose of levothyroxine to 75mcg now. I am absolutely dumbstruck!!!!!!!!!

    • Dana Trentini says:

      Elena,

      Congratulations on your pregnancy so wonderful. Your TSH at 14.3 is too high. Perhaps your doctor knows that and increased your meds for that reason but you shouldn’t wait 4 weeks for retesting because your TSH is supposed to be less than 2.5 in pregnancy. Now the good news is that your doctor increased your dose but as an extra measure on Monday go in and bring a copy of the American Thyroid Association guidelines attached below and ask if that dosage increase will bring your TSH down to 2.5 and whether you should be retested sooner to see if it comes down.

      ■RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

  27. Thanks for ur help what’s target tsh that help u to concive since the process require a lot of thyroxine , my latest tsh 3 I ask my endo to bring it down he told me last time it was. 2.5 so it should be Okik changed my endo after long arregment and my new dr said less than 1.5 is the target what do u think . Any clue

    • Dana Trentini says:

      Meme,

      Both the American Thyroid Association and Endocrine Society recommend a TSH less than 2.5 for women with hypothyroidism trying to conceive. Bring a copy of the American Thyroid Association guidelines for pregnancy to your doctor.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L. Level I-USPSTF

      ■ RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester. Level B-USPSTF

      http://thyroidguidelines.net/pregnancy/results

      • Hi dear
        I am Always happy with ur replies and I don’t feel alone , though ppl around me they don’t understand what I am going through , I wanted to tell u I did food intolerance food which showed gluten diet sensitivity and diary product ! What do u think about
        Thanks honey
        Meme

  28. Hi Dana,
    I just came across your website while browsing through Thyroid problems and I think I got all information from just this one. I had been diagonised with hypothyroid 4 months after the birth of my first child in 2006 and have been on medication ever since. All these years I have real problem trying to reduce my weight and battling fatigue, otherwise I am OK. I had my second baby an year ago in 2012.

    One thing I would like to know is, it is normally said that the sons inherit any heriditary diseases from mothers and daughters from their fathers. If so, what would be the risk of my 2 sons inheriting thyroid from me. At the birth of my second son, among all other general tests he was also tested for thryroid and it was negative. I was actually worried throughout the pregnancy that the baby might inherit this in the womb itself as I was a sufferer from almost 6 yrs. It was indeed a great relief when he tested negative.
    So, do you think at some point of time later in life, they can still develop any of the thyroid problems ?

    Once again, thanks for posting such useful information in this website. I really appreciate your efforts and interest.

    Regards,
    Priya

    • Dana Trentini says:

      Hi Priya,

      I have readers with hypothyroidism and their children including sons have tested positive for hypothyroidism. This does not mean that all our children will develop a thyroid condition but the chance of heredity is possible. Even with genetics it’s possible that a person’s genes will be expressed or not. For example, stressful experiences both physical and/or emotional are common triggers for thyroid conditions. As well puberty is a time of sex hormone changes making teenagers vulnerable to develop thyroid conditions. I have two sons and both my sons have tested negative so far. However I will continue to watch them for symptoms and have them retested again every so often just to be sure. I wish all our children well and hope they do not inherit this from us. Best wishes.

  29. Hi Dana,

    I’m so pleased I’ve come across this page as I was starting to feel like a hypochondriac to my doctor. I’ve had a hypothyroid for many years now (diagnosed as a young teenager). I had a successful, straight forward pregnancy & labour with my daughter 2 years ago not even aware that my condition could affect pregnancy. In April this year I miscarried twins – thyroxine was reduced around time of conception and babies didn’t make it past 6 weeks although I didnt find out until 9 weeks. Its since then I’ve read so much about the link between miscarriage and hypothyroid. I am now 4 weeks pregnant again and insisted on a blood test to check my thyroid. My doctor phoned me to say reduce from 125mcg – 100mcg. I wasnt happy about this so phoned a midwife who told me to listen to my doctor as he will be following the NICE guidelines (UK) so Iooked these up which say to always increase thyroxine imediately after pregnancy is confirmed. I phoned my doctor back and he said if I’d be happy staying on my current dose then thats fine. After reading your page though, I’m not sure if they tested my free T3 & T4… I will chase that up. The thing I wanted to ask you as you mentioned accupuncture and herbs – I too have been getting accupuncture to regulate my cycles which was amazing. Now my chinese doctor who does my accupuncture has given me herbal tablets to take 2 x twice a day – do you think this is safe? I’m so confused and scared…

    • Dana Trentini says:

      Hi Monica,

      Congratulations on your pregnancy. I am so happy you knew to discuss thyroid drug dosage increase with your doctor in pregnancy. We’re all different in terms of what dosage increase we need and why it’s so important to have your thyroid regularly tested in pregnancy. Bring a copy of the American Thyroid Association guidelines for pregnancy to your doctor. Not all doctors have read it and they should. As for herbs, I don’t know enough about herbs to say which ones are safe and not safe in pregnancy. I did take herbs recommended by my acupuncturist which were for early pregnancy to help maintain the pregnancy. Now I had done considerable research to find my acupuncturist who specialized in fertility and I trusted her recommendations so I took the herbs she gave me. Speak with your acupuncturist about your concerns and maybe he/she has information you can read about what they want to give you.

      http://thyroidguidelines.net/pregnancy/results

      RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L. Level I-USPSTF

      RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

       RECOMMENDATION 16

      In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further LT4 dose adjustments are often required. Level B-USPSTF

      ■ RECOMMENDATION 17

      In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation. Level I-USPSTF

  30. Hi Dana,
    I haven’t officially been diagnosed as having a thyroid problem, but I believe I am hypothyroid. I have 2 young children. I think my problem started after my first child was born and was not treated during my pregnancy with my second child. My first child is huge (95th percentile in weight and height) and my second child is tiny (less than the 2nd percentile in height and 5th percentile in weight). My second child seems to be doing everything he’s supposed to (walking, talking, etc.), but I’m concerned about his size. Do you know of any connections to hypothyroidism and small children, and is there anything I can do about it?
    Thanks!

  31. Hi dear thanks for ur good effort and time , I have read sami’s book and I like it what I can’t understand is he mention too much of chineses herbalist , being a physician my self and seeing many complication of these herb nt sure which on works with out side effect and difficult to find herbalist in my place would love if some one or u aware of wat can help really with names and will try to get them from online ,I am so desprate never concieved ,if u can help me will never for get ur big effort in life
    Thanks
    Meme:(

    • Dana Trentini says:

      Hi Meme,

      You ask a good question about the benefits and side effects of Chinese herbs. I did my research and located a reputable acupuncturist in NYC who specializes in fertility. I went through the list of herbs from Dr Sami David’s book Making Babies and she helped me determine which were good for me. Try searching online in your area for reviews of acupuncturists who specialize in fertility.

  32. I had my thyroid completely removed in 2009 due to cancer. Had the RAI later that same year and started on levothyroxine 250 micrograms. We were done having babies or so we thought and got pregnant. I saw my gyn 2 days after finding out and done all the tests. My tsh was 10 times more than should be…hyperthyroidism induced due to the meds. I am terrified of what damage it could have done to the baby. Help please, my meds were cut to 150 micograms.

    • Dana Trentini says:

      Hi Delia,

      Congratulations on your pregnancy. It’s good news that you had thyroid testing right away. Now you need to bring a copy of the American Thyroid Association guidelines for pregnancy to your doctor right away so they know the guidelines to properly treat you. They recommend a TSH less than 2.5 in the first trimester. Unfortunately many doctors have not read the guidelines.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

  33. Kenya chalmers says:

    Hello I had Hyperthyroidism and I had radioactive iodine treatment done may of 2013. I found out I was pregnant 6 weeks after this treatment and I am 42 years old so I had no idea I would get pregnant. I became hypothyroid around the time i found out I was pregnant which was around july 29,2013. My dr only had me on 75mcg of synthyroid I called told her i was pregnant and she wanted me to have labs drawn in a few weeks Had my labs drawn and my tsh was very low it was 19. I went to my ob doctor last week which was september 5 2013 and our baby no longer had a heartbeat. I am hoping that once all the radioactive iodine is out of my system which will be november that my thyroid levels will be normal and that my husband and I can plan a pregnancy but with my age I dont know if i will get pregnant again. I just pray that it will happen for us again. Thanks so much for this blog and I would love to hear from you.

    • Dana Trentini says:

      Hi Kenya,

      I am sorry about the loss of your baby. As you know from my blog a TSH of 19 was too high for pregnancy. The American Thyroid Association recommends a TSH less than 2.5 for pregnancy. Be sure to bring a copy of the American Thyroid Association guidelines for pregnancy to your doctor because many have not read them. There is hope to have babies despite hypothyroidism. Best wishes to you.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      http://hypothyroidmom.com/miscarriage-in-new-york-city-be-thyroid-aware/

      • Kenya chalmers says:

        Thanks so much Dana: My endocrinologist told me since it was so low the baby probably would not make it.She increased my synthroid to125mcg around september 1st and in 3 weeks I dropped from 19 to 13 and now she has increased me to 150mcg and I will have my blood drawn on october 11 and I see her on october 14. she wants to get me down to 1 before we try again so I will keep you posted thanks so much for your blog.

