The biggest human temptation is to settle for too little.
-Thomas Merton
Many Hypothyroid Mom readers ask which thyroid drug is best. My answer is always the same, “I wish there was one thyroid drug that worked for all of us but the reality is that we each react differently to the different medications. We must work closely with our doctor to investigate which treatment is ideal for us and what dosage is optimal.” The key is that you must know all the treatment options to ensure your doctor is exploring the options to find what’s right for you. If you are being treated with thyroid hormone replacement medication but you still don’t feel well, insist on further exploration. If you are still not feeling well, get a second opinion, a third opinion, even ten medical opinions until you find a doctor that explores the options to find what’s right for YOU.
Don’t settle.
Thyroid Drug Options
T4 Drugs
Author of the book Living Well with Hypothyroidism: What Your Doctor Doesn’t Tell You…That You Need to Know
Levothyroxine is the generic name for the synthetic form of thyroxine, a thyroid hormone replacement drug. This drug contains the synthetic form of one thyroid hormone, T4. Levothyroxine is the most commonly prescribed thyroid hormone replacement drug.
Brand names in the U.S: Synthroid, Levothroid, Levoxyl, Unithroid
Brand names in Canada: Synthroid, Eltroxin, and PMS-Levothyroxine
Brand names outside U.S.: Euthyrox, Thyroxine, Berlthyrox, Droxine, Eferox, Elthyrone, Eltroxin, Eutirox, Letrox, Levaxin, Levotirox, Levothyrox, Levotiroxina, Oroxine, T4KP, Thevier, Throxinique, Thyradin, Thyradin S, Thyrax, Thyrax Duotab, Thyrex, Thyro-4, Thyrosit, Thyroxin, Thyroxin-Natrium, Tiroidine
When I polled my Hypothyroid Mom followers for their top thyroid medication, many mentioned Tirosint. The levothyroxine in Tirosint is in a liquid form inside a capsule.
T3 Drugs
There are synthetic T3 drugs like Cytomel. Through a compounding pharmacy, there are also prescription compounded T3 drugs including time-released T3.
Natural Desiccated Thyroid
Brands include Armour made by Allergan (formerly Forest Laboratories), Nature-throid and Westhroid by RLC Labs, and NP Thyroid by Acella Pharmaceuticals. Canada’s desiccated thyroid made by the company Erfa is called simply Thyroid. There are also compounding pharmacies worldwide that produce compounded versions using the raw natural desiccated thyroid powder.
Find The Right Thyroid Treatment For YOU
We are each unique with individual sensitivities. Our bodies will NOT all react the same to these different medications. The dosages that are ideal for each of us will also vary. Our uniqueness is what makes finding the right thyroid treatment tricky.
Thyroid hormone replacement drugs are powerful, so powerful they can kill you if not taken properly. This is why it is critical to be under careful medical supervision when on these drugs, especially careful when starting a new brand or increasing dosage level. Call your doctor immediately if you experience adverse reactions.
1. Sensitivities to the fillers used in the medications
Author of the book Your Personal Paleo Code: The 3-Step Plan to Lose Weight, Reverse Disease, and Stay Fit and Healthy for Life
Many popular thyroid medications contain common allergens such as cornstarch, lactose and even gluten. As I explained in a previous post, most hypothyroid patients have sensitivities to gluten, and many of them also react to corn and dairy (which contains lactose).
Synthroid, which is one of the most popular medications prescribed for hypothyroidism, has both cornstarch and lactose as a filler.
Even the natural porcine products like Armour suffer from issues with fillers. In 2008, the manufacturers of Armour reformulated the product, reducing the amount of dextrose & increasing the amount of methylcellulose in the filler. This may explain the explosion of reports by patients on internet forums and in doctor’s offices that the new form of Armour was either “miraculous” or “horrible”. Those that had sensitivities to dextrose were reacting less to the new form, and experiencing better results, while those that had sensitivities to methylcellulose were reacting more, and experiencing worse results.
Thyroid Pharmacist Dr. Izabella Wentz, author of the book Hashimoto’s Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause
wrote:
Compounded T4/T3 products offer another alternative. These medications also offer the advantage of being made without fillers such as lactose or gluten, which are present in some thyroid medications and can be problematic for thyroid patients.
However compounded T4/T3 products need to be prepared by a specially trained compounding pharmacist. These compounds are usually much more expensive and may need to be refrigerated to preserve activity.
Thyroid compounds are usually prepared in the same physiological ratio that is found in Armour®, however, physicians can elect to change the amount of T3/T4, as the compounding pharmacists are literally making the medications from scratch. This can be a huge advantage for those patients that did not feel well on conventional treatments or natural desiccated treatments.
2. A gentle start to dosing
My doctor increased my thyroid drug dosage gradually in an incremental fashion until she found the dose that was optimal for me. She adjusted my dosages by regularly monitoring my Free T4, Free T3, Reverse T3 and thyroid antibodies and most importantly by listening to my symptoms. I contrast that with the stories I hear from readers of their adverse reactions to their doctor’s prescription for sudden large dosage increases and medication brand switches at high doses. T3 drugs such as Cytomel and natural desiccated thyroid have active T3 in them which for some people can be stimulating for the heart and cause heart palpitations. It is critical to have a gentle start.
In the book Thyroid Power: Ten Steps to Total Health, Richard Shames and Karilee Halo Shames wrote:
Some people do not want to take the time to start with a mild dose, adjusting to their medication gradually. However, we have found that the slow, step-by-step method of reaching your optimal dose is more easily tolerated by the body than the “sock it to me” approach so characteristic of our fast-paced culture.
3. The need for T3 treatment
In mainstream medicine, T4 drugs like Synthroid are the gold standard for treatment of hypothyroidism. While these drugs work for some, for many of us these drugs fail to relieve our symptoms. Our bodies need to convert the T4 in these drugs to the active useable thyroid hormone T3. However for many hypothyroidism sufferers, our bodies don’t convert the T4 to T3 and we are left suffering symptoms. If you are on T4 only drugs and you are still not feeling well, speak with your doctor about testing your Free T3 levels to determine if you would benefit from T3 medication.
Many of us report feeling our best on natural desiccated thyroid. However others report not reacting well to NDTs and responding better to synthetic T4 and T3 drugs. Even with natural desiccated thyroid, many of us feel great on one brand but terrible on another. Again we are each unique and it’s about finding what works best for you.
4. Finding your optimal thyroid levels
Many hypothyroidism sufferers are not feeling well despite treatment because their lab results are in the “normal” range but not at the optimal level for them. If you are being treated with thyroid hormone replacement medication but you still don’t feel well, insist on further exploration. If you are still not feeling well, get a second opinion, a third opinion, even ten medical opinions until you find a doctor that explores the options to find what’s right for YOU.
Don’t settle.
READ NEXT: TOP 9 NATURAL HYPOTHYROIDISM TREATMENTS
Hi, I’ve had to have my thyroid completely removed. I’m been on thyroxine since having my thyroid removed. I live in Australia and was wondering if anyone is on any natural desiccated thyroid medication. My Dr has only prescribed thyroxine I didn’t even know there was natural alternatives.
thank you
Hi Isla, I’ve been compiling lists of good thyroid doctors that are open to T3 and natural desiccated thyroid for the last ten years of Hypothyroid Mom. I have extensive lists for most regions in the world including throughout Australia. I provide everyone that I meet for an individual consult with a list of doctors for their region. In case that is of interest, here is my booking calendar: https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min
I wonder why you don’t have a web page with the doctors you recommend?
