Top 5 Reasons Doctors Fail To Diagnose Hypothyroidism

Top 5 Reasons Doctors Fail To Diagnose Hypothyroidism

The Thyroid Federation International estimates there are up to 300 million people worldwide suffering from thyroid dysfunction yet over half are presumed to be unaware of their condition. Hypothyroidism, an underactive thyroid, is one of the most undiagnosed, misdiagnosed, and unrecognized health problems in the world. It is an epidemic that is sweeping the globe yet doctors are failing to recognize and diagnose hypothyroidism. Hypothyroid patients are falling through the cracks of mainstream medicine, left to suffer debilitating and even life-threatening symptoms. What is going on?

1. Reliance on TSH

According to mainstream medicine, TSH (thyroid stimulating hormone) is the gold standard for the diagnosis and treatment of thyroid dysfunction. This hormone released by the pituitary gland in the brain stimulates the butterfly-shaped thyroid gland in our necks to produce thyroid hormones. Unfortunately TSH alone does not provide a complete picture. Most doctors typically don’t run a full thyroid blood panel nor do they investigate fully the patient’s medical history, symptoms, family history and thorough physical exam. They rely on this one blood test, TSH, leaving millions of people undiagnosed and suffering from debilitating symptoms.

Many patients complain to their doctors of common hypothyroid symptoms yet because their TSH falls in the ‘normal’ range, their thyroid is declared normal. Patients will walk into their doctors’ offices complaining of fatigue, weight gain, and depression, and their doctors will pass them prescriptions for sleeping pills and anti-depressants and tell them to just exercise more, instead of recognizing the underlying thyroid issue.

2. Outdated TSH Lab Ranges

TSH alone does not provide a complete picture. If doctors are going to rely on TSH alone, however, they should at least give consideration to the controversy over the TSH normal reference range and consider this when diagnosing patients. Mainstream medicine relies on a normal TSH range from 0.5 to 5.0 with variations depending on the laboratory. However thyroid advocates and many integrative physicians are fighting to narrow that range to close to 1.0.

Many traditional doctors rely strictly on the TSH range of 0.5 to 5.0 despite the patient’s obvious symptoms. Then, there are other doctors who will only diagnose hypothyroidism once TSH is above 10.0! WHAT? By then your symptoms can be so debilitating you are struggling to live through each day!

3. Failure To Do Full Thyroid Blood Testing

How can doctors diagnose and treat thyroid disorders without doing a full investigation? How can they hope to understand the complexity of their patient’s issue while relying on TSH alone or even a combination of TSH and T4? They are missing critical pieces of the puzzle. Patients are falling through the cracks left suffering debilitating symptoms all because of an outdated medical protocol.

When the pituitary gland in the brain releases TSH, TSH stimulates the butterfly-shaped thyroid gland at the base of our necks to produce the thyroid hormones T4 and T3. The majority of thyroid hormones produced by the thyroid are T4, however T3 is the most active useable form of thyroid hormone that can be used in the cells of the body. The conversion of T4 to T3 is a critical element in this puzzle. By testing TSH and T4 alone, doctors are assuming that our bodies are properly converting the T4 to active T3.

For many hypothyroid sufferers like me, our bodies don’t convert T4 to T3 properly. In the care of doctors who only tested for TSH and T4, my symptoms did not improve if anything they got worse. It wasn’t until I found a doctor open to full thyroid testing including Free T3 that my symptoms improved. She discovered that my Free T3 was low in the normal range (I personally feel my best when my Free T3 is in the top quarter of the normal range) and I was struggling. She was open to exploring the thyroid medication options to find what was right for me and that was a miracle for me. I’m now feeling fabulous despite hypothyroidism thanks to a combination of natural desiccated thyroid and compounded time-release T3. What a difference a simple change in my medication made for me. Thanks to a great thyroid doctor who knew to test my T3 levels, I got my life back. It should be about what works best for the patient, unfortunately in mainstream medicine this is often not the case.

Now to add to the complexity of this, there is a difference between Total T4 and Total T3 versus Free T4 and Free T3. Thyroid hormones are fat soluble and the blood is mostly water. In order for the fat-soluble thyroid hormones to travel through the blood, they need to be bound to protein that act as little taxis to carry the thyroid hormones through the blood vessels to cells all over the body. When they reach the cells, the protein needs to be cleaved off because only the unbound “free” hormones can actually enter the cells and perform their necessary functions. Therefore Free T4 and Free T3 levels are important. Since T3 is the most active useable form of thyroid hormone that can be used in the cells of the body, Free T3 is critically important. Unfortunately most mainstream doctors do NOT test for Free T3 levels. I’ve heard from many Hypothyroid Mom readers from around the world on my blog, Facebook and Twitter that their doctors refuse to test Free T3 and even though they are suffering terrible symptoms on T4-only thyroid treatment their doctors refuse to change their protocol. This is an absolute tragedy!

T4 must be converted into a usable form of T3 before the body can use it. In any given day some of the T4 is converted into a useless inactive form of T3, known as Reverse T3 (RT3). However in times of extreme stress, such as major emotional  or physical trauma, surgery, extreme dieting, chronic stress or chronic illness, the body will convert a larger than normal amount of T4 into this inactive Reverse T3. Your TSH and T4 scores may look ‘normal’ however the person suffers hypothyroid symptoms due to the high levels of reverse T3. Few mainstream doctors test for reverse T3, declaring a patient’s thyroid lab tests completely ‘normal’ all the while their patient suffers debilitating symptoms because their reverse T3 was not tested.

Hashimoto’s disease is an auto-immune disease where the body has turned on itself and attacks and destroys its own thyroid gland. It is a leading cause of hypothyroidism, yet mainstream medicine fails to test patients for thyroid antibodies. You can’t imagine how many followers here at Hypothyroid Mom have let me know after years of struggling with hypothyroidism they were finally diagnosed with Hashimoto’s after insisting on these two thyroid antibody tests – Thyroid Peroxidase Antibodies (TPOAb) and Thyroglobulin Antibodies (TgAb).

A full thyroid panel for hypothyroidism should at least include these 6 key thyroid lab tests:

TSH

Free T4

Free T3

Reverse T3

Thyroid Peroxidase Antibodies

Thyroglobulin Antibodies

The issue is that often times doctors do NOT run these 6 tests. If you find your doctor unwilling to run these tests, don’t hesitate to get multiple medical opinions until you find a doctor that helps.

4. Strict Reliance on “Normal” Lab Reference Ranges

One of the greatest errors doctors make in diagnosing hypothyroidism is basing decisions strictly on lab results. Conducting a full thyroid blood panel can at least provide a clearer view of the issues, however even this often does not tell the full picture.

These lab results, for example, do not test what happens to the thyroid hormones once they enter the cells of the body. Every cell of the body is dependent on thyroid hormones for proper functioning. There is no test that measures how well each cell is utilizing the thyroid hormone once it enters the cell. It is therefore possible for someone to have normal blood results but still be hypothyroid due to issues arising within the individual cells of the body.

Each of us is unique and our requirements for thyroid hormones and our reactions to imbalances are all unique. Different people can have different individual ranges ideal for them. A great thyroid doctor is one that treats the patient, not the lab results.

It’s important to get a copy of your lab results to check that all the recommended tests have been done and that your scores are “optimal” not just “normal”. There is a big difference.

7 essential hypothyroidism lab tests & optimal ranges

5. Failure to Recognize Warning Signs and Symptoms

The thyroid gland is the master control center for the metabolic functions of every single cell in our body. Every cell of our body requires thyroid hormones for proper functioning. Therefore hypothyroidism, low thyroid, has the power to disrupt every part of our body and to produce profound changes in every aspect of our health. Unfortunately hypothyroidism is not given the attention it requires by the medical community and is often overlooked and considered a minor condition not worthy of much attention. This disease is vastly misunderstood and disregarded in mainstream medicine.

A look at my post 300+ Hypothyroidism Symptoms…Yes REALLY will show you the severity of symptoms associated with hypothyroidism.

It takes time to do an extensive clinical history with a patient including symptoms, physical examination, medical history and family history, and many doctors don’t take the time. They hurry to rush you off and move on to their next patient.

Then there are those who have no clue at all that your 2 page list of symptoms that you brought to the doctor’s office has any connection to a low thyroid. They note the most obvious signs such as weight gain, depression, and high cholesterol. Instead of connecting them to the underlying issue hypothyroidism, they pass you prescriptions for anti-depressants and statins to lower your cholesterol and advise you to exercise more and eat less.