        • Dana Trentini says:

          Kenya,

          Best wishes to you. My primary mission with Hypothyroid Mom was to give hypothyroid women who were trying to conceive the information they needed to protect their babies.

  34. I am so thankful that you have created this site and I can’t wait to read more. Over the weekend we found out we are pregnant and expecting our third. I am about 4 1/2 weeks. I called the doctors right away to get started on progesterone and zofran and to have my Thyroid levels checked. This is what I have had to do every time in order to have a successful pregnancy. My levels tend to double by 6 weeks and then I miscarry. I have lost four babies before I could finally get them to admit that my thyroid was the cause. I got the results back Monday night that my level was 31.8. Last time it was checked(7/2012) it was .0358 The message I got this am from my OB was that he was consulting an endocrinologist as to what I should do and I have heard nothing since. It is a miracle that I got pregnant (not planned but wanted) because in the past my levels have had to be in the normal range to even concieve. I thought the Dr. was going to run a full panel but he didn’t only TSH. I am on levothyroxine now. Should I just begin preparing myself for a miscarriage? Should I push for the full thyroid workup? Do I press to switch to a different medication? I have been fighting them since 2007 and I gave up for a year because I was so tired of fighting and being told that everything is fine. (I am now paying that price and my unborn child may pay that price as well.) I am just not sure what I need to advocate/push for right now. In addition to getting my thyroid levels balanced I am also going to look at making sure my liver is working correctly to get rid of toxins and build up and that my adrenal glands are working so that they can help get my body healthy again.

    • Dana Trentini says:

      Jennifer,

      Keep calling your doctor back over and over again until you hear from them. Your TSH at 31.8 is too high. The good thing is that you tested early in pregnancy that this can be corrected but your doctor has to move quickly to bring your TSH down below 2.5 as recommended by the American Thyroid Association for pregnancy. Bring a copy of the guidelines to your doctor right away. Email or fax it to them so they have the information they need to act.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■ RECOMMENDATION 13

      Treated hypothyroid patients (receiving LT4) who are newly pregnant should independently increase their dose of LT4 by ~25%–30% upon a missed menstrual cycle or positive home pregnancy test and notify their caregiver promptly. One means of accomplishing this adjustment is to increase LT4 from once daily dosing to a total of nine doses per week (29% increase).

      ■ RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

  35. hello every one i want to use this forum to thank HIGH PRIEST ASHRA for bringing joy into my marriage , i have been trying to get pregnant after my miscarriage 6years ago , but to no avail until i contacted HIGH PRIEST ASHRA of ashra spell temple and ashra made a cleanse and pregnancy spell for me , thanks to ashra am a proud mother of my baby boy and am expecting another baby very soon , you can contact ashra on email :ashraspelltemple@gmail.com or call +2348058176311
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  36. Hi lovely Dana I am still in shock , but yes all of us should nt stand at hypo should try and do every thing to reach to the target , I remember seeing an endocrin dr who tells me in the firest visit there is 10% infertility and it hurst me so much the fact he was harsh , but I am happy I came across ur web site and got the clue …..thanks sweety xoxo
    Happy mom
    Meme

  37. Hey .. thanks for the reply.. just pray for me.. i will follow this thnaks again..

  38. Dear Dana,
    I just read your article and it is completely eye opening for me. My RE told me last week that my thyroid felt big. I had never even considered that I might have a thyroid related problem. When I got home last night I rummaged through my medical papers and dug out my blood work results from October 2012. My TSH was 4.29, T3 2.4 and T4 1.0. My GP at that time didn’t even discuss these results with me, I’m assuming because they were technically in the “normal” range. I have been trying to conceive for the last year and no luck. I’m 33 and feel that time is running out. MY new RE sent me for blood work today and I should get the results back in a week. I’m pretty sure I know what the results will be though, I am slightly hypothyroid and this is why I’ve not been able to conceive. I am going to take a print out of your article to my follow up meeting in case my RE thinks my TSH/T3/T4 levels are within the “normal” range. Your article was inspiring. Thank you.

  39. Dear Dana,
    Everything I’ve read about thyroid issues during pregnancy is related to thyroid levels but not antibodies. Do Hashimoto’s patients also need to be concerned about antibodies levels during pregnancy (i.e. can high antibodies levels also trigger miscarriage even if thyroid levels are within the recommended range for each trimester)? And do I need to change the way I treat my Hashimoto’s (antibodies, not thyroid levels) during pregnancy? For example, is the recommended dosage of 200mcg of selenium possibly harmful during pregnancy? I had a hard time finding information about antibodies and although my thyroid levels are good (and regularly monitored) I want to make sure my high antibodies don’t reduce my odds for a healthy pregnancy and child. Thanks for your help!

    • Dana Trentini says:

      Hi Liz,

      Here is an article I wrote about thyroid antibodies and pregnancy.

      http://hypothyroidmom.com/hashimotos-disease-the-danger-of-thyroid-antibodies-and-pregnancy/

      I also wrote an article on this topic for Dr. Izabella Wentz’s site. I highly recommend you read her book which focuses on lifestyle changes to treat Hashimoto’s.

      http://www.thyroidpharmacist.com/1/post/2013/10/hashimotos-and-pregnancy-6-things-you-need-to-know.html

      As for selenium, there is research suggesting that supplement during pregnancy with selenium 200 mcg can reduce antibodies in pregnancy and reduce the risk of postpartum thyroiditis. However from all I’ve read researchers are still in the early stages with this topic and they all recommend larger studies to confirm. So to date I haven’t read any specific guidelines recommending selenium. I think this is a topic to discuss with your doctor and to even get a second medical opinion about it. My doctor kept me on the 200 mcg of selenium through my pregnancy based on her own findings with her patients.

      Here is an article on selenium by the “Office of Dietary Supplements”. Their section on Thyroid Disease included:

      “Women with thyroid peroxidase antibodies tend to develop hypothyroxinemia while they are pregnant and thyroid dysfunction and hypothyroidism after giving birth [9]. The authors of a Cochrane review of hypothyroidism interventions during pregnancy concluded, based on a trial that administered supplements containing 200 mcg selenium as selenomethionine daily to 151 pregnant women with thyroid peroxidase antibodies [63], that selenomethionine supplementation in this population is a promising strategy, especially for reducing postpartum thyroiditis [64]. However, the authors called for large randomized clinical trials to provide high-quality evidence of this effect.”

      http://ods.od.nih.gov/factsheets/Selenium-HealthProfessional/

  40. Hi Dana,
    I’m on 50mcg of Synthroid with a TSH of 2.8. We are TTC. Do you think I should consider having my dose increased to 75mcg? I still feel fatigue and nausea every now & again. Do you think upping the dose could put me at risk for becoming hyperthyroid?

    • Dana Trentini says:

      Hi Melissa,

      Please bring a copy of the American Thyroid Association guidelines for pregnancy that recommend a TSH of LESS THAN 2.5 for hypothyroid women trying to conceive.

      ■ RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

  41. Hello, just want to say thank you for writting this it really helped me a lot. To know that i was or nkt the only on. I had three misscarriges one in 2010 and 2 in 2012 i found out i had thryoid problems until my 2nd misscarriges will when i found out about my 3 pregnancy mydoctor was takinga of blood work but not for my tsh but for my hormone. And i miss carried again. After that i just didnt not want.to go back.to no.doctors for.anything i went in to depression. Will now it is 2013 and found out i am in back in oct.10/2013 made a ob appointment the that week i found out and made a thryoid appointment check my tsh now im no meds for it. Just thank you so i know know what.to ask my doc. To do. So far i been going well. And i go back.to test my tsh level again in jan.

  42. Shilpashree says:

    Hi Dana,
    Your story gives me more hope. I was diagnosed with hypothyroidism during 6 weeks of pregnancy, with TSH 160. i made up my mind to continue pregnancy with the help of a endocrinologist, i started my dose of 200mcg from 7th week. By 12th week TSH was back to normal 1.3. Now i’m 32 weeks pregnant and my TSH is been normal till now. i also do not have any hypothyroid related complications, the 22nd week ultrasound also showed everything was normal. But, im a little worried if being severely hypothyroid during first trimester would have affected my baby’s brain development in early stages. because of the fact that thyroid function is very crucial during 1st trimester. I’m just keeping fingers crossed and praying god that i have a complete normal baby with normal IQ levels.

    • Dana Trentini says:

      Hi Shilpashree, Congratulations on your pregnancy. So happy to hear your TSH was tested and treated by 6 weeks. The good news is that your high TSH was caught quickly in pregnancy. There is great hope that your baby will be healthy and strong. Prayers for you and your baby.

  43. Hi
    Last year I suffered a miscarriage and then I was diagnosed with hypothyroidism. My TSH was then at 15. I’m now 5 weeks pregnant and my recent tsh came back at 9.6, this goes up and down and the lowest it has been is 2.7 two months ago. About 30 mins after I eat I feel very sick and could eat again, is there a link between the thyroid function not working correctly and being pregnant? is this a dangerous sign my body is working overtime to cope with the pregnancy? Have an apt booked to see Endo next week.
    Any advice?