In my ten years as Hypothyroid Mom I have been shocked by the number of doctors that have lost their licenses because they went against the traditional TSH and levothyroxine thyroid model of treatment. It has been in all countries in the world including right here in the United States. I’ve never published a thyroid doctor list on my website because I won’t be part of publicizing doctors that stick their necks out and treat against the norm to help their patients. We need doctors to treat in an unconventional way because the current model doesn’t work for everyone. Regards, Dana Trentini
I actually compound T3and T4 formulations. We’ve been taught that we shouldn’t use lactose as a filler because it actually binds to the thyroid medication which lowers what you actually have available to you. This might be fine if you’re constantly getting bloodwork to monitor your levels and can account for that, but many people don’t have that available to them.
Hi Michelle, It is good to have you at Hypothyroid Mom. I too have turned to compounded in my case compounded natural desiccated thyroid. It is a helpful option especially for people that are sensitive to one or more of the fillers in the popular brands as happened to me. I wonder which inactive filler did your compounding pharmacist find to be the best for you?
I have had symptoms of Hypothyroid for years but was just put on Synthroid four months ago and am rapidly going bald! Any suggestions for this 76 year old?
Sharon, Contact your doctor right away and let them know you are losing your hair since starting Synthroid. Hair loss is a common side effect of thyroid medications and it may be that you need a change in brand. Here is an article with tips on thyroid hair loss. Good to have you at Hypothyroid Mom. https://hypothyroidmom.com/10-things-that-stopped-my-thyroid-hair-loss/
I see no mention of alternative medicine or homeopathic (natural) means to treat hypothyroidism. Not even food choices.
Can the article be updated for the non big-pharma route? I’m on Medicaid and I am never allowed a lot of medications. Synthroid alongside some MH and birth control pills caused me to gain 100 pounds and a large 2 pound uterine fibroid. I nearly lost my mind and my fertility.
Hi Jennifer, Thyroid hormone replacement medication is just one part of thyroid treatment. Here are articles with additional information. Good to have you at Hypothyroid Mom: https://hypothyroidmom.com/category/hypothyroidism-treatment/
Wondering if anyone has had problems with severe hair loss after switching to Levothyroxine. I was on DTE T-3 only but it wasn’t working. I was thinking of trying Amour but I’ve read that the main side effect is hair loss and I just can’t handle any more of that. I am thinking I need to find a NDT to help me figure out an alternative DTE probably with both T4 & T3. I welcome any thoughts.
I’ve am hypothyroidism can’t lose weight losing hair. Dr has me on levothyroxine 100 mg. Wanted to try something different. Not suppose to have gluten but it’s expensive. Dr doesn’t want to try me on armour. Want to see if there is anything out there that will help. Natural anything. Anyone knows any that will help let me know. Thanks
The Dr doesn’t want you to try it because it’s less kickback for them. Armour & Erfa Thyroid (Canada) are natural – try them. Make him write the prescription – you’ll be pleasantly surprised on how different you will feel. Get your TSH tested monthly while getting the correct dosage – ask your pharmacist the conversion and start from there.
I finally switched to Armour after years. The difference is unbelievable! I’ve been on it for about 14 years.
When I was diagnosed with hypothyroidism many years ago I told my doctor I would only take a natural dessicated thyroid preparation. Since that time I have been on Armour Thyroid. It has worked great for me. The only problem is, it is not covered by Medicare or my supplement and it is pricey and going up in price quite regularly now, so I pay out of pocket. Yet this past year my supplemental insurance sent me a notice saying they do not cover Armour (which I knew), but if I filled out a form and my Dr. preferred it, they would review it and perhaps cover it. I will look into it.
I am VERY sensitive to medications and there are many I can’t take, so I knew I would only want to be on a natural thyroid. Armour thyroid comes from pig thyroid and includes T4 and T3. I am so thankful that from the beginning and through the years I have had doctors who worked with me to use Armour. I don’t like taking drugs so if there is something they want to prescribe I research it and figure out if there is a natural alternative. If I have unanswered questions then I check with the Naturopath that I have seen from time to time, through the years.
Currently, my labs came back with low T4 and T3 numbers. My MD tried to raise Armour once before but the next level up in dose is too pronounced so I went to my Naturopath and we are going to try a compounded dose formulated by a compounding pharmacy near my home.
All this to say, I believe strongly that I know my body better than anyone else and that I will be my own best advocate for my health.
I have had to quit doctors in the past and I have no qualms about doing so if need be. My favorite health care practitioners are ones who are good listeners, don’t mind lots of questions, and are interested in us working TOGETHER to find the best treatment for my own unique situation. So be your own advocate, do your research, ask lots of questions and don’t be afraid to change Drs if you don’t get the help you want and feel you need, for your unique self. Oh, and don’t forget to pray for wisdom from God. He is our best advocate and knows us better than we know ourselves!
Jane thank you for your comments!!
Hi Linda, I could reiterate every post, the symptoms, the medicine, the doctors’ reactions, but I felt compelled to write and explain my latest experience working with a functional medicine doctor virtually during the pandemic. We traced my symptoms to a strep throat infection (that based on my blood work, was most likely misdiagnosed EBV) when I was 13. I took a very powerful antibiotic in the 1980s and I have been sick ever since. Additionally, mold exposure at work, stress, continued antibiotic use, and my love of wine compounded my issues. I urge everyone with Hashimoto’s and hypothyroidism (or infertility, uterine fibroids, hair loss, brain fog, inflammation, anxiety, and fatigue) to consider the possibility of Candida overgrowth. I took an expensive OAT test to confirm it, and have been following an anti- Candida protocol since June 1, 2020, which includes a gluten, lactose, sugar, and alcohol free diet and supplements. I have lost 31 pounds and my TSH went from 2.61 to .91 without any change to medication. I am still experiencing fatigue and anxiety, but I believe it is due in part to Candida die-off. Because my thyroid antibodies are still high, I am now trying a round of low dose Naltrexone, which has been known to put autoimmune diseases into remission. Ultimately, I want to NOT be reliant on any synthetic drug. My path to success is not complete and certainly has not been perfect, but I feel better than I have in 30 years. If my story helps anyone else, I will be happy. Happy Thanksgiving.
I just had an upper GI yesterday and they mentioned Candida in post op notes. I was diagnosed with hypothyroidism in August 2021. Having a horrid time with “allery” to almost all drugs. Now that I’ve read your post I’m connecting some dots that I will pursue with my doctors. Thank you.
Thanks- great info. Inflammation is my issue and I have never tried the anti-Candida protocol. I will now.
I too, did a round of LDN and was very happy with the results. I remain on 90mg of ND Thyroid daily.
I was diagnosed with RA at 75 years old. I am now 81, and been on Leflunomide for 6 years, and have never had a problem. Yes, my dosage has been changed on and off, I do have trouble sleeping at times. I have no pain other in my elbow joints sometimes. I work out three days a week as exercise is very important. I hardly know that I had RA. Have had wonderful Drs. Good luck to all.
I have a goiter, and I have tried everything. My doctor wants to remove the goiter. But, I believe that there is something better. Please share, if you have any information that can help me.
Thanks,
Ozetta
Ozetta, Has your Dr. tried iodine. Usually a goiter is a result of iodine deficiency.
I had a goiter at the age of 18. I’m now 52. They removed it and used radio active iodine. Was easy peasy. But I have developed Graves disease. Some say if you don’t take the iodine as prescribed you can get the Graves. Idk the science behind it but I do know that stuff was terrible tasting. I’ve had about 6-7 orbital decompressions thus far.
I was taking these meds, and recently changed to all natural herbs specifically for thyroid. Been on them now 2 months, and feel great, better than ever. It is called thyroid help formula nutritional and herbal support for a healthy metabolism by natural factors. You take two capsules a day and it has everything that your thyroid needs to stay healthy. I also take maca, a vitamin B complex, and vitamin D3. I have not regretted the switch, I recommend going natural and getting away from all the chemicals.