They fail to connect the dots between your family history of heart disease, auto-immune disease, diabetes, kidney disease, gall bladder disease, liver disease, cancer and/or Alzheimer’s. Many fail to realize these deadly diseases are potentially linked to hypothyroidism.

You walk into the doctor’s office with telltale physical signs of hypothyroidism, including swelling of your face especially the eyelids and below the eyes, obvious signs of fatigue, loss of the outer third of your eyebrows, dry thinning hair, pale dry skin, red irritated dry eyes, cold clammy hands and feet, brittle ridged nails, slowed reflexes, enlarged tongue, hoarseness of voice. Your doctor has no idea your physical symptoms are due to hypothyroidism. You are a walking talking poster child for hypothyroidism, but your doctor does not notice.

Somehow we are overlooked by mainstream medicine.

Perhaps our cries are not loud enough.

It is a tragedy.

READ NEXT: Which is the best thyroid medication?

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About Dana Trentini

Dana Trentini founded Hypothyroid Mom October 2012 in memory of the unborn baby she lost to hypothyroidism. This is for informational purposes only and should not be considered a substitute for consulting your physician regarding medical advice pertaining to your health. Hypothyroid Mom includes affiliate links including the Amazon Services LLC Associates Program.

Comments

  1. So I just happened upon this site. The decline of my health that really opened my eyes started back in 2015 after I had my son. I suffered from horrible postpartum depression and anxiety but other symptoms I had prior to getting pregnant began to get worse too. I’m ALWAYS exhausted, I tried shrugging it off and blaming it on being a full time stay at home mom to a 5yr old and 3yr old. But at some point something had to give. I have a terrible time trying to lose weight and it usually ends with me being more upset and quitting whatever regime I started. I had my daughter in 2017 and two days before she would’ve been 1 month old I had my gallbladder removed. Those are just scratching the surface of my issues. I’ve always known that at some point I would probably have thyroid issues because it runs in my family. My Mom, her mom and every single one of her 7 brothers and sisters all have thyroid problems and now I have cousins on the same side who have the same issues.

    Some of my symptoms include:

    Extreme Fatigue
    Recurring headaches/migraines
    Weight gain
    High cholesterol
    Vitamin D deficiency
    Gallstones that led to gallbladder removal
    Thinning hair
    Horrible brain fog
    Forgetfulness
    Numbness and tingling in my hands
    Numbness in my feet
    Dry skin
    Flaky skin
    Acne
    Thickening of my nails
    Constant sinus issues
    Floaters in my vision
    Light sensitivity
    Heat and cold intolerance
    Heartburn
    Itchy inner ears/excessive earwax
    Difficulty swallowing
    Feeling like a lump is in my throat
    Muscle weakness/fatigue
    Muscle soreness
    Difficulty breathing or catching a “good” breath
    Depression
    Anxiety
    Ovarian cysts that led to the removal of my right ovary and left Fallopian tube
    Painful periods
    Painful ovulation
    Short periods
    Then long periods after children
    Intense menstrual cramping
    Irritability
    Extreme clumsiness
    Frequent UTI’s
    Bruise easily
    Dizzy spells

    And honestly the list could go on. I read the 300+ symptoms and there were so many on there that I saw and instantly said “that’s me” but had no idea it could be from having thyroid issues. I’ve had mine tested maybe 2-3 times over the last 8 years and the numbers have gone down each time but are still in their “normal” range so they will not do anything and just tell me I need to lose weight, manage my cholesterol and vitamin D and take my anti depression meds. None of which have really helped at all. I’m at the point in my life where I NEED to be healthy and I’m so desperate to feel good again. I want to be able to do things with my kids without feeling overwhelmed or exhausted even by the thought of trying to play with them. I want my life back and I so wish I could find a Dr that actually cared and took my health seriously.

    Thank you for this blog post! I ordered one of the at home thyroid test kits and I’m hoping it will help me open my Dr’s eyes

    • Tara J. Schmidheini says

      Abby, you forgot to mention having sleep issues? I hate to say it, no coincidence I’m reading this at the same time you wrote it last month. I’ve never seen someone with my exact symptoms before. And you have a little one to take care of. It’s got to be Hashimotos with HIGHLY elevated peridoxise antibodies. You need a Dr. To test these antibodies Abby. I am 47 & have been dealing with this since my twenties, no diagnosis till ten years ago. Without God, I seriously wouldn’t have made it this far, you may still have a long road in front of you with finding the right medicine that treats these symptoms not just T3&t4 levels. There are alot of symptoms in your body that may need recovery. If I can help at all I would, I’ll definitely pray for you. Try finding me on Instagram if you want to connect. Tara Schmidheini. God bless you with peace & healing!

  2. Ive been on thyroid 1st it was 200 then 150 mgsfor years now. But i still have all the symptoms. I feel like im dying.

    • Caroline Karolewicz says

      Hi Cari, I just came upon your comment. Have you read the book Medical Medium Thyroid Healing by Anthony William? It covers all the thyroid conditions …great info on food related causes (dairy for me is a no-no), Epstein-Barr connection, etc…It’s worth a look, even if it helps you just a little…good luck!

  3. I’m new to all this but I have been feeling terrible, no energy, can’t sleep well, poor appetite, I’m cold and I keep losing weight slowly even though I do try to eat healthy, I’ve managed to lose 55lbs in a year and I’m not dieting. So my Dr ran some basic blood tests and it came back that my thyroid is low and I’m vitamin D deficient and I have a infection somewhere. I do notice that the glands on the sides of my throat are a little swollen? So she prescribed vitamin D2 and Levothyroxine 88mcg. Oh I forgot to mention I suffer from horrible migraines too!
    That’s all the Doc said to do was take the meds and I’d be fine but I still don’t feel well. Can anybody suggest what’s going on here?
    Any input would be appreciated!

    • Hi Sharee! I’m sorry you’re having such a rough time. I just wanted to comment on a couple things you mentioned, but first, please know that while I am a Registered Nurse, I am NOT a doctor, so what I say is just based on my own experience & knowledge. 🙂

      So, I’m curious about this infection you mentioned. And are you now taking antibiotics? Because, any kind of bacterial infection or virus is going to make you feel like garbage until it’s gone. Also, most strong antibiotics (hell, most antibiotics in general) can have rather nasty side effects, especially at first, and sometimes can have you feeling almost worst than why you’re taking them! But PLEASE(!!) finish ALL of them as prescribed! (Sorry, that’s just so important, and so many people stop taking their meds when they start to feel better, and that’s precisely how we get stronger and mutated super-bugs!) (And I’ll step off my soapbox now.. forgive my digression. Lol!)

      So, also, I know firsthand that a Vitamin D deficiency can cause increased depression, fatigue, and overall just feeling like crap! So hopefully your new supplements will start helping some, but it does take a little while for those to get in your system and make a difference. Just try to stay consistent with them, as much as possible.

      Lastly, I was wondering if your MD looked into your migraines at all? Like, have they done or suggested any further imaging tests? If not, and if they are a new, but persistent symptom for you, I’d consider asking your doc-just to be safe. For example, I have chronic migraines myself, and through the 1st few years of them starting, I had a couple of brain CTs, and an MRI of the brain—just to ensure there wasn’t a physical or structural cause. When those were clear, they were able to prescribe me a daily preventative med that really helps, as well as an ‘as-needed’ med for when/if they occur. I’m sure it all sounds like a lot, but these greatly help my quality of life, because without them I just cannot function. Migraines are the absolute worst imo, so I totally feel your pain!

      Anyway, I hope something I said may help? But even if not, I hope you, and all of us here, can get some answers, and I wish you, and all of us well and feeling better very soon!!

  4. I’ve wondered for some years now if I have a thyroid issue. I’m lacking energy, constipated, have very dry skin, my hair breaks and is thinning, my libido is nonexistent, I’m sensitive to cold, it’s very difficult for me to wake in the morning, etc. etc. I’ve taken my basal temperature a few days in a row, and it’s about 97.3. My doctor did the correct blood tests and declared them all normal, but after reading your post, I’m curious. For instance, my Free T3 is 3pg/mL, and you say the optimal is 3.7-4.2. Too, my Reverse T3 is 11, when you say it should be greater than 20. My TPO Antibodies were 14.8, when you say the optimal is less than 2. My other levels fell within the optimal ranges you listed (TSH = 1.46, Free T4 = 1.37, TG Antibodies = <10). But do the levels that fall outside of "optimal" point to something I should ask my doctor to look into? Thanks for any guidance!

