Have You Suffered a Miscarriage? Your Thyroid Could Be to Blame

What Can Cause A Miscarriage? Dangers of Hypothyroidism And Pregnancy

On a cold snowy day in New York City in early 2009, I lay on a medical exam table on what would be one of the worst days of my life. I had miscarried at 12 weeks and was being prepared for a D&C. A technician had just taken an ultrasound and walked out of the room to reconfirm to the medical staff that my fetus had no heartbeat. I sprang off my bed and ran to the image on the screen. I felt my body shake and my fists clench as I stared at the image of my unborn child. What happened to my child?

I was diagnosed with hypothyroidism, an underactive thyroid, the year following the birth of my first son in 2006. I struggled day to day with a fatigue that hit me like an avalanche of bricks. I trusted my doctors implicitly and followed their thyroid drug protocol to the letter never once thinking they might not know everything there was to know about hypothyroidism. I trusted them as the experts especially when I became pregnant that second time.

I would later learn that my Ivy League medical school trained and top awarded doctors did not know enough about hypothyroidism, especially the dangers of hypothyroidism and pregnancy. Under their care my TSH (thyroid stimulating hormone), the gold standard for measuring thyroid function, reached levels far above the lab reference range and endangered my baby’s life.

What Can Cause A Miscarriage – Hypothyroidism And Pregnancy

A study presented June 2012 at The Endocrine Society’s 94th Annual Meeting in Houston recommended that all pregnant women should undergo thyroid screening in the first trimester of pregnancy. The study was conducted on 1,000 pregnant women in their first trimester in Ludhiana in Punjab, India. According to the study’s lead author Jubbin Jagan Jacob, M.D.:1

 “The study found that even mild thyroid dysfunction could greatly increase the risk of serious problems. Women with mild thyroid dysfunction had double the risk of miscarriage, premature labor or low birth weight as compared to pregnant women with normal thyroid function. They also had seven times greater risk of still birth.”

In the Journal of Medical Screening, researchers in a large study of 9,400 pregnant women demonstrated that pregnant women with hypothyroidism had a second trimester miscarriage risk four times the risk of women who were not hypothyroid.2

According to a 2008 study in the Indian Journal of Medical Sciences, hypothyroidism has a statistically significant relationship with recurrent pregnancy loss in the first trimester. According to researchers:3

 “Thyroid hormones are essential for the growth and metabolism of the growing fetus. Early in pregnancy the mother supplies her fetus with thyroid hormones. If the mother is hypothyroid, she cannot supply her fetus with enough thyroid hormones. Hence hypothyroidism is a risk factor for pregnancy loss.”

So why had I trusted my doctors unquestioningly?

My doctors tried to assure me there was no link between hypothyroidism and miscarriage, but my instincts told me they were wrong.

As the medical staff prepared me for my D&C that fateful day, I vowed that I would do everything in my power to research everything there was to know about hypothyroidism and take control of my health. I would never trust my doctors unquestioningly ever again.

October is National Miscarriage Awareness month in the U.S., and October 15 in particular is Pregnancy and Infant Loss Remembrance Day. The launch of my blog Hypothyroid Mom is intentionally timed this October 2012 during Miscarriage Awareness Month in memory of the baby I lost to hypothyroidism and in dedication to my two boys who beat the odds and made it to the world. This post is the first of my 5-part October series entitled Miscarriage Awareness Month: The Dangers of Hypothyroidism And Pregnancy. Please join me for:

Part 2 “What Every Pregnant Woman Needs to Know About Hypothyroidism

Part 3 “Miscarriage in New York City…Be Thyroid Aware”

Part 4 “Hashimoto’s Disease: The Danger of Thyroid Antibodies and Pregnancy”

Part 5 “Hypothyroid Mom’s Story of Hope: Her Miracle Babies”

Hypothyroid Mom Top Resources

What about you?

Have you suffered a miscarriage and wonder if your thyroid was to blame?

Are you suffering from hypothyroidism and thinking about getting pregnant?

Do you consider your doctors experts and trust them unquestioningly?

References:

  1. Endocrine Society (2012, June 23). Mild thyroid dysfunction in early pregnancy linked to serious complications. Newswise. Retrieved July 3, 2012 from http://www.newswise.com/articles/mild-thyroid-dysfunction-in-early-pregnancy-linked-to-serious-complications
  2. Allan, W.C., J.E. Haddow, G.E. Palomaki, J.R. Williams, M.L. Mitchell, R.J. Hermos, J.D. Faix, R.Z. Klein. Maternal thyroid deficiency and pregnancy complications: implications for population screening. J Med Screen 2000; 7:127-130
  3. Rao VR, Lakshmi A, Sadhnani MD. Prevalence of hypothyroidism in recurrent pregnancy loss in first trimester. Indian J Med Sci 2008;62:357-61
About Dana Trentini

Who knew that little butterfly-shaped thyroid gland at the base of my neck could affect my life so completely? I founded Hypothyroid Mom in memory of the unborn baby I lost to hypothyroidism. Winner of two 2014 WEGO Health Activist Awards: Health Activist Hero & Best In Show Twitter. Connect with me on Google+

Comments

  1. Lola Franchi says:

    Dana,

    You are amazing! Your blog will help many I’m sure. I think this will make doctors stand up and take notice and pay more attention to this terrible illness.

    Love you!

    Lola

    • Dana Trentini says:

      Thank you Lola. Your support means so much.

      • my wife is pregnant and she is suffering from thyroid. her t s h is 150. this is sixth week of pregnancy. what should we do.

        • Dana Trentini says:

          Rajiv, Please call your wife’s doctor today and insist to speak with them about her high TSH during pregnancy. Her TSH 150 is too high at 150 for pregnancy according to the American Thyroid Association’s published guidelines for pregnancy attached here. Make a copy of these guidelines including at the bottom of the first page there is a link to “results” where they give specific recommendations about TSH for pregnancy where they recommend a TSH < 2.5 in the first trimester. Go today to her doctor and bring the attached document to them with the specific guidelines and ask to be referred to a specialist if they cannot help you. Many women require an increase in dosage of their thyroid hormone replacement drugs during pregnancy. Her doctor should retest her TSH today and insist on discussing them with them and your concerns today. Do not wait. Best of luck to you Rajiv, your wife and your baby.

          http://thyroidguidelines.net/pregnancy

          • thanks a lot Dana. you are too good.

          • Dana Trentini says:

            Thank you Rajiv. You, your wife and your baby are in my prayers. Best wishes to you all. I hope all will be well.

          • Maribel Fuentes says:

            I had a miscarriage on March 2008.. I did suffered a lot. But with God’s strength and comfort I got strong. I have faith in God that one day I become pregnant. I do have hypothyroid, and I know that once I become pregnant am going to dedicate my child to God and thank God for a beautiful miracle. I pray to God that before my Daddy leaves this world that he had the blessing to see my child. I know that God is going to give me that blessing. I am a positive person with a lot of faith. I encourage those ladies who had a miscarriage to never lose hope. Have faith in God.

      • Jennifer Snyder says:

        Dana,

        I just came across your blog today. I am 41 and I have 2 sons 16 & 18. Reading this gave me chills… I was remarried and my husband and I have been trying to get pregnant for almost 2 years now. They never did thyroid testing. Well some months I would ovulate and some I would not, I was referred to a specialist and we did an IUI in September 2012 and we were pregnant! We were so excited. At 8 weeks the baby’s heart beat was so strong the doctor was very happy. At 10 weeks I had my first OB appointment and the babies heart was good. I got bronchitis the doctor wanted me to tell my fertility specialist they wanted to see me the next morning. Some time between 2:00pm of my first prenatal exam and 8:00am the next morning the baby’s heart stopped beating and we had a natural miscarriage. We were devastated. They said it was mother nature.. We have had 2 IUI’s since and they don’t understand why it didn’t take, I had 3 eggs the first and 2 the 2nd and my husbands count was high. Well I met with my family doctor yesterday on my ADHD and just issues I’m having.. he asked did they check your thyroid? I said no? He said he was surprised they didn’t check my thyroid, so he’s sending me today to have my bloodwork done for sugar levels and thyroid. After reading your blog, it sounds like could be what is wrong.. I don’t know, but I am hopeful to have some answers…. But the one thing I read that really hit me.. My second son, my placenta detached and they didn’t think anything of it but I’m reading that can happen with women with hypothyroidism. But of the list of symptoms and signs, I have almost every one of them. I just had to post this and to see if anyone else out there had any support and information. I’m leaving right now for my appointment for bloodwork, but I didn’t want to wait to post this… I hope to know soon so that I can get my body back in health and so that my husband and I can hopefully get pregnant again and have a healthy baby. Once diagnosed, how long does it normally take to regulate? How often should you be checked? So many questions, and I have no idea if this is what’s wrong with me or not but I am almost sure this is what’s wrong. God Bless all of you on here and I’m so glad to have found this blog!

        • Jennifer Snyder says:

          I’m so confused.. And I really thought that I had a thyroid issue, and all of my symptoms are exactly what I’m ready for hypothyroidism. My mom has hypothyroidism, my dad’s mother did and so does my dad’s sister, my aunt. The doctor only ran my TSH & Free T4. My TSH level was 2.2 and my T4 level was a 1.5. I don’t understand what this means and I I don’ t why they didn’t do the free T3 too? I really hope someone responds to my post with knowledge and input. I was hoping to know what was wrong with me so that we can start trying to get pregnant again. We had a miscarriage just after Thanksgiving 2012 and I had 2 IUI’s one had 3 eggs the other had 2 eggs, and it didn’t take, and they were surprised because my husbands counts were really high, everything looked great, but my uterine lining was around a 7.5 and they thought after my trigger shot it might be optimal. I really look forward to someone’s input. I thought for sure I had hypothyroidism. My placenta detached also with my 2nd son, and I have so many of the symptoms. I just wish I could find the answer..

          • Dana Trentini says:

            Jennifer, you have a strong family history of hypothyroidism and you suffer many common hypothyroid symptoms including miscarriage, placental abruption (which also happened to me with my second son born 36 weeks!). Please pursue further thyroid testing prior to trying to conceive again. TSH and Free T4 are not enough to get a full picture. Many thyroid sufferers have “normal” TSH and Free T4 but they still have hypothyroidism. It is unfortunate how mainstream doctors rely on these two tests alone to diagnose. Here is a post that explains this issue and outlines the necessary tests: Free T4, Free T3, Reverse T3, and thyroid antibodies. If your current doctor will not do these tests, find a doctor who will.

            http://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/

            http://hypothyroidmom.com/top-10-resources-to-find-a-great-thyroid-doctor-in-2013/

          • Jennifer Snyder says:

            Thank you Dana. I kept asking them to run them all and they said it wasn’t necessary, and told them the history of the placental abruption & family history & my miscarraige and my baby’s heart stopped beating for no apparent reason they said, no they won’t run more tests because these were in “normal range”. I wanted to make sure I was right in pushing for more tests. I will find a thyroid specialist in my area in Kansas. Thank you for the message.

          • Fern Law says:

            I have suffered from some hypothyroid symptoms all of my life. I had 5 miscarriages after I turned 40 and no one could tell me why. I would not have known where my FT3 was at if I had not been diagnosed with Graves’ Disease. Since then I have learned a lot about the thyroid and about why doctors do what they do. Daily Strength online support group has helped me as well. It was through it that I found this blog. Maybe they can help you there, as well. There are people there who get their own thyroid testing done without doctor’s orders. I have simply moved from doctor to doctor until I found one who thinks like I do and was willing to help me. I stopped the anti thyroid treatment for GD in December and have been suffering from low, or low normal T3 through my last blood test which was May 20th, with my TSH low in the normal range and my FT4 in the middle. Based on the results of that test, having both HT [Hashimoto's Thyroiditis] and GD antibodies, as well as my symptoms and the way my new doctor and I were able to communicate, he is giving me a low dose T3 supplement to take up to 2 pills daily as needed to balance my own thyroid by my symptoms. I say all of this to let you know that there is hope and, yes, FT3 is very important for your well being. Know also that anything less than a diet filled with variety and a balance of healthy foods may cause the production of Reverse T3 which negatively affects your natural FT3 levels. Don’t worry about weight gain. It is more likely a symptom of low thyroid than caused by overeating. Get healthy first, and the weight will normalize.

          • Dana Trentini says:

            Hi Fern,

            So great you found me through the “Daily Strength online support group”. I just looked it up because I wasn’t aware of it. Thanks for sharing.

            http://www.dailystrength.org/support-groups

            I am sorry to hear about your 5 miscarriages. So upsetting. I am so happy you found a good doctor who is partnering with you to get you to the best health possible. I wish the same for all my readers.

            Welcome to Hypothyroid Mom!

  2. Ron Trentini says:

    It should not be forgotten that men carry the potential risk of thyroid disease, and we can all help one another, as the disease is considered to be “hereditary”!