Hi, I wondered if you still are doing well on the natural thyroid supplements?
Ok. But did you have the radioactive thyroid treatment or thyroid surgery?
i had the radioactive thyroid treatment
This is fantastic. I am agree with you better natural approach of course. May I ask where you buy this herb ? Are you following from a doctor? Thank you
What all natural do you take and does your dr have to prescribe it or where can I buy it? Thanks
Are you saying that the 25 mcg of Levothyroxine has cornstarch, lactose and gluten? OMG!
I was taking these meds, and recently hanged to all natural herbs specifically for thyroid. Been on them now 2 months, and feel great, better than ever. It is called thyroid help formula nutritional and herbal support for a healthy metabolism by natural factors. You take two capsules a day and it has everything that your thyroid needs to stay healthy. I also take maca, a vitamin B complex, and vitamin D3. I have not regretted the switch, I recommend going natural and getting away from all the chemicals.
I have been going to the same endocrinologist for almost 6 years now and it’s the same thing. Your levels are normal! Always. I take levothyroxine. This last time I went, I described my symptoms to him. His response was sounds to me like hypothyroidism!!! 🤦♀️🤦♀️🤦♀️ but your levels are normal… let’s raise the dosage and see how that helps and come back in 3 months. But you have to be careful cuz too much can cause heart palpitations. I really need to see another dr!!! This one is going to kill me… The last Dr I saw just checked my levels didnt care about my symptoms and just gave me a prescription and send me on my way… all the drs are the same. None of them actually listen to me!
Go to an endocrinologist,mines great!
Go see an OB/GYN who specializes in hormones. That is what I finally did and it’s like a beautiful golden door has opened for me. I feel 25 again, I’m 51. I have been on 150 levothyroxine for years. From several endocrinologist…numbers look good. You have MTFR gene disorder, etc…
I was so tired of being sick and tired.
Find a female dr who’s brand is built on hormones. Your thyroid is a hormone. It will make all the difference! It has changed my life. 🙂 Best of luck!
Hi Tracy,
What did your OB/GYN give you that felt like a golden door opened/ I have had hypo thyroid for probably 30 yrs and never treated it. Also have HIGH anitibodies attacking the thyroid , just curious if you had ever tried Armour? and if not, what did you switch to , from previous levothyroxine ?
thank you thank you !!
Which doctor did you see?
Hi …
you sound just like me…. can u share what your obgyn did for u ?
Thank u Lori 💜
Ask for a reverse t3 and t4 blood test – (reverse t3 is $30.00 here) but they will tell you what you need – the tsh is just a “guideline” not everyone is the same and the tsh won’t be the same either. It’s like saying someone can feel good on 4 hours sleep and another feels good on 6 hours – they can do the same, feel the same, but the numbers are slightly different.
I had a complete thyroidectomy due to cancer. I have tried a few levothyroxine meds: synthroid, euthyrox, letrox and two others especially prepared for me, one of which contained rice flour as a filler.
For years I was taking synthroid, which contains lactose, and I am lactose sensitive which I discovered recently. Whiles on synthroid I was not working at my full capacity, tired with fogged up mind. I could not lose weight. I tried euthyrox and had similar experience to synthroid. Whiles in Europe a dietitian advised me to switch to letrox. I felt better the first day I took letrox and from the second day I was like during the years before problems with thyroid. I feel best on letrox which is not available in the country I live in. According to the pharmacist I deal with, in the country of my residence all prescriptive medications containing levothyroxine contain lactose (even though there are so many people that are lactose intolerant!) I was given two options of levothyroxine medication with fillers that are supposed to be most neutral to body. First caused an increase in my blood pressure (to 150/100). Unfortunately I lost the information on it. The second was rice flour which gives me symptoms similar to synthroid. I addition, to feel reasonable well on synthroid my dose had to be much higher than it should be with TSH suppressed almost to 0.
Also, I was told that letrox is getting more and more popular in the countries it is used in as people experience it much better than other brands. The main filler used in letrox is not available in the compound pharmacy I deal with.
It looks like all I wrote aligns with what has been written on this website about sensitivity to certain fillers.
Can someone tell me how I would be able to get letrox into a country that does not allow it? Obvious options like getting a prescription in Europe and having it mailed or bringing it from abroad are impossible or have limitations on the amount.
I have been on several thyroid meds. I am currently NOT taking any because to date I have discovered that these meds are increasing my arthritis pain and swelling in my ankles. I was to 4 different drs for aa out 18 months for pain and swelling in my ankle. No one could explain the cause. The pharmacy change the med, because the didn’t read the entire script, the new med created sever anxiety so I stopped taking it. Within days the sever ankle pain subsided, went to endo dr. Who said I needed to be tirosint. 2 weeks sever pain was back, so currently I am not taking any. Tired of ankle pain from meds, arthritis pain will always be but I am refusing drugs that make the pain worse!
I finally found a dr that agreed that maybe compounded would be better so he can increase the T3. Ive been on every brand of NDT and still have symptoms and can only tolerate increasing my dose so far bc I get jittery and anxiety. I did not realize the compounded version was NOT NDT. Now I’m worried bc isn’t synthetic not so great? I assumed compounded was NDT. This is so confusing!
Doctors do not listen?
I stopped going to the endocrinologist becaused she was doing the exact same test my family
doctor was doing, and I didn’t feel she was helping me. Only difference is she charged more and I was having to pay more out of pocket. Insurance isn’t going to pay for double testing.
Jesse is right we are our own best advocate. We have to push for answers.
I take 32mg of Armour Thyroid. Test show ok. But can’t sleep. Have terrible insomnia. I feel it’s the medicine. Could it be?
I have terrible insomnia on Armour. I suspect it’s definitely the case with you, as well.
My endo did does not want me on armour because the ratio t3:t4 is higher than in humans (if is from pig thyroid tissue). So you have more of the active form of the hormone :t3. Maybe this causes insomnia. To test if I needed t3 my endo added t3 to my regular treatment. After 2 weeks I was in deep depression. Came of it. So it is possible that too much t3 causes the problem.
Dear Jenn,
I am an RN who was so touched by your story. It really sounds like you did not go to a perceptive MD. I do not want to talk down to you in any way but please know that you check every MD’s reviews online prior to selecting an MD. This is what I always do. To see a caring GYN doctor I eliminated about 8 who were either rude, had a poor bedside manner, kept clients waiting too long, etc.
Best of luck in your journey toward health and do Not give up or settle for less than you deserve! Hugs
Karin
Most RN’s follow their docor’s orders. Most student physicians go to schools that follow a certain protocol. These “protocols” are governed by a medical society that really doesn’t care about human health, but profits. Therefore, most commonly seen family practioners are abiding by “old school” rules. I would advise anyone who is interested in their health to do research, and plenty of it, especially on the thyroid gland, as it conrols every organ in your body. Low T3 levels have been seen in deceased Alzheimer’s patients, over and over again.
I am lucky my Dr really stay on top of things when it comes to my thyroids have blood work every 6 months if they are off we change my Armour up or down until back on track. She is also up on thyroid storms since I have had 3 the last one thought I was going to die, it come from pharmacy giving me a generic zpack. She got right on it after she found out my husband took me to the hospital cause didn’t know what was happening. So blessed to have great Dr that looks after me & my whole family. Some of these Dr don’t give a crap just want their money####
I was hep c medication interveron free for 12 weeks, last month of treatment noticed hair was thining and balding, 3 months after treatment still hair falling out not as bad , some have said it will grow back on it’s own etc. should I get my thyroid tested at a lab and what to look for, greatly appreciated if I can get help
Morena spicer jan 20th 2020
I was on interveron for hep c ,i wwas on it for 12mths,i my thyroid stopped working ,so ive been on thyroid medication ever since ,ive started to get sores and skin rashes on my hands ,and really bad pains in me legs feet and both hands
Finally yesterday I saw an endocrinologist and thought ” Finally an educated professional who will test my thyroid more than TSH and figure out why my symptoms are back on synthroid” well fast forward and they told me my TSH is normal (and really optimal), they don’t need to test anything else since they did it before and it was normal. So my symptoms must be from something else since “everyone is tired” – try Vit D for my mood (I never mentioned having mood issues) and prioritize losing weight (but whenever I exert even walking the mall I have crazy hip pain and exhaustion for days)… I’ve never been so offended or disappointed in doctors… I don’t remember life before exhaustion.