  5. I’m so frustrated. I cannot sleep at all. Diagnosis hypothyroid and I’m on 75 mcg daily of Synthroid. Debilitating fatigue. T4 in normal reference range as is RT3. I’m barely functioning due to severe fatigue and insomnia. Now diagnosed with depression. Neg TPO. I’m at my wits end. I cannot even go for a daily walk

    • Tara J. Schmidheini says

      Marie, please get someone to test your peridoxise antibodies. Not that they’ll treat them, but than you’ll know it’s Hashimotos. Whether it is or not, you need to supplement to help heal the damage that’s been done, especially if your not sleeping well.( Like myself) 1:am) I’m praying you find a Dr to work with you. At least start with chelated magnesium 250 mg once a day twice the week before you menstrate. I wish you well Sweetie & I know God wants you we’ll . You’re strong enough to figure this out with God’s help.

  6. Anita Stoll says

    I suggest finding a reputable Endocrinologist to manage your thyroid NOT a GP. Secondly DO NOT use online labs. Results differ between laboratories due to variations in equipment used. Select one reputable laboratory and use that lab exclusively. Do not Dr shop either.

    • Thank you for your post. I was diagnosed with hypothyroidism three years ago and put on Levothyroxin 50MCG once a day. I was diagnosed at the same time with bipolar and put on Oxcarbazepine. I don’t think I have this. I believe there is something else going on. If the thyroid regulates your hormones, couldn’t I have been misdiagnosed? I believe so. I have asked to have my thyroid checked multiple times since then because I feel horrible. I have mentioned hashimoto’s & others but basically was laughed off. I don’t believe either of these meds are helping me. I can hardly walk anymore. My dr’s have run the “usual” tests and tell me I have Fibromyalgia but everything else is ok. But I’m not ok. I think dr’s say you have fibromyalgia because they don’t know what’s wrong with you. I have been suspecting an auto-immune disease for a couple of years. Dr’s run their basic tests with no results. Even though it is known that many of these types such as rheumatoid arthritis may not show up on a basic test. I have been asking all my dr’s what kind of dr to see. I got no answer. I’m told, your tests are fine you don’t need to see anyone else. I even had a Rheumatologist tell me not to come back! Thank you for informing me on what type of dr to see. Hopefully he/she will be able to figure out what IS wrong and be able to help me with the correct meds. Thank you 🙏

      • Tara J. Schmidheini says

        Joy, many people with Hashimotos are misdiagnosed with bipolar. I hate to hear of all you lovely young ladies suffering as I did for 40 years. Please get your peridoxise antibodies tested. You will be well & be able to manage, there IS light at the end of the tunnel. Be your own advocate, love yourself enough to pray and search for the right Dr .

  7. How does someone find a doctor who recognizes when symptoms might require additional tests?

  8. If anyone is tired of a Dr that won’t run blood tests,
    I urge you to pay for & run your own labs. Sites like Lab Tests Online, allow you to order labs & go to either Lab Corp or Quest. They email the results to you & you can have the power to fight for your life!

  9. Niki Kilian, you developed RA because you have an autoimmune disorder from a leaky gut. Due to a number of reasons. Antibiotics, stress eatting gluten which makes it worse. I was gluten sensitive 8 yrs ago and ignored it and said I am fine. Now I have Hashimoto disease and if I don’t follow a AIP diet to heal my gut lining it could get worse and the antibodies would just keep attacking my body and organs. Read Dr Amy Meyers books and her story. Find a chiropractor who specializes in autoimmune disorders or functional dr. They will help you with blood work etc… to see where you’re at.

  10. I have had all the signs and symptoms of thyroid issues but because my pcp says it’s normal I’m not convinced. I have a very low tsh level but t3 and t4 are on the higher end of normal. I have an enlarged thyroid and have had a thyroid scan. Which concluded multiple cysts. They say they are benign, which may be true but I feel they are covering these up with anxiety and depression meds. It doesn’t help for people to think it’s all in our head either. Our bodies tell us that something is wrong if Dr.s would just take time and listen.

    • Annita Beauchamp says

      Please, please have these “cysts” evaluated further. I’m not trying to alarm you but, my mother had thyroid “goiters” for more than ten years. She also had every symptom of thyroid disease imaginable. Her endocrinologist dismissed all of her complaints. Her PCP ordered ultrasounds regularly but, they only showed the increase/decrease in size. She was 69 years old when this began. Longevity runs in my family. My mother was very active, healthy, and proactive with her health. Three months ago she demanded a biopsy be performed. At the age of 80 she was diagnosed with Papillary Thyroid Cancer. Her endocrinologist has the audacity to say, Well, you are 80 and people can live a long time with this. PTC is very slow-growing.” A wonderful head/neck surgeon at Johns Hopkins, in Baltimore, Maryland, performed her surgery. The tumor had extended beyond the thyroid gland and grew underneath her collarbone. It had also spread to one lymph node. This “wait and see” attitude is costing people their quality of life and their lives. Please search until you find another doctor who will listen to you and do further testing. They have to order what you ask for. God bless you.

      • This really scares me, I was diagnosed with a multi-nodular goiter about 3 years ago. The goiter was found through a brief check-up with my gynecologist. Had an ultrasound, that’s when they discovered nodules, with one nodule biopsied. After that they decided to just “watch” it. I moved to another state and 3 years went by. For the past year, I have been miserable (very tired, foggy feeling, headaches, achy etc) but just pushing forward trying to make day by day. Finally got health insurance and decided to see an endocrinologist (that wasn’t so easy to do either) She ordered blood work and ultrasound. My first visit will be next week. I just got the results my ultrasound showed so many nodules all over thyroid, she only measured 7, with one measuring at 5cm. Blood test she ordered was NOT a full thyroid test order (I now know from the article I just read!) My TSH is 0.886 and FT4 is 0.88 which from research is normal? Every issue in the article I just read I HAVE, not every single day but MOST days. (The swelling of face and eyelids) I have very dry eyes, skin, hair, nails AND NO ENERGY at all, always fatigued. The worst of all is HEAT intolerance which I have not read anywhere. Weight gain when I have been dieting. I have very high heart rate which no one could figure out and 2 years ago unexplained edema. High blood pressure which is somewhat controlled with BP meds with a dietetic. I just think this is all due to my thyroid not functioning but it’s SO hard to find a GOOD doctor anymore that is not rushed and actually cares about their patients. My first visit to a new GP I saw told me I had to make a second appointment because all of symptoms were just to much and there isn’t enough time. She gave me a referral to see endocrinologist and sent me on my way. So frustrating. Sorry for the long reply.

        • Rosemarie Ganoe says

          My TSH jumped to 5.25 …doubled in the last 6 months…t3 and t4 within their normal ranges…but borderline. During that time I had a full old fashioned abdominal hysterectomy. My resting heart rate is almost double. I have all the other stated symptoms. I am now seeing a cardiologist.,.who has also ordered another Thyroid panel in addition to the echo…stress testing and 2 week heart monitor because he thinks I have more going on besides anxiety. Wish me luck. I will comeback and let you know how it goes

          • Niki Killian says

            I’m at the end of my rope, they have been testing me for hypothyroidism for 3 years now. I’ve also been diagnosed with RA, my sister & niece both have hypothyroidism which makes this all the more frustrating. My TSH has been all over the map, I insisted they run my Free T3; but they have never run the reverse T3, Total T3 or the Throglobuin Antibody (they will next week). My Free T3 is avg 2.7 which is low the other numbers are everywhere. I’m tired of being sick all the time, of falling asleep everywhere bc I can’t keep my eyes open. I live in New Orleans and I have heat intolerance which is made worse in the deep south. I’ve never liked summer but this is different. They did find a cyst on my thyroid which of course they say is nothing they are just watching it to see if it grows or shrinks. In the meantime my neck is always visibly swollen (I take tons of pics) to the point that I feel like I’m being choked. I’m so fed up because we have a shortage of specialty doctors here even though we have 2 prestigious university’s no one stays so switching doctors isn’t very easy and also doesn’t seem like it will make much of a difference. Just frustrated.