    • Dana Trentini says:

      Jodie, please call your doctor today and insist your TSH of 9.6 is not safe in pregnancy. Bring a copy of the American Thyroid Association guidelines that states the TSH in first trimester should be less than 2.5. Don’t wait.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      Yes I felt terribly ill during pregnancy and my TSH was high like yours and I miscarried. This same sick feeling came on me with the pregnancy with my second son but when my doctor increased my medication dosage to get my TSH below 2.5 that sickness went away. So listen to your body.

  44. Hi! I found out that I had hypothyroidism on October 17, 12 days after I ovulated. 6 days after that, October 23, I found out I was pregnant. 4 days after that, October 27, I miscarried :( Since my miscarriage I have had my levels tested and my thyroid is currently at a 1.3! (Yay!) I ovulated 9 days ago and am awaiting currently to see if we are pregnant. Any advice you can give me? I also have elevated antibodies which I am unsure of what that means? I am scared to death this time around and have an appointment to see an Endocrinologist on December 6. Is there anything I can be doing to help prevent a miscarriage this time??? Please help! Thanks!

  45. I wanted to thank you for this wonderful program. After years of trying to conceive and a failed IVF and a failed FET, I ordered your Pregnancy Miracle Herb @ lifecentre@live.com. According to my infertility doctor it was “very unlikely” that I could be pregnant with my own eggs. But here I am, pregnant for the first time in life. I got pregnant naturally just 2 months after my failed FET and after following your plan. I am now 7 month pregnant . I am spreading this miracle story to whomever I meet and who suffers from infertility. Kind regards and thank you, Priest Hallifat!”

    Martha Francis turkey

    • Dana Trentini says:

      Congratulations on your pregnancy Martha. I do not know the Pregnancy Miracle Herb. Perhaps you found this on your own. Just the same happy you found something that works for you. Best wishes to you and your baby.

  46. Hi Dana, I have not been officially diagnosed as “hypothyroid” but at my annual physical in April my TSH came back around 5.4. Had it retested, and it came back around 2.5. Had it tested two more times and one came back normal and one came back at 6.7. After the back and forth with my regular dr. i decided to go to an endocrinologist. He did extensive blood work and my numbers came back around 2.5 and he told me to get retested when i want to conceive. Now, 6 months later i just got blood work again and my levels came back at 3.1. He said this is within the normal range and if i did get pregnant it wouldn’t harm the baby but that he wants to retest me in 6 weeks. Do you agree 3.1 is safe for somebody who hasn’t been technically diagnosed as hypothyroid or should i not think about trying to conceive until it is lower? my fear is that i will go back in 6 weeks and the numbers will be between 2.5-3 and he won’t put me on medication and then i risk it shooting up when i get pregnant and in turn cause harm to the baby.

    • Dana Trentini says:

      Hi Allison,

      Please bring the American Thyroid Association guidelines for pregnancy to your doctors because your TSH should be less than 2.5 before trying to conceive.

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■ RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      Also because your TSH is fluctuating up and down like that be sure to have testing for thyroid antibodies for Hashimoto’s. There are two tests: Thyroid Peroxidase Antibodies and Thyroglobulin Antibodies. It is common in Hashimoto’s for TSH to swing up and down and result in hypothyroid and hyperthyroid symptoms.

      http://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/

  47. Wonderful advice, and great recommendations worth taking to heart.

    All that said, I just wanted to comment that, unfortunately, vigilance and finding the right doctor aren’t always going to be a cure-all. I was diagnosed with Hashimoto’s (TSH 55.38!) about 8 months into my attempts to conceive our first child. I threw myself into learning all that I could, reading everything Mary Shomon has written, and finding my own thyroid “top doc” hoping that the reward would be a lasting pregnancy and future motherhood. 4.5 years and 3 miscarriages later, the journey has been a lot bumpier than I ever imagined. I’m currently 11 weeks pregnant from our first IVF cycle, during which we used steriods and intralipids to address the Hashi’s-related immune attacks that likely doomed my earlier pregnancies. It finally appears that we will be getting our happy ending this June, but a well-managed thyroid is not always going to solve the infertility issues that an autoimmune disease like Hashi’s (or Graves) may cause.

    But, yes, with each of my pregnancies my TSH immediately shot up and I needed to adjust my meds. At 11 weeks, we are still tweaking dosages. But, a complete thyroid panel will be run every 4 weeks by my high-risk OB throughout the remainder of my pregnancy, so I know we are doing what we can. The early days of this pregnancy weren’t nearly as easy as it was impossible to get anyone to address my concerns with my thyroid — my fertility doctor wouldn’t touch me because I had a thyroid specialist (endo), my endo wouldn’t prescribe a higher dose of meds because he won’t treat pregnant patients, and, after years of infertility and several poorly managed miscarriages, I no longer had an OB. I ultimately had to tell my fertility specialist specifically what medication I wanted and in what dosage, he ordered me a month’s supply, I immediately got in with a new OB (having to cry over the phone with the receptionist to do so), and that OB will be treating my thyroid from this point forward.

    Thanks again for all the hard work you do on behalf of so many of us.

    • Dana Trentini says:

      Hi “Not When But If”,

      Congratulations on your pregnancy. So happy to hear this. You are right that there is more to fertility and pregnancy when it comes to autoimmune diseases like Hashimoto’s and Graves. So happy you have your miracle baby on the way. Enjoy.

  48. Hello…

    My Name is Sarah. I was born with hypothyroidism, and i was also born without a thyroid gland, literally. As a young adult, who is still single, and loves to take care of her health alot, through fitness, diet and every thing, I did wonder if I can get pregnant easily. Searching online about these topics and reading in articles that, “it is very hard for women who are diagnosed with hypothyroidism to get pregnant easily, they often have miscarriages,” I honestly got scared, is there anything I can do to prevent problems like these? I do take my Levothyroxine Sodium pills everyday. I have nothing like the symptoms of hypothyroidism, I am so very active, never weak, kind of normal periods, and everything normal. Any advice?

    • Dana Trentini says:

      Hi Sarah, Levothyroxine is the number one drug prescribed. Some people do great on these drugs. They contain T4 hormone only and our bodies are supposed to convert it to the active T3 hormone our bodies need however for many of us our bodies don’t convert it properly leaving us symptomatic on these drugs. Now for those people who have bodies that are doing the conversion well they do great on Levothyroxine drugs and feel well with few symptoms. Maybe you are one of those lucky people. The American Thyroid Association recommends that treated hypothyroid women have a THS less than 2.5 when trying to conceive. I know you’re not at the point in life to try to conceive but one thing you could do is check your lab results yourself. Thyroid advocate Mary Shomon offers this list of recommended tests and optimal ranges.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      https://www.facebook.com/photo.php?fbid=10151719609086481&set=a.382208591480.164472.377405846480&type=1

  49. Hi Dana,

    How often do you recommend getting your Tsh level checked in early pregnancy? And also, in later pregnancy? Once every 2 or 3 weeks?

    Thx!

    • Dana Trentini says:

      Hi Melissa,

      The American Thyroid Association has guidelines for pregnancy:

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■ RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      ■ RECOMMENDATION 16

      In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further LT4 dose adjustments are often required.

      ■ RECOMMENDATION 17

      In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation.

      While these guidelines are important it is equally important to listen to your body. Since the baby depends on mother for thyroid hormone in the first months of pregnancy our TSH can rise quickly in the early months to meet the demands. So in my case I went in at week 4 to get thyroid testing and my TSH jumped above 2.5 so my meds were increased. Literally less than 2 weeks later I felt sick and hypo symptoms and I called my doctor who rushed me in for repeat testing to find out I needed an even higher dose increase. Now you see if she had stuck to that 4 weeks recommendation I would have been waiting weeks with symptoms and a too high TSH. So listen to your body above all.

  50. Hi, I appreciate your article. I am a thyroid cancer survivor diagnosed at age 21. I have had years of Ups and downs as far as tsh levels go. It seems like I just can’t get it right. I was blessed with my miracle baby a few years ago. She just turned a healthy and happy 2 years old in December. Now her and my husband are both asking for a “brother”. I want more children so badly but being a registered nurse- I understand the facts. These last 2 years have been the hardest with my hormone levels with this past summer my tsh being greater than 100! (that’s as high as the machines read) after an adjustment in my medication a few months ago I was 0.038. I rarely have menstrual cycles and my doctors are as hand on as I would like. I am tired of living this life. I can not function. I have almost lost my job- I can not enjoy living, I’m stuck in a haze. But I am optimistic. I am going to get on track. And your article gives me reason to continue to fight. Its proof that it is possible. I will overcome this. Thank you.