You are not alone Jen! I’ve had a very similar experience. Unfortunately, some doctors have been beaten into insurance submission or are too tired themselves to take the time and effort with each patient. We have to fight for ourselves and be willing to take a setback like that but not give up. So please, Don’t give up, you are your best advocate. You know something is wrong, so keep pushing. See another endo and if that doc doesn’t get it, see another! All you need is one of them to listen and order the tests. Stay positive.
Hi, my endocrinologist said the same – after 2 sonograms and 5mm and 8mm found in my thyroid- its normal, nothing is going on , we’ll keep an eye out for it to see if it gets bigger, come back in 6 months@ how frustrating! I’m looking for a solution to my fatigue and symptoms and she shrugs it off!
I made an appointment with another endo in 2 weeks- for a second opinion! Good luck with your case- ⚘
After suffering Hypothyroid all my life I recently ask my doctor for Armour Thyroid (T4/T3) and she agreed to try it but it is expensive and has not generic (I am 72 a widow on Social Security) I struggle to afford the (TIER $) medication. The Humana pharmacist’s suggested a combination drug called LEVOTHYROXINE (t4)/ LIOTHYRONIN t3. Instead of Levothyroxine alone which NEVER worked for me. My doctor said she would not??? Do you have any reason why this switch would NOT WORK?
Vicki NP thyroid is back on the market with no filler, gluten or lactose.
Use good rx mine was $119 with good rx at rite aid $38 for 90, 90 mg.
Worth the money as feel so much better.
Does it help you loose weight?
I had my thyroid removed after countless years from having tumors in it. I still have issues with loss of hair, not able to loose weight, tiredness and the other problems. My Dr put me on Armour and the dosage worked until Nov 2018, my TSH went to 8.02 this was T3 Uptake,T4 Thyroxine total and free T4 index, changed dosage and now it is .07. This is very confusing so I’m back to my original Armour dosage of 90MCG. Guess my next blood work will be high again.
My grandmother found a grouted when I was 5, has surgery at 8 with 70 % of thyroid gland removed also. It was a long hard process to get my meds just right. For a young child this was very hard. I thought then I was looking my mind. At 19 all of my thyroid gland has grown back and another groiter. They did radio active iodine and killed and shrunk it all. But, I’ve had every symptom and fought them still fighting them at age 53.
I have been following Hypo Mom on Pinterest for some time now and have read many of the heartfelt testimonials from fellow sufferers. I too was diagnosed with hypothyroidism over 30 years ago. Needless to say I have had just about every imaginable pill cocktail out their for a supposed fix to my disease. Well 30 years later I have changed physicians (due to changes in our location) numerous times and have been on probably every combination of thyroid meds one can imagine. Needless to say I am no better today than I was 30+ years ago, same symptoms insomnia, weight gain regardless if I eat, don’t eat, diet, don’t diet, brain fog, fluctuating BP, high cholesterol levels, and the list goes on and on. My hypothyroidism is compounded with other medical diagnoses that I have two of which are fibromyalgia and lupus. My point in adding my story to this site is not to be negative, just the contrary. It is extremely gratifying to have somewhere to go and feel like you aren’t crazy and that there are other people out there who know exactly how you feel and understand where you are coming from. Readers should be grateful for the Hypothyroid Mom because she has provided not only an educational site for fellow thyroid sufferers but also a site where we can find at least a modicum of peace in knowing that we aren’t crazy or alone. I am a fighter and will not allow this disease or any of the other ones that I am faced with to defeat me but I am taking relevant information that I have ascertained from this site to keep on pursuing a better treatment for my disease. Thanks to everyone who has given their stories and a special thank you to Hypothyroid Mom for starting the ball rolling. I know that I am not alone with my sentiments. Karen in Phoenix, Arizona
Wonderful to have you at Hypothyroid Mom, Karen. I love Pinterest so much and the Hypothyroid Mom Pinterest page is a great way to connect with fellow thyroid patients.
All of a sudden a out three years ago I felt like a truck had run over me and I gained 20 pounds in 6 months. I couldn’t sleep and could barely get out of the bed. My doctor has had me on all the T4 meds at one time or another. I saw one of the nurse practioners one day and she looked at my lab results and realized that it was the T3 that needed to be treated! Alas, I had hope. Ha! Cytomel only kept me feeling badly. My hair has never been the same on any of these medications. It has continued to fall out and my head itches uncontrollably. Benadryl does not help nor does Xanax (which I would never take for any other reason). When I complain about not sleeping, the weight gain, the itching, and the tiredness they all just look at me and shake their heads. More steroids for the itching? Antidepressants for the depression? I think not. Can anyone out there help me? Is there an alternative to the meds that are full of additives?
I was diagnosed with Hashimoto’s disease this past August. I had many symptoms. However, during this time, I also found out that I had hyperparathyroidism, a year and a half prior. Many of the symptoms that hypothyroidism mimic this disease, as well. I had come to realize that even though the doctors continued to tell me my calcium levels were normal, they were not. The results of my lab results from the blood work agencies I was getting, were not accurate to the newer studies that are out there. Anyone who is over 40 years of age, please check your calcium levels, which should be taken at every physical when you have your blood panel done. If it is over 10, you should have your PTH numbers checked. If this is high, this is never normal. I had a tumor growing for approximately 10 years that I recently had removed, on January 31, 2019. Almost all of my symptoms from the hypothyroidism went away. However, I’m still struggling with weight gain. I just had blood work done, so I’m pretty sure I will be getting an adjustment on my thyroid medication. If anyone does have calcium levels over 10, please go to the following web site: parathyroid.com
I self diagnosed myself, when several doctors were doing absolutely nothing for me. I lived in terrible discomfort for years. All bone and joint pain went away withing 24-48 hours after having the tumor removed. Brain fog went away, I’m happier, no more fatigue, my hair has stopped falling out, and I feel 10 years younger.
Now I understand, many of you may not have this problem, however, it is worth looking into. It is very common and is misdiagnosed often. Bottom line, I feel that now that the tumor is out, I can concentrate on my hypothyroidism and feel tremendous hope that I will find the right medication to treat it. Having hyperparathyroidism made it impossible to know which disease was causing most of my problems. I know that this is post is for thyroids, but I think there may be a few of you that could benefit from this information, as well. BTW, I diagnosed a friend right after my surgery with the same disease, before her own doctor from UCLA did. I was able to tell by her labs that she had a tumor on her parathyroid just by her test results. She will be having the tumor removed. FYI, this tumor causes many of the symptoms of Hashimoto’s disease, however, many more…such as high blood pressure, kidney disease, and may lead to stroke , heart attack or some cancers, etc. It eventually is fatal. If anyone wants to continue this discussion, I am more than happy to.
Wishing everyone health and relief.
I had the exact same scenario. My PC Dr and ENDO dismissed my calcium levels for 7 years. I was soooooo sick. I self diagnosed and went to the Norman Parathyroid Center in Tampa for surgery. Dr Politz saved my life. I’m 6 months post op and feel so much better.