          • How are you doing mow?

  11. My doc did run a limited panel. Free T3 looks normal, TSH is low. T4 is low, reverse T3 and antibodies tests were not run. Yet I have most of the symptoms of hypothyroidism including low basal temp on waking. When I was feeling adventurous I tried taking lugols. I felt pumped up and my throat swelled. IMO, I have Hashimoto’s. Any thoughts?

  12. I have been battling Hypothyroidsm for quite some time. Currently my TSH is 78 t4 1000
    Had a right thyroidectomy and now my left thyroid is enlarged to 7×2.8×5
    Having severe cardiac palpitations that my apple watch keeps alerting me. Drs put me on Armor 2 grains.
    I’m scared already had a Cardiac event 2 years ago.
    Had a fna was inconclusive with follicular neoplasms had an ultrasound after. Radiologist did not specify. Now need a IV Iodine CT scan.
    Need to find a Dr in the Schaumburg IL area. My thyroid has stolen my life and continues to do so.
    Trying so hard to learn but the brain fog causes so much confidence then the doctors they do not know what’s going on either. Feel like I’m in a circus show.

  13. Diane Pankonin says

    Thank you so much. I have ALL the symptoms. MyDr. took the blood test and pronounced all was fine, that was over a year ago and it has only progressed NOW I WILL FIGHT FOR THE HELP I NEED!

  14. Lavonda Grammer says

    Do you know of a Dr. in the Central part of Alabama that will complete this service

    • Kay Klimczak says

      I’ve just started my quest for diagnosing my symptoms. Initial lab work said “all is well”. Nothing has changed. I need help.
      I live in Angoon Alaska bear Juneau . Can you direct me to a doctor here ??

  15. I have been hypothyroid since the age of 12, I was given iodine for thyroid . She ne then all doctors have put me on and off snythroid. Every time I have gained weigh and had depression. I was put it on Cytomel 50 mg 3 times a day and felt great for years(22years). I game down with AFib at 62 and had a pacemaker and ablation . Just found out I have mild sleep apenea and breast cancer. My new thyroid doctor wants to put me on snythroid because I show hyperthyroidism due to Cytomel. In he last 2 years I have gained 30 pounds since being on Amour and now snythroid. HELP

  16. Tina Kelley says

    I am sinking fast. I can’t find a doctor that will stop telling me everything is normal, yet I am falling apart. Does anyone know if there is a doctor in Central Pa and Md area that will help me, please?

    • This happened to me too. So frustrating! Spent so many wasted hours on money on docs that just didn’t get it and didn’t pay attention to my debilitating symptoms. Seems most “Western” docs – including most Endocrinologists- do not understand how to treat someone for thyroid issues if their labs are “normal”. You will soon learn (I hope) that there is “optimal” and it will make a big difference. You will have to educate yourself and become your own advocate. Check out https://www.facebook.com/groups/AdrenalFatigueandThyroidCare/?ref=share
      Hopefully you can find a doctor that gets it. Try looking here for a functional MD (who can prescribe). Good luck!
      https://www.ifm.org/find-a-practitioner/

    • Hi. This was me, too! I thought I just wrote a long but helpful reply, but I don’t see it posted. Ugh. Will quickly post two resources here and will check back tomorrow to see if my original reply appears.
      Check out: https://www.ifm.org/find-a-practitioner/
      To find a functional MD. That’s your best bet when labs are “normal” but not optimal.
      Also check out stop the thyroid madness book and website anc FB group for tons of good info and advice.
      Good luck!

    • Ernestine Ross says

      The Doctors in PA only prescribe the generic drug Leverthroxine. I had to move to Florida to be placed on Armour Thyroid. Lost 50 lbs in 6 months. In addition, there is another drug you might try: Naturethyroid. Both drugs are out of pocket, but are worth it. Always try to take the real drugs, not generics if you can. Insist on it! Good Luck

    • Same here and same area. Let’s work on it.

    • Tina
      Same here. Same area.

  17. Hi, does anyone know of a great endocrinologist near the Fort Lauderdale/Miami area? Or where can I get help with my search?

    • CARRIE CINTRON says

      Hello,

      Did you ever find someone? I’m in ft Lauderdale and cant find anyone that will even answer the phone let alone call back?

      • Ernestine Ross says

        Palm Beach Diabetes & Endocrine Specialists.
        550 Heritage Drive
        Jupiter, Florida
        Dr. Pepper
        They have several locations. Go on line to find the telephone Number.

      • Ernestine Ross says

        Palm Beach Diabetes & Endocrine Specialists, P.A.
        550 Heritage Drive, Suite #150
        Jupiter, Florida
        Dr. Pepper
        They have several locations. The phone number is on line

  18. Amelia F Dennison says

    I have all the sign of hypothyroidism.. Im freezing 110% of the time,Ive lost 75% of my hair,gaining weight for no reason, extremely tired all the time,major moodiness, constipation,brittle nails,my eyes get extremely sore by the middle of the day, plus I have also suffered 4 misscarriages in the past. I also and the hardest one to deal with is the lower extremity swelling. I went to my doctor for my annual physical and ask her to do blood work and I just got the results today and she said it came back normal wondering if there’s a chance she could have missed something

  19. My doctor did a T3 test it came back as hypothyroid then did a T4 and it came back normal. He wanst to wait 3 months and repeat. However I have all the signs hair loss, extreme dry skin, weight gain. I dont know if its related but now am experiencing sudden leg weakness to the point they are trying to give out under me and I have to sit down.

  20. Help, I am showing all the signs of hypothyroidism, but Doctor said my test are fine. Does anyone know of a really good endrochronologist in the Denver, CO area?

  21. Toni Zarzynski says

    Would like to know if anyone knows of good endocrinologist in Milwaukee Wis area??? My present MD on my last check up said only TSH is proven to be needed for thyroid test!! I have hosimoto! My initial TSH 10 yrs ago was 12. I now run 2.5 but not up to par. I’m 65 yrs old.

    • Diane Smith says

      Have you gotten a replay to your question of a good endocrinologist in Milwaukee area? I live in the general area also and would like to find a good doctor. I go to a family dr. now and am also only tested for TSH and have been on levothyroxine for many years and have extreme hair loss. Please let me know if you found someone. Thanks!

  22. Deana Barker says

    I have a question. I had total thyroidectomy in 2009. What thyroid tests should I have done. Is it different with no thyroid? I mostly have my Dr just do TSH and Free T4. Ive only had the T3 done once and dont remember what it was. Here lately my Dr is just doing the TSH😞.

