Pain.
I can’t bear it.
Help!
Doctors tell me it’s not my thyroid.
They say there is nothing more they can do.
Some say it’s all in my head.
Scope of this pain issue
Musculoskeletal disorders are conditions affecting the bones, muscles, and connective tissues. The most common symptom of most musculoskeletal disorders is pain.
According to the 2016 Global Burden of Diseases, Injuries, and Risk Factors Study, the most common leading cause of disability for men was low back pain “resulting in the highest age-standardised rates of years lived with disability (YLDs) in 133 of 195 countries and territories, including every country in the high-income regions, central and eastern Europe, central Asia, Andean and Tropical Latin America, and eastern and central sub-Saharan Africa, as well as most countries in southeast Asia, north Africa and the Middle East, and western sub-Saharan Africa. Low back pain was the leading cause of age-standardised YLD rates for women in 104 of the 195 countries and territories.” Neck pain and other musculoskeletal disorders ranked in the top ten of more than half of the countries and territories.[1]
Half of all American adults (126.6 million of U.S. adults over the age of 18) reported being diagnosed with musculoskeletal conditions in 2012 according to the Executive Summary of The Burden of Musculoskeletal Diseases in the United States: Prevalence, Societal and Economic Cost” by the USA Bone & Joint Initiative.[2]
Musculoskeletal manifestions in hypothyroidism
“Thyroid hormones play an important role in the development, maturation and maintenance of morpho-functional integrity of locomotor system structures,” wrote a researcher in the Romanian Journal of Rheumatology.[3] The relationship between hypothyroidism and musculoskeletal conditions has appeared in the scientific literature since the 1800s.[4]
Shoulder pain and its relationship with thyroid disorders has been suspected since the late 1920s. More recently, the implication of thyroid disease in rotator cuff tendon tears has been studied.[5]
The neck stiffness and joint pain associated with hypothyroidism have been known for centuries.[6]
In 2016, 52 rheumatoid arthritis patients underwent thyroid function testing and 20 of the 52 patients (38.4%) had hypothyroidism.[7]
Carpal tunnel syndrome was discovered in 32.5% of patients with untreated primary hypothyroidism. Women were more vulnerable to develop carpal tunnel syndrome.[8,9]
Adhesive capsulitis (frozen shoulder), Dupuytren’s contracture, trigger finger, and limited joint mobility are common in patients with hypothyroidism as well.[9]
The prevalence of fibromyalgia is approximately 2-7% in the general global population but as high as 30-40% in the population with the thyroid autoimmune disease Hashimto’s thyroiditis.[10]
Based on a study which analyzed data from individuals who participated in health screening programs at Chang Gung Memorial Hospital in northern Taiwan (2000–2010), both hypothyroidism and hyperthyroidism were significantly associated with gout.[11]
Tendinitis is another common painful presenting complaint in hypothyroidism. The Journal of Medical Case Reports includes the unusual (or maybe not so unusual) case of spontanous rupture of the long head of the biceps tendon in a 48-year-old woman with severe hypothyroidism.[12]
In a 2013 study published in the Indian Journal of Rheumatology, the following disorders were found to be significant in 120 patients with primary hypothyroidism[13]:
body ache and myalgia (83.33%)
muscle cramps and stiffness (83.33%)
osteoarthritis (66.7%)
mild inflammatory arthritis involving hand joints (50%)
low back pain (50%)
arthralgia (25%)
adhesive capsulitis (20.8%)
limited joint mobility (16.67%)
rheumatoid arthritis (16.67%)
myopathy (8.33%)
systemic lupus erythematosus (8.33%)
carpal tunnel syndrome (6.6%)
fibromyalgia (5%)
trigger finger (4.1%)
Dupuytren’s contracture (3.33%)
Raynaud’s phenomenon (1.66%)
mixed connective tissue disease (1.66%)
tarsal tunnel syndrome (1.6%)
Conclusion
The relationship between hypothyroidism and musculoskeletal disorders is significant. Comprehensive thyroid testing including thyroid antibodies should be part of the workup of a patient presenting with musculoskeletal conditions. Musculoskeletal manifestations can serve as early signs of undiagnosed hypothyroidism and warning signs of hypothyroidism that is not optimally treated.
Psssst! Your pain is NOT in your head.
References:
1. GBD 2016 Disease and Injury Incidence and Prevalence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. The Lancet. 16 September 2017;390(10100):1211-1259.
2. Bone and Joint Initiative USA. The Impact of Musculoskeletal Disorders on Americans – Opportunities for Action. boneandjointburden.org
3. Parasca, I. Manifestari reumatologice in bolile tiroidei. EMCB. 01.07.2008.
4. Radu, I., et al. Musculoskeletal Impairment in Primary Hypothyroidism. Rev Med Chir Soc Med Nat Iasi. 2016;120(2):244-251.