My underactive thyroid and hashimotos have been out of whack since surgery. Dealing with the same ENDO and he is worthless. Have started back with my Intergrated Med Doc. She too is keeping me on synthroid and adding the the synthetic T3.. I can’t take that as it causes heart palpitations and I have them already. Working to find a DR to help me get my thyroid back on track,
I agree anyone who has a calcium level of 10 or above. Demand they test your PTH levels and blood calcium in the same blood draw, You most likely have Hyperparathyroidism, It will make you very sick, destroy your organs and it will kill you. Don’t play the waiting game of lets check again in 6 months, Go to http://www.parathyroid.com. Everything you need to know is there. I highly recommend the Norman Parathyroid Center. They have the top 7 parathyroid surgeons in the world. You want a very experienced Surgeon.
Lynn,
I also Self diagnosed and had surgery at the Norman Clinic on July 31,2020. Just had follow up blood work done and my T3 & T4 were within normal limits but my TSH was 5.7 back in March of this year it was 2.44. My blood pressure has recently spiked as I usually run in the 100s or even 90s now spiking up to 145. My blood work for my calcium was 9.9 iodized calcium was 1.11 (normal 1.12-1.32). & PTH was 74 which I thought was high. I also have a UTI. I’m not sleeping, feel jittery some of the same symptoms before surgery. At present I only take a thyroid supplement. I have an appointment with my primary today.
I was diagnosed with Thyroid cancer three years ago and had it removed!
I went through many different doses of Levothyroxine and I am at 100 mcg
taking it every morning on a empty stomach with a lot of water!
Not feeling to bad, but the weight gain doesn’t stop.
I did eat Paleo even before I had cancer so it can’t be the food, just wonder if other
Women have the same experience since taking Levo!
Going to see a Top Doctor very soon who is specialized in Hormon/Weight loss!
Will definitely let you know what she is going to change!
Hello Heidi: I am in the same situation; I have a non-functional thyroid due to radiation. I am on Synthroid and I am having an extremely difficult time losing weight; and I do work out and eat relatively healthy. Please post what your doctor recommends…I am at my wits end!! Thank you!
I’m roughly eight years post-menopausal , what a joyful experience that was !
So it’s been three months since I’ve been diagnosed as hypothyroid and started on 25 MCG of Levothyroxine. My practitioner did the standard TSH/T4 test which showed my TSH was high, at 6.16 . Now my last bloodwork done after eight weeks , showed the TSH at 2.96. I requested we also test for T3 so , she did the Free T3 , it was at 2.5 ( which I believe to be on the low end of normal ) . I am so amazed that our medical / health system’s teaching is still in the dark ages when it comes to the body. Why aren’t they teaching their students that the body is a whole , and that when one thing is “off” they don’t just treat the symptoms with drugs( that usually mask the symptom) but look at how the body can be healed ! I have yet to have a traditional medical person EVER address the root cause , the diet etc. , it’s always just … “take this drug” . Our medical community is controlled by the biggest , wealthiest industry on our planet ; just watch TV for a night , it’s commercials are about 85% drug sales. Talk about drug pushers ! Then there’s the insurance industry too ! God help us all !
I was diagnosed with Hoshimotos approximately 6 months ago only after I went to see an endocrinologist after dealing with hypothyroid for over 15 years. I’ve been dealing with with brain fog, fatigue, etc. etc. First he advised me that I was on the wrong dose of synthroid. I was also diagnosed with insulin resistance. He increased my dose a bit and I lost a few pounds but the rest of the symptoms were still there. I did alot of research regarding generic verses name brand and apparently there is a difference so I decided to try name brand Synthroid. First of all, I still have some of the symptoms but I have seen a difference. The differences are: my face doesn’t seem as puffy as it usually looked, my joints don’t ache as much and I don’t feel as tired as I did before. The only drawback is that the name brand of Synthroid cost 3 times what the generic costs but I guess it’s worth it because I do feel better than when I was taking the generic form.
well I gotta say after reading alot of the stories here . It makes me feel a lil better knowing I am not crazy !! I was diagnosed with hashimotos last year and it has literally been a nightmare for me . Dealing with all the symptoms and insomnia as well as brain fog and anxiety (ugh) . I have now been on lethroyxin for a year now with no relief . I feel as if my life isn’t my own anymore . And when I have my levels checked it always shows normal range . It’s so fustrating to say the least . So have finally decided to see a endocrinologist and see if I can finally see some relief !! Thanks for sharing all your stories made me feel a lil better ! 😉
Most endos will tell you the same story. They’ll give you Synthroid or Levo and say you’re fine. Join a FB group and start looking for doctors that will prescribe a natural thyroid medicine. Good luck.
What Facebook group should I join?
Check out “stop the thyroid madness” on facebook. You will receive lots of knowledge and what blood tests to take. Don’t be discouraged- learning is what will help you to identify and pinpoint your issues. Get all the right testing. MTHFR, Eptstein Barr, Iron, Ferritin, D3, B12 and others. Best wishes
Well I just have to say I am angry. I know I should be glad websites like yours exist, but hours of pouring through obscure handfisted testimonials based on anecdotal nonsense and little reward leaves me feeling so discouraged. A multitude of you making these kneejerk reactions to new medicine when it can take a few months to adjust to a new medication or change in dosage; proclaiming this and that after a few weeks. People experimenting with their own disages; what the heck is wrong with our world where the sick are left with no answers? And it’s not that Sarah Ballantyne or Terry Wahls aren’t knowledgeable, it’s that neither of them was educated specifically for the areas of healing that they practice; they too had to figure it out for themselves. And I will tell you this: they don’t have all the answers, and some of what they have to say is wrong. And a large part of the natural healing method is an industry like any other. And after how crappy I still feel, I still choose to trust my medical doctor because he listens to me and is not afraid to try new things. But I have tried ketogenic, paleo AIP, and I still feel just as crappy as the day I started it and it has been months. And all of you talking about how badly you feel breaks my heart, because being human is hard enough without being able to be whole. And my kids need me to be well and I feel like there is no possible way I can raise them to adulthood. And my mood swings and anxiety have alienated me from meaningful relationships. Nobody understands what we are going through and that is the hardest part of all.
Are you possibly going through pre-menaoause? I am almost 47 and have had symptoms for a couple of years now and it was a nightmare. I have found little support. I thought I was going crazy. Literally. The doctors wanted to push antidepressants but I refused and use a natural progesterone cream. I realized a lot pfy symptoms are coming from high estrogen levels and I wasnt exercising enough and had high stress situations for about a year. Military related. Anyways, I see and agree with your ppint of view.
Have you gotten genetical testing? I think each person has to find what is right for them. I might die before I get it right, but since one of my kids was found to carry MTHFR gene it has given me another clue. I am waiting for my own testing to come back, but in the meantime I am going to get some help with methalation therapy. I know I can’t handle folic acid because it has always made me sick. There may be other conditions that can be diagnosed and treated because of genetic testing and research.
Lady if you can get Synthroid or Levo to work for you…..awesome! But there are a lot of people who have been on those drugs for years (me almost 20 years) and still felt the same. The doctors shame you into making it your fault. Mainstream medicine has NOT gotten autoimmune disease right at all. Now I don’t know all your problems, but the first thing you should do is find a doctor who knows how to treat Hashis. Lots of FB groups who will point you in the right direction. As far as diet if you’re still eating gluten and only went off a short time there is no doubt why you’re still feeling bad. Those diets are hard and most are meant to be a forever thing. And yeah that sucks, but so does feeling poorly.
I know exactly what you are feeling. I am so disgusted with the ups and downs of Thyroid medications that I have decided to completely stop taking them altogether. I am in such pain from Synthroid. I’m tired of Brain Fog, sleeping too much; and the list goes on. My husband is no longer patient with me. I can’t take this anymore! Do Doctors even care?!