  23. Suzanne Papa says

    My daughter has had symptoms of a thyroid issue for years. She has had abnormal uterine bleeding since age 10. They keep putting her on different birth control pills. She also has anxiety and now depression.
    Past month and in the past she has been breathless. Slow reaction times, sensitivity to heat and mostly cold. She’s always cold but she always feels clammy and warm. She is also very anxious and in distress. She seems to be very agitated when she gets anxious. Sometime she can talk very fast and other times very very slow. She bleeds almost Every single day. But all they do is keep throwing different antidepressants and anti-anxiety meds and telling her that she really needs to go into a psych hospital. Because all of her symptoms are psycho somatic. I’ve never seen her like that she was actually afraid to leave her bedroom today. She didn’t want to go to school. She’s the type of kid who is actually going to be able to graduate at the end of her junior year at age 16 because that’s how smart she is. But now she’s getting 60s and 70s on test that she normally gets one hundreds on.
    Every single day. But all they do is keep throwing different antidepressants and anti-anxiety meds and telling her that she really needs to go into a psych hospital. Because all of her symptoms are psycho somatic. I’ve never seen her like that she was actually afraid to leave her bedroom today. She didn’t want to go to school. She’s the type of kid who is actually going to be able to graduate at the end of her junior year at age 16 because that’s how smart she is. But now she’s getting 60s and 70s on test that she normally gets one hundreds on. She is starting to lose her friends because she can’t function. I’m extremely worried about her but I cannot find anybody that is willing to even consider that she has a thyroid issue because her TSH test was normal. But that’s the only test they did and no one will order another one. They said they want to see her in the office again. Well she’s got three doctors appointments next week including one with her therapist and one with her psychiatrist and her eye doctor because her contacts are no longer working because her eyes feel funny. And my sister is also in the hospital with cancer. She she is starting to lose her friends because she can’t function. I’m extremely worried about her but I cannot find anybody that is willing to even consider that she has a thyroid issue because her TSH test was normal. But that’s the only test they did and no one will order another one. They said they want to see her in the office again. Well she’s got three doctors appointments next week including one with her therapist and one with her psychiatrist and her eye doctor because her contacts are no longer working because her eyes feel funny. And my sister is also in the hospital with cancer. She had surgery on Monday and we are still awaiting the pathology results. This is just not a good time to schedule 1 million appointments in a week. Where they won’t change what they’re going to do anyway. I don’t know what to do. If I take her to the ER the writer office being an anxious kid. Where she’s just struggling. She struggling for air sometimes it seems.. When she coughs whenever she gets upset because she feels like she always has a lump in her throat. She is becoming more and more fearful by the day and I’m afraid that they are going to put her into a psychiatric hospital because she’s in obvious distress but they don’t think it’s a medical issue. I really do believe it is. And so does her psychiatrist. She’s been on seven different anti-anxiety medications and antidepressants and none of them have worked. She gets is the horrible side effects from them. And the reason they’re not working is because there’s a medical issue going on but the doctors are just not willing to explore. Whatever happened to diagnostic medicine. It just seems like they don’t care. I’m so done with this. I’m actually scared for her after reading some of the stuff that I’ve read over the last couple days. And I have a minor in biology. So I can understand the medical terminology to a point.
    But it’s still confusing to me. Mostly because I’m very sleepless. I’m up with her a lot to try and keep her calm. They put her on Xanax and that’s not even touching her agitation. All it does is make her more foggy. She is extremely dizzy all of the time and this was before she was put on Xanax. She feels weak and her reactions are slowed. But this week she gained 5 pounds for no reason at all. I just don’t know what to do anymore. Your article was very enlightening. But I know no doctor is going to take anything I say seriously. The doctor is it actually begin or begun to threaten me that if I don’t put her on an antipsychotic that they will no longer see her as a patient Paternal grandmother had thyroid cancer. My own dad had brain cancer. My sister at 42 years old has and endocrineal carcinoma. And my sister is the poster child of how not to get cancer. Three of my grandparents have also died of cancer. As well as four of my dad’s brothers. I believe that doctors have their heads in the sand and I really cannot believe the reaction that I’m getting from them. Thank you for listening.

    • I’m so sorry to read all of this and wish the best to your family- has anyone checked your daughter for Diabetes?????

    • My irregular bleeding was always connected to my thyroid! I had thyroid cancer when I was 28. It wasn’t supposed to rerun but it did when I was 33. I have a dr that says the only medicine for a cancer patient is Synthroid. With my medicine and labs “normal” I still have negative symptoms. But one thing I can say is that every time my meds were to low and had to be adjusted is when I would bleed heavily or for weeks at a time. Dr. Never told me that was connected but for me it was every time. OBGYN didn’t make the connection either. As soon as meds were “ok” again my bleeding would be back to normal. Good luck!

    • I have a similar story myself. Does she have problems sleeping?

    • Constance Adams says

      I’m looking for answers too, and you’re right: reading your daughter’s symptoms, they most certainly match every symptom that hypothyroidmom.com details. Don’t give up. Don’t let anyone tell you you’re wrong. Doctors are taught to “Listen to the mother” because mom’s notice things that go wrong. You are your daughter’s best patient advocate and your daughter needs your help. Find an “integrative” or “functional” doctor to order the six thyroid tests and hang on tight to your little girl. If the doctor won’t listen, call another. Sometimes women physicians listen better to women patients. Keep asking…Praying for you both.

  24. I am 9 months out from having a total thyroidectomy due to Graves’ disease. I was originally diagnosed 12 years ago and have had 4 bouts of hyperactive thyroid in the last 12 years and each time I have been able to treat it with ATD’s. This last bout the methimazole was not working at all even on very high doses so my endocrinologist suggested either RAI or surgery. After the consultation we decided surgery was the best route and I recovered quick and felt so much better just a few days later. However as soon as my levels began creeping into hypo I felt horrid and was always freezing. I have been in every 6 weeks with blood draws trying to figure out the best dosing. This last time my Total T3 was 100ng/dL and free T4 was .95ng/dL and tsh is .005. I’m a little frustrated because my endo turned my care over to a PA and I don’t think she knows what to do. Because my tsh is still so suppressed she said she believes I’m being over medicated and dropped me from 112mg Levothyroxine to 107mg because my other labs are technically within normal limits. I’m wondering where this information came of the optimal levels you have posted. When I first had my consult post surgery the endocrinologist said he would keep my levels within the upper normal range. But I feel like they are too worried about my tsh and not the other numbers. Should I ask for a RT3 to be drawn or is that included in the total T3? I also asked about possibly trying NDT’s and she pretty much shut that idea down saying they don’t really prescribe those in their clinic, which I can’t figure out why not? I’ve tried calling and asking to see the dr instead of the PA because I frankly think she doesn’t know what she is doing, but the office won’t let me. What would you do? Should I change dr’s? Should I demand to try a NDT? Should I get other labs? I had my antibodies tested prior to surgery and they were super elevated as expected with graves but have not had them tested since. I’m just at a loss for what to do as I’m still a bit tired and I’m confused why they are dropping my medication levels each time. I feel like she’s solely focusing on my TSH levels and not the whole picture. Let me know what you think I should do! Thanks so much!

  25. DONNA BECK says

    Thank God for this site and others like it.Whether hypo or hyperthyroidism it is critical to get it in check,and functioning at it’s best levels.NOTE: I read an article that if there was a catastrophic loss of blood …to the body, like hemorrhages where considerable blood loss is present. When blood pressure drops because of hemorrhage…the petuitory gland suited in our brains( also secretes chemicals that are important ,to be further turned into essential chemicals to run the body.)That gland is sometimes damaged as a result of drop of blood volume and pressure.With damage to it comes a lack of secreted chemicals that the thyroid needs in (total) with other secreting sources of thyroid helping secretions. I had such a serious hemorrhage in child birth…which may effect me in the long run…something which I did not know till now…Aug. 22nd. 2018. I’m delantzy.

  26. Based on your 300+ symptoms of hypothyroidism, I have 89(ish). I have had these symptoms for over 2 years, and despite multiple visits to the doctor, I have had no one seeming concerned about them or connecting the dots on what it could be. My family has history of autoimmune disease, and now reading more about getting a FULL PANEL thyroid test done, I’m convinced that this is where my issues are stemming from. I have gained 50+ lbs in 2 years, and any exercise I do exhausts me rather than energizes me. I have lost weight in the past, it was NEVER this difficult, and in fact I continue to gain! My neck pain and tension increasingly gets worse, despite the physical therapy I have done and the regular stretches I do. I’m originally from the Midwest and moved to Phoenix, and everyone pokes fun when I complain about being cold. I have NO sex drive. None. I have plantar fasciitis and carpal tunnel-like symptoms that have never gone away despite adding arches into my shoes and wearing braces on my wrist. I could go on and on with everything I’m experiencing, but the most frustrating thing is that my doctor focuses on the fact I have a history of depression, and that “must be the reason for my weight gain.” She recommended a healthier diet and more exercise. Excuse me, my diet is healthier than most people I know, and exercise has never been a problem for me in the past.

    To sum up my frustration, I finally requested a full panel thyroid test including antibodies, and am waiting to find out if they are going to approve it. If not, I’m looking for a new doctor, and I hope I’m able to put my mind at ease after all this time. I’m exhausted and drained from many doctor visits with no real help! So thank you, THANK YOU, for all of this so I can finally push for something!

    • Update: I am ever so thankful I did more research and requested a full panel test. My lab results came back positive for thyroid antibodies and had abnormal reverse T3. Doc isn’t sure what treatment to get when regular thyroid function is normal, so will be seeing an endo next. I am not crazy!!

    • Hi. I knotgrass feeling about doctors. I’m exhausted not only from being not well but trying to find a doctor who can help. It’s been 7 years of tryto seek help and still haven’t. I don’t understand it. Why can’t a doctor run a simple blood test to be sure it’s complete. I am tired of the medical system simply treating me like I have nonexistent problems. I’ve gained 70 pounds. My hands and face are swollen. I have had heart problems. Stomach problems. Extreme fatigue to the point of unconscious. And It appears to me I need to order my own labs.