5. Oliva, F., et al. Thyroid hormones enhance growth and counteract apoptosis in human tenocytes isolated from rotator cuff tendons. Cell Death Dis. 313;4(7):705.
6. Doyle, L. Myxoedema: some early reports and contributions by British authors, 1873-1898. J R Soc Med. 1991;84(2):103-106.
7. Joshi, R., et al. Prevalence of hypothyroidism in rheumatoid arthritis and its correlation with disease activity. Sage Journals. 20 Jan 2016;47(1):2017.
8. Eslamian, F., et al. Electrophysiologic Changes in Patients with Untreated Primary Hypothyroidism. Journal of Clinical Neurophysiology. June 2011;28(3):323-328.
9. Cakir, M., et al. Musculoskeletal manifestations in patients with thyroid disease. Clinical Endocrinology. Sep 2003;59(2):162-7.
10. Haliloglu S, et al. Clinical Rheumatology. July 2017;36(7):1617-1621.
11. See, L.C., et al. Hyperthyroid and hypothyroid status was strongly association with Gout and Weakly Associated with Hyperuricaemia. PLoS One. 2014;9(12):e114579.
12. Pantazis, K., et al. Spontaneous rupture of the long head of the biceps tendon in a woman with hypothyroidism: a case report. Journal of Medical Case Reports. 2016;10:2.
13. Alakes, K.K., et al. Rheumatic manifestations in primary hypothyroidism. Indian Journal of Rheumatology. March 2013;8(1):8-13.
READ NEXT: 300+ Symptoms of Hypothyroidism…Yes REALLY
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Oh. My. God. I’m 44 and was diagnosed around 22/23 years old. I’ve had anxiety and depression right after that diagnosis. (Although, I am predisposed to anxiety, and have had mild anxiety as a child). Reading this post has me with my mouth hanging open. I have severe carpal tunnel in both of my hands. It became worse after having a baby. I have had shoulder problems since the same time of my thyroid diagnosis. I recently had bicep tendonitis. I have had mystery foot pain and issues in my ankles that I couldn’t bear weight on my foot. There is so much of what the post shared that I have! Time to focus on finding a doctor who can help me sort out my thyroid. My medication must need changing. Thank you for this!
Harpreet, When we are in a low thyroid state, a swollen spongey substance called mucin builds up in the skin especially in the extremities. Here is the article that I wrote about mucin that builds in the legs but that same mucin builds in the arms too and can pinch on the blood vessels and nerves. This is why many hypothyroid people develop carpal tunnel syndrome: https://hypothyroidmom.com/my-darn-hypothyroid-legs/
Get a second medical opinion. f you struggle to find a good doctor, consider booking a thyroid consult with me. Over my ten years as Hypothyroid Mom, I’ve been collecting the names of thyroid doctors and compiling them by region based on recommendations from my followers. I’ve done this for ten years because I know that the hardest part is finding a good thyroid doctor. I have extensive doctor lists for every state that are a good blend of both private doctors as well as doctors that take insurance. I provide every person that I meet for a consult with a list of doctors for their area. Here is my booking calendar: https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min
2011 had my Thyroid removed… And I did good for years without it just taking my daily medication… but over the last 5 to 7 years the pain has increased to the point of me thinking it’ll never get better, I am so tired of the doctors and their stupid ass answers when I try to explain the pain I have… i’m tired of being sick I’m tired of not even knowing who I am anymore…
I would do anything for an answer and a solution.
Hi Angie, I’m sorry to hear you are struggling. You are not alone. For a decade of my website Hypothyroid Mom, I have received more messages from readers struggling to find good care than I ever imagined possible. In this day and age you would think it would be easy enough to go to any doctor and they would know how to treat hypothyroidism but it is far from the case. In case you continue to struggle to find a doctor open to prescribing NDT in your area, I’ve been compiling lists of doctors based on recommendations from my Hypothyroid Mom readers for the past ten years. I have lists for every US state as well as the UK, Canada, and Australia. I provide a list of doctors in a person’s region for every person that I meet for an individual virtual consult in case it is of interest:
https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min
Great to have you at Hypothyroid Mom.
I’m totally with you on that. Nobody understands. I just don’t wanna get up to do anything anymore.
So what’s the treatment here? For those of us suffering from this, where do we go from here?