  51. Hi Dana,

    Thank you for all of your information. Even if your TSH is in perfect range throughout the pregnancy, can a miscarriage still occur due to hypo? My TSH was 0.156 at conception (low). I had hyper symptoms before I knew I was pregnant (thumb twitching, palpitations, anxiety). I quickly corrected the TSH, I think it went up to 2.5 and then back down to 1.5 and stayed there. Unfortunately I had a missed miscarriage at 9.5 weeks. I found out a few days later through an Ultrasound. It has been devastating. I was so concerned about my blood sugars (I’m type 1 diabetic) I didn’t worry about my thyroid causing problems. I did have it checked every two weeks of course, but now I’m reading about antibodies attacking the fetus, etc, and I’m completely panicked that I won’t be able to carry to term. My sugars were also really good (glyco 6.1). I take levothyroxine 112’s. I tried armour in the past but it didn’t really do anything for me. My free T4 was in range but I didn’t get my free T3 checked (I’m going to ask for everything you suggested). I do produce antibodies. TPO 572 and TgAB 4.5. Any help would be appreciated. I’m in Chicago and work with an endo for my diabetes and thyroid. He is going to call my OB about putting me on a blood thinner for the first trimester of my next pregnancy. Not sure what that’s about. He is concerned about the thyroid and thinks it could have contributed to my miscarriage.

  52. Thanks for the article, it was a good read. I’ve just found out today that I have hypothyroidism and am not being tested for hashimoto’s. Hubby and I have been trying for a baby since June and I am now having second thoughts about even trying (we already have 3 gorgeous children with preeclampsia being my only pregnancy complication from my first pregnancy with my twins) . I don’t know what my levels were but I start the hormone tomorrow. I have had my thyroid tested in the past but this is the first time it was low.
    It is all a bit scary. I am going to talk to hubby and put off trying until I get my levels normal and talk to the dr about it.

  53. First I would like to say how happy I was to find this website! I was recently diagnosed with Hashimoto disease and I’m 18 weeks pregnant with twins. I have never been diagnosed with thyroid problems. I have 3 healthy children, never miscarried nor had fertility issues, that is until last year. I got pregnant by surprise, but embraced it and happy to be having a baby with my new husband. I miscarried at 11 weeks and was told their were no answers why. I barely got into the OB the same week I lost the baby, never had the opportunity to have blood drawn until it was already gone. My husband and I decided to try again for a year and if it didn’t happen we would accept it. Four months later I am pregnant, shortly after finding out I had a bleeding scare and went to the ER. They did an ultrasound and assured me the babies x2 were OK and I was not 4 weeks pregnant I was 11! How relieved I was that the first trimester was almost done and risk of miscarriage has signiftly dropped. A week after that I had another bleeding scare, this time it was a lot and started passing clots in ER. I thought it was happening again. They gave me another us and said the babies are OK. This time I was at a different hospital and they took blood, tested for a lot of things. I was told I have low thyroid and placenta previa. I was put on bed rest and advised to follow up with OB. Now 4 weeks after those findings, I just now am seeing the Endocrinologist. Stupid slow referral process. I am so scared of loosing these babies and have fears about the information I’ve been reading up on. I don’t want to borrow trouble but I feel I need to educate myself on this. The Dr gave me synthroid 25’s for a month, then I go back in 4 weeks to test again. I feel helpless. I’m trying very hard to take care of myself and these babies but I don’t know what if anything I can do. Any advice?

  54. I’m 18 weeks pregnant now, I have hypotiroidism and ever since I got pregnant I’ve been asking my doctor to check mi levels, every time a different doctor sees me, and they said I was fine because of the test results before pregnancy. This last visit (2weeks ago) finally they made me a test and the result was 75, the doctor change my dose and now I’m at 11 but I know the firs trimester I was bad, I’m just hoping and praying for a miracle with my baby.
    I read a lot and realize that the reason was that I was taking the pre-natal vitamins and levothyroxin together, and though I said that to the doctor she never said to me that I should take them separately. So now they can blame me, but is not excuse because every month I asked for a test and they refuse to do it, because “I was fine”
    I’m a mexican living in us, and I know that in mexico this couldn’t happen, at least not with my doctor, he was very careful.
    How can we know if the baby is affected for the doctor’s mistakes?
    What can we do if our baby has problems? Can we sue the doctors or the hospital?
    I want them to pay for their neglect if my baby is not ok.

  55. I love you guys !! i really love you !! i can’t stop my tears while saw this article and the comments !! i am a hypo for 5 yrs.. and almost lost the hope of getting pregnant !! i am from Bangladesh and there is not such a good dr. who can prescribe me the accurate treatment for my hypothyroidism!! after reading this article now i can hope for the future !! :)

  56. Courtney W. says:

    Getting pregnant doesn’t seem to be my problem, staying pregnant is a whole different story. After 3 miscarriages in less than a year, my husband and I are frustrated and heartbroken. In researching the possible causes of recurrent miscarriages, I found your website. When I was 23 I had a partial thyroidectomy. They have tested my thyroid levels ONCE since then (I’m currently 33), and stated they were on the very low end of normal, but they did not see a need for medication. My OB/GYN has referred me to a Reproductive Endocrinologist. Hopefully I will receive the proper care and we will finally realize our dream of starting a family together.

  57. Pranjali S says:

    Dana,

    Before I share anything I want to thank you for sharing your story here. I can only imagine how it must have been for you until after you realized you have hypothyroid. Mine was detected in 2010 and since then I have changed my PCP’s but have always had my thyroid checked. Currently I am taking a dosage of 75mg. I am 29 years old and thinking of having a baby next year. I had heard that having a baby coz of thyroid problems could be difficult. I started my research & luckily I came across your blog and I do feel a little relaxed now. Soon I will be visiting a gynecologist with my situation. Cause the earlier I go I can start with whatever treatment will be needed to prepare my body for a safe pregnancy. Thank You once again for sharing your life experience so that women like me can be more knowledgeable.

  58. I have hypothyroid for past 4-5 years. My thyroid level after marriage since three years is in the range 10-12. I am trying for a child but with this level I am unable to. Can you please suggest ways to get my thyroid to a level so that i can bear a child? I also have PCOD.

  59. Hi all–my first time reading up on thyroid levels, TSH, etc. My fertility doctor tested my TSH which came back at 3.63. He informed me that women trying to conceive or those who become pregnant need to have a TSH of 2.5 or below, otherwise risk mentally disabled babies.

    I am very against taking any sort of drug, especially through a pregnancy (we are attempting a frozen embryo transfer in a few months) but would never want to put a child at risk. Does anyone have insight on TSH levels and how I should approach this issue? I’m very conflicted…

  60. Hi Dana. I’m Lili from Brazil. I’m 35 years old and I have been trying to get pregnant since December of 2008. I went through two unsuccessful in-vitro fertilizations and in the first one I had hyper-stimulation of one of my ovaries. A very painful moment, physical and emotionally, maybe the most painful of my life.
    You can imagine the huge amount of health checks I did on the last 5 years including TSH varying from 2.68 to 3.88 and recently reaching 4.45. Somehow I need, and don’t ask me how, that I had a conception but the embryos never had a chance to survive under such circumstances. A couple of weeks ago, i was getting ready to implant the two frozen embryos from the last F.I.V attempt when my doctor realized 4.45 was too much and after 5 years I went to an endocrinologist to check me out.
    Today I was diagnosed with Hashimoto.
    I can tell it is a mix of a certain relief to know I have a chance to try and control it but at the same time it breaks my heart to know my potential babies never stood a chance to survive.
    I will start my treatment tomorrow. I will see the doctor again in 2 months and maybe then, I will know better what are my chances.
    Your blog gave me more hope that I actually had for the last 5 years and I know that somehow knowing about my conditions and how smart and fast I will need to act when I finally conceive will give them a chance to survive.
    Thanks for sharing your story and giving hope to others.

  61. Hi Dana,
    Your blog has opened my eyes and made me realize my doctors have not been proactive about testing my thyroid during pregnancy at all! I’m 31, with hypothyroidism since 2005, and I’ve already lost a baby last year, and twins at 9 weeks, this month. I’ve felt so heartbroken and helpless until I saw your blog. I’m supposed to see the Dr. In two weeks to follow up my d&c, I had this week, and I was wondering what to ask, and what to be tested for. My husband and I, don’t want to go through this again, and I’m hoping you, and the books you recommend, can give us some answers. Thank you so much.

  62. Kirsten says:

    Hi Dana,
    I came across your site while looking up hypothyroidism and wanted to thank you for all of the great info you provide. It’s been very informative.

    I’m a mother to a 17-month-old son who was conceived via IVF; my husband and I didn’t have any luck on getting pregnant naturally, and my thyroid was never checked. It was only when I switched doctors when my son was 1 year old that someone suggested my thyroid. I was diagnosed w/ subclinical hypothyroidism with symptoms presenting (I think my TSH was around 4.0) and prescribed synthroid, 75 mcg.

    Looking back on it, I’ve had symptoms of hypothyroidism since my teenage years. My cycle has always been a disaster – long and irregular with heavy cramps. I’ve been extremely sensitive to cold and fatigued, and over the past decade in particular, I had sunk into a mild depression. The infertility was icing on the cake, but neither my GP, my OB nor two Reproductive Endocrinologists suggested we test my thyroid function. In retrospect, I’m just fortunate that I was able to maintain my son’s pregnancy in spite of it.