    Around the same time my sister battled losing a child due to related thyroid dysfunctions, I too, found myself battling physical changes with my body due to thyroid conditions that were undetected from my family doctor.

    I was someone who maintained an “above-normal” commitment to an active lifestyle, so I couldn’t understand WHY I was dealing with newfound deficiencies to weigh-gain, inadequate blood levels and vital organ trauma.

    I did everything a normal person would do… I seeked medical attention, and went as far as to request 2nd/3rd opinions all of which, from family doctors who unequivocally led me to believe that the factors were forms of dealing with routine stress.

    My diagnosis and results didn’t come until my sister assisted me in aligning connectivity to a thyroid specialist in my area. The physician performed specific thyroid tests that none of the (3) three family doctors performed, nor, possessed the degree of expertise in reviewing the score and/or ratios. It was found thru specific testing and direct “triggers”, that I possessed a thyroid dysfunction, and I finally found the support and thyroid-resolution-roadmap to help me deal with the severity of my condition. Exhausting this avenue without question changed my life!

    Today, I benefit from my sisters devoted passion and persistence to aligning that expert connectivity almost 3 years ago… Today I understand the triggers, the ramifications, and possess the knowledge to make better choices on how my body can maintain optimal health.

    I’m fortunate that my sister helped me question the routine medical profession and seek expert advice… I’m blessed to be able to report that my thyroid dysfunction has gone into a form of remission, meaning, “No Lifetime Pills or Medication is Required”, and my health is better than its ever been!

    I’m forever grateful, and blessed to have challenged those multitudes of doctor’s opinions.

    Thanks Dana & God Bless

    • Dana Trentini says:

      Thank you to my brother Ron for commenting on the day of my launch. Even though this blog is called Hypothyroid Mom, I won’t be forgetting about the millions of men worldwide with hypothyroidism. The symptoms are debilitating in both men and women. I am happy that my brother followed his instincts and changed to a doctor who really understood hypothyroidism. The key is finding great doctors. Much more on that to come!

  3. Marcella marie says:

    Love this dana!!!!
    So so so proud of you for doing this and sharing your story. A story where many before you and after you have lived for so long ,opening up people’s eyes and minds to a world where many have been touched and others know nothing about. Finally, maybe your knowledge and dedication and perserverence will bring this terrible disease to the forefront and find a cure. And give your story and many others the fairy tale ending you all deserve.
    We love you

    Marie

    • Dana Trentini says:

      Thank you Marie. I appreciate all the comments. I hope to create a place where people can speak their mind and share their feelings on this disease. The only way to build awareness is to get people talking.

  4. Esther Zeppieri says:

    I just wanted to congradulate you on this blog. You are imparting knowledge and sentiments that are of great help to many that must feel alone at a very diffulct time in their lives. I am thrilled for you and your family and wish you all the very best. Kudos to you and I look forward to following your blog.
    Esther

    • Dana Trentini says:

      Thank you for sharing your comment Esther. I appreciate it so much. I am happy to hear you will be following my blog.

  5. This is so timely as I have just been told that I may have hypothyroidism, even though I am asymptomatic. After all of my previous health issues, I am reluctant to medicate. I am in search of was to heal myself naturally if possible. Congrats on this blog!

    • Dana Trentini says:

      Lynn, I am sorry to hear you have hypothyroidism. The key is finding an excellent thyroid doctor who truly understands hypothyroidism. Unfortunately I discovered the hard way that not all doctors truly understand it and know how to treat it. I will be writing much more on this. I credit thyroid patient advocate Mary Shomon for helping me understand my disease and getting me on the track to great health. You must read her book “Living Well With Hypothyroidism: What Your Doctor Doesn’t Tell You…That You Need To Know”. This is a must read for every person with an underactive thyroid.

  6. Lissa Diop says:

    Hi Dana,
    thank you so much for sharing your experience. I am so sorry about what happened. But, thank God, you have another beautiful son. We need women like you: who share their experiences so that other people and women in particular can learn from them and use them to better their life. Congrats on your blog and good luck on your enterprises.

    • Dana Trentini says:

      Oh Lissa you share my sentiments exactly. If only we would share our experiences with one other we would learn so much from one another. My dream is that Hypothyroid Mom becomes a place where people can feel safe to share their struggles.

  7. Abhilasha says:

    Dana,
    I was unaware of your hypothyroidism and came as a surprise to me. I would have never thought that a lady as vibrant and energetic like you would have it. Thanks for taking the lead and telling your story. I know of a wonderful endrocronologist at St. Peters University Hospital, New Brunswick, NJ. Her name is Dr. Meena Murthy.
    Take care,

    Abhilasha

    • Dana Trentini says:

      Thank you Abhilasha. That is a great compliment to me. I didn’t always feel energetic and vibrant. After my first son was born in 2006, I went a year not knowing why I was so tired and lifeless and then 2 more years under the care of doctors who unfortunately did not know how to properly treat hypothyroidism. After I miscarried in 2009, I knew it was time to change doctors and I was blessed to find Dr. Adrienne Clamp in McLean VA. I was so unwell that I was happy to drive hours to Virginia to meet her. My life changed after meeting her. Recently I also found Dr. David Clark, a functional neurologist, in Dallas Texas, who through phone consultations and blood work locally in my area managed to identify the underlying issues causing my hypothyroidism and with his vitamins and supplements I am feeling even better. Abhilasha, the vibrant and energetic person I am now is thanks to Dr. Clamp and Dr. Clark. The key is finding great thyroid doctors. Thanks for sharing the name of an endocrinologist you recommend. I hope this encourages more readers to share the names of great thyroid doctors.

  8. Comgratulations !
    your story will inspire and help others that share this so common health problem .

    Lucy

    • Dana Trentini says:

      Thank you to my Mom for her comment today. Mom, you raised me to be a free thinker and to take charge of my life. For this I thank you.

  9. Thanks Dana! I’m sure you will help many other by sharing your story.
    Good luck!

    • Dana Trentini says:

      Thank you so much Ines for commenting. If my story helps even one woman with hypothyroidism, I will feel blessed.

  10. Hi Dana,

    This is a terrible story…I never thought I would get to know about something like this. I first heard about it at one of my dear friends, and my heart cried for her, but I knew she would be OK and she would beat the odds.
    I am soooo happy to hear that you made it and you have two handsome, wonderful, smart little boys! Your story will bring awareness about the hypothyroidism but in the same time will also help women trust in their own strength to beat this condition and have blessed children.
    Good luck in your endeavor!

    • Dana Trentini says:

      Thank you Daniela. I am always amazed when I tell people that I have hypothyroidism, how many respond that they too have hypothyroidism or know someone with hypothyroidism. It is tragic. The good news is that there is hope. With the right information and the right doctors, we can all feel well and live healthier lives.

  11. Dana,
    You have enlightened us all over the last few years.

    When we are ill, we need to take full responsibility for getting the best medical care whether it is natural or traditional medicine.

    Thank you for doing the research that you have done. A very special thank you for helping us with our Mother’s healthcare. We might have waited as many people do until it is too late. You are really there for all of us.

    Love you,
    Johann

    • Dana Trentini says:

      I can’t sit back when I know something should be done. When I lost a child to hypothyroidism, and discovered it could have been prevented, I vowed to myself that I would never trust my doctors unquestioningly ever again. It is a necessity that we understand our diseases and in many cases to understand them even better than our own doctors.

  12. Dana

    Congratulations on your blog. Thank you for sharing this very informative information with us and making us aware that we do not have to take what our doctors say as the gospel truth.

    • Dana Trentini says:

      Thank you so much for your comment. Absolutely if there is one message I want to share on this blog is to take control of your health.

  13. Congratulations on your launch, Dana! You are a much needed go-to resource on this topic! Excellent!

    • Dana Trentini says:

      Thank you so much Debra. I look forward to partnering with you to publish my post on the Metro Moms online Magazine (www.MetroMoms.Net). Thank you to Kathy Zucker and to all of you at Metro Moms for including my material in your online magazine. I have followed Metro Moms for over a year now and am impressed with your site and all the much needed resources you offer to mothers.

  14. Hi Dana,

    Congrats !!! On your launch. I had no idea that we both share something in common, that is hypothyroidism. You will definitely be hearing from me very often. Thank you very much for sharing this information, as this is a topic not that many people know of or have any information about. Kudos to you!!

    • Dana Trentini says:

      Thank you Jia. I look forward to more comments from you. I am always amazed at the number of people suffering from hypothyroidism.

  15. ILIK TO PLAY WIF MI MOMMY I DONTNO WAT MY MOMMY LIKS TO DO BOT MY MOMMY NOS ABAT ME ALL ABALT ME I GOTO SCOOL I LIK SCOOL ITS FUN ALL ABUT MY DADDY MY DADDY LIK MOVES HE LIKS PLAYNG WIF ME AND HODSON ALL ABALT HODSON HE GETS ME HE LIKS ME DAT HE GETS SAD WEN I GO NAME BENJAMIN

    • Dana Trentini says:

      I smiled when I read this email. It is from my six-year old son. Thank you Benjamin for your comment. I love you. Thank you Daddy for helping Benjamin on my blog.

  16. Hi Dana – As I mentioned, I think you are doing a great service here with you blog. Hope sharing this info helps – For people who are looking for a good Dr. in the Boston area, here is a little info about Ellen, who treated Gabriel in dealing with his thyroid cancer.
    Dr. Ellen Marqusee’s profile page:

    http://physiciandirectory.brighamandwomens.org/directory/profile.asp?dbase=main&setsize=30&last_name=marqusee&pict_id=0003390

    She received the 2011 Patients’ Choice Award. She practices at Brigham and Womens and is affiliated with Dana-Farber Cancer Institute.

    Ellen Marqusee, MD
    Brigham and Women’s Hospital
    221 Longwood Ave.
    Boston, MA 02115
    Office phone: (617) 525-5150
    Appointment phone: (877) 332-4294
    Fax: (617) 731-4718

    • Dana Trentini says:

      Thank you so much Deb for your recommendation. I welcome all of my readers to share the names of great thyroid doctors. It is incredible to know that Gabriel wrote the sequel to his book Roma, called Wasp’s Nest, while doing the treatment for his thyroid cancer. The fact that he dedicated that book to his surgeon, throat specialist, and endocrinologist is so moving. I wish Gabriel all the best in his recovery.

      http://wintergoosepublishing.com/authors/gabriel-valjan/

      • Hi Dana –

        The three great doctors he dedicated his book to are: Ellen Marqusee (as mentioned above), Dr. Daniel Ruan, who was his incredible surgeon, and Dr. Keith Saxon, who was the ear, nose and throat specialist who helped him through the aftermath of the surgery (since he only has one working vocal cord at this point, due to the tumor having wrapped around the nerves that controlled the other one). All three were thoughtful, helpful, and took great care of him.

  17. Also – wanted to share these resources (the comment post function seems to have a limit on URLS you can share!)

    Hyperthyroidism studies affiliated with Children’s Hospital, Boston
    http://www.childrenshospital.org/az/Site1132/mainpageS1132P0.html

    Thyroid Info This site helps narrow down search of docs by region: http://www.thyroid-info.com/topdrs/massachusetts.htm

    • Dana Trentini says:

      Thanks so much Deb. Your last resource Thyroid Info is a spectacular site created by Mary Shomon, thyroid patient advocate, who I credit for helping me to be well with hypothyroidism and for helping me to get pregnant with my second son. I can’t say enough great things about Mary Shomon. Her book “Living Well With Hypothyroidism” changed my life. I used Mary’s Top Doctors list to find a great thyroid doctor and have recommended her list to family and friends. This list provides names and contact information of top thyroid doctors all over the U.S. and in countries around the world. Thanks for all these great resources Deb.

      http:///www.thyroid-info.com/topdrs

  18. And one more – of course ATA: American Thyroid Association
    http://www.thyroid.org/

  19. David Rottman says:

    Thank you so much for this extremely valuable information! Back in the 1950s when I was eight years old, my mother had a miscarriage and that was the last opportunity for me to have younger siblings. We didn’t know then that her quite severe hypothyroidism was likely to have played a role in the miscarriages that added to her suffering. With this website you are going to spare other people and families the pain that is no longer inevitable or necessary. That is a great service and brings to me a deep sense of gratitude. Sincerely, David Rottman

    • Dana Trentini says:

      David, the hairs on my arms rose when I read your comment about your mother. I can’t believe that 60 years later women are still suffering miscarriages from hypothyroidism that could be prevented.

  20. Thanks for sharing this – it’s great to see a resource for women who have to deal with this life-long illness. Like many, I found that most general practitioners do not understand the disease, do not know how to read the TSH/Free T3/Free T4 tests, and do not know how to determine an appropriate course of treatment. Even some endocrinologists are unfamiliar with protocols beyond Synthroid (which I cannot take). I continue to be surprised with related illnesses – hypothyroidism is related to many other health issues from diabetes, allergies, vitiligo, PCOS, to infertility and osteoporosis, and while I’m not a complete basketcase yet, I have become more conscious of my health since I started researching hypo many years ago.