Please don’t stop taking your meds. You may feel awful but they are keeping you alive. Please don’t stop trying to find what makes you feel better. If it means trying different combinations of meds then try them. I felt terrible on a T4 alone med and now I add a T3 med to it. It isn’t perfect, but it’s better.
I empathize and understand what you are going through. After 17 yrs of being on thyroid meds, I was told by a Dr. (Endo) they shouldn’t have ever put me on thyroid meds after the radioactive iodine treatment. Now, I believe after extensive treatment of meds and adverse reactions to Tirosint my liver and kidneys aren’t functioning properly. It’s not fair! And no medical doctor, endo, etc. has any answers. I trusted them, they experimented with my life all these years, and my health is worse than when they started. What kind of world do we live in where they put their wealth over our health?! GOD will judge them all and my prayers go out to each and everyone of us who are suffering with illnesses beyond our control.
Hi VS,
Please look at my above post dated today a few minutes ago.
I self diagnosed myself at Parathyroid.com
I don’t know if this web site is for you, but it’s worth looking into. It has saved my life and relieved all of my symptoms, except weight gain. Please take a look at the symptom list provided. I have Hashimoto’s disease. However, along with that, I had another issue that had not been diagnosed by my doctor for 10 years. Both diseases have most of the same symptoms.
I believe they should do more study on these thyroid medication . i beleive they discriminate on who they want well and feeling good.ive been through this horriable experience to. I dont understand these doctors anymore. Please post some great endocrine doctors in memphis.tn please they want help us well enough they make us feel bd about ourselve living with the disease.i also beleive they causes abnormal growth too. Please help give recommendation and advice.also i would like to add be careful because hate crimes on rise and they dont want to help us.
“. i beleive they discriminate on who they want well and feeling good” this is the kind of stuff my mom used to say. She didn’t believe people had good intentions in general. She died two years ago from lung cancer after a lifetime of smoking. She believed the government was lying to us. It is, but she preferred to throw the baby out with the bathwater I guess. I am not saying you are irrational like that, but these negative statements that some “they” have ill intentions, both useless and possibly damaging to the rest of us. You most importantly, need to check your negative and paranoid thoughts for your own wellbeing and trust the intention of doctors, even if you question their comptetency.
You sound bitter, angry and closed minded. Sorry for your loss anyway.
Dr. Podraza is an OBGYN, but he is helping me with my thyroid issues when no other doctor has even tried since my basic numbers look good. No one ever tested reverse T3 before. He is in Memphis.
I don’t think that Race has ANYTHING to do with this. I think doctors simply don’t know, or don’t care. Meanwhile, we are suffering to no end!
I have hashimotos and finally ditched the endocrinologist after years of synthroid meds that weren’t helping me at all. Anxiety issues, heart palps and extreme fatigue were ruining my quality of life. My doctor just kept doing bloodwork and increasing my dosage of synthroid and nothing helped!
Someone told me about a doctor who prescribes Armor thyroid. After alot of bloodwork, it was determined that I have a T4 conversion issue. 18 days on Armor has been life changing for me. It was also suggested I go to a gluten free diet to reduce inflammation along with turmeric daily and a regimen of vitamins.
My suggestion to anyone who feels like their doctor isn’t listening, fire them and find another one. Keep fighting till you feel better.
My hair isn’t falling out anymore and I feel more like my old self again. There is hope for this awful disease. Blessings to all.
Lisa, I just found out I have Hashimoto’s after 25 years of the classic symptoms.. I took Synthroid, Levoxyl, others for 15 yrs and the last 10 years on Armour and Erfa from Canada Now I’m taking Erfa 120mg a day and 1Cytomel 5MCG a day. I split the Erfa AM/PM. I am still exhausted with insomnia and very low energy. I am going to a clinic in Houston because I can’t find a doctor who will prescribe desiccated Thyroid in my city. Even with all the trials of medications I’m still not feeling well and my hair is till falling out. I’m very happy you found the right dosage and are feeling better. Maybe one day I can say the same.
I used to live in Houston. My endo was totally fine with prescribing Armour when I said I would prefer it instead of the levothyroxine. I didn’t have to even make an argument, he was familiar with it abd said it was an “old school” medicine but he is very familiar with it. He is located in Tomball. He is an older doctor and has lots of experience. Dr Tariq Zia MD and the clinic is really nice and labs can be taken in office. I hope this may help and hopefully he still feels open to Armour since it was years ago. Google says clinic is still open in Tomball.
I don’t remember my dosage because that was 2014 when I had my total thyroidectomy. I am on the fence about moving back to Houston just to be able to have my same doctors because San Francisco endocrinologists suck in my 4 years of living here. I’m fortunate to have a primary that switched me back to Armour just six months ago but she isn’t super experienced with thyroid stuff and we haven’t found an endocrinologist to work with yet willing to keep the Armour so my primary isn’t comfortable raising the dosage further herself, so I’m stuck under dosed until then to be safe than sorry which I understand my primary physician not feeling comfortable with something she isn’t sure about.
Hi,
I live in Africa and I had a partial thyroidectomy in 2012 and was put on a standard dose of 100mg levothyroxine for life until someone mentioned I see an endo in 2013. I located one of about just 5 endo’s available in the country and started seeing him regularly. He adjusted my meds while checking T4 regularly till he settled on 75mg daily. I haven’t felt well on this dose and have gained a lot of weight. My cholesterol and blood sugar levels have shot up. Read about natural dessicated thyroid and asked my endo about it a number of times but he insisted the only treatment available is thyroxin. have tried to find any of the natural thyroid meds but haven’t been lucky in this side of the world. Any help or suggestions
I can relate to so many people who have shared their thyroid issues here. I married in my early 20’s and did office work until my first child was born. When she was 3-months old I was diagnosed with Sarcoidosis, an autoimmune disease. My doctor put me on Prednisone for an entire year. During that year I regained my energy and enthusiasm for life. After I was weaned off the Prednisone I woke in the middle of the night unable to breathe properly, coughing and wheezing. My Dr. said I had asthma and prescribed an inhaler which I still use. Time went by and I gave birth to 2 more babies within 4years. During my 3rd pregnancy my husband’s job kept him away from home 3-4, and sometimes more, days per week. I was totally stressed out trying to raise a 4 and 2 year old, take care of the house, etc, while very big with child. I thought at times that I was losing my mind. After my baby was born I felt much better and was able to cope, most of the time. By the time the baby was 3 years old I had started back to school. I was so exhausted all the time, which led to emotionally draining days. I went to the campus doctor. He said it felt like I had a goiter, but other than that he found nothing wrong. I continued with school & home life, but still felt awful. A friend came to visit with her mother who asked if I was okay. I told her my symptoms and she told me that I probably had thyroid disease. Apparently the same thing had happened to her. I found a female doctor who only treated women. She prescribed Synthroid, changing the dosage until I felt good again. I thought I was cured until the symptoms returned a few years later. We moved away by then and I had to find another doctor. I haven’t felt right for many years. Finally I found someone who would prescribe Armour Thyroid. Unfortunately, the wide range scale that she adhered to kept me from getting the dosage I needed.
I am now 65 years old and still not having much luck convincing doctors to prescribe the amount of medication that I need. I have a new Endocrinologist now who is very good. He’s taking things slowly, but I am encouraged that he will be able to help me. I’m in the testing phase and he has no problem with me using Armour Thyroid. I’m keeping my fingers crossed. He is the first Dr to tell me that I have Hashimoto’s Disease. I also have Multiple Sclerosis, another autoimmune disease. Hang in there. It all comes down to finding a true medical professional who will work with you so you can get what you need to feel your best. I’m hoping that my time has finally come.