    It’s been three weeks since I’ve started the synthroid – one more until I get my follow-up bloodwork – and I feel like a new person. My depression has faded like a light switch was turned on, and I’m not as ridiculously cold as I used to be. Fingers crossed that my TSH starts returning to a normal range so that I can go about future pregnancies naturally.

    The more I’ve learned about hypothyroidism, the more dumbfounded I am that my thyroid was never considered to be a source of my infertility and emotional struggles. Why aren’t more of us routinely tested for thyroid issues? Thanks for all of the great information you provide on your site.

  63. Thank you so much for your blog! we have been trying to conceive for a year and nothing has happen. My th is about a 4. I have been looking for the past six months on advise from actual thyroid woman who are trying to conceive. In all I think I need a new dr. And I have looked at Mary’s list?. Thank you so much, I no longer feel alone!

    • Dana Trentini says:

      Hi Lucia, all the best to you trying to conceive. As you see from my story miracle babies do happen for us. The American Thyroid Association recommends a TSH less than 2.5 for trying to conceive and the first trimester and 3.0 for the 2nd and 3rd trimesters. Mary Shomon has a great list of doctors. All the best to you in finding a good doctor.

  64. I also have the same issue wit my thyroid. I’ve been trying to conceive for a while. But we recently started on the treatments. I’m currently on my second cycle. and I was reading theis forum, and this gave me hope, and congrats.

    Can you please tell me what treatments you did to conceived.

    Thanks, I really appreciate your info.

  65. I also have the same issue wit my thyroid. I’ve been trying to conceive for a while. But we recently started on the treatments. I’m currently on my second cycle. and I was reading this forum, and this gave me hope, and congrats.

    Can you please tell me what treatments you did to conceived.

    Thanks, I really appreciate your info.

  66. hi.. my 6th month is runing. yesterday i had a ultrasound of my baby. and doc said that the month is open. he said not to worry. baby keeps continue to close and open their month during pregency. i just want to is this thing problamatic?? and how is the movement at this time? i also found that my tummy is also vibrating when baby is moving. i saw that vibrating.. is the right situation…?? plz help me..

  67. Deepa John says:

    Hi Dana,

    Thanks a lot for your wonderful blog. It helped a lot of women like me who are unaware of this condition.

    I learned it the hard way. I was having hypothyroid symptoms such as cold intolerance, depression, since i was a teenager. I lost my first baby due to low birth weight in 2011. I am from India and here the technology is not as advanced. No one diagnosed it as a thyroid issue. Everyone blamed me for not taking good care of myself and my unborn child.

    After i lost my child as per some one’s suggestion i got my thyroid tested and it came out normal. So no medication was prescribed to me. But the symptoms continued. After 6 months i tested again and it came out normal. I was scared to get pregnant again. Now after 3 years in 2014 i tested again, this time they did a scan of my thyroid and it came out as Hashimoto’s disease and i was prescribed a medicine called Thyronorm. After taking it my symptoms subsided a bit. I started sweating, my mood changed etc. But i am still skeptical about become pregnant again. Can you suggest how should i go about it?

    Thanks a lot!
    Deepa

  68. Hi Dana

    Thank you so much for your information and dedication to spreading the message. I am 13 weeks pregnant and today found out that I have hypothyroidism. Luckily my obstetrician suspected it may have been present and proactively put me on medication about five and a half weeks ago. He provided me with lots of information and said he wants my bloods taken every 4 weeks.

    Everything you have written confirms what he said to me today and has helped me come to terms with what I am facing. Thank you!

    Keep up the good work!

    Renee xx

  69. Anni Higgins says:

    I was diagnosed with hypothyroidism after the birth of my first child in 1995. My mother has it as
    well. She was born a month early & I had alot of complications including toxemia. My oldest son born in 2000 was born on time & healthy. After I had him I was diagnosed with pcos & told I would never have any more kids. In August of 2009 I found out 2 days before the birth of my third child that I was pregnant. She was a month early & stayed in the nicu for 3 weeks for acid reflux. My one in a million baby. In November of 2010 I had my fourth child my 2 in a million. Also finding out a few days before his birth. With the last 2 kids I had no prenatal care & not taking my meds right. Both of them have sensory issues

  70. Dear Dana, thank you so much for this site! I had a partial thyroidectomy/isthmusectomy in 2003 due to mult. Goiters (they left my parathyroids). I miscarried in 2006. I had no idea it was prob due to my thyroid, I didn’t have insurance at the time and wasn’t being monitored. Now at 36 yrs old I’ve been monitored for about 2 years on a regular basis and decided to try for a baby. I did everything I could to be proactive such as see Ob and endocrine docs for preconception consults, ask for regular tsh panels, prenatal vits. I am now 16 weeks and still pregnant! However, the reason for my post is, I noticed for quite some time that even though my blood is considered normal, I am still always exhausted, depressed, cold, constipated, moody, don’t sleep well, have anxiety attacks, etc. And this has been going on even BEFORE ttc. In fact, I’ve noticed a steady decline in my overall health and well being just in the past 2 years on synthroid. I was taken out of work do to severe fibromyalgia even before I conceived. While I was working, I would have brain fog and have to take a nap every lunch period in my car just to feel like I could half way function. I would leave work in tears from stress and pain. Now, after reading all the info regarding the synthroid I’ve been taking, I learned about bio identical replacements. I really feel I need to make a change ASAP because I need to prepare for the 3rd tri and baby’s birth. I’m not even enjoying this pregnancy at all due to issues I believe still stem from my thyroid. Last night I woke up in the middle of the night and cried which I’ve never done in my life, because I felt so hopeless and doomed to try to carry on with all my symptoms. I don’t even recognize who I am anymore. I cried to God for help because I don’t feel like I’m crazy or mental at all, just feel like my body isn’t coping well enough with anything. (My husband told me previous night I need mental help from the lack of energy, sluggish, not talkative, I don’t even care about my physical appearance anymore because it takes too much energy that I don’t have.) Today, I believe God led me to all of this info I’ve never been told before because my endocrinologist insists on synthroid only. Sorry so long, but my question is, can I switch to bovine desiccated capsules from synthroid during pregnancy? I really don’t think I can hold out any longer, and would love to be able to try it now so hopefully I can start to decorate nursery, make it through a shopping trip, etc and find joy in this pregnancy for once! It shocks me I wanted it so bad yet I feel like this. Breaks my heart. Side note, hubby and I have been in excessive arguments and I’ve been overall under a lot of stress since beginning of pregnancy due outside stressors that would normally be manageable but since this change in health that was magnified severely in 1st tri I had a terrible time coping. Even leading to severe cramps that really scared me and stressed me even more. So at this point I think I may have some adrenal exhaustion based on all thus brand new info that’s been shown today and my symptoms. Therefore, I’d also really like to order some adrenal supplementation along with the thyroid but I know since I’ll have no support in doing this from western medicine, I’d like to do it by faith alone and following the published guides on how to do so gradually and by also checking bbt plus going off how I feel of course. Can you please give me any input about switching replacement method in the middle of pregnancy? I’ll run out of synthroid soon it’s 100 mcg. My next lab draw appt is tomorrow 4/23/14 and next endocrinology f/u dr. Appt is the 30th. Next Ob appt is Thursday the 24th. I need to get myself and my life back ASAP. Thank you sooooo much, Melissa

  71. To my knowledge, I have never been tested for thyroid problems. But I am certainly going to do so now. This last weekend I just had my fifth pregnancy loss. My first pregnancy ended at 12 weeks (missed miscarriage). My second resulted in a healthy boy, however I did have a placental abruption during the pregnancy. My third resulted in a healthy girl, no problems. My fourth was a 20 week pregnancy loss. My fifth was a healthy baby boy, no problems with the pregnancy. My sixth was an 8 week pregnancy loss. My seventh was a 13 week pregnancy loss. And I just had a 16 week pregnancy loss with my eighth pregnancy. In all of the losses, they have not found anything wrong with either me or the baby in the testing that has been done. This time they tried Lovenox shots, just in case blood clotting was an issue. Obviously, it did not do the trick. I have also been on progesterone before, which likewise did not work for me. I have always wanted 4 kids, but after this loss had given up hope of ever having that last baby. Maybe it could be a thyroid issue and maybe there is still hope. I am going to bring this up with my Dr. when I have my postpartum checkup. My only question is, if my thyroid is the problem, would I have been able to have three full-term babies? I am desperate for answers as to why I keep having such late pregnancy losses. Thank you so much for posting this information. Something that makes me suspect that maybe this could be an answer for me is that during pregnancy I do suffer from extreme fatigue. I know this is common for many pregnancies, but the fatigue I feel seems to go beyond what is considered normal.