  27. Tiredofbeingtired says

    After having my son, 5 years ago and my daughter 4 years ago I’ve been dealing with such a fatigue that no doctor is willing to help. Nobody understands in my family of how I’m feeling. Every Dr I go to says, “Oh it’s because you’re a mom and your just stressed and need to exercise and rest.” My sister has Rheumatoid Arthritis and the only one in my family that has an autoimmune disease that we know of. I’m 25 years old and even when I get a full 8hrs of sleep less or more I can barely get out of bed to be a mom and a wife. I feel so trapped in my own body, it’s depressing. I got my blood work done for the fatigue and I have had 2 lumps in my neck on the right side of my neck for over 2 years and still no answers. When I got my resultant back my TSH was at 1.910 only test they did for that. Dr advised that my vitamin D was extremely low and needed high dose treatment. Well did that and I’m still fatigue, I work in a call center and I’m constantly forgetting things and affecting my job. I have no sex drive, ALWAYS cold, can’t grow out my eyebrows so have to pencil them in. I’ve been going wait and going to my tummy only. I really just need help, I have a drs appt next thurs and really need to have answers. It took my sister over 4 years to be diagnosed with RA and I just need to have peace of mind that Something is truly not right with my body.

    • I felt the same as you after the birth of my sons. Pregnancy and postpartum can throw thyroid health for a loop. Given your sister has RA, it is important your lab testing includes full thyroid testing beyond TSH including thyroid antibodies for Hashimoto’s. When you have one autoimmune disease you are vulnerable to develop others and heredity can play a role. Here is an article that I wrote about Hashimoto’s at Hypothyroid Mom. Also I’ll attach a list of resources to help you locate an open-minded thyroid doctor for a second opinion including checking your lumps in your neck.

      https://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/

      https://hypothyroidmom.com/30-online-resources-to-find-a-good-thyroid-doctor/

    • Tiredofbeingtired says

      *Update*
      I went to the drs a couple of weeks ago and I had to demand for a thyroid panel and he did a mono and ck test as well. Everything came back normal but he wants me to see an oncologist for the 2 swollen lymph nodes I’ve had for over 2 years. When I tried making an appt with an oncologist they denied me and said unless I’ve been diagnosed with cancer theyre not going to see me. My results for tsh are:
      TSH 1.260 uIU/mL
      T4, Total 8.6 ug/dL
      T3 Uptake 26 %
      Free Thyroxine Index (FTI) 2.2
      I do have an appt with a rheumatologist because of my fatigue and that’s not until aug 20. I wake up every morn with my throat raspy and at night. These drs don’t take me seriously and I don’t want it to be 10 yrs down the road where they could’ve found something now while I’m young.

  28. Bgoodsel says

    I have ALL symptoms of hypothyroidism but have been told for over 14yrs that I’m “borderline” as well as ” borderline hypoglycemic” for over 18yrs. Dealing with things the best I can but in my area no insurance means no care. I relate to the tire of being tired. Any suggestions to someone who can’t afford the much needed proper tests? Or the medications once diagnosed?

  29. Nails are very ridged and brittle. No hair under my arms or on my legs for over 5 years with eyebrows almost non existent. Doc says oh thyroid is ok now with the lowest dose recommended. I slept 12-18 hours a day for the last 2 summers. I have to set my alarm to not sleep through lunch and the afternoon when I work. I can’t remember coworker’s names or the students I have. It took 4 trips to remember eggs and I had a list. There is only one symptom I didn’t have but I’ve had endometrial cancer. But “I don’t need any additional medication” according to my doc. I begged him to let me try an extra dose for 3 months and he told me I didn’t need it. I then went to an internist to get a a second opinion and got the same response. I turn 65 this month and really want to retire because of all of this. I know if I do they will find me dead as I barely woke up enough to eat, drink, and take meds last summer. I would wake up for less than 2 hours and didn’t know if it was night or day. Depression constant for years and I think the doc considers me a fat, old, whinning lady with depression. I can’t get him to write my victoza prescription for 2 years now. My A1C has gone from 6.8 to 7.5 to 8.1 to 9.5 in the last 2 years. Just diagnosed with hypothyroid last August. I wore socks last summer in Texas heat because my feet were so cold along with a blanket. Right now, I have cramping in my legs and feet. I have hoarseness especially on the phone. Super dry skin with thinning hair on my head. I eat bananas to make sure I get enough potassium. Oh well, I wish I knew of a good doctor near Waco or Austin. Sorry to complain. It is the first time I’ve said all this aloud(to people) other than close friends and my doctor.

  30. Diane Landenglos says

    I have even gone through the 300+ symptoms of Hypothyroidism here. I have 71 of the 300+ , on the list.

  31. Diane Landenglos says

    I cannot for the life of me figure out why in the world neither my GP, or Endocrinologist ordered a full Thyroid panel. I am pretty disgusted & frustrated w/our medical professionals. I pay good money for my health insurance, why am I not getting better care?
    1. I have a lot of family medical history w/Hypothyroid disease, as well as, Hashimoto’s.
    2. Goiter w/small nodule discovered during a carotid ultrasound.
    3. My symptoms list.
    I have only had the TSH, and the TPO blood test done. TSH=1.65, and TPO=15

  32. My daughter has a lot of the symptoms that are related to thyroid ,( weight , feeling down , constipation, aching muscles / joints ) and they seem to be getting worse . Memory fog and not being able to retain anything is the latest . All of which are really starting to get her down . She had her gall bladder removed at 12 , she wasn’t over weight and our diet was healthy ( it’s hereditary on both sides of our family) . She has had blood tests for thyroid and the doctor told her it was in normal range , her iron level was quite low ! I just feel that they are missing something ! Is there more specific test she can ask for ?

  33. I just had two miscarriages in a row in under 4 months. I do have two living children and these are the only known miscarriages I have had. My youngest is 2. Went to doctor and he wanted to do some blood work. Was only going to do TSH but I asked for free T3 and free T4 so he ordered it. Had not seen this site yet about the other tests to ask for.

    Here are my results:

    TSH: 1.960 (0.465-4.827)
    Free T4: 1.11 (0.78-2.19)
    Free T3: 3.7 (2.5-5.3)

    All normal but now I’m wondering if not really and if I should ask for more testing?

  34. Thank you so much for the great information. I have long suspected I am on the way of acquiring hypothyroidism which runs in the family.
    Grandmother had hyper, mom mom has hashimotos. I have suffered from all kinds of weird symptoms throughout the past 10 years. Tests have been taken…etc etc. I even went to a integrative doc who seems to have applied lab values regular docs apply. Here are my last test values and I am wondering if any of these are indicative of hypo. I am just tired of not being able to feel normal:
    T3, FREE (pg/mL) 3.2 2.3-4.2
    T4, FREE (ng/dL) 1.3 0.8-1.8
    TSH (mIU/L) 1.90
    T3 REVERSE, LC/MS/MS (ng/dL) 15 8-25
    THYROGLOBULIN ANTIBODIES (IU/mL) 1

    My symptoms have been mainly:
    Cognitive issues such as reflexes
    eye pain and burning eyes
    sinus issues, pressure pain
    burning tounge
    disassociation from arms and legs, brain thinking as if i cannot make a move, feels like a delayed attempt to move. better some days, some days worse than others.
    body aches increasingly bothersome. more muscle achy and weakness.

    Any input from people suffering from hypo on here?
    Any input is appreciated.
    Thank you
    Sasha

  35. S Braido says

    Had Graves about 12 years ago. Undiagnosed until symptoms & blood pane showed a minus score. Heart meds& thyroid meds for 1 year. Now at 71 complained about all first ones: cold in a ninety degree pool, everything dried up, eve tho been on bio identical HRT for couple years. Doc sai they don’t treat until you reach 10. One month later, full blown well over 10, caught by gyn when hormones weren’t working prperly(absorption of pellets) So NPTHYROID, am allergic to pork. Waiting for formulating pharm. to mail thyroid replacement. Misdiagnosed & misunderstood, I almost died twice. Prayers, please. Hope this helps someone. Thanks for being “there”!