Sincerely,
Nita
I wish you much luck.I am also hashimoto/autoimmune disease,been 4 years and still trying to get it right.My doctor I have now has changed my meds 3 times in 3. Weeks.Seems there oughta be more research on this disease since it’s so hard to get the right meds.Wake up world!!Hypothyroidism is more serious than most people realize.It affects so many things.Lets pray for better research for the future.I’d hate for my grandchild to have to go through this or anyone for that matter.
I had been on synthroid 100mg for the past 4 years prescribed by my family doctor. I was lifeless,never doing anything with no quality of life.After begging for two years he finally sent me to an endocrinologist. I thought for sure I would now get some help.She changed me to thyroid (pork)/armoire 60mg But after four days I felt I was dying literally dying.Then she put me back on synthroid 120mgs. I’m sleeping 16 hours a day and am still waking up exhausted,heavy sweating,mostly my head,losing my hair,gained 60 pounds in a year.It takes me days to force myself to even shower.When I am up I just sit here feeling tired,lost and alone.hopeless,feeling like I may as well crawl in a coffin an pull the lid closed. I’m sick and tired of being sick and tired.Please someone help me!!!
My doctor has agreed to change meds to tirosint.Now jumping through hoops to get my insurance on board.Praying for help. I’m sleeping my life away!
Thank u for putting how I feel in to words. I wish I had something positive to say. But in a strange way it helps to find out there are others who feel the same way I do.
We are not alone Rachel. Wonderful to have you at Hypothyroid Mom.
There is a patient assistant program you can try to get on for Tirosent. I found it after I lost my ins due to having to resign from my job after not being able to use my right side (couldn’t lift my foot over a piece of paper). Just google the manufacturer for patient assistance or Tirosent itself. I pray you have gotten some already.
Coleen, how did the Tirosint work for you? My endocrinologist put me on it in September 2017 and it was life changing. My doctor thought that it might be expensive when she prescribed it, but I only pay $26 for three months. Hoping that it had a positive affect on you and praying that it continues to work for me!
OMG, this is my first time into this forum, and I too am having a lot of issues and they really got worse after a major surgery 3 weeks ago. My tantrums are epic. I did use tirosent for many years after my thyroid removal. I tried synthyroid, but my body did not like the fillers. I ran into a lady that had been on Armour for a long time, so my doctor let me switch since my body was not converting T4 to T3. The problem with Armour is the dosage is not consistent. So what you get this month may not be what you get next month. So, now I’m considering asking to go back onto Tirosent with a cytomel added. I have to watch the cytomel because I have mitral valve prolapse and it can kick in palpitations. Oh Lord, I wish I had my thyroid back…….
Try getting genetically tested. If your doctor won’t do it go to 23 and me and have it done. It may be worth the $200, even if you don’t think you can afford it. Ask about MTHFR.
I feel for all of you! I was just diagnosed with hypothyroidism less than six months ago. I really don’t like it at all. This was the last thing in a string of health issues that have come knocking on my door. A few years back I was diagnosed with Type 1 Diabetes. That, in and of itself was enough to throw me over the edge. That came amid trying to recover from an eating disorder that has haunted me for quite some time. My doc said having an eating disorder and diabetes together in the same room is not a very fun combination. Uhmm, yeah, I know! Then came the thyroid and an unexplained weight gain of 20 pounds! Tell me how that is suppose to help a recovering anorexic?! No amount of exercise or “dieting” helps take the weight off. I don’t want to be what I was while in the midst of my eating disorder, but I would like to be at my appropriate restoration weight. My doc put me on Thyroxin (I believe that’s what it’s called). He just raised the dose a week ago. I don’t know if he’s aware of the T3/T4 thing, but I am going to ask him. I’ve had others mention it to me as well, so there must be something to it. It’s nice to know others “get” what I’m experiencing. People who haven’t lived it, don’t understand it.
Best,
DeDe
I switched doctors a few years ago because he said my unexplained weight gain was from getting older. My new family doctor researched the T3/T4 issues mentioned in the article and put me on a low dose of Synthroid AND Armour. It has made a huge difference in my life. I fired my endocrinologist who said I only needed one med. This past year I added turmeric and ginger to my diet and I started a ketogenic lifestyle. I dropped 25 pounds, have more energy, & no more joint aches! We definitely have to self advocate and keep searching for a doctor who listens. The medical practices on treating hypothyroidism are changing (slowly) because of our stories.
This is wonderful Gwen. Finding the right thyroid medication and dosage is literally life changing. It’s sad really how few doctors are open to including T3 medications like natural desiccated thyroid. This would explain why there are so many people following me at Hypothyroid Mom. I have not yet tried the ketogenic diet but I plan to. I hear from many actually just another person today that swears by ketogenic. I’ll have to give it a try.
Best,
Dana Trentini (aka Hypothyroid Mom)
Yes I ‘m on thyroxine been on these for years, I’m always tired, I also have sleep apnea to and Fiberomyalgia I feel so exhausted and have no energy the more activities I do the more tired I be come so I need to rest my body. I’m going to see a neurologist about my chronic fatigued and Fiberomyalgia and high blood pressure. My body is always in pain exhausted and have no energy to do anything at all. Hoping these neurologist will help me as my life a struggle.
I have the same things as you do. Life is tough with this combination of illnesses..But it is comforting to hear that someone else also understands the concept that the more I do the more tired I get. My family is always telling me to exercise more and be more active- they can’t wrap their minds around the fact that when I exercise I end up paying for it for days, being too exhausted to even shower or to put make up on. I’ve spent the last 20 years trying to find answers, but to no avail. I would give everything just to have even 1/3 of my old self back. Its true what they say about if you don’t have your health you really don’t have much. Life this way is a constant letting go of your hopes and dreams and loosing people that you love….Please let me know if you find anything that hepls.
Have you had your adrenal glands checked. DHEA is a prescription in Canada but over the counter in USA. I saw Adrenal Support sold in a drug store over the counter. It made a different for me.
I have Addison’s disease. My pituitary gland is partially withered causing my adrenal glands not to function as they should. I take cortisone as a replacement for adrenaline.
About a year ago my thyroid went wacky! I lost weight plus my skin became like crepe.
My doctor put me on medicine but within a week or two it was found my thyroid was normal. I was told to stop taking they thyroid medicine which I did. Lately I’ve been gaining weight and I wonder if this is thyroid related. I do have many of the symptoms that are listed on one of the pages here. I figured those were from my having Addison’s disease. Now I wonder.
I have the same things as you do. Life is tough with this combination of illnesses..But it is comforting to hear that someone else also understands the concept that the more I do the more tired I get. My family is always telling me to exercise more and be more active- they can’t wrap their minds around the fact that when I exercise I end up paying for it for days, being too exhausted to even shower or to put make up on. I’ve spent the last 20 years trying to find answers, but to no avail. I would give everything just to have even 1/3 of my old self back. Its true what they say about if you don’t have your health you really don’t have much. Life this way is a constant letting go of your hopes and dreams and loosing people that you love….Please let me know if you find anything that helps.
Unfortunately I feel the same way u do. But I don’t have the skills to Exspress my self. Thank u for putting it in writing that is read able.
But god I wish I had some positive things to say. But I don’t and I hate saying your misserery makes me feel better to know that I’m not alone. I can’t even stay awake long enough to replay💤💤💤
I take nature throid.? The past month I’ve had diarrhea
Does anyone no what can cause this. And I saw they had
A recall on Synthroid.but iam not shure on nature throid
I no there’s a back order on the 90 ml pills
Oh my goodness! Maybe this is why! Same problem… and I’ve been using NT, too, after having to switch from WP to NT due to RLC Labs production move and issues. 🙁
I don’t want to be on Armour! Costs more and the fillers, too. Ack!!