    Any resource that helps women understand the disease and connects them to resources for dealing with it is more than welcome. Thanks for standing up and creating this.

    • Dana Trentini says:

      Thank you for commenting Gretchen. I appreciate it very much. The more we share our experiences with one another, the more we’ll learn from one another.

  21. Good luck with your new blog, Dana. By the way, the Natural Thyroid Hormones group on Yahoo contains a private and extensive Good Doc list, and we are strict about who gets on it. i.e they have to be willing to prescribe natural desiccated thyroid, do the free T3 and free T4 labs and NOT only a TSH, and listen to symptoms. This NTH group is listed on this page: http://www.stopthethyroidmadness.com/talk-to-others Just scroll down.

    • Dana Trentini says:

      Janie,
      It is an honor to hear from you on my blog. Thank you for sharing this great resource. Your site Stop The Thyroid Madness is a fantastic resource for every person suffering from thyroid disease. I have spent countless hours going over your site in a quest to help myself get healthy. I love how you update your site regularly to reflect the latest information. I hope you know the difference you have made in people’s lives, including mine.
      http://www.stopthethyroidmadness.com

  22. Dana, I would like to say that I do also believe that there are risks to our children when we have thyroid issues, I was diagnosed with Graves disease and was told that having another child was no problem, and all the research I had done told me other wise. well to make a long story short I did miscarry one, I also had a stillborn (long before I knew of my Graves) but one thing I find suspicious is that both my daughters have a neurological vision problem that no one else on either side of their families have.. I know I read somewhere years ago that this could happen and when I asked my Dr’s was always told not to worry.. ya well both my girls will have eye surgery throughout the rest of their lives.. just thought I would share that info as well

  23. Dana Trentini says:

    Hello Danielle,
    I am very sorry to hear about your miscarriage and still birth. The pain runs so deep. We carried those little ones in our bodies and grew attached to them as real people. Research shows a link between thyroid disease and birth defects. I have been going through the literature on birth defects for some time. More studies need to be done on the effects of maternal thyroid disease on babies. You bet after reading your comment Danielle, I will be researching the link between Graves disease and your daughters’ neurological vision problem. It is important to note that just as hypothyroidism (an underactive thyroid) is dangerous in pregnancy, so is hyperthyroidism (an overactive thyroid). Women with all forms of thyroid dysfunction should be monitored carefully during pregnancy. Our babies lives depend on it.

  24. Wow thank you for writing this. In 2000- 2001 I experienced my first and only pregnancy. I had/have hypothyroidism and never made the connection. At 2 1/2 months along, my doctor suggested I terminate due to “abnormalities”. But I refused, it was my first time being pregnant and I longed to be a Mom so much. Well about 7 1/2 months along, this little girl was born after 2 days of labor. She was roughly 2 pounds, her heart was attached to the outside of her face, and all of her organs were on the outside of her body – meaning she had no skin covering the front portion of her body at all. I am someone that has never done drugs or weird things. I took my prenatal vitamins as told, I thought I was doing everything right. She died within two hours. I was/still am devastated. I kept asking my doctors -what caused this?? Their reply “Oh its just normal in so many births- nothing you did caused it” But I knew SOMETHING was wrong. I’ve wanted to be a mother sooo bad all of my life, but I’ve been afraid to try again all of this time , scared to have nother “mutant” baby. Now i’m almost 39 and this desire is still as strong as ever- to be a Mother via MY pregnancy. I have been undergoing fertility testing all year (I also have PCOS) and am in the process of selecting donor sperm for the procedure. Then today I read this- was my hypothyroidism the cause? Will it happen again? My questions have never been answered and I still wonder/ worry. I’m trying to overcome my fears as I know a child will be so loved by me. I’m still scared to death. Maybe I should slow down now, before I take this next step of donor sperm selection. Wow I’ve never considered this was a possibility- but I knew I wasnt just some random “lucky” one in a million- SOMETHING caused my little girl to end up the way she did. I dont want that to happen again. What do i do?

  25. Dana Trentini says:

    Oh Toni, what do I say to someone who has experienced what you have experienced. I am so happy you found my blog. I believe strongly in fate. My hope is that Hypothyroid Mom provides women with hypothyroidism the information they need to have beautiful miracle hypothyroid babies. There is hope. After 3 years of intense research and a quest to find the top thyroid health experts, I am proud to say that I am healthier than ever and at the age of 40 got pregnant naturally with my second son who was born in October 2010. Dreams do come true. There is always the possibility that your precious little girl’s birth defects were the result of something other than a thyroid condition, however there is also the possibility that thyroid abnormality was a factor. Please join me here on Monday morning when I publish my post on the Thyroid Stimulating Hormone (TSH) levels recommended in pregnancy. I found out too late that my doctors had no clue what the proper thyroid lab levels should be for hypothyroidism endangering the life of my fetus and I miscarried. I will provide references for you to print out and show to your doctors. Next week I will also be adding a “Resource” page on the title bar at the top of my blog which will include an extensive list of top thyroid websites, blogs, YouTube videos, books, social media, and top thyroid doctor lists that every woman with a thyroid condition should check out. Please join me again Toni on Monday morning.

  26. Hi there, sorry for your loss. <3

    I was diagnosed Hypothyroid when I was around 12 or 13, I had to go for checkups and blood tests every 6 months, for years. I was put on medication sometime in my early to mid teens (I can't remember exactly) so I've been on it for about 20 years. I was lucky, I managed to have three pregnancies that ended full term with three healthy children. All good birth weights, the last was just over 9lbs! They were not uneventful pregnancies, but I got through them. Back in February of this year, I lost what would have been my fourth child. I didn't consider it could be due to my thyroid dysfunction, but at least one of my doctors did, he had me get a blood test to check the levels of the hormones before he renewed my thyroid prescription. Turns out they were high and I needed a lower dose. He even checked them again the next month before renewing it again. I blame myself also for not reminding the doctors regularly over the past few years to do the blood test, I know I should have it done at least once a year, but didn't bother. Most days I feel fine, and when I'm not so fine, I'm just used to it, so I didn't think anything of it. So thank you for this blog, it has been the right nudge to remember to make my doctors check my levels, for my sake. And for the sake of any other children my fella and I might want to have.
    I don't trust my doctors unquestioningly, they're human so can make mistakes just like anyone else. And after suffering hypothyroid symptoms since roughly toddlerhood without getting a diagnosis until I had a goiter and that's what made the doctor say 'hmm, maybe it's her thyroid' when I was a tween, well that teaches you to know your own body intimately and trust your self and not just blindly follow doctor's ( or your parents) orders.

    • Dana Trentini says:

      Thank you very much Lissa for sharing your story. Your story of having 3 successful pregnancies despite your hypothyroidism is wonderful to hear. I am sorry for your recent loss. Your message of knowing your own body and trusting yourself and not blindly following doctor’s orders or anyone’s orders is very important. During my pregnancy that ended in miscarriage, my body was clearly whispering danger to me but I disregarded it and trusted my doctors. A sick tired weak feeling came over me that my instincts told me was not normal not even in pregnancy but I didn’t listen to my body. It’s great having you at Hypothyroid Mom Lissa. Thanks for commenting.

  27. I too lost a baby to hypothyroidism. The baby was measuring 10 weeks, but I don’t know how long it was since he had died. Of course, my doctors told me my thyroid was fine, and all of my problems were caused because I’m fat. I had been on Synthroid for several years before then. I was diagnosed with hypothyroidism in 2003 following the birth of my first child, after I INSISTED that I didn’t have postpartum depression. After my miscarriage, I saw an endocrinologist and was diagnosed with Hashimoto’s. Because my doctors checked only my TSH and not my antibodies, they didn’t know that I had an autoimmune disease and my thyroid would continue to worsen. So when I got pregnant, my TSH was higher than they expected.

    After my loss, I tried for over three years to get pregnant. It didn’t happen until I found a doctor who understood hypothyroidism and listened to my symptoms and not just my numbers. With his help, I found that my body works best when my TSH is about 1.0, not 4.5. I finally got pregnant after 43 months of trying, and I also switched to Armour thyroid.

    • Dana Trentini says:

      Jessica,
      Goose bumps rose on my arms when I read your comment. I am sorry for your loss. Your story is so scarily like mine. I am happy that you found a doctor who truly understands hypothyroidism and was able to help you get pregnant! Congratulations. After I miscarried, I changed doctors and was fortunate to find Dr. Adrienne Clamp who truly understands the disease and looked not just at my lab numbers but also at how I was feeling and my symptoms. She did extensive testing that didn’t rely totally on TSH (thyroid stimulating hormone), but also included thyroid antibodies, Free T3, Free T4, and vitamin deficiency testing. Prior to trying to conceive again, she adjusted my Armour thyroid dosage to reach a TSH ideally between 1.0 and 2.0 mIU/L. As soon as I got in this range, I started trying again and she watched me like a hawk. I was in great hands. The key is finding a great doctor. Please let me know the name of your great doctor and the location of practice so readers know who to contact if they are in the same area. You must read my post today and come back Monday when I share all the tips that worked for me in getting pregnant despite my underactive thyroid. I am happy you have joined me.

      http://hypothyroidmom.com/hashimotos-disease-the-danger-of-thyroid-antibodies-and-pregnancy/

      http://thyroid.about.com/od/practitionerinterviews/a/adrienneclamp.htm

  28. Thank your for this page. I lost my baby in week 12. After 4 weeks of pregnany my TSH had been at 6,5 which went down to 2,….after seeing a doctor and being on synthroid. Only after hours and hours of research and reading reports by intelligent women such as you have I found out about the reasons of my miscarriage which was the most horrible thing that ever happened to me (first preg.). So now my TSH-levels are okay (I researched that they should even be lower than you suggested between 0-1) and this month we’ll try again to get pregnant. I am hopeful again, since on the right dosis of medication I feel that I am myself again. This abnormal feeling of fatigue has completely disappeared, among the weight and many other symptoms.
    It is so good that there are women out there who take charge of themselver and inform others. A warm thank you from Hamburg, Germany

    • Dana Trentini says:

      Hi Franziska,

      Thank you for commenting. I am sorry for the loss of your baby. I am happy you found me at Hypothyroid Mom. Your story sounds very similar to mine. Absolutely the most important point about thyroid dysfunction is that you must find a good doctor that treats the patient not the lab results. We are each of us unique and the TSH level that feels good for each of us is different. There are hypothyroid sufferers being treated with thyroid replacement medication like us, myself included, that feel best when our TSH range is lower than ideal for most. The key for my doctor is checking on my symptoms, how I am feeling, and ensuring that my Free T4 and Free T3 are in range. Everyone is unique. In my case, I don’t feel well if my Free T3 levels are low or even mid-range. I feel my best when they are at the high end of the range.

      Unfortunately many traditional doctors rely on the TSH range and ignore everything else, but as your comment explains, we are each unique and using TSH to make decisions on diagnosis and treatment alone leaves so many of us feeling unwell. I am happy you found a good doctor. Please keep in touch. I look forward to hearing when you become pregnant again.

  29. Oh my god!! Thank you so much for this blog. I am 23 and have suffered 3 back to back miscarriages. I still cry to this day. I have asked many questions, and have never received answers. The doctors have just told me that “it happens.” I honestly think I have hypothyroidism. I am going to an endocrinologist next month. I am not sure if he will check this, but I suppose he will (hopefully). I just want a child. I am just scared because I have lost every child between 6-8 weeks. Will I receive medication so I can have a healthy pregnancy? I am nervous that he will not find a solution and I will continue to miscarriage.

    • Dana Trentini says:

      Hello Sarah, I am very sorry for your miscarriages. Of course there are many causes of miscarriage which may explain the losses of your babies. At the same time thyroid dysfunction has been shown to increase the chances of miscarriage and any woman who experiences miscarriage should be tested. Please be sure to read my post attached here so that you understand that a complete thyroid lab testing should include TSH, Free T4, Free T3, Reverse T3 and thyroid antibodies. Best of luck to you and keep in touch with your efforts to conceive.

      http://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/

    • Yes be in charge with your doctors when it comes to thyroid! Ibnever had it checked before and suffered tow miscarriages back to back this year. And still 5 doctors told me it was normal! I knew they were wrong I went to a clinic and got my own blood work done and sure enough my thyroid is hyperactive. The specialist confirmed it wad most likely the cause- why can’t doctors take their time to help ppl. And to top it all off at 11 wks they advised I go home and let nature take its course vs have a d n c. I woke up a week later not realizing the actual effect this would have on my body. I literally birthed my dead baby. I was in so much pain I was bleeding like crazy. My husband had to call the paramedics and rush me to the hospital. It was horrible and tragic. I suffered two losses when I could have had 2 blessings.

