Real people share their worst (downright awful) hypothyroidism symptoms

Real people share their worst (downright awful) hypothyroidism symptoms

It is one thing to read articles about hypothyroidism symptoms online but quite another to hear the symptoms straight from real people. These are real people, like you and me, struggling with a collection of symptoms so hard to pinpoint that they baffle doctors in every country of the world. While we don’t know one another personally, the truth is that we are connected, just the same, in a particularly powerful way. We are living in the trenches together fighting a battle against this thing called hypothyroidism.

The number of potential symptoms that can accompany hypothyroidism is not surprising, frankly, but rather obvious given the sheer power of thyroid hormone over the entire body.

What is your worst hypothyroidism symptom? That’s the question I asked my one million followers on the Hypothyroid Mom Facebook page. It was in the form of a poll and the results may very well surprise you. A simple, 6-word question uncovered the truth about what lurks behind this wretched disease.

What is your worst hypothyroidism symptom? Poll

And here are the results, in the order of the highest to lowest number of votes. Most people responded that it was impossible to list only one symptom and that several were equally devastating. Some of the categories, like skin problems, were broad and many mentioned specific conditions in those categories which I included below. They are quite telling, really.

837 A. Fatigue
687 B. Weight gain
448 D. Chronic pain
*carpal tunnel syndrome, migraines, headaches, nerve pain, heel pain, joint pain, charley horse, leg and foot cramps, restless legs, arthritis, fibromyalgia

418 C. Hair loss
385 H. Mental health
*anxiety, mood swings, depression, bipolar, panic attacks, agoraphobia
370 K. Digestion problems
*indigestion, acid reflux, heart burn, constipation, diarrhea, stomach pain, IBS
338 E. Skin conditions
*dry skin, pale face, eye bags, acne, brittle nails, nails falling off, red face, itchy skin, eczema, psoriasis, skin rashes, hives, bruise easily, vitiligo
291 J. Swelling
*fluid around knees, swelling of ankles, all over swelling
264 I. Frequent infections
*frequent colds, flu, bronchitis, sinus infections
244 F. Heart disease
*high cholesterol, high blood pressure, heart palpitations, heart block, afibrillation, heart attack, low heart rate
239 L. Reproductive issues
*recurrent miscarriage, infertility, premature birth
224 G. Diabetes
164 M. Other (please name)
*insomnia, brain fog, memory problems, always feeling cold, cold hands & feet, heat sensitivity, night sweats, low grade fevers, irregular menstruation, weight loss/too thin, difficulty swallowing, frequent sighing, difficulty taking a deep breath, pain in throat, profuse sweating, irritability, severe menstrual cramps, inability to concentrate, dizziness, tinnitus, need for hysterectomy, low libido, ringing in ears, sore throat, lymphedema, pernicious anemia, heavy periods, loss of breath, teeth & gum issues, vertigo, tingling hands and feet, numbness, PCOS, lack of menstrual periods, early menopause, shaky hands, dry eyes, sleep apnea, snoring, hoarse voice

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About Dana Trentini

Dana Trentini M.A., Ed.M., founded Hypothyroid Mom October 2012 in memory of the unborn baby she lost to hypothyroidism. This is for informational purposes only and should not be considered a substitute for consulting your physician regarding medical advice pertaining to your health. Hypothyroid Mom includes affiliate links including the Amazon Services LLC Associates Program.


  1. Since hypothyroidism according to research required specific supplements to help heal not just your thyroid but the body as well, why can’t a true supplement be found? Yes, I have been on thyroid meds since 2011 and when looking back over ones life, I had a lot of problems that lead to this point. Back then, one was not subject to a doctor unless you were really sick. I had tried Amour, Levothyroxine and Natureroid and I think Natureroid was better. The last batch of Levothyroxine I have had serious fatigue and shortness of breathe. Got labs back waiting on Endocrinologist but I would like to go back to Natureroid or a thyroid supplement. Has anyone used a supplement?

  2. I knew my mother had a thyroid goiter, but I thought if I exercised and ate right I could avoid any thyroid issues. Looking back I realize that after my first menstrual period the weight gain, fatigue and sensitivity to heat began. At 23 I became pregnant, but miscarried and almost bleed to death due to a ruptured fallopian tube. Both tubes removed, painful periods, brittle nails, horrible dandruff, thinning hair. Just tried to deal with all the symptoms because I hate medication, but now at 53, just went through menopause and after a year, having a full blown period again. I plan to see an endocrinologist soon that believes in nutrition and natural healing.
    My T levels previously were normal, but of course no further tests were done. Never realized how powerful that little thyroid is.

  3. It’s scary at how many of these symptoms I still have while being on meds since 09′.

  4. Any advice for someone who has about 90% of the symptoms of hypothyroidism but the doctors just say no not it cuz all my bloodwork comes back within “normal range”! I have no energy & some days dont even want to get out of bed. My hair is thinning out alot & I am ALWAYS cold. I only eat 3 times a day but gaining weight. This is is just my biggest symptoms…any advice since doctors dont seem to want to get to root of the problem?? Thanks!

  5. So hard to deal with hypothyroidism! Anyone have any advice for so.eone with celiac disease and hypothyroidism? I’ve gained 100 pounds in the last two years, feel terrible all of the time.

  6. I just wish I could find a medication that works for me. Levothyroxie drove me up a wall. Synthroid was the next – that didn’t work either. I think I may have found a patient doctor who is going to try and help me. 🤞🤞

  7. I have been on meds for about 20 yrs. My dosage is high 300mg and I still feel like crap. My doctor doesn’t seem to know what to do. I have gained about 60lbs. Tired all the time among many listed. No seems to really understand how I feel.

    • He was not trained to know what to do. My wife and I had significant thyroid challenges. Hypo or hyper challenges cannot be fixed by making them replete or less of Thx. What made the thyroid gland deficient in the first place?

  8. Ive been on Synthroid for 15 years sine having my thyroid removed. My doctor lowered my dosage by .25mcg. I was super fatigued after that. She put me on NP by Acella. I felt very different especially by the 5th day with all kinds of weired symptoms. On the sixth day those symptoms are gone. Is this a normal progression when switching from Synthroid to NP.? I kinda really dont want to go back o Synthroid.

  9. Yes, I have had most of these symptoms over a 28 year period. The worst for me is fatigue and itch skin. I constantly itch.

  10. Weight gain is my worst. I hate being overweight. I exercise 4-6 days a week. Running & resistance training. I have tried all diets. And zero. Even my functional medicine doctor thinks I must be eating too much. All doctors have concluded the same thing. I have been on naturethroid for about 8 months & LDN for 5 weeks. I didn’t want to take an Rx, but I exhausted eceything else. I have lost no weight. Other hypo patients have told me once the meds the weight should begin to fall off. I don’t know what else to do but stop eating all together. I guess once you are hypo you’re destined to be a fat ass for the rest of your life.

    • What meds r you taking that they say u should loose.weight.
      Last 2 years I have gained 30 ibs. My bones hur in my feet. My hips hurt. I itch on my arms, back, head. I dont eat anymore than I used to. Dont sit around more. I am still.doing what I have for years. I am constantly getting sinus infections. It is all driving me crazy.

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