  72. Thyroid was removed about five years before I got pregnant this January. So I was pretty good on the Synthroid. However I just lost some weight before I got pregnant so I was on the lower dose then I quickly gained the weight back –so no testing during the first four weeks and then a test after the second four weeks told me I was low with my TSH about 7. Then I found out that I was there was a little tiny bit of calcium in my multivitamin I was taking sometimes a breakfast so when my doctor told me to take 7 1/2 pills a week I just took seven since he was assuming there was no Ca/Fe interfering with absorption. and I stopped taking the multivitamin in the morning. Now the second trimester is over and I’m still quite low and I’m concerned about the developmental problems in the baby because of having too low a dose during this crucial period for brain development. So I’m wondering/hoping that during the time I was hypothyroid maybe some of the Synthroid was going to the baby instead of me? Anybody heard of that? It would give me some hope.

  73. Hi,
    Thanks for all the information you’ve provided!
    I am really concerned, I am under the care of an RE as I’ve been ttc for 1 year. I have PCOS and am getting ready to start Clomid and Ovidrel in two weeks. My initial bloodwork showed my TSH level to be 3.67 and my RE says it’s fine. My T4 is 1.10.
    I am scared to start this journey with a thyroid level of 3.67.
    My RE is part of a top rated fertility center in the Washington DC area and don’t understand why he says my TSH is fine.
    What would you suggest I do?

  74. Hi
    I am 29yrs old and i had D&C 1yr in May2013 when i saw 9 weeks pregnant. my doctor says the pregnancy was not healthy and after the D&C they diagnosed the Hypothyroid in me from that time I am continuing hypothyronom 50 mcg and I trying to get pregnant but unfortunately not happening. I test my thyroid in Dec2013 it was normal but agin when i tested in april 2014 it was high tsh was 15. I am trying to conceive.
    now my doctor increased my dose i am taking 100mcg.
    my cycle is 30 days before D&N it was 28 days, but my periods is regular and I did ultrasound also to see how my egg is producing I did 3 time Jan 2014, MARCH 2 2014 AND APril 2014 all was ok.
    Is any one can tell me what to do.
    now I am thinking to do saliva test estrogen and progesterone test.

    plss tell me what to do and whats wrong.

  75. Amanda says:

    I have never had an issue with hypothyroidism before. I am now 24 weeks pregnant with my 3rd child and at 9 and 1/2 weeks they called and said my thyroid was a little low and that they were going to re test me when I go back on the 8th. Is it normal to get this while you’re pregnant and will it go away after I have the baby? I don’t have a family history of it and I’m 29 and never had an issue until this pregnancy.

  76. Hi Dana,

    My wife and I are based in Berlin, Germany. My wife is 8 weeks pregnant and was diagnosed Hypothyroidism by our GP with a TSH 12.1+ mIU/L almost at the same time (FYI, no TSH levels testing was ever made by our GP even though she gave birth to our first child 3 yrs. ago and was feeling weak ever since!). Other results show the following:
    ATPO_R: 267 IU∕ml (normal -34)
    TGAK_R: 849 IU∕ml (normal -115)
    FT4_R: 0.96

    Based on this our GP said that she might be suffering form Hashimoto.

    That said, her “Free T3″ was not even tested by our GP… She was prescribed L-Thyroxin Henning (50 micrograms) a day (we suspect that it might not be the right medication as it mostly deals with T4, which should be normal in her case…). We are now changing GP and are also seeing the endocrinologist in a couple of days. We want to push for more tests in order for my wife to get the right medication/dosage and bring the THS levels down to 2.5 mIU/L ASAP!
    Question 1: how long this process might take?
    Question 2: is the below what should be added on her list of regular check ups or is there more?
    Free T3
    Reverse T3
    P4
    hyroid Peroxidase Antibody – TPOAb
    Thyroglobulin Antibody – TgAb
    Thyroid Stimulating Hormone Receptor Antibody – TRAb

    Many thanks for the great work that you are doing for Hypothyroidism patients (and their families!) around the world.

    Mit freundlichen grüßen,
    Milan

  77. Great site! I have had hypothyroidism since I have been 29. I was able to get pregnant and carry to term a low-birth weight baby. I went through an induction due to the baby’s growth pattern. Now, we’re trying to get pg again. I mc’d in October and then again last month. Well, I went to get my thyroid tested (my dr. does the full panel) and what do you know? My thyroid is 2.8, which is higher than what Dr. would like to see (she wants to see 1 – 2). I’m almost positive that this is why I miscarried despite all that acupuncture. (This is my PCP and she was VERY attentive to my thyroid during my last pregnancy). Hopefully upping my meds will work. Do you know if the progesterone level rises naturally when the thyroid starts operating normally? Obviously I would need to ask my dr. to test my progesterone, too.

  78. krista campbell says:

    I was in remission with my hypothyroidism for 8 months and I got pregnant now 8weeks +4 and drs refused to check my thryroid so I begged midwife to check and it CE back my tsh is 4,7 and t4 10,2 now specialist has put me on 50mcg a day of levothyroxine but that’s it no further tests no further contact they said to me it won’t affect the baby but the baby’s CRL on my early scan was 5.0mm basically saying I’m only 6weeks is there anything I can do to get these drs to listen. Please help

  79. 4 months after giving birth, I found I was hyperthyroid and was referred to a endocrinologist. He diagnosed me as having post-partum thyroiditis which I would first see hyperthyroid which would transition into hypothyroidism then it would “normal out”. He also discovered I had Hashimodo’s antibodies and it was possible that I could become totally hypothyroid (which is what happened). I have been on synthroid for almost 2 years. After a blood test February 2013, I was told my TSH and T4 levels were within normal range and it was safe to try for another child (I had had blood work done a few week ago and all levels remain within normal range). We have been trying since 2/2013 and I have yet to conceive. IS there anything levels and/or areas I should be looking at?

  80. I am stunned reading your posts about hypothyroidism and pregnancy. I’ve been tested several times over the years for hypo due to having so many symptoms that mimic but have always been told my levels were normal. Instead I have been diagnosed with Fibromyalgia, PCOS, IBS, depression/anxiety, and narcolepsy. After the birth of my daughter (in NYC of all places, where I assumed I was getting the best care despite my daughter being born by c-section at 34 weeks) my health fell apart and I could barely function. To this day I’ve not been able to return to work though I am usually able to take care of the basics. Reading your posts has been shattering, though, especially in light of the miscarriage that I suffered at 12 weeks last November. I will never be the same and I haven’t been able to conceive since then. I’ve been to so many doctors but none have mentioned the possibility of thyroid being behind some (or maybe all?) of the s@*t I’ve struggled with and the child I lost. Sorry if this question is answered elsewhere but is it possible to have thyroid issues if your tests are normal and your thyroid is not enlarged? If so, I’m going to beat down the door of every one of my doctors (or find some new ones) until I get some answers. Thank you for putting this information and your story out there.

  81. I miscarried last week at 13 weeks and now I am fully believing it was due to my thyroid. I am hypothyroid and was diagnosed two years ago. At my 7 week blood testing the level came back at 8, they did no teem too concerned but increased my dose to 100 from 88. They never mentioned getting rechecked earlier than 8 weeks later, to give the increase a chance to work. I now realize they should have rechecked at 4 weeks. Very sad and angry that this might have been prevented if I had known, I trusted that the doctors knew what needed to be done, boy was I wrong.

    • I am really happy I found such great information. I have been following the suggestions as soon as I got pregnant. This led me to increase the dosage of synthroid I was taking right at the beginning of my pregnancy. I am now in the second trimester and just received my TSH lab results. I would like to be in the suggested range of 0.2-3.0 and my TSH was 0.99. Is this in the range? I just want to make sure that 0.99 is greater than 0.2. It confuses me a little and I want to make sure that 0.99 is not less than 0.1. Thank you.

  82. Angela Warren says:

    This has given me such hope. I went through an ectopic and just recently a miscarriage. My primary care physician is very non chalant about my thyroid. I am on highest dosage .325 and when I have gotten pregnant I would call ASAP to let them know and very non caring attitude saying come back in 3 months but by then I have lost the baby. I am about to buy that book and switch to a specialist.

  83. I am really happy I found such great information. I have been following the suggestions as soon as I got pregnant. This led me to increase the dosage of synthroid I was taking right at the beginning of my pregnancy. I am now in the second trimester and just received my TSH lab results. I would like to be in the suggested range of 0.2-3.0 and my TSH was 0.99. Is this in the range? I just want to make sure that 0.99 is greater than 0.2. It confuses me a little and I want to make sure that 0.99 is not less than 0.1. Thank you.

  84. MaryAnn says:

    Hi im 7 days delayed i tried the pregnancy test and it was negative. My son is 15yo now normal delivery and hoping to have another baby i was diagnosed hyperthyroidism last 2007 and since medicines are not working on me i went on RAI sept2013 now i am hypothyroidism and gained much weight im now 200pounds i tried exercising n walking n dancing but no improvement so i stopped. I have my tsh,t3,t4 testing monthly but sometimes it was not normal on may2014 it was normal so as per mu radiologist doctor i should took my test every 2mos coz im improving. Im now worried because im not sure if im pregnant now regularly i have my monthly period this is my first time to be delayed for 7days my husband and i are practicing withrawal and my doctor says it is possible im pregnant. Since 7days was negative he asked me to try after another week. I also have graves disease my left eye is swollen but much improved when i took the RAI and daily dosage of 100mcg thydin for my thyroid hormones. I just hope and pray that i can survive this and im pregnant because im now 38yo going to 39yo by november. hope to hear from your advice .. More power to you and to your family!