  30. Your story is very inspiring. I was diagnosed with hypothyroidism a few years and I am only 25. I am currently battling with fluctuating TSH levels and constant increases of levothyroxine dosages. Hypothyroidism from what I have experienced so far affects your entire body. I recently went had a sleep study done and found out that I might have mild sleep apnea…which to no one’s surprise is linked to hypothyroidism. I started my very own blog a few days ago with hopes to spread awareness as well. Thank you for your story!

    • Dana Trentini says:

      Hi Rachel, Thank you for commenting. It is great to hear from a fellow hypothyroid blogger! I just “Liked” your FB page. Great to have you on my site. Feel free to join me on my FB page too where you’ll find many thyroid sufferers sharing stories and suggestions with one another. By the way, I love love love the url for your site “not crazy just hypo”!

      http://notcrazyjusthypo.blogspot.com/

  31. I just stumbled accross this blog as I trawled the internet desperately looking for more info than my doctor can give me – even the website that she referred me to was so basic it was actually quite useless – THANK YOU for being one of the many links for others out there. I am 5 days into my diagnosis of Hypothyroidism with my levels being T4 at 13.5 and TSH at 18 and have been prescribed 50mcg of Levothyroxin. I am also trying to get pregnant.

    I know the disasterrous effects that an untreated Thyroid condition can have on ones health as it nearly kille dmy Mother off some 20 years ago. She has Hashimotos, and since her diagnosis all of her sisters have fouind they too also have it and her mother found she had Myxodemia. My mother had to literally fight for her life when it came to getting help from mdeical practitioners, some of whom branded her a hypocondriac.

    So, as I try to become a mother myself at 30yrs of age I thought, hmm, maybe I should go get checked out, just in case. I did no expect to be diagnosed! So now i am trying to ‘arm’ my self with knowledge as I feel the medical persons around me do not know enough, and i fear, especially form my Mothers experience, that I will have to play ani active role in getting the right treatment.

    I am hoping to find as much information as possible about Hypothyroid, pregnancy, conception, fertility and alternative and complimentary treatments so any further reference point for me would be muchly appreciated. Until then i shall enjoy digesting the information you ahve already placed up to help thers like myself unravel nd make sense of this complex journey that I have just begun.

    Thank you :-)

    • Dana Trentini says:

      Hi Jo – I am so happy you found me at Hypothyroid Mom. I created this blog hoping to find hypothyroid women like you who were planning to conceive. I wanted to tell you that our doctors don’t all know the thyroid clinical guidelines for pregnancy. I found out the hard way and miscarried. First off, I am sorry about the struggle your mom went through. I hope your doctor tested your thyroid antibody levels to see if you have Hashimoto’s, which is the number one cause of hypothyroidism in the US and a leading cause in the world. There is a strong hereditary link so it is important to know for yourself. Second, I am so happy you got yourself tested prior to conceiving. Your TSH at 18 is much too high. You must get thyroid healthy before trying to conceive to ensure a healthy pregnancy. There are 2 posts that I would like you to be sure to read. The first includes at the bottom in the Reference section links to the American Thyroid Association and Endocrine Society guidelines for pregnancy. Print them out for your doctor so he/she knows the guidelines. The scary part is that many doctors do not know the guidelines. The second post tells you what tests you should speak to your doctor about getting to ensure a complete picture of your thyroid condition. Best of luck to you and stay in touch.

      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

      http://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/

      • Hi Dana,

        Thanks so much for responding to me. I am in the process of trying to get myself more clued up and have been on 50mcg of Levothyroxine for the last 6wks. I am due to have my bloods done this week (wk 7) so will see if the 50mcg of levothyroxine has made a dent on the TSH at level 18…I think maybe no!?

        Oh I also antibodies…upon double checking my initial blood test I noted that they did do a Peroxidase antibody level and that was at 1000 u/ml…is this something I need to flag up with them?

        I have tried once to get pregnant since taking my Levothyroxine – my partner Hannah and I are using a donor so it is not the easiest of situations to be readily trying in the ovulation cycle. I am also going to have a standard fertility check doen just in case there are any other things I need to ‘fix’….. I guess I am just getting impatient as we have been trying for a while. I do not think that my GP knows much about thyroid so I am going to actually print out and begin a file on research and studies to ‘present’ to my GP should they query anything I request – or demand!
        Anyway, I guess I just wanted to say thanks and here’s hoping to an improvement in TSH levels….
        Jo :-)

  32. Dana,
    I plan to soak up every drop from your blog! I was first pregnant in December of 2010. I had already been diagnosed with hypothyroidism years ealier, and, working in a health-related field, I immediately sought knowledge of the combination of being pregnant along with hypothyroidism. When I called to make my first appointment for my baby, I was told that I couldn’t have an appointment until 10 weeks. I insisted that I needed lab work sooner (because of what I had researched) and told the staff about my thyroid…and was told that it didn’t matter and that it would be fine to wait for the appointment. This from a prestigious women’s hospital in the northeast.

    I never made it to that appointment. My baby died and I miscarried two weeks before getting to see anyone.

    I already had a wellness visit scheduled with my pcp and told her what happened. She told me to increase my dose immediately if/when we got pregnant again. I did get pregnant, did increase the dose, and my now 15 month old son is sleeping peacefully in his crib tonight.

    I recently got pregnant again, increased my dose the same amount, but sadly am losing this baby as well. I am so grateful for this blog and for access to these recent studies. Thank you so much for starting this up. I am so sorry for your loss.
    Shelly

    • Dana Trentini says:

      Hi Shelly,
      So happy to have you here on Hypothyroid Mom! I am sorry for the loss of your baby and my hopes for you with your current pregnancy. When I lost my baby so unnecessarily from my doctors’ lack of awareness, the warrior mom came out of me. It shocks me that I created this blog but I feel inside me that it’s what I’m supposed to do. I believe there are far more babies lost to hypothyroid women than the world realizes. It’s shameful! I was fortunate to read a book called “Living Well with Hypothyroidism” by thyroid advocate Mary Shomon shortly after I miscarried my baby. I had several phone consultation services with her and the best advice she had when I told her I wanted to try to have my second son was to buy boxes and boxes of pregnancy tests and to start testing for pregnancy early well before a missed period so that you know you are pregnancy ASAP and that before trying to conceive, speak with your doctor that you insist on thyroid testing ASAP once pregnancy is confirmed and to get the lab slip for it even before conceiving that way you are ready with all you need right away. She also recommended I speak with my doctor about increasing my dosage right away which is also recommended in the American Thyroid Association guidelines for pregnancy, yet few doctors know this and they wait until 8-10 weeks pregnancy to test and that’s INSANE!!!!! Here is a post I wrote that highlighted the pregnancy guidelines. The key is being in the hands of a great thyroid doctor who understands this stuff. Best of luck to you and your baby.
      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

      • Thank you for the link, and I will check out that book as well. I lost this baby too, have a great doc this time, and she is monitoring my thyroid levels right away (already drew blood) for a future pregnancy. There is so much more to check out on your blog, thanks again!

        • Dana Trentini says:

          Oh I am so sorry to hear that Shelly. I know too well the pain of the loss of your baby. Best of luck to you. Knowledge is power. Learn all you can about this condition so you can get as healthy as possible prior to your next pregnancy. Let me know how everything goes for you!

  33. I lost three babies, between 1973 and 1976. I know now that I was indeed hypothyroid for more than thirty years, before I was even diagnosed, due to the symptoms, and there were plenty. Weight gain, while only consuming eight hundred calories a day, hair loss, the then unnamed muscle skeletal disease Fibromyalgia, low body temperature,(96.4 to 97 degrees, even though I lived in the desert!) exhaustion, even though I was only in my twenties,and a myriad of others. The pregnancy that I was able to carry to term, caused me to gain 75 lbs, hypertension, and finally eclampsia, and an emergency cesarean section, a month early. I had absolutely no idea that I had Hashimoto’s thyroiditis, until I had researched everything that I could get my hands on about my ongoing symptoms, and everything pointed to a thyroid condition. I went to my regular Dr and asked him to test my thyroid, and he reluctantly agreed, testing my TSH, and told me that I was in range, and fine. In the years since I had lost my babies, I had also developed sever osteoarthritis, and having an almost photographic memory, I found that I now sometimes couldn’t remember my own address. I was terrified! I kept researching, and found out about the autoantibody test, and returned to my Dr, asking him to perform this test, and after much debate, (on his part, he didn’t want to do it) he finally agreed to do it. Well lo and behold, I had autoimmune thyroiditis! Still it took another seven years to be put on a replacement that worked. My Dr, the one that I had to fight every step of the way? He finally just told me not to ever come back to his office! I’ve had to become my own best advocate, and do all of my own research. If I had not done everything that I have, I would still be undiagnosed, and quite possibly dead. As it was, I had to go more than thirty years of my live, with a debilitating problem, and being told that it was in my head! I’ve been on every antidepressant on the market, anti anxiety drugs, ten different diets, three Psychiatrists, and still, I had no relief until I found out about a thyroid replacement called Armour. I now take 1 grain twice daily, and I am better, but I wonder about all the lost years of my life. Dr’s who don’t know, or just won’t listen, should have to pay a fine to the AMA, or go back to school to learn what they should already know, however, it’s to late for the three babies that I lost.

    • Dana Trentini says:

      Oh Jacque, your story is so sad. I am very sorry for the loss of your 3 babies. It never ceases to amaze me the number of hypothyroid women who lose their babies. It is shameful that the medical community does not take a closer look at all the dead babies to women like us. It is shameful! Bravo to you for being your own thyroid advocate for yourself and not stopping until you found proper treatment. Hats off to you! I hope that all my readers will read your story and be encouraged to be their own advocates! Happy to have you at Hypothyroid Mom.

  34. Hi Dana,
    As result of Hypothyroid during pregnant else than causing abort, could it cause also arthrogryposis or other related problem for the baby?

    • Dana Trentini says:

      Hi Sani, I just looked up the definition of Arthrogryposis. While I have not read about this particular condition in newborns, it is always possible that it may be the result of maternal hypothyroidism.

      “Arthrogryposis is a term used to describe a number of rare conditions characterized by stiff joints and abnormally developed muscles.”

      I say this because the fetus depends on the mother for thyroid hormones for growth and development at least in the first half of pregnancy before the fetus grows its own thyroid gland. So if the mother is hypothyroid and cannot supply the fetus substantial thyroid hormone for growth then imagine the possible impacts on its development. Now of course this condition has many other possible causes however your question highlights the importance of building awareness about the dangers of hypothyroidism in pregnancy. Do you have a baby with this condition?

      There is currently NO mandatory thyroid testing in pregnancy around the world and my hope with Hypothyroid Mom is to build awareness so that thyroid testing becomes mandatory to save our children.

      • Thanks for your answer. In 2009 we lost our babies (twins) as a result of Arthrogryposis they died one day after birth.During this pregnancy the doctors couldn’t find any anomaly ore something to be wrong with the babies. During this pregnancy (now, fifth months) in the begging we made a Hypothyroid test and result positive. Now we are getting a treatment for this. But before the pregnancy the Hypothyroid result were ok! We suspect that was the reason for the Arthrogryposis, in 2009.
        Best Regards
        Sani from Kosova.

        • Dana Trentini says:

          Hi Sani, I am very sorry to hear about the loss of your twins. How heartbreaking. It is possible that your thyroid condition contributed to their condition. Of course it may have been to other reasons completely different than your thyroid function. I am happy that this pregnancy you had your thyroid levels tested and treated. Please bring a copy of this attached document by the Endocrine Society for pregnancy guidelines. Not all doctors are aware of these recommendations. Please call your doctor today and bring them these guidelines. Circle the following recommendations on the copy. Please check your TSH range and discuss with your doctor to make sure it is according to the guidelines.

          http://www.endo-society.org/guidelines/final/upload/Clinical-Guideline-Management-of-Thyroid-Dysfunction-during-Pregnancy-Postpartum.pdf

          1.1.2. If hypothyroidism has been diagnosed before
          pregnancy, we recommend adjustment of the
          preconception thyroxine dose to reach a TSH level
          not higher than 2.5 μU/mL prior to pregnancy.
          (USPSTF Recommendation level: I, Evidence-poor).
          (GRADE 1| )
          1.1.3. The T4 dose usually needs to be incremented
          by 4-6 wk gestation and may require a 30-50%
          increase in dosage. USPSTF recommendation level is
          A; evidence is good (GRADE 1| ).
          1.1.4. If overt hypothyroidism is diagnosed during
          pregnancy, thyroid function tests (TFTs) should be
          normalized as rapidly as possible. Thyroxine dosage
          should be titrated to rapidly reach and thereafter
          maintain serum TSH concentrations of less than
          2.5 μU/mL in the first trimester (or 3 μU/mL in the
          second and third trimester) or to trimester-specific
          normal TSH ranges. Thyroid function tests should
          be remeasured within 30-40 days. (USPSTF
          Recommendation level: A, Evidence-good) (GRADE
          1| )

  35. Francesca Thomas says:

    Dear Dana,

    I suffered 3 miscarriages in the space of 2 years, around the years 2000 to 2002, when I first got engaged and married. I was pregnant a total of 4 times and was only able to carry ONE child to term. MY son is now almost 11 years old and is an only child.