    • Oh no this is horrible all you’ve been through. Have you found a pharmacy to tailor make prescription thyroid medication for you? The good news is that compounding pharmacies can create medications without the components to which we are sensitive included. Wishing you all the best from Hypothyroid Mom

  36. Gail Cook says

    I have taken my daughter to four endocrinologists, a gynecologist, and a dermatologist for multiple symptoms of low,thyroid. NONE of them do more than a routine blood TSH test. After reading multiple articles, I am convinced it is her thyroid. Since age 7; she is now 15; I have watched her symptoms worsen. I first took her to an endo dr. at age 7. Because herbTSH test was normal, they did NOTHING. She is now at 190 pounds, acne, dry brittle hair, losing her hair, muscle aches , fatigue, habit hasn’t grown in over a year, and so many more symptoms. She has been diagnosed with PCOS, so they blame her symptoms on this. She also,has low,estrogen, high DHEA, and testosterone. Has been on metformin,
    , spirolactalone and birth control pills wo
    It’s NO change. She has been doing CrossFit training for a month along with diet, with NO change, only more muscle aches. Every doctor wants to blame it on diet and lack of exercise. I KNOW better, I know what she eats, even at school, in fact, her appetite has lessened for some time now. I am desperate for her and have actually been chastised for questioning a doctors treatment. Four endo doctors, and all I hear is “diet and exercise”; which HAS NOT WORKED. I am now seeing a lady who works with essential oils. The simple at home tests definitely show an inactive thyroid, iodine test and temperature in early morning. She did a scan and I purposely didn’t tell her about her symptoms and PCOS. The scan results told her, and they were spot-on with her symptoms and endo functions. Why can’t a doctor admit when they “don’t know”or be open to further testing. It has been 8 years now since I haven been seeking help for her…..still none.

    • Have been and am still on a similar journey with my 11 year old daughter. 6 years with endos and no treatment or results. Weight gain crazy and they blame everything on her size as opposed to looking for a reason for the upward spiraling weight. Going to see a holistic doctor. Need my daughter to be seen with different eyes and a different mindset. Know a woman whose daughter had the weight issue, early puberty, irregular periods and fatigue. Long story short – after 20 years they found she had these crazy high prolactin and testosterone levels. Holistic doctor put her on a natural supplement and the weight came pouring off, 50 lbs to date and her energy is back. Maybe prolactin levels are something to look into. Best of luck to you and your daughter.

  37. Carmen Olivera says

    Do psycotics medication affects your thyroid?

  38. Hi Dana. I was one of those “normal range” patients. 5 years ago, I went to my GP complaining of unexplained weight gain, severe fatigue, mental fog, thinning, dry brittle hair and thinning outer eyebrows, constipation gas and bloating, cold intolerance, puffy eyes and numbness in my hands especially at night. I convinced him to run not just a TSH (which was a 1.2) but also T3, T4, reverse T3 and TPO antibodies, all of which came within the “normal range”. He chalked my symptoms up to old age (I’m 57), menopause and “some other hormone problem. My thyroid even showed large and inflamed with nodules on ultrasound. It wasn’t until a found an old fashioned country doctor that I received proper treatment. He gave me a check list to fill out with my hypo symptoms and immediately started me on NDT and had me self-titrate the dose! Yes! No labs! It took 2 years to tweek my dosage but I am finally beginning to feel better. So yes…those tests are BS!!! Better to do it the old fashioned way rely on how the patient feels! At least that has been true in my case.

  39. Does these optimal ranges work for children too? My 10 year old got her thyroid levels check due to painful tender thyroid gland. Her TSH levels are 1.7 and T4 is 0.7. I am still waiting for them to post her T3 and antibodies results. They called me yesterday letting me know her results are normal. Yet, she is having pain in her thyroid.

  40. Can you share your sources for the “optimal levels” that you shared in this article? I convinced my doctor to run all the tests, but as everything is falling within “normal” range, I don’t believe they will offer any treatment. I am, however, out of the “optimal” range in everything I’ve gotten results for so far. I would like to be able to present my doctor with some studies and references.

  41. Hi
    My tsh reporg shows 3.8. Does it mean its high specifically if trying to concieve?
    Thanks
    Fariha

  42. On 2/12/2018 I went to see my endocronologist she said that my thyroid reading was 2.33 she said that it was fine I know that still to low I try to tell her why can she run more test she said that it wasn’t nesesary to do all those test she ask me if I was depress I told her no she said that all the symptoms that I have are related to depresion I am not a Dr but what does my thyroid symptoms have to do with depresion I ask her to run this test:
    TSH FREE T4 FREE T3 REVERSE T3 TPO she refuse to do them what can I do to find a better doctor help

    • D. Howard says

      Find. A different doctor. Most endos are useless!!! Look for a naturopath or a functional medical doctor. I suffered for years with hypo and hashis. I finally went to a naturopath and was diagnosed after 14 years of symptoms.

    • You can get in depth thyroid testing via Life Extension. They will send the order to youby mail and you take it to the lab to get your blood work. You have to pay for it but they have half price labs every June. Then you’ll receive your full lab results read by physicians. You can show the doctor your test results.

  43. After treatment, how do you know you are back to normal? I have had low TSH for over 10 years and my doctor wasn’t concerned. He had an explanation for every symptom, mostly my age and age related issues. Then I moved. New doctor very concerned and now after many referrals and him looking actively for answers, I just had radioactive iodine to try to address a hot nodule. But I don’t know how I should be feeling at 56 and having a high stress life. I know it sounds crazy but I don’t know what to expect and how to know what is normal aging.

  44. I’ve been diagnosed as hypothyroid since 2004 by a neurologist that has since relocated. I’m sure that since then I’ve developed Hashimotos disease. Most lately I have been having chest pains in the heart area, definitely not heartburn. I went to the ER, was admitted overnight, had a stress test. I have low blood pressure, only about 10 lbs overweight, oxygen level was slightly lower than usual. The only thing stress test shows is irregular ELG in recovery phase. I still am having chest pains. I do have an appointment with a cardiologist. Oh, I’m on levothyroxin. Go figure. My family doctor is not familiar and or refuses to do any other testing besides the standard test!

  45. Hello,
    Just wondering what is your take on desiccated thyroid (prescribed by a Naturopath and filled on the spot at an organic compound pharmacy).
    I read that Dr. Weil now recommends Thyrolar – and not desiccated thyroid. Do you have any data or recommendations?
    I’m just beginning my journey with diagnosed hypothyroidism after a Naturopath finally listened to me, and have just started taking desiccated thyroid.
    Thank you so much for all the information your provide.
    Alexandra

  46. I recently got my thyroid checked and the results came back normal, despite feeling like I have the flu 24/7. I went back and asked for a full panel test and the Dr rolled her eyes at me! She said my thyroid is working just fine but I was persistent so she ordered them. I just received a phone call from them saying there was an abnormality and they’re sending them to another lab for further testing.

  47. Moussa Mhanna says

    Hello,
    Since 2005 till today i’m experiencing weakness in my front left leg, unable to extend my hip and my foot properly. Also im unable to expand my both hands fingers normally. My quadriseps are weak, i have difficulty climbing staires.
    I did so many tests and biopsies but doctors still have no diagnostic for me, TSH levels are normal as well.
    Do you beleave i have a thyroid gland issue?

  48. Katie sweeney says

    Hello,
    This article really helped me understand that my symptoms could be from hypothyroidism. My doctor suspects that I am I have hypothyroidism because my TSH is 8.89. My symptoms include : chest pain, dizinizess, anxiety attacks, insomnia, stomach pain, nausea, confusion, actually loosing weight, and fatigue.. they checked everything but could only find the TSH being too low. I’m just wondering if a reading of an 8.89 is really all that to worry about? Could this really be causing all my symptoms? And how long before the thyroid medication kicks in? Also I seem to feel better in the day and worse at night.. is this a normal symptom?

    • Katie sweeney says

      I have another checkup with my doctor and I will be seeing a specialist soon, but I just need someone to talk to right now. I don’t feel good at all.

    • Hi Katie,

      Pretty much every system in your body needs thyroid hormone to function, so that’s why you see so many different symptoms that people experience. This is one area where modern medicine often lags behind, so the more you can learn, the more empowered you will be in your healing process. Read a lot of books (Dana’s book list is a great place to start), and find a great doctor who listens to you and takes the time to test everything and get your medication type and dosage right. And who is willing to retest and revisit it when that dosage changes, because it probably will. It’s not a quick thing. If I had to start from scratch again, I would also find a thyroid-savvy functional nutritionist to help fine-tune diet and lifestyle changes (that’s what I’m doing now). Even the best, most cutting-edge doctors don’t have the time to help you walk through those things and stay focused. Even though you still need to be proactive and empowered, the neat thing is that, compared to even a few years ago, there is so much more good information out there now to help you. Hope you are feeling better soon!