    • Hi MaryAnn, When you’re hoping to conceive I recall too those cycles when I was late and hoping so much I was pregnant. Your doctor can test you to see if you are pregnant. Prayers for you. What I do know is that there is hope to have beautiful healthy babies. I had my son at age 40.

  85. Hi everyone,

    I just found out that my TSH levels went in 2 weeks from 2.5 to 9.5 and in the meantime, just 10 days after the first blood test i was on dose 50 thyroxine, I had FET. I am so worried that there is no chance my embryo to have implanted.After the second blood test that came back as 9.5 I am on 100 dose. I am having my beta in 5 days. Do you think that i have chance to be pregnant with such a high TSH level, the T3 and T4 where in the normal range. Soo sooo worried. Somebody should have told me to test the TSH level 2 days before transfer. No I feel my only frozen embryo was wasted and i have to undergo another IVF Cycle again. By the way, I am 43 years old…

    • Biba, I’m hoping for you that your embryo did successfully implant. It is hard to say whether that sudden increase in TSH affected your embryo. While TSH less than 2.5 is recommended by the American Thyroid Association for hypothyroid women trying to conceive, I also know women who went on to have beautiful healthy babies despite TSH levels much higher than this.

  86. ,I am from india ,I am 29 yr old female married since 3 yrs.I got my whole body check in 2012 .at that time my TSH was 5.4,But at that time I was not aware abt anything particular dos and donts abt thyroid ,I got preg. in sep -2013 ,When I went to my gynac she told me to go for all antenatal test,In that we found my TSH was 22 and I was already preg.I started to take Electroxin 75mg .I lost my child in my 22 weeks,AS per doctor I lost my child because of Incompetent cervix.

    After 2 months of my lost I checked my thyroid TSH which is lower than normal ,I stopped thyroid pills and again checked it after 2.5 months now my TSh is 100 and I also checked Thyroid antibodies which is 1700 .Does i am suffering from hashiomoto?

    How Can my antibody level be reduced ,?Doctor I am very hopeful atleast you will answer me ,HEre I changed almost 3 doctrs but no one telling me anything .They just gave me same tablet (electroxin 75 mg) .

    What should I do ,I want to be preg but still i did not start planning because of this TSH.

    Should diet and exercise help me to reduce antibody ?

  87. Hi
    i was really luking fwd to talk to sum1 who is or was in same position as mine.. i got pregnant in 1st try only, nd after getting my blood tests done I came to know of Thyroid it was above high level at dat time… I went on 25 mg dose… After delivery my gynae didn’t suggested me to take thyroid medicine.. It was going normal den I found out dat I’d gained approx 7-8 kgs within 7-8 months of time… nd my periods also got irregular. I consulted wide my gynae nd she told me to get down thyroid check done…… It was 6.8..
    After which she told me to take medicine for d rest of my life…. since den i m taking 50 mg regularly… nd now it ranges in between 2.5 to 2.99..( within 3 months of time) now after 3 yrs of my first baby me nd my husband r planning for d 2nd baby … but after reading abt so much miscarriages and everything I m little bit depressed…… i m confused as wat shud I do nd how??? Plz help….

  88. Hi Dana, thanks for this post…

    I was only diagnosed with hypothyroidism last week. My husband and I have been trying for a baby for over a year now and decided to see a fertility specialist. They drew some blood and that’s when I found out. My TSH level is 4.3. Unfortunately, I have no figures for T4 or T3, but hopefully I will be able to speak to my GP about this next week when I go in for my appointment.

    One thing that is kind of worrying me is that my cycle is pretty standard. I don’t have lower than normal BBTs. I know when I ovulate and my period is generally on time. Is this normal for someone with hypothyroid? I am more tired and lethargic than I was as a teen, but I’m in my late 30’s so always put it down to age! Cold hands and feet, yep, but less so than a few years ago. Normal menstruation cycle etc etc… I’m just a little puzzled.

    Anyway, I’ll get to ask my GP these questions as well!

    I know I need to do some more reading… It’s all a little much right now!

    It’s nice to know that this disease shouldn’t prevent us from having a baby as long as I take the meds and follow the suggestions you’ve blogged about.

    Thanks!

  89. Hi,

    Thanks for this post… :)

    I was diagnosed with hypothyroid just last week. My husband and I have been trying for a baby for just over a year and finally decided to consult a fertility specialist. They took some blood and that’s when I was diagnosed. My mum had it too.

    The thing is, I don’t really have that many of the symptoms. I get cold hands and feet sometimes. I’m lethargic and tired a bit, but I thought that was more due to my age.. (I’m I’m my late 30’s). My cycle is normal. I know when I ovulate (both by mittelshmerz and OPKs) and my BBTs are in normal range. Definitely not on the low side. I’ve had a couple of annovulatory cycles recently, but if know that’s normal too.

    Is it normal to have regular ovulation and still have hypothyroidism?

    My TSH is 4.3, and I have no lab work for the free T3 and T4. But I am going to my GP next week so he should be able to get those results.

    Anyway, I just wanted to say thanks again for the post. I have so much reading to do!

  90. Hello My name is daniela and i have Hypothyroidism and im 21 and im in a relantionship with my boyfriend we have 1 year together and were planing to get pregnant maybe in 1 or 2 more years and i dont know where to start i have research Hypothyroidism pregnancy and i read that we can have misscarrage and its hard to get pregnant because we dont have to much hormones and and i havent never been pregnant i just need some advice :(

  91. My son was conceived and born way back in 1981 without any difficulty. I have no idea if my doctors ever checked me for thyroid problems. It was not a consideration that it could affect conception or pregnancy back then.
    After I lost 3 babies, each at around 6 weeks, my doctor suggested there was some type of problem and diagnosed me with endometriosis. I still have no idea if he ever did any thyroid testing. Eventually I was diagnosed as hypothyroid and placed on medication.
    By this time we had given up on a biological birth and adopted a gorgeous and seemingly healthy daughter. When she was 14 she developed Hashimoto’s and was promptly treated. That year of adjusting medications and finding a doctor who understood the importance of thyroid function was a nightmare.
    Thankfully, by the time she was married and ready for children her doctor knew what to do and how to treat her. She has two healthy boys. However, she developed rheumatoid arthritis and lupus after the birth of her first son. I’m not certain if there is any relationship between her thyroid disease and the other diagnoses. I should do some research on that subject.
    I’m grateful for the wisdom gained by doctors between the time of my miscarriages and my daughter’s pregnancies. Her outcome might have been totally different.

  92. Thanks so much for putting together this information and sharing your story. I recently had a miscarriage due to hypothyroidism and I’ve been feeling really lost… This was such a comfort to find!

  93. Hi Dana,
    I just wanted to say thank you. We have been trying to get pregnant for a year and a half now. I have struggled with my thyroid since I was a teenager, never satisfied with my health but trusting my doctors and not knowing what else to do. I suspected thyroid was an issue with fertility but found very little information in my research. I know the stress, struggling to conceive, not getting answers, feeling hopeless, was probably making these issues worse. And then I stumbled upon The Hashimoto’s Institute and your session on thyroid, pregnancy and fertility and your blog. Mind blowing. For the first time I feel like I know what is happening, that I have a plan and some power! I feel like I’ve been living in a cave for the last 20 years, how did I not know there was so much information available to people with my issues??? I ordered the Making Babies book and feel hopeful about our chances! Thank you so much for making this dream feel possible.

  94. Shannon Edds says:

    I was diagnosed as hypothyroid in April of 2013 after a TSH value of 6.1 and after the loss of our son who was stillborn in August of 2012. I was put on levothyroxine 25 mcg daily. We got pregnant in September of 2013 and I immediately had my HCG, progesterone and TSH checked as soon as I got a positive pregnancy test. All levels looked great except the TSH was slightly elevated to 3.8–I knew this was not good (even though the nurse who called me to tell me my results told me that was a “great” level). I told the nurse that “no, that level is NOT good” and immediately called my endocrinologist who immediately doubled my dose of levothyroxine to 50 mcg daily. However, at 8 weeks, I miscarried that baby. We got pregnant again in March of 2014 and miscarried at 5 weeks even though TSH levels were good (<2.0). We got pregnant a third time in August of 2014 and again miscarried at 5 weeks (TSH<2.0). We got pregnant a fourth time in September of 2014 and again miscarried at 5 weeks even though the TSH was still <2.0. So, we have had 4 miscarriages in the past year and all after I started on levothyroxine. We have 3 healthy boys (ages 10, 6 and 3) and I have never had these kind of problems. Is it possible that the levothyroxine is causing the miscarriages? Have had all kinds of labs drawn including Free T3 and 4. Just don't know what to do. I'm beginning to wonder what would happen if I just simply stopped the levothyroxine- would my thyroid eventually kick back in? I'm not totally convinced I'm truly hypothyroid–I've always thought there was a possibility of having post-partum thyroiditis since I was diagnosed after the loss of our fourth son. I had an ultrasound of my thyroid yesterday and the endocrinologist said it looks perfectly normal. Just don't know what to do. I feel like time is running out for me because I am 39 years old. Any suggestions or comments would be appreciated.