    I was diagnosed with PCOS when my son was 2 years old and Graves Disease when my son was 8.

    My husband was diagnosed with Fibromyalgia about 8 years ago and has been chronically tired and in chronic pain for most of the 12 years of our marriage.

    Our son was diagnosed with Type 1 diabetes last year (2012 at age 10) and is now complaining of feeling cold on the inside – a typical adrenal fatigue and Hypothyroidism symptom

    I now have reason to beleive that my husband has hashimotos, but his TSH is always around 3 and the doctor refuses to test anything further.

    My husband also has the signs of further autoimmune attacks like Diabetes, IBS, anemia, Dizziness & vertigo, and cannot lose his weight (he weighs over 350 pounds).

    I will not be happy if it turns out that my son also has a thyroid problem but I guess he cant help it if both parents have it.

    My husband has an appointment scheduled with the endo (his diabetes team) for later today and I am going to tell hubby to really push for a second opinion and for more tests and not just that damn TSH. I will tell hubby to demand FT3, FT4. RT3, TRab, TSI, and all antibody tests. I hope that will be sufficient.

    If My husband does get a diagnosis for Hashimotos, then I am going to start demanding mores tests for my son as he will be doubly susceptible and is already showing some symptoms – the cold feelings.

    As for me, I went into peri-menopause at age 39 and am just ending it now at age 49 (In June 2013 I will have gone 12 months with NO Cycle at all).

    Its late – after 2 oclock in the morning – so I better get to bed.

    Am glad to have found your site.

    • Dana Trentini says:

      Hi Francesca, I am so sorry for all that you, your husband and your son have been through. Autoimmune thyroid disease flashed in my mind when I read your story and that of your husband and son. Especially your son’s Type 1 Diabetes because when you have one autoimmune disease like Hashimoto’s you are more likely to develop others such as Diabetes Type 1. Yes please be sure your husband and son are tested for the Graves related antibodies TSI but also Hashimoto’s antibodies TPO-Ab and TgAb. Best of luck to you all!

      http://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/

      http://hypothyroidmom.com/hashimotos-thyroiditis-its-a-genetics-thing/

      http://hypothyroidmom.com/is-your-thyroid-killing-you-diabetes/

      • Francesca Thomas says:

        Latest news is that the endo absolutely refused to do anything for my husband – because the TSH was still “Within range” (the old range 0.5 – 5). However DH has been told he has a nodule on his thyroid which was too small to biopsy (in April) so they have made an appointment for him to go back in August. That’s 4 months he has to wait. My son’s thyroid panel from December 2012 was good – his TPO antibodies were <1, his TSH was 1.2 and his FT4 was 14.6 (11.4 – 17.6). The childrens hospital tests diabetics for their thyroid once per year so he should get another one at the end of this year. I cant do anything more at this time.

        • Dana Trentini says:

          Francesca, That is very frustrating about your doctor because there is long going debate with thyroid advocates to narrow the normal TSH range. Many thyroid sufferers fall in this range but they suffer debilitating symptoms. You should seek a second medical opinion.

          Thyroid advocate Mary Shomon wrote, “More innovative doctors are beginning to believe that a TSH of around 1 – 2 — in the low end of the normal range — is optimal for most people to feel well and avoid having hypothyroid or hyperthyroid symptoms. Similarly, some practitioners feel that optimal hypothyroidism treatment includes Free T4 in the top half of the normal range, and Free T3 in the top 25th percentil of the normal range.” You see that a TSH range of 0.5 to 5.0 is way too broad!

          http://thyroid.about.com/cs/hypothyroidism/a/notwell.htm

          http://hypothyroidmom.com/top-10-resources-to-find-a-great-thyroid-doctor-in-2013/

          • Francesca Thomas says:

            Well there is some good news. DH had another family doctor appt today and he was able to persuade the family doc to actually do FT3 and FT4 tests. The last time he had these done was back in 2010 and those were normal. I am hoping that these results will be LOW, LOW, LOW so that finally he can get some treatment. Still no antibodies tests and thats what we really need to get a diagnosis of Hashis and all his symptoms do point to Hashis. But if we can get Low Frees, then maybe that will spur the doctor into doing more tests such as the antibody tests… Am keeping my fingers crossed. Will find out next week.

          • Dana Trentini says:

            That’s great news Francesca. Remember that his Free T4 and Free T3 may be in the ‘normal’ reference range but that does not make them optimal. Get a copy of the lab results and to the right of the scores will be the normal reference ranges. Mary Shomon wrote: “More innovative doctors are beginning to believe that a TSH of around 1 – 2 — in the low end of the normal range — is optimal for most people to feel well and avoid having hypothyroid or hyperthyroid symptoms. Similarly, some practitioners feel that optimal hypothyroidism treatment includes Free T4 in the top half of the normal range, and Free T3 in the top 25th percentil of the normal range.”

            http://thyroid.about.com/cs/hypothyroidism/a/notwell.htm

  36. I had a miscarriage 2 months ago and last week I noticed a nice sized bump on my neck! After a couple doctor visits and some tests, they said my thyroid is working fine but I do have a 3cm nodule and the FNA came back as “follicular neoplasm” so 30% chance of cancer and they want to remove that whole side :( I was referred to a general surgeon but the doc said that he does lots of thyroid surgeries. I’m meeting with him this Thursday. Here are my test results from the blood work: TSH 1.26 (0.10-5.50) Total T3 87 (50-170) Free T4 1.0 (0.8-1.7). I’m 27 and there is no history of thyroid problems or even cancer in my family at this point. The whole time I was pregnant (about 6 weeks) and the 2 months after the miscarriage I’ve felt like crap, always tired, no motivation. My hair was falling out like crazy back in October and I tested very low in ferritin so I took iron for a couple months and it helped my hair a bit. It’s still incredibly thin. I’ve also been having random muscle twitches in my arms/legs since then but my doctor blamed it on stress. I’ve lost a lot of weight the past couple years which is also a little concerning. I’m wondering if I should get a second opinion before surgery…wondering if having more blood tests run would help at all determine a cause of my nodule and if I really do need it removed. I think I’m actually leaning toward surgery cause of the size, I think it’s affecting my swallowing. I kind of think I might have been having thyroid symptoms the past couple months despite testing “normal” I’d love some in site about this since thyroid issues are so new to me and I’m sure one way or another I’ll eventually need meds.

    • Dana Trentini says:

      Sandy,

      I am so sorry what’s happening to you. No doubt you have every reason to get a second medical opinion just to be sure that every factor has been considered and every test done. Any time surgery is needed, I would always go for a second opinion no matter what issue is concerned as soon as possible so that you hear multiple perspectives.

      Nodules can come with no symptoms at all, other people suffer hyper symptoms (weight loss, heart palpitations, nervousness, insomnia), others have hypo symptoms (weight gain, fatigue, hair loss, dry skin, depression), and others have a combination of hyper and hypo symptoms.

      Just because your TSH is “normal” doesn’t mean your thyroid hormone levels are normal. There are important blood tests that haven’t been done according to your message: Free T4, Free T3, Reverse T3, thyroid antibodies for Hashimoto’s (TPO-Ab and TgAb) and antibodies for Graves (TgAb). These tests will give you a clearer picture of whether an issue with your thyroid hormone levels is causing your symptoms.

      • I just recently got some new test results back but I’m not sure what they mean: TPO AB <10 (lab range <=35) and thyroglobulin AB <20.0 (lab range<=20.0)….any in sight?

        • Dana Trentini says:

          Hi Sandy,

          Your lab results for the Hashimoto’s thyroid antibodies are both within the normal range so technically this means you do not have a thyroid autoimmune condition. I don’t know what your other lab results are for Free T4, Free T3, and Reverse T3 or if you are suffering symptoms. If you are suffering symptoms, and you haven’t had your Free T4, Free T3 and Reverse T3 tested please be sure to ask your doctor for these tests. There are a percentage of people with Hashimoto’s who actually turn up with negative antibodies that are normal in their lab results like you, yet when they go for a thyroid ultrasound it confirms Hashimoto’s. You should speak with your doctor about whether additional testing would be helpful for you. Here is an article with recommended lab work.

          http://www.stopthethyroidmadness.com/recommended-labwork/

          Here is the article about how a percentage of people with negative antibodies may have Hashimoto’s anyway.

          Dr. Kharrazian writes: “Why you can have negative antibody results and still have Hashimoto’s: Say all your symptoms point to Hashimoto’s but your antibody tests are negative. Does this mean you don’t have Hashimoto’s? Not necessarily. As you’ll learn, if your practitioner sees negative antibodies and proclaims you are “cured” of Hashimoto’s, he or she clearly does not understand some basic immune principles.”

          http://thyroidbook.com/blog/page/14/

  37. I have had an underactive thyroid for a few years. It was discovered when I was having routine blood tests to find out why we were struggling to conceive our second baby but despite being diagnosed and prescribed medication I was never given much information and had to make do with what I could find online. After a few years we had our second baby, a boy, and a few years later we had our youngest daughter. Both pregnancies went okay and apart from monthly blood tests to keep an eye on my thyroid nothing was said about it.
    In Oct 2011 we discovered I was pregnant for a fourth time. I was told my thyroid results were just about okay in Dec although I was feeling very tired and sick. Suddenly just after New Year I started to feel better, the nausea eased and the fog of tiredness lifted. We now know it wasn’t because things were settling down, it was because our baby had gone. I delivered our son at 19 weeks and 5 days.
    We chose not to have tests carried out, he’d been through enough but at our follow up appointment we were told by the doctor that it was probably because my thyroxine levels hadn’t been properly controlled. I’m still confused by this as it was the same doctor who had told me my levels were just about okay in the Dec. I’d followed their advice, I’d been for all of my check ups and scans and never missed a blood test. I have to tell myself it’s one of those things, yet I feel I should have done more.
    I hope your blog helps someone else to avoid going through this. Thank you for speaking up xx

    • Dana Trentini says:

      Dawn, I am sorry to hear this happened to you and your little boy. It is shameful how little awareness there is in the medical community about thyroid conditions in pregnancy. I too had the very tired sick strange feeling yet my doctor told me it was all normal for pregnancy. I too had these symptoms suddenly stop and I thought WOW I’m feeling better, to find out I had miscarried too. My doctor had no idea about the American Thyroid Association guidelines for pregnancy recommending a TSH less than 2.5. Mine soared between 5 and 10 and yet my doctors had no clue. Our baby relies on us for thyroid hormone in the first months for its growth and development. So our TSH can jump up quickly, in your case it probably jumped quickly between December and January. This same thing happened when I was pregnant with my second son. I had my levels checked and two weeks later I felt the symptoms jump up and I called and at first my doctor said but we tested you 2 weeks ago, but because I had done all this research I walked in their office and insisted on testing, my TSH had jumped in 2 weeks. For the research I had done, I know that my son’s life was saved. However there are millions of us around the world who probably don’t know this and I created this blog to reach all the hypothyroid mothers to encourage them to be advocates for their babies. Thank you for sharing your story. In hearing others’ stories we know we are not alone.

  38. Marissa Lane says:

    TTC and was diagnosed with Hypothyroidism after a “flu” that wouldn’t go away. My TSH levels are all over the place and have now reached 55.59 even with treatment from my GP. I am currently looking for a specialist in the Gainesville, florida Region and was wondering if you have any suggestions. I recently shared your blog with a group I am in. Thank you for your articles and the hope that I get when reading your articles!!

  39. Sue-Ellen says:

    I was diagnosed with Hashimotos 18 months ago. I have been tired my entire life. But I have had 4 children and miscarried 4 children. I was diagnosed with glandular fever 6 months before being diagnosed with an underactive thyroid. I do believe that this virus bought it to a head. I think I had been suffering with it for some time. I know it can be hereditary but I dont believe it is in my case. I think it has something to do with having children. Hormones, and all the goodness leaving your body and going into your new baby and our systems shutting down. Get a good endocrinologist, my doctor found I was needing double the dose of Thyroxine and my vitamin D levels didnt exist. It really is a process of elimination. Good luck to you all!

    • Dana Trentini says:

      Sue-Ellen, I am sorry to hear you miscarried 4 children. So upsetting to hear. I fear many more babies are lost to hypothyroid women than anyone realizes. Thank you for sharing your experience. Best of luck to you for better health. There is hope to live well despite your hypothyroidism. It’s all about learning all you can about this condition, making sure you have all the testing to examine all the potential health issues including vitamin D and working with a doctor who will explore drug options to find what’s right for you. Sounds like you are well on your way to being well.