  49. Elizabeth Ragas says

    Does Hypothyroid Mom EVER answer anyone’s questions???

    • Hi Elizabeth, In the early days of Hypothyroid Mom I answered every comment, every email, every post on my Hypothyroid Mom FB page, but now 5 years later with over one million followers it’s become impossible unfortunately. Do you have a specific question? I do my best with what time I have devoted each week to answering questions. I’ll circle back to check for your question here.

  50. Hello, I’ve just found your site. I’m 64 year old female and for past year been trying to find reasons for my sudden weight gain, been to gym and always eaten healthy diet but cannot lose inches or pounds. I have other symptoms too, skin irritation ( dermographia ) when I scratch to point of bruising and have had sudden onset of dandruff, never had before,
    I’m tired for no reason, basically I have most symptoms of under active thyroid but my gp says my blood tests are normal so there is nothing they can do for me. Shall I ask for my records to check results or just go somewhere else to get bloods tested? Thanks

    • Sue, Your symptoms sounds so similar to mine. Yes please get a copy of your lab results and compare them to the chart in this article. Make sure you’ve had them all done and that your levels are optimal not just normal. With the symptoms you have even if you are told your symptoms are normal because that may not be normal for you, get a second medical opinion. Here are resources to help you locate a good thyroid doctor in your area.
      https://hypothyroidmom.com/30-online-resources-to-find-a-good-thyroid-doctor/
      All the best,
      Dana Trentini (Hypothyroid Mom)

  51. Um… how can there be visitors from 223 countries around the world when there are only 195 countries….. lost loads of credibility there..

    • There are 195 independent sovereign states in the world, but Google Analytics which calculates the flow of people to Hypothyroid Mom includes over 60 dependent areas and disputed territories to their list. Your point is important though and perhaps “countries and regions” would be the more accurate wording.

  52. Hi There,

    I just got these labs from my endocrinologist and I wanted a different perspective on them.

    Can you tell me your thoughts?

    I am a 47 year old Lebanese female who is “5” ‘4 3/4″ and weighs 169 lbs. I have lost 46 lbs since last December 19, 2015.

    I have PCOS and genetically inherited high cholesterol and high blood sugar. Besides genetics I am a sugar addict and have binge eating disorder.

    I have been pre diabetic off and on for at least 5 years. I have never been diagnosed with diabetes as I have never reached diabetic numbers through a self induced OGTT, A1c tests, fructosamine and fasting blood sugars.

    I am working on my diet and exercise to reduce certain blood markers.

    My blood sugar has come down and I am still working on my cholesterol. The cholesterol was measured by my primary care doctor and cardiologist.

    The blood work below was from last week at my Endocrinologists office.

    My last total cholesterol was 360 but my hdl and triglycerides were in normal range. Taken about a couple months ago.

    Last spring my total cholesterol was 259 coming down from 312. Prior to 312 it was 344.

    When it was 259 my hdl and trigs had also improved.

    I think it went high again because I started eating sugar again. I was still losing weight and monitoring my caloric intake but I went Paleo almost sugar free from December 2015 to April 2016 and that’s when my cholesterol came down from 312 to 259.

    I am back to minimizing sugar intake.

    I also suffer from depression, anxiety and ocd.

    I started gaining weight when I hit puberty and developed PCOS. I have lost and gained weight many times since then.

    I carry most of my weight in my belly.

    I am having a hyperoscopy done on Dec 15. Some hyperplasia was found in my uterus.

    I have never had kids. My period has been regular since my early thirties.

    Please let me know if you need any more information.

    I appreciate your insight!!

    Thank you very much.

    Sincerely,

    Vivian

    T4, FREE, NON-DIALYSIS: 0.9

    T3, Free: 2.6

    TSH: 2.33

    THYROGLOBULIN ANTIBODIES <1

    THYROID PEROXIDASE ANTIBODIES <1

    Fructosamine: 243

    A1C: 5.4

    TESTOSTERONE,TOTAL,LCMSMS: 20

    TESTOSTERONE, FREE: 2.7

    Insulin: 3.8

    DHEA SULFATE: 62

    C-PEPTIDE: 1.31

    Vitamin D: 25

    SODIUM 137
    POTASSIUM 4.2
    CHLORIDE 103
    CARBON DIOXIDE 27
    GLUCOSE 92
    UREA NITROGEN 10
    CREATININE 0.71
    BUN/CREATININE RATIO N/A
    Bun/Creatinine ratio is not reported when the BUN
    and creatinine values are within normal limits.

    CALCIUM 9.9
    PROTEIN, TOTAL 7.1
    ALBUMIN 4.2
    GLOBULIN, CALCULATED 2.9
    A/G RATIO 1.4 1
    BILIRUBIN, TOTAL 0.4
    AST 12
    ALT 13
    ALKALINE PHOSPHATASE 40

    Fasting reference interval

    NON-AFRICAN AMERICAN EGFR 101

  53. patricia c french says

    Hello!! I went to my family dr the other day and I have been feeling bad just about all my life! I can NEVER wake up refreshed or feeling good!! The dr always checks my tsh and t4 levels and I am on medicine but feel no better!! I ask him to check my T3! He said I don’t need that!!! I asked him that why don’t they do a whole thyroyd paiel because just those two doesn’t show what is really going on! He told me I would have to pay for the extra tests in the panel out of pocket!!! And also I feel as though I have no adrenaline to go on and they did check my cortisol but they do dot do the proper testing!! They only check my blood for cortisol levels in the am , when it should be done throughout the day?? Again he told me that I would have to pay out of pocket for all that!! I am super mad about this because I and many others continue to suffer and possibly die due to all this!! So where do I go to complain about this? The medical board?? I can’t function anymore and I am sick and sick of not getting better!! Thank-you!!

    • You are right. For cortisol its 24 hour urine collection. They can then do a defamer hazing suppression test to determine the nature of the elevated cortisol level.

    • Nicole M. says

      I would suggest a second opinion. Find another doctor and go in with a written list of all the tests you want done. Firmly request that you want all the tests done because you have done your research and need them all checked. It doesn’t matter what the doctor says about you paying “out of pocket”, his staff will bill the insurance co. accordingly. And honestly, if after all that, you do have to pay something, it’s better to have answers and pay a little than not know. Good luck! 🙂

  54. marie carbonaro says

    What type of doctor is best to diagnose thyroid issues?

    • Marie
      An endocrinologist is the best doctor. Find a good one in your area.

    • Noella M Walker says

      Dr. of Endocrinology is a Thyroid Specialist,

    • My research and experience contradicts the advise of going to an endocrinologist. They quite often focus more on their diabetic patients and are not up on the latest information for treating thyroid. After being on thyroid medication for over 45 years, the last endrocrinologist I went to cut my medication in half. I simultaneously contracted Lyme disease and was debilitated for over 10 months before I found a doctor who would treat me for the Lyme
      and give me the thyroid medication I needed to be able to participate in life. This doctor was an internist. They tend to look at the whole picture rather than just one small gland. I would recommend seeking out an internist rather than an endocrinologist.

      • I agree with Priscilla as my experiences with two endocrinologists have left me feeling worse than when I went to them.

        • I have never had any luck with an endocrinologist either. I even had one tell me that my low through was not in fact why I couldn’t lose weight, even working out 5 days a week. They are useless in my opinion. Find a homeopathic doctor who specializes in thyroid.

          • Not all docs are created equal. My doc is thyroid and other endocrine but diabetics see other docs in that practice. They have a nutritionist available as well. He watched me like a hawk in pregnancy. I’m having pretty sudden issues now and I feel confident he will follow up with bloodwork from another doc.

    • shirley Kardum says

      I suffer from fatigue. I am very very tired. I have no energy toor desire to do anything. I need to know of a good doctor who can treat this. This ha been going on and getting worse over the past 2-3 years. I helped my husband recover from 4 major operations in a row. I am at my wits end. Please help.

  55. My blood test for thyroid has been normal but I have had the symptoms for a quite a while now. My doctor wants me to have a surgery. My question is, after series of blood test and series of biopsy, why should still have the surgery.

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