Hello. I am going to take a chance that my email will not be sold or other wise used inappropriately. I have many health issues, the most major of which is being stuck in a V.A. world of pharmaceutical drug pushing.
I am a Type 1 IDDM male, and have been since 1983 when being a missile launch crew member caused my pancreas to shut down. I will forgo the nightmarish treatments, or lack thereof or any semblance of what I read as normal health care. For instance, since 1983, I have only been allowed to see two endocrinologists.
One of the many health issues I face now is that of a thyroid that teeters, causing in my opinion, uncontrolled weight gains, creating such an ugly and awful feeling of my entire body daily, as well as the psychological issues of depression and such.
I have been on synthroid for the past 10 years or so that have been slightly increased as of late. However, in reading just this article now, I am learning there are many other issues and possible medicinal assistances available. Yes, I have educated myself throughout the years about all the complications surrounding this death sentence I received when my pancreas shut-down, but put way too much faith in V.A. primary care physicians.
I say this because the V.A., in my opinion, does not go to extra lengths to assist patience and only do what was taught in medical school as a standard of treatment, “catch-all” medicine as I call it.
I am not a cookie and do not live on a cookie sheet. I am not a number to get past in order to fill some completion sheet. I am tired of feeling like I am dead already and just plodding through life waiting for a dirt nap.
I do not each much at all these days, and weigh about 232 lbs. A month ago I had lost 35 lbs and began to feel really good, but then for no apparent reason, all the weight is now coming back and no response from my doctor.
I am unable to eat since according to other doctors, I have a gastro type issue that does not allow for me to digest healthier food at all. My doctor a year ago put me on polyethylene glycol, which according to the literature and Internet is not supposed to be taken more than a few weeks. This has been an on-going issue since I suffer from chronic constipation, bloating, and very uncomfortable heaviness.
My new doctor told his nurse to call me and inform me I need to drink more water. I already drink over 5 quarts daily. This was his only recommendation and sent me a new prescription for the glycol.
If you cannot help me, please do not send anything in my email. I do not wish to have ads, joining, or anything as such. I just want and ask for assistance or advice, which I will not ever hold you or other for being responsible for. My treatment these days is more about just what I can do, and asking for help outside of the only treatment I have. I just won’t go back into a V.A. medical facility for any reason.
Reading this scared me a little. I have a lot of the same symptoms. Never thought it could be a thyroid issue. I don’t have any answers unfortunately but your story may have helped someone. Thank you for sharing it.
Have you tried probiotics? I mean a good, reputable brand and continuously, for months.
Or make milkkefir yourself. The flowers eat the lactose to life, so even people who suffer from milk intolerance can drink it. More probiotics is impossible.
Gregory. I had your same symptoms except I am not type 1 diabetic but, my mother was. I had gastroparesisus which is slow movement of the GI tract. Poor appetite, weight gain in spite of barely eating at all, severe constipation and bloating, and severe fatigue. The doctors all dismissed it saying I needed to drink more water, take glycol, antidepressants, eat more fiber. They checked my labs and they always came out normal. I got worse until finally, I found an old country doctor who diagnosed my symptoms hypothyroid. He put my on a 60 mg dose of natural dessicated thyroid. I titrated to my present dose of 120mg. My symptoms have gradually improved and 3 years later, I am feeling back to normal.
I have hypothyroidism and feel like shit moat of the time ; however::
•Gluten -Free diet has reduced constipation, bloating, ans a lot of inflammation! 👍🏽
•Maca root powder, clove, cinnamon, tumeric and bone broth powder (yum yum!) mixed together with coconut oil and almond milk and honey. Is the only thing that eases my hypothyroid symptoms. Can be heated like a lattle👍🏽👍🏽
Look forward to knowing how it works for you! It took sweat blood and tears to find this info.
How much do you use? The measurement for. each ingredient. After you make the mixture can you refrigerate the mixture? Where do you purchase the maca root powder?
What are the amounts you need to use?
Hi Gregory,
If you can save up and find a good N.D. – naturopathic doctor (NOT a naturopath, in most states they didn’t go to doctor school like N.D. is required to do.) I highly recommend it.
T4/T3 levels affect all kinds of things you’d never expect. Get optimized for your body.
Here’s why I say that:
In the past year I’ve been through 4 doctors and 3 different treatment approaches (the 4th doesn’t count, that wacko-bean told me to go off thyroid completely).
Pre-thyroid treatment I had been self diagnosing / treating symptoms ranging from digestion, elimination, adrenal exhaustion, pancreas getting cranky, and liver calling out for help, hair, skin, peri-menopause, brain / cognition, depression, on and on.
So I had this year+ long set of symptom data I’d been tracking.
When I started thyroid treatment, here’s what I discovered:
T3, T4, T2 all fixed different symptoms when in
the right amounts.
My adrenal exhaustion corrected almost instantly. My digestion, pancreas, liver symptoms disappeared. My elimination symptoms responded fast.
Peri-menopause even miraculously stabilized.
Holy crap I got my brain back!
Some got be, some got worse, depending on what I was taking.
I don’t recommend this, but I was fed up with docs and went rogue. I had 3 prescriptions to work with and the test results from each. I systematically experimented with my own ideas, carefully tracked the results, keeping a close eye for signs of over medication. I was cutting pills in half and in quarters, seeing if I could hone in on a sweet spot of symptom relief on all fronts. It took forever! You don’t know til you’ve been on it a while if the results will sustain.
I have my year check in with my original doc soon. She’s an N.D. (A month or so ago I emailed her in the HIPAA system, let her know what I’d been up to, and asked for a 1/2 dose am/pm prescription of one of my meds that crumbled when cut so the amts were random.)
I wanted 3mo of baseline data on a consistent level of my armour plus T3 experiment for the check in.
She was totally on board with all that. I’m allergic to something in armour, and I’m certain I’ll be trying compounding next to get more precise.
I’m definitely having to pick which symptoms I’m going to live with the rest of my life, but my internal organs are happy, I’m not taking piles of supplements, my belly / intestines are stable, and the sugar/salt symptoms are no longer wildly swinging all over the place.
I know you have a different body and baseline condition, but I highly encourage you to find someone who will work with your symptoms, not just your test results.
My belly and intestines encourage yours to never give up until you know for sure there is no T4/T3/T2 combo that can help them stabilize.
Great that your ND only requires 1X/year appointments! While my Dr initially said late 2012 that I would only need to come in one time /year once thyroid stabilizes on a dose. I’ve always had to go in 2X/yr, plus labs! I had insurance, but no more starting 2018.
Because I’m lazy, here’s a comment I just posted on another article about cracked heals and possible hypothyroid connection:
This is exactly why my heels crack… whenever my thyroid meds are not enough, cracked heals follow. When thyroid meds are optimal, no cracks–yay!
Last year, 2017, RLC labs moved their mfg location and WP Thyroid & Nature-throid (NT) became scarce and then unavailable. I purposely shorted my WP dose of 65mg/2X day to just one per day…. hoping production would hurry up. Nope. NT was produced first and became available. Asked the Dr to change my script to NT so I could get back on track. Even though I just had Nov 2017 labs, by March 2018, the Dr said I need to be seen first because of the elapsed time. What?!
Long story, short, I finally received the new script late June to NT. I’m still waiting for the smooth feet…. I hear NT is not as effective as WP. Hoping this cures soon! I want my feet back!
AND I would like to 1) figure out what to improve so I can get off the NDT & liothyronine, 2) until then, item #1, I want a Dr who doesn’t require nee labs and an appointment every six months. Gracious, I’ve had the same script for several years now.