  40. I am so glad to have found your blog, I just miscarried two weeks ago at 10 weeks, and also believe it has something to do with my thyroid. My midwife put me on Armour Thyroid 3 months into my last pregnancy with my mono-di twin babies. After they were born she upped the dose saying that my levels weren’t awful but this was a therapeutic dose. So I am not sure if going from 60mg to 75mg was really enough. I am also 7 years post gastric bypass with absorption issues and wonder how much thyroid medication I am really absorbing. Thank you for the wealth of knowledge on this page.

    • Dana Trentini says:

      Joyce,

      I am very sorry about the loss of your baby. The first step Joyce is you need full thyroid testing: Free T4, Free T3, Reverse T3, thyroid antibodies (TPO-Ab, TgAb, TSI), adrenal function, iron and ferritin, sex hormones, vitamin B12, D3, magnesium, zinc and selenium.

      The American Thyroid Association recommends a TSH of less than 2.5 in the first trimester of pregnancy and for women planning to conceive.

      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

    • Katie L. says:

      Joyce,

      I was on Armour Thyroid for many years, and after my son was born/weaned nursing my levels have been uncontrollable on it. I switched endocronologists (for a second opinion b/c I wasn’t happy with how my old one was handling my care) and with that, my new doctor switched me to Synthroid. Some docs choose Armour because its “natural”, but that may also be the downfall of it too. Armour has a specific amount of T3 & T4 compounded into it from a natural source…i.e. a pig. With this, you get a specific dose of T3 and specific dose of T4, so the medication cannot conform to what your body is naturally making. Thus, making you have to chase after specific levels…. I was on 75mg and was hypothyroid (TSH=7), then went to 90mg and became severely hyperthyroid (TSH=0.1)…there was no middle ground. What Synthroid (Levothyroxine) dose is gives you the support you need for your thryoid hormones but doesn’t give you a specific amount of T4 or T3.

      You may want to speak to your doctor about trying to new medication if you are unable to get your levels under control with the Armour.

  41. Katie L. says:

    Hi Dana!
    I just discovered your blog while web browsing at work… night shift can have it’s quiet moments :) I thought I would share my story.

    I have been treated for hypothyroidism for a number of years now, and have always had it under great control. I got pregnant with my first son and had my levels religiously checked through that pregnancy, which went off without a hitch (besides my dose quadroulping throughout my pregnancy). My son then nursed for 18 months, around 14 months when he started to wean (last May) I began to feel different physically. I just chalked it up to chasing around a now mobile healthy baby boy. Finally by August I asked to have my thyroid levels checked….which they did because it had been a few months…and my levels were so low. (Thyroid hormones and prolactin go hand in hand so we just figured it was a direct result of the weaning and went down on my dosage). The dosage changes continued every 6-8 weeks up until I got pregnant this past January. The day after we found out about the pregnancy my TSH and T4 (for the first time in almost a year) were fine, but T3 was not. As usual in pregnancy, they increased my dose. About 3 weeks later I was having some right side pain so I was sent for an u/s to rule out ectopic pregnancy…it was at this visit we found out we had NATURALLY conceived triplets. Although we were completely shocked, we would lovingly accept these 3 blessings into our family with open arms. Our family, while shocked, were all overjoyed and would talk about how they would help us. We found out that we had conceived fraternal twins, which one split creating identicals…so 2 of the babies were identical and one was fraternal, I was being sent for u/s ever 10 days to watch the babies growth. At our 8 week u/s we found out that the identical babies did not have heartbeats and the last baby was not growing very much, we were devestated. We went back one week later, on a Friday, to find out that we had indeed lost our last little miracle. Because of the triplets, my doctors wanted me to have a D&E…but being Friday they couldnt get me in…so we had to wait until Monday, which was our son’s 2nd birthday, to have the procedure. Since all of this, my levels have been out of control again…just last week my endocronologist decided to completely change my medication and pretty much had to guess at a dose b/c of my unpredictable levels. In 8 weeks we will go for a check, if the levels are good we can begin to try again….if not, then we adjust the dose and wait another 8 weeks. I never thought of m/c being a direct cause of hypothyrodism (and I’m a medical professional), even though I am very informed of all of my levels, how my bodys hormones interact with my medications and am very proactive in my care. The biggest shock to me was that even though my levels were acceptable when I found out I was pregnant, they most likely were elevated when we conceived, which can directly effect the health of the endometrium, which can make it an unhealthy environment for a baby to develope. Thankfully, my doctors will order whatever tests I ask, perhaps being their peer as well as their patient is an advantage. This being said, our specialist did not tell us we have to wait to try again, but my husband and I are choosing to do so in hopes of avoiding another devestating loss. However, having to wait an unpredictable amount of time before even being able to try again is making me feel stuck and unable to begin to move past our m/c, rather being stuck in the grief. I know God has His plan, and we trust in Him…but that doesn’t ease our pain here. We are praying that this first trial dose of my new med will end up being the magic dose and allow us to move forward.

    Thanks again for your blog, its nice to know you’re not the only one… because it can be a lonely feeling.

    • Dana Trentini says:

      Katie,

      I am very sorry about the loss of your three babies. That’s so upsetting. After each pregnancy my thyroid symptoms would worsen and I would go through a lot of thyroid medication dosage changes until my levels finally evened out after 1 year postpartum. Postpartum is such a hard time for thyroid sufferers. I agree with you that you should wait to have your thyroid properly treated and figured out before trying to conceive again. You mentioned your T3 levels were not okay and that should be looked at more closely. While TSH is very important it is equally important to know your Free T4, Free T3, Reverse T3 and thyroid antibody (TPO-Ab and TgAb) levels if they haven’t been tested already. The good news is that there is hope to have beautiful healthy babies. Best wishes to you.

      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

  42. I have had two miscarriage in the last year (just over a year) the first at 19 weeks and the most recent at 16 weeks. I had one miscarriage back in 2004 before I knew that I had hashimotos. The last two losses were considered high risk because of my thyroid, my levels were checked once a month, and were “Normal” but I still strongly feel that my losses were due to my thyroid somehow. The doctors try telling me otherwise. I want to try again, but the fear of another loss is so great. Thank you for your article.

    • Dana Trentini says:

      Hi Stacy,

      I was just interviewed this week by thyroid advocate Mary Shomon about fertility and pregnancy for hypothyroidism sufferers. Here is the link to download and listen to the recording. There is hope to have beautiful babies but you need to be as thyroid healthy first and then create a plan of action for when you conceive which I discuss with Mary in this interview.

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  43. I have been trying for 10 years to get pregnant and needed help! Been going to the doctors but still nothing. the doctor said me and my husband are fine , I don’t know where else to turn. until one day I read how ASHRA SPELL TEMPLE helped others get pregnant ONLINE i then contacted the great spell caster ashra via email and ASHRA cast a pregnancy spell for me and gave me a 2months sure guarantee that i will become pregnant , and exactly 6weeks later I went to check and i was pregnant and later on i gave birth and i named my child Ashley so that i can never forget the great spell caster that ASHRA who opened my blessings of conceiving today its marking 5years Ashley was born and i also have a baby boy josh who is one and half years old, i want to use this medium to tell other women out there who is having pregnancy issues not to wait for years like i did contact ashra today and be happy this its contact email :ashraspelltemple@gmail.com or call +2348058176311

    Thanks

    • Dana Trentini says:

      Kim,
      So happy for you that are blessed with your children Ashley and Josh. Thank you for sharing your story. Happy to have you at Hypothyroid Mom!

  44. Thank you so much for this Blog and speaking out!!! I am currently going thru my 4th Loss, 3rd just since July 2012. After I started miscarrying this current baby on Friday I started researching Recurrent Miscarriages and came across Hypothyroidism. My Mom ans my Sister both have Hypothyroidism and both have had Thyroid Cancer. My Sis just finished her last Radiation Treatment a Week ago today. When I seen Hypothyroidism can cause Miscarriage I started Googling like Mad and came across your blog. I will be calling my Dr shortly to have them do a Blood Test and see if I have Hypothyroidism. I had a blood test done after I had my Son and did not have it at that time, I was in my 20′s then and now I am nearly 35. I will keep you updated on whether or not I have it and if I do I Vow to help you raise awareness of this Disease. I never knew much about it until now and now I wish I had done more research on it years ago when my Sister was first learned that she had it. Again Thank You so much for this Blog and keep raising awareness!!! Knowledge is Power!!!

    • Dana Trentini says:

      Amanda, I am very sorry to hear about the loss of your 4 babies. My condolences. Given your miscarriages and your family history, be sure to have full testing. TSH is often the only test done but this one test does not give a complete picture. Insist on TSH, Free T4, Free T3, Reverse T3 and thyroid antibodies (TPO-Ab, TgAb and TSI). Get a copy of your lab results and check they were done, your scores and compare them to the normal ranges listed for each that will be listed to the right. Feel free to contact me when you get your results. Best wishes to you and your family.

  45. Hi…I came across your blog and I’m just overwhelmed with emotions right now. I don’t know how much longer I can take this. I went into the ER for abdominal pain and they did a CT scan. They basically said that they couldn’t find anything wrong other than a slightly enlarged spleen and a high ESR indicating inflammation in my body. I went home knowing something was wrong but didnt’ know what. I got a call from a doctor later telling me they found a thyroid nodule on the CT scan and so i went in and had an ultrasound. My regular doctor said that because the nodule is less than a centimeter…mine is 7mm…and my TSH was a 3.3/T4 was 10.5 I was “Just fine” and he hopes I feel better soon…his exact words. My hemoglobin, hematocrit, mcv, etc…is LOW and my neutrophils are high. I tested positive ANA and I have a C-reactive protein level of 29 when anything over 2 is BAD. And, he hopes I feel better? I wake up exhausted, depressed, and by 2pm I”m ready for a second nap but can’t sleep at night. I get very moody, really bad constipation (doc did tell me to get some milk of magnesia but even with that I can’t go for days at a time,) I get headaches, I have carpal tunnel and wake up with numb and tingly fingers, I eat maybe 1000 calories a day but haven’t dropped any weight, my eyesight got worse (I was already at a 20/600 so no clue what i’m at now.) I get air hunger if you know that term. My left shoulder blade hurts every so often and have no idea why. They also found a dermoid cyst in my ovary and an enlarged uterus. Doctor did not want to give me a referral to a gyno for that…but reluctantly said, “I wouldn’t want something to be wrong and I didn’t refer you.” I feel absolutely miserable all day long. I have some kind of dermatitis on my palms that’s symmetrical and itches like crazy most of the time except sometimes it starts going away. My last pregnancy I had no insurance and went to the ER a month early and had my daughter by csection within ten minutes of the doctor seeing me– i had serious toxemia, preeclampsia and they just intubated me. My mom developed psoriasis at my age and it was severe enough she underwent puva treatments. she was never diagnosed with thyroid problems but exhibited all the signs. she died 13 years ago of lung cancer. I have several first cousins with various autoimmune things- hashimotos with a nodule (she had normal labs but antibodies were off), another cousin with Chrons who killed herself due to the pain, other cousins with hypothyroidism and on meds, an aunt with rheumatoid arthritis, my grandmother had diabetes. Why do doctors have a hard time getting to the bottom of autoimmune issues? Do they want to wait until you’re full blown in order to treat? Does it have something to do with my insurance company? My biggest worry is that my body is seriously attacking itself and if left alone to do this I’m going to be in some serious danger…..WHAT DO I DO????? When I asked him to do more thyroid testing he said, “you’re fine.” I asked him about the ANA being positive and he just said, “well you may have something autoimmune going on….maybe Irritable Bowel Syndrome…” I told him that I have NEVER had gastro issues until recently. I have been seeing him for over 2 months now and we have gotten nowhere. In fact, he hasnt even made me another appointment.

  46. Hi Dana, I just had to message you, I too was diagonosied with an underactive thyroid about 6 months after the birth of my son who is now 2. Last month I had a miscarriage and I can’t help but think the two ate connected, I’m desperate to get pregnany again but also scared stiff the same thing will happen again xxxx

    • Dana Trentini says:

      Tasha,

      I am sorry about the loss of your baby. Your under-active thyroid and miscarriage may be connected and it’s worth it to take a closer look at your thyroid condition before trying to conceive again. The American Thyroid Association issued guidelines for pregnancy.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      ■RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      There is hope to have healthy babies despite hypothyroidism.

      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

      I was recently interviewed by thyroid advocate Mary Shomon about fertility and pregnancy for thyroid patients. Excellent show. Here is a recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  47. Great blog and yay for all the publicity Thyroid Disorders can get. I have Type 2 Hypothyroidism, so am not getting any help at all. Slow and horrible death awaits me. But whilst I wait, I just wanted to say that Hypothyroidism can also cause macrosomia, postmaturit and inability to go into spontaneous labour.