  95. chandeller says:

    My name is grace chnadeller i live in Chicago. i got married 11 years ago. After my first issue,a baby girl after the two years of marraige,I was told by my doctor that i wont be able to give birth again but thank God i meant dr.tamazaki through a friend who helped me with his herbs and roots and above all constant prayers. today i have another issue and my doctor confirmed to me that i can give birth again. All thanks to God and Prophet James. you can contact him on his e-mail or phone dr.tamazaki@gmail.com or +2348185277879

  96. Hi. I came across your page and had a question for you. I have hypothyroidism and I had finally got pregnant last year in September. It took us almost a year. At about 10 weeks I lost the baby. My doctor never told me to come get my levels checked so I kept taking my dose I had. I am now understanding that you need to get your levels checked often while pregnant. My question is, once you get a positive pregnancy test, when should you go in to get your levels checked. I just want to do everything right if I do get a positive once more. Thank you!

  97. Dana,
    Thank you so much for creating this site. I was diagnosed with Hypothyroidism when I was eight years old. I have been on synthroid for seventeen years. I rotate 150 and 175 mg every other day. I am seeing a lot of people say that someone with Hashimoto’s disease should not have a normal TSH level if they are trying to conceive. (Which is where most doctors accommodate your medicine to be.) Is this true? Should I ask my doctor about this?
    -Krystin

  98. Hi Dana,

    I just fo7nd out I was pregnant and immediately had my thyroid levels checked. 2 mos ago I switched to naturethyroid and now my tsh is 3.8, my ft4 is 0.89, and my ft3 is 3.3. I’m freaking out since my tsh has gone from less than 2 to 3.8 since I’ve switched! We weren’t trying to get pregnant bc of the tweaking in meds, b7t now I’m extremely nervous and I’m not sure if I should revert back to levothyroxin or get a higher dose of naturethyroid! Help!

    • Alaina, speak to your doctor because TSH can rise in pregnancy as the baby is dependent on the mother for thyroid hormone. It may be a need to adjust your dosage. I required an increase in dosage of thyroid medication multiple times through my pregnancy because my TSH kept rising.

  99. Hi Dana,

    I just fo7nd out I was pregnant and immediately had my thyroid levels checked. 2 mos ago I switched to naturethyroid and now my tsh is 3.8, my ft4 is 0.89, and my ft3 is 3.3. I’m freaking out since my tsh has gone from less than 2 to 3.8 since I’ve switched! We weren’t trying to get pregnant bc of the tweaking in meds, but now I’m extremely nervous and I’m not sure if I should revert back to levothyroxin or get a higher dose of naturethyroid! Help!

  100. Shannon E. says:

    I was diagnosed as hypothyroid in April of 2013 after a TSH value of 6.1 and after the loss of our son who was stillborn in August of 2012. I was put on levothyroxine 25 mcg daily. We got pregnant in September of 2013 and I immediately had my HCG, progesterone and TSH checked as soon as I got a positive pregnancy test. All levels looked great except the TSH was slightly elevated to 3.8–I knew this was not good (even though the nurse who called me to tell me my results told me that was a “great” level). I told the nurse that “no, that level is NOT good” and immediately called my endocrinologist who immediately doubled my dose of levothyroxine to 50 mcg daily. However, at 8 weeks, I miscarried that baby. We got pregnant again in March of 2014 and miscarried at 5 weeks even though TSH levels were good (<2.0). We got pregnant a third time in August of 2014 and again miscarried at 5 weeks (TSH<2.0). We got pregnant a fourth time in September of 2014 and again miscarried at 5 weeks even though the TSH was still <2.0. So, we have had 4 miscarriages in the past year and all after I started on levothyroxine. We have 3 healthy boys (ages 10, 6 and 3) and I have never had these kind of problems. Is it possible that the levothyroxine is causing the miscarriages? Have had all kinds of labs drawn including Free T3 and 4. Just don't know what to do. I'm beginning to wonder what would happen if I just simply stopped the levothyroxine- would my thyroid eventually kick back in? I'm not totally convinced I'm truly hypothyroid–I've always thought there was a possibility of having post-partum thyroiditis since I was diagnosed after the loss of our fourth son. I had an ultrasound of my thyroid yesterday and the endocrinologist said it looks perfectly normal. Just don't know what to do. I feel like time is running out for me because I am 39 years old. Any suggestions or comments would be appreciated.

  101. Hi,

    I have been taking Levothyroxine for two days because my TSH level was 2.8 during the past to months. I’ve been TTC for over a year without success. Is it better to wait until my levels go to 2.5 or lower before trying any fertility treatment this month?

  102. I am writing again after long time ,I finally had my baby boy born and thanks to god he is 6 month old ,,,without it support and help I would been lost ….recently I check my tsh and it 4.5 it was stable through out pregnancy and 2 month after I did not need to double the dose ,,,,but now of course I did bcuz I started to feel tired sleepy etc,,,is conceiving 2nd time will be as difficult as 1st time ,,,I am wondering ,,thank u Angel

    • Congratulations on your baby boy Angel. Postpartum with my second son was challenging for me as my thyroid levels fluctuated and required dosage changes several times. Be sure your thyroid is tested regularly.

  103. Chitra Arun says:

    Hi, Thanks for this wonderful post. I am in the same situation exactly yours.
    I was detected with hypothyroid after my first delivery. Not sure if I had it during my pregnancy because I was very tired all the time and mine was a premature delivery too.
    But my Gynae tested only after 6 months of delivery when I complained about tiredness.

    It was borderline where T4 was normal with elevated TSH upto 5. But i was not on any medication for two years and then started with a low dose of 25mcg until I had a second pregnancy which ended up in miscarriage.

    For the past three years, i am on medication and thanks to my endocrinologist who figured out the exact dosage I need and after two months of taking 75mcg, I am pregnant now for 3 weeks. Couldn’t wait until i miss my periods. Tested with the home pregnancy test kit and called up the DR immediately and tested for my thyroid levels.

    Just got a call from here that the results are okay(TSH ~0.74) and I can continue with the same dose and I don’t need to increase the dose. She has asked to test again after 6 weeks.

    But i am a bit worried. Should I ask her to test the thyroid levels in 4 weeks again instead of 6 weeks? Was i too impatient? I am not sure if I should have waited for another week to test and call her. Do anyone have comments? is this TSH level okay for the next 6 weeks?

    Any inputs is appreciated.
    Regards,
    Chithu

  104. Hi,

    I had my TSH levels at 3.5 (antobody- 87) about 2 months back, and I feel am 5wk pregnant (have some symptoms like dizziness, fatigue. My period was only for a day this month). But pregnancy test if showing negative, even the doctor said I might be pregnant due to these symptoms (which I never had earlier). Now my blood report came and my TSH levels are 12, even the antibodies have tripled since my last blood test. I read some reports where they say that TSH and AB levels increase during to pregnancy. I have my appointment with endocrinologist next week and I am not sure if I have serious thyroid problem or this could be due to pregnancy? I even fear taking anymore pregnancy tests as it might come negative.

  105. Dana Trentini says:

    Thank you Marc Ryan for including my post on your great site Hashimoto’s Healing. I am touched that you included Hypothyroid Mom!

  106. Hi Dana
    I told u I read sami’s book and took the vitamin supplement were mention in the book and surprise surprise I am pregnant ! At last …… I am over the moon … There is hope for all hypo ppl like me nothing impossible ….. So ladies read the book as advise by lovely Dana , and u get the hints and clue ……wish me best of luck
    At last I am smiling :)

  107. Dana Trentini says:

    WOW MEME WOW!! Congratulations. I will post your message on my Facebook page too to give hope to other readers. Feel free to visit.

    https://www.facebook.com/pages/Hypothyroid-Mom/147791352031167?ref=hl

  108. Hi,
    I cannot thank you enoughost for this site! You are absolutely doing God’s work by helping other women with hypothyroidism. I was diagnosed with it two and a half months ago along with low progesterone, B12 and vitamin d. My husband and I had been trying to conceive for a year. I just found out yesterday that I’m pregnant! Praise the Lord! I am terrified of miscarriage. Because of you I immediately had a full thyroid panel done along with hcg levels and progesterone. My progesterone and hcg levels were good. My tsh was a bit high at 4.5. My doctor told me to double my dosage starting tonight. I have two questions: 1. Is it dangerous to so quickly double thyroid dosage while very newly pregnant? 2. My doctor wants to check my hcg levels again on Monday, I asked him to recheck my progesterone. He said it wasn’t necessary and that the hcg levels are what is important. My gut is telling me to check the progesterone. What are your thoughts?
    Many thanks!!

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