    • Dana Trentini says:

      Hi Joan,

      Thank you for sharing this. I had read about macrosomnia and the inability to go into spontaneous labour, but the postmaturit was news to me. You’ve given me something interesting to research. Thank you!! Happy to have you at Hypothyroid Mom. You should read the book by Dr. Mark Starr “Hypothyroidism Type 2: The Epidemic”.

      • I’m reading it as we speak! Makes me angry, desperate, sad and then angry again. He mentions the macrosomia and postmaturity (Presumably due to insufficient hormone production to start labour? Much like I’m beginning to suspect much of the lactation troubles could also be linked with Hypothyroidism (1 &2)?)

        I’m 4th generation hypothyroid. I have the photo and health history evidence to back this up.

        My youngest son is 11 months old. My other two were vaginal deliveries, but my second child was born at +10 days and was over 10lbs at birth – and a shoulder dystocia. Therefore, when my third child was estimated to weigh 10lbs before term, we decided to opt for a c-section. He was delivered at 39+4 and weighed 11 lbs. He has many signs of hypothyroidism and it breaks my heart, and makes me so, so sad to see and moreover, to be told there’s nothing wrong with me and therefore naturally he can’t be afflicted either.

        Yes, my bloods are “fine” (T3/RT3 ratio of 4.4 says otherwise, but hey-ho, let’s not care about that!), and I have been diagnosed instead with fibromyalgia and depression. I have been offered morphine (which I can’t take as I’m breastfeeding) and antidepressants (which I won’t take because I’m not depressed [GP says I'm in denial]). And of course the severe Dysmenorrhea and Menorrhagia, for which I have been offered contraceptive pills or alternatively now that I’m done having babies, a hysterectomy).

        Elevated cholesterol, low temp, feeling cold, low heart rate, bodily hair that’s gone are all put down to a somatic disorder as are all my other Hypothyroid symptoms. Somatic Disorder, ironically, looking it up in the medical dictionary reads rather like a description of Hypothyroidism. Probably a coincidence.

      • Ooo, just seen on your list of 300+ symptoms that you have actually listed high birth weight (macrosomia) and postmaturity (long gestation) as symptoms! :)

        • Dana Trentini says:

          Hi Joan, I just looked up the definition of postmaturity. Yes long gestation and high birth weight are listed on my 300+ Hypothyroidism Symptoms article. Thanks for providing me with the correct terminology for those. You need to find a new doctor. You sound like someone with hypothyroidism symptoms that doctors are misdiagnosing. In this article, I have a list of 10 good resources to locate a good doctor. I hope there is someone listed in your area.

          http://hypothyroidmom.com/top-10-resources-to-find-a-great-thyroid-doctor-in-2013/

          • Thank you for the list. Unfortunately, I’m in Denmark. There is no doctor in Denmark, who recognises or treat Type 2 Hypothyroidism, so there is no hope of finding a doctor here. Adding to that and even if my blood eventually follow my symptoms (which I’m sure they will – family history tells me so) my medical papers (attached to my identity number) state I’m mentally unstable and unwilling to cooperate (i.e. refusing to take medicines suggested and thus refusal to get better from my psychosomatic illness) I can scream, shout, educate myself, speak calmly, be rational, sensible and so on until the cows come home. I’m now registered as “mad” and so, the more I protest, the more I confirm this diagnosis.

            The reason I mentioned macrosomia and postmaturity to you was because in your articles about miscarriages you mention prematurity and low birth weight as potential side effects of untreated hypothyroidism, which may make woman like myself think “Oh, well, my babies were HUGE, so I can’t be hypothyroid.” :)

            Anyway, keep up the good work. You are an inspiration for acting on a personal tragedy for the benefit of so many. Thank you. Let us hope our children and grandchildren will look back at our age and shake their head in disbelief at the collective ignorance and professional arrogance of the medical professionals, who are refusing to see beyond the blood. You’d have thought we’d moved beyond blood letting, eh! ;)

        • Dana Trentini says:

          Joan,

          I am so sorry to hear your situation. Why shouldn’t you be allowed to refuse treatment and to be an advocate for yourself. It is very upsetting to hear. I wish you well. I hope to live to see the day when all doctors are better educated about thyroid conditions.

  48. God bless you! I’ve had four miscarriages. Never once was told I was HYPO. In the course of 17 yrs., thyroid nodules have been discovered which resulted in RAI treatment. I’m just now putting together a large, mysterious puzzle. Though I feel that every birth is a miracle, I have come to deeply appreciate the miracle my three live births truly are.

    • Dana Trentini says:

      Hi Angela,

      Every child born to a thyroid sufferer is truly a miracle baby. Welcome to Hypothyroid Mom!

  49. Dana,

    In all the research you have done, have you read anything about hypothyroidism causing stillbirth. I lost my angel Kevin at 37 weeks. Almost lost my daughter at 37 weeks as well but had great team of doctors that had me go for an emergency C-section. PS My thyroid levels were never checked.

    • Dana Trentini says:

      Tanya,

      I am very sorry about your angel Kevin. Yes I have read a great deal about both still birth and premature labor linked to hypothyroidism. Here is one article of many where it is written:

      “In women with even mild thyroid dysfunction during early pregnancy, rates for miscarriage are double those of women with normal levels, and the risk for stillbirth is as much as 7 times greater, according to research presented here at ENDO 2012: the Endocrine Society 94th Annual Meeting.”

      http://www.medscape.com/viewarticle/766266

  50. Hi..I am 28 years old. I miscarried on 1st Feb 2013 because of low TSH 0.02. Free T4 and T3 was OK.But after that my DOC stated with Neo-Mercazole to me. and nw after 3 months my TSH value is raised to 23.73 on 16 July 2013. So, Is it Hypothyrodism? and what is treatment for it again? Am I able to get pregnant? TTC from 2years. Will TSH value reduced to normal level after stopping Neo-Mercazole? or shld have another medications? and will TSH will come to normal in 1 month?
    Help me

    • Dana Trentini says:

      Hi Sonali,

      I am sorry to hear about your miscarriage. Please speak with your doctor because a TSH of 23.73 is too high and indicates hypothyroidism. I am not sure if stopping Neo-Mercazole will reduce your TSH or if you will need thyroid medication to bring it down. This TSH is too high right now to try to conceive. The American Thyroid Association recommends:

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      Bring a copy of these guidelines to your doctor.

      http://thyroidguidelines.net/pregnancy/results

      There is hope to have healthy babies but first you must get your thyroid in healthy range. I was interviewed with thyroid advocate Mary Shomon about Fertility and Pregnancy. It was an informative show. Here is a recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  51. Jenelle says:

    Dana, Thank you so much for your amazing work with this blog. It is so comprehensive and such a comfort! I have had two losses this year (one at 7 weeks, the other at 11). My OB/GYN gave me the standard line of I shouldn’t worry until I had had 3 in a row. I insisted on seeing a fertility specialist who checked my thryoid levels and found my TSH to be around 4, and the presence of antibodies indicative of Hashimoto’s. I am fortunate that Dr. Stagnaro-Greene is in the same medical system, and I will have my first appointment with him on Monday. Any advice for questions to ask on my first endo appointment? I know everyone is different, but how long does it typically take for TSH levels to normalize?

    I am so angry that my OB never even mentioned the possibility of a thyroid issue. If I hadn’t insisted on seeing a fertility specialist, I probably would have had another miscarriage. How many babies could have been saved by universal screening? I feel so strongly that testing should be part of any doctor’s discussion with a women planning on trying to conceive and carry.

    • Dana Trentini says:

      Hi Jenelle,

      So great you will be seeing Dr. Stagnaro-Greene. I’ve read his research on this topic. One of his articles was also mentioned in the American Thyroid Association guidelines attached. I imagine that he would be familiar with the guidelines but no harm bringing a copy anyway.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      ■RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      ■RECOMMENDATION 16

      In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further LT4 dose adjustments are often required. Level B-USPSTF

      ■RECOMMENDATION 17

      In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation.

  52. Cristina says:

    Hello and thanks for this blog, I wish i had come across it sooner. I am now 17 weeks pregnant and scared to death that an ill-treated hypothyroidism (although subclinical) might have harmed my baby. I have had my thyroid removed 7 years ago for the presence of nodules that luckily turned out to be benign. Since then I take hormone replacement and have never had any major problem. As soon as I got pregnant I ran to my doctor to have my thyroid checked. At 6 weeks my tsh,from a usual value <1 had increased to 3.7. Which the doctor found normal,but I insisted I increased my medicine. Not enough,because at 10 weeks my tsh had reached 6.7 though ft4 was in the lower,but normal range (12.8 norm 12-20). I increased my medicine and at 16 weeks my tsh was still 5.7 and my t4 15. All this time i haven't felt particularly tired or bad. I am now taking more,I feel like I'm chasing a ghost,and I feel so guilty that all this may have harmed my baby. Is there anyone out there who with prolonged subclinical hypothyroidism has had healthy children with no neurological disorder? I am devastated…
    Thanks for your help,
    Best of luck to all,
    Cristina

    • Dana Trentini says:

      Hi Cristina,

      There are many Hypothyroid Mom readers who went on to have beautiful healthy babies despite hypothyroidism during their pregnancy without knowing that it could be a danger. It’s great that your instincts told you that your raising TSH was an issue in pregnancy and that you spoke with your doctor about this. Here are the American Thyroid Association guidelines for pregnancy. No harm bringing them to your doctor. Best wishes to you and your baby.

      ■RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

      ■RECOMMENDATION 14

      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.

      ■RECOMMENDATION 16

      In pregnant patients with treated hypothyroidism, maternal serum TSH should be monitored approximately every 4 weeks during the first half of pregnancy because further LT4 dose adjustments are often required. Level B-USPSTF

      ■RECOMMENDATION 17

      In pregnant patients with treated hypothyroidism, maternal TSH should be checked at least once between 26 and 32 weeks gestation.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

  53. I’ve had a missed miscarriage, at 11 weeks pregnant.Followed be an emergency D&C a week later.My TSH was 4.74, marked as high.My NP said it is normal when you are
    pregnant.After D&C I went back to the Dr-s office, asking to see a Dr.When a Dr finally seen me, he went thru my lab works and sonogram, and he’s first question was “why were not started on synthroid right away”.It was heart breaking to hear it.Maybe my baby will be still alive if some body will intervened?

    • Dana Trentini says:

      Beata,

      I know too well the pain of discovering that our doctors don’t all know how to manage hypothyroidism in pregnancy. Now our miscarriages may have been due to other health conditions, but hypothyroidism is one possibility. Please be sure to get your TSH below 2.5 before trying to conceive again as recommended by the American Thyroid Association guidelines for pregnancy.

      ■ RECOMMENDATION 15

      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      There is hope to have beautiful healthy babies. Here is how I did it.

      http://hypothyroidmom.com/hypothyroid-moms-story-of-hope-her-miracle-babies/

      I was interviewed by thyroid advocate Mary Shomon on fertility and pregnancy. Excellent show. Here is a recording:

      http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  54. I have never though that having a hyperactive thyroid could lead to miscarriage. Anyway, thanks for this blog for I have learned a lot regarding thyroid problem.

    • Dana Trentini says:

      My pleasure Aliya. I am shocked too how that little butterfly-shaped thyroid gland at the base of our neck could affect our babies.

  55. Shannon Black says:

    Hi Dana
    I’m so glad to see this blog. Like you, I also would like to tell so many woman about the importance of checking thyroid function. I am hypothyroid and it runs in my family. I also had some trouble getting diagnosed as the doctors said I didn’t look hypothyroid. According to many definitions hypothyroid people put on weight due to slow metabolism. I kept telling them I wasn’t putting on weight because I felt so bad I wasn’t eating. When I was diagnosed, I asked the endocrinologist about the risk of miscarriage as I had heard they were related. She said everything should be fine as long as I keep my TSH levels around 2.5. I then moved countries and when I got pregnant I knew to watch this but I had no idea how fast it would change. At 6 weeks my baby had a strong heartbeat but at the 12 week scan there was no heartbeat and it became obvious the baby had died at about 10 weeks. I also believe this was due to hypothyroid as I then did a check and saw how high the levels had got. I discussed this with my obstetrician and as she didn’t have so much experience with hypothyroid mothers, she got in contact with an endocrinologist friend of hers. I have been incredibly blessed, I have since had four healthy children but my obstetrician has been very vigilant and has tested my thyroid levels monthly during each pregnancy. I also start increasing my thyroxine dose from the day I have a positive pregnancy test at about 4 weeks. Each time I have had to increase the dosage almost monthly until it stabilises at around 6 months pregnant. Again, after each baby is born it takes some time to get the balance right again (funnily enough, the dosage I need has been different after each pregnancy, sometimes higher and sometimes lower).

    • Dana Trentini says:

      Shannon,

      Thank you for sharing your story. I know there are readers on this page struggling with repeat miscarriages. It is shameful how doctors are not aware how to treat a pregnant woman with a thyroid condition. I am so happy you had a doctor who knew what to do for you and your babies.

  56. Thank you for all the references in your article. I will definitely be reading for more information!

    I have been hypothyroid since I was 19 years old. I am now 34. Since 19, I have been treated with Synthroid or its generic. This year, following my first miscarriage, I have altered my diet (removing gluten) to try and relieve thyroid issues (symptoms were highly unstable post pregnancy).

    Conceiving has been easy (both times). Unfortunately, carrying the baby to term has eluded me. My first pregnancy, I carried until 21 weeks. This time around, only 7 weeks.

    At this point, not sure what I should do. I’m not receiving much information from my medical practitioners — except — “try again, and we’ll test your hormones next time you have a positive OTC pregnancy test”. Then a vague mention of perhaps using progesterone supplements during the next go around. I’m not sure that’s enough. Funny, I always thought conceiving and delivering would be difficult, not carrying!

    So, in sum, thanks for the medical articles. I will be reading to educate myself in hopes that I can take control of my medical care.

    Best of luck to all other hypothyroid women out there struggling with pregnancy.

  57. Annoyingly most of the information I can find on this is from US sites which my dr doesn’t think it relevant here. I recently had my second miscarriage. I found out that when I had my first miscarriage my TSH was 17.4!! It’s now 3.04 and I’ve told my dr I want to get it between the recommended 1-2 but she said 3 is fine as in the uk between 1-5 is considered fine. Just finding this all frustrating. Have upped my medication myself to try and get my TSH down a bit even though the dr doesn’t think I need to x

  58. When I was pregnant last year, I had always complained of being extremely tired to my doctor, in addition to obscenely hungry and always having a headache. He always dismissed me and told me to drink more water, try to “de-stress,” etc. Finally in my fourth month of pregnancy I gained 10 lbs. which finally grabbed my doctor’s attention. He ordered thyroid tests and (surprise!) I had hypothyroidism. They put me on medicine and told me how important it was for me to take everyday. A little over a month later I went to have my gestational ultrasound done and there were very severe problems with my baby. She had cysts in her brain and had suffered several strokes. I don’t know if my hypothyroidism was the direct/only cause of these anomalies, but it would be nice if I could rule it out. If my thyroid had been checked at 8 weeks pregnant when I went in for my initial exam, maybe my baby would be here today.

  59. Thanks so much for this. I’m recovering from my second miscarriage this year. First one was in Feb, and second one started mid Sept. We were (and are) crushed. Reading and learning everything I can is helping me feel less hopeless. I’m 35 yrs old and have no children, so having 2 failed pregnancies has been worrisome and upsetting. I’m set up for the full gamut of testing in the next few weeks, and I am very curious to know if my thyroid is the problem. To my knowledge it hasn’t ever been an issue in the past. I am looking forward to reading everything on your site and going into the testing and appointments prepared to ask a lot of questions. I can’t thank you enough.

  60. Katye Wood says:

    Thank you so much for posting this information. My Aunt directed me to your site after I had my third miscarriage in August. It was at 13 weeks and I almost died due to hemorrhage. They were unable to find a cause. I have been suffering from a huge number of symptoms consistent with hypothyroidism, but have always tested normal. Right now they are just calling it fibromyalgia and calling me an enigma. They most recently tested my levels in May and I came out perfect on all of them. TSH was 1.074, TPO under 10, Thyroid Globulin Antibody under 20, T3 113, Free T4 1.09, and Rev T3 and 19. Is there any way my thyroid is responsible? I am chronically freezing, but sometimes have nights sweats as well. It is my understanding that this is a big sign. I am just trying to find out how far to push my doctor or if I need a different one. I have tried the pharmaceutical route to deal with the fibromyalgia and while it helped manage the pain I hated the side effects. Do you have any advice?

  61. I just read an interesting article with this conclusion:

    “In conclusion, hypothyroidism is a frequent disease, affecting more women than men. The negative consequences of hypothyroidism, which are frequent, dictate its timely diagnosis. The measurement of thyroid hormones in women after the age of 50, in pregnancy and after delivery, in women and men with hypercholesterolemia, in patients having had neck radiotherapy, in patients having been given drugs, such as amiodarone and lithium, appears appropriate. Therapy is long term, usually life long and is performed by the administration of thyroxine.”

    From here: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2895281/

  62. Hey I’m 8 weeks pregnant and my TSH is 5.92. I am using 50mcg of levothyroxine once daily. Is the dose alright? I’m much worried about my baby to be born. This is my first pregnancy and I conceived after about ten months of trying.

    • Congratulations and best wishes. I would not hesitate to get a second opinion any time I might wonder. Also if you have family history of autoimmune diseases, prepare to give that information.

    • Dana Trentini says:

      Hi Erum,

      I apologize for the delay in responding. I’ve had close to 4 million visitors here to my blog and on my Hypothyroid Mom Facebook page the last two months that I’ve struggled to get to everyone. Congratulations on your pregnancy. Please bring a copy of the American Thyroid Association guidelines for pregnancy to your doctor that recommend a TSH less than 2.5 in the first trimester and less than 3.0 in the second and third trimesters. The majority of us need an increase in our meds to maintain safe levels.

      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

      ■ RECOMMENDATION 2

      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

  63. Hi,
    I had miscarriage in jan 2013. Now I m pregnant and I had few tests and my doctor said I had hypothyroidism. Is there any problem if I continue my pregnancy? I m taking thyroxine everyday one 50mg. Can you pls suggestion any other precautions ? And I m also worried about my unborn baby’s health? I m 7 week pregnet at the moment. Thanks

  64. I have been on levothyroxine for over 20 yrs and just now learned the importance of thyroid regulation and pregnancy….too bad it took a miscarriage for me to learn this very hard and important lesson. My last tsh test in June 2013 results were great – .68 then in January I found out I was pregnant (surprise pregnancy) and my drs office waited until 7 wks to have my first prenatal appointment. I had an ultrasound and all was good – strong heartbeat and baby was growing on track at the 7 week mark. My ob office ordered blood tests including thyroid but did not insist on the tests being completed right away and me not knowing the importance of thyroid and pregnancy I waited til my next appointment 3 weeks later to have the blood work done. My TSH levels came back at over 8 from a level of .68 just 6-7 months prior so they ran the TPO antibody tests which came back at 21 so there was definitely an issue. Unfortunately my baby had already stopped growing shortly after the first appointment and ultrasound and although they changed my dosage it was too late for this pregnancy.
    I now have appointments lined up with an endocrinologist to get things straight and now I know that I need to get tested as soon as I find out I am pregnant again. This has been a very difficult lesson to learn and I am so sad for the loss of my baby, had I known all this before I would have insisted on blood tests prior to that first ultrasound, it could have made a difference. Thank you for all you have done for awareness of this most important issue.

  65. Dana Trentini says:

    Hi Joyce, I’m sorry to hear what happened to your marriage. Happy you found help. I do not include comments about topics unrelated to thyroid. Hope you understand.

  66. Shahin Dalal says:

    hi. Dear Dana
    I recently come across through your articles and found it very helpful. I am a nurse and even though in constant contact with doctors and hospitals never think aut suffering from this problem. I am always over weight since childhood , now 27 yeas old and more than 210 lbs thinking fatigues and tiredness is due to my obesity only. recently I have come to another country and suddenly started severe symptoms which made me read about hpothyrodism. My ts level is 5.1 and T3 T4 normal but i am showing all the symptoms of hypothyrodism, still waiting for other reports and will consult endocrinologist. Even though i consulted endocrinologist in past for many years and none of them treated me for that. They treated me for obesity and PCOD. My friends from medical fields with their expereinces telling me that life migh be worse if they will treat ou wrongly for TSH. My mom is also currently diagnosed having hypothyrodism. It was a miscarrige before 1 year at 6 weeks preganancy. I am teaching in Nursing university and teahing studentsabout various psychiatry problems can not able to come out of my own fear and worries. Please suggest me how should i proceed for my treatment regimen

    with love

  67. Hi Dana,

    Thank you so much for this blog. I just stumbled across it in a google search because my doctor called me today to tell me I need to start taking synthetic hormones because my TSH levels are 7.2. I am 8 weeks 5 days pregnant. After doing a lot of reading/research tonight, I am very concerned. Thank you again for helping us all learn.

    Lauren

  68. Hi Dana,

    Thank you so much for this blog. I just stumbled across it in a google search because my doctor called me today to tell me I need to start taking synthetic hormones because my TSH levels are 7.2. I am 8 weeks 5 days pregnant. After doing a lot of reading/research tonight, I am very concerned, but also feeling a little helpless. Thank you again for helping us all become more aware.

    Lauren

  69. I had severe pre-eclampsia and my baby was low birth weight. I have also had 4 m/c’s. I asked my Ob for a thyroid test and he told me no. I am discouraged. What information can I take to him to ask for this test? I see there is a lot to testing thyroid. What all should I ask for?

  70. Dana Trentini says:

    Thank you Hive Fitness for including Hypothyroid Mom on your site. I appreciate your help in spreading awareness about the dangers of hypothyroidism and pregnancy.

    http://www.hivefitness.com/hypothyroidmom/

  71. Dana Trentini says:

    Kathy, I am a long time fan of MetroMoms. You have created a valuable resource for mothers and I am proud to be included in your MetroMoms.net Online Magazine. Thank you for publishing my article “October is Miscarriage Awareness Month” on this special day October 15th, Pregnancy and Infant Loss Remembrance Day. I am honored.
    http://metromoms.net/2012/10/15/october-is-miscarriage-awareness-month/

  72. A Louise Collins says:

    I too suffered three miscarriage in my life and near lose of two other early born infants…I now wonder if the fact that in later years I was diagnosed with a failed thyroid…??

  73. Dana Trentini says:

    I am very sorry for the loss of your babies. I never ceases to amaze me the number of hypothyroid women who miscarry. My second son was born early too another link to hypothyroidism. Of course it is possible your babies were lost due to other causes, however the fact that you are hypothyroid makes it a real possibility. I hope you and your miracle babies are well. Thank you for sharing.

  74. Hi thr,

    I am Kavitha. I had two miscarriages in the past. Recently we did fertlity tests, they told the results are perfect.
    My TSH level is 2.66 . When I called and asked them about TSH they said its perfect . I am worried now, after reading all this details, whether I need to consult the specialist before we try to conceive again. Please help me.

    Regards,
    Kavitha

  75. Dana Trentini says:

    Kavitha,

    Just to be safe consult with a specialist. The American Thyroid Association recommends:

    ■ RECOMMENDATION 2

    If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.

    The fetus requires the mother’s thyroid hormone in the first 12 weeks of pregnancy for growth and development so to meet the needs of the baby a hypothyroid women can struggle to provide and TSH can rise quickly in early pregnancy so even if you decide not to treat at this time be sure to have your TSH tested quickly in pregnancy.

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3472679/

    I was interviewed by thyroid advocate Mary Shomon on fertility and pregnancy. Amazing show. Here is the recording:

    http://cdn.voiceamerica.com/health/011268/shomon060513.mp3

  76. Dana Trentini says:

    Thank you Red Hairing for including a link to Hypothyroid Mom in your great article.

    http://hotmommaadmin.wordpress.com/2013/09/29/so-what-is-hashimotos/

Trackbacks

  1. [...] The launch of my blog Hypothyroid Mom is intentionally timed this October 2012 during Miscarriage Awareness Month in memory of the baby I lost to hypothyroidism and in dedication to my two boys who beat the odds and made it to the world. This is Part 2 of my series entitled Miscarriage Awareness Month: The Dangers of Hypothyroidism And Pregnancy. Be sure to read Part 1 Have You Suffered A Miscarriage? Your Thyroid Could Be To Blame. [...]

  2. [...] Post 1 – Have You Suffered a Miscarriage? Your Thyroid Could Be to Blame [...]

  3. [...] I’m sitting here wondering if I have hypothyroidism and, if so, did that cause my miscarriage?  Turns out that the thyroid is important in [...]

  4. [...] have struggled an uphill battle for proper diagnosis and treatment. Read my story “Have you suffered a miscarriage? Your thyroid could be to blame“. When I miscarried my baby unnecessarily to hypothyroidism due to my doctors’ lack of [...]

  5. […] moods fluctuated by the hour, my skin was dry, I hadn’t had a good nights sleep in five years and I had experienced four miscarriages. How was I fine? This past month I discovered that a better medication existed in the form of […]

  6. […] that her New York City doctors did not know enough about hypothyroidism, especially the dangers of thyroid disease and pregnancy. Under their care her TSH, thyroid stimulating hormone, reached levels far above the […]

  7. […] 1st, 2012 in memory of the unborn baby she lost to hypothyroidism. When she wrote her first post Have You Suffered A Miscarriage? Your Thyroid Could Be To Blame the words poured out on the page and she knew her unborn baby was watching over her. Dana knows her […]

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