Hi Kim,
The first step is to get a copy of your recent labs to be sure you’ve had all the right lab tests included in the chart in this article at Hypothyroid Mom: https://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/
The second step is getting a second medical opinion from an open-minded thyroid doctor who will run the full tests and is open to T3 and natural desiccated thyroid medication options. Here is information about this: https://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/
In case you struggle to find a doctor open to prescribing NDT in your area, I’ve been compiling lists of doctors based on recommendations from my Hypothyroid Mom readers for the past ten years. I have lists for every US state as well as the UK, Canada, and Australia. I provide a list of doctors in a person’s region for every person that I meet for an individual virtual consult in case it is of interest:
https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min
Great to have you at Hypothyroid Mom.
My daughter has had chronic back pain for 18 months. She is 15. They can’t find anything structurally wrong. Physical therapy / chiropractor didn’t help. I just had TSH checked and it was 0.6. The pediatrician argued it was normal? I’ve begged for a Rhumatolgy referral.
Sabrina, Here in this article you’ll find the six key hypothyroidism lab tests. Be sure her doctor runs all these tests or get a second medical opinion or a third or even a fourth until you find a doctor who will do the tests for her just to be sure whether or not it may be thyroid related: https://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/
All the best,
Dana Trentini (Hypothyroid Mom)
Hyperthyroidism causes joint pain just as much as hypothyroidism. 0.6 is boarderline hyperthyroidism- her pain is due to her thyroid. It’s overactive. You can go to any labcorp and have a full panel thyroid labs run not just TSH , her free T3, free T4 , total T3 and total T4. I’m 49 and suffered my entire life and only recently learned that the hyperthyroidism causes degenerative changes to the spine . Your daughter needs to see an endocrinologist.
This info is wonderful. For 30 years I’ve been living with Hashimoto’s & not known anyone who really knows or understands that this is real. Initially had the iodine treatment to stop thyroid function. My life & health has felt so inconsistent, pain, brain fog & constipation being the most challenging. I stopped telling docs my issues years ago because it did no good & of course was told it was in my head, think away the pain. I am currently seeing a Naturopath & hoping she can help to manage this disease better. Diet changes & daily stretching/exercises are the only way I am still mobile.
Great to have you at Hypothyroid Mom Pat. There is hope to be well with hypothyroidism and I wish this for you.
Hello, Dana! Thank you, Dana, for such a wonderful site and a wealth of information! 18 years ago, I was diagnosed with Graves’. Eventually I was treated with radioactive iodine, and am now hypothyroid. Recently, I switched to Armour Thyroid from levothyroxine. Armour has helped some, but I still suffer widespread pain, muscle aches, eye problems, arthritis, tinnitus, multiple joint swelling/stiffness, hearing troubles, insomnia, depression, dizziness, anxiety and panic attacks, hair loss, concentration and memory problems, slowed thinking, problems with word retrieval. I cannot get a dr. to take me seriously. All of this is very overwhelming and frustrating! The leg pain, especially, has become unbearable! I am barely mobile at this point. I am at a loss as to what to do or where to go next! Any ideas? Also, do you know where I can find reliable info on Graves’ Disease (beyond the standard, basic info that is everywhere)? Thank you!
Hi. I read your experience and it touched me. Everything you are experiencing I am too. I go to the doctors and they can’t figure out what wrong with me and my thyroid levels have been stable. I wAs diagnosed with Graves’ disease when I was 14. At 15 I had my complete thyroid removed. I was one of the youngest people to ever have Graves’ disease. I am now 36 but I have lived with all of those symptoms for what feels like my whole life. I have struggled mentally with this disease. At times I feel like I’m dumb bc I forget so much and I get caught up with my words. I suffered with depression and anxiety and now at 36 I have finally started taking medication for all my mental issues. People don’t realize how much control that small gland has on your body. I feel like I’m trapped in a body that can’t keep up with me.
I pray you are seeking and getting help. I too am in need of a good physician.
I too have experienced these symptoms. Turns out I have Elhers-Danlos syndrome. A genetic connective tissue disorder. One of it’s symptoms……hypothyroidism. It’s also associated with a lot of joint pain. Good to know.
I am wondering what other tests I need to have. I have hypothyroidism. I have most of these systems. For the past three months I haven’t been able to sleep longer than an hour or two. After three or four days, I crash and get some sleep. Do any of you go to a musculoskeletal doctor for aches and pains!
Hi Shelly, I have been to see a neuromuscular dr. He gave me some relief but didn’t spend enough time loosening up my muscles. 15 minutes doesn’t do enough. I found an old school physiatrist that spent an hour and a half loosening up my muscles from neck to toes. He also prescribed a muscle relaxer because my muscles were in a constant stiffness. I found that some heart palpitations I was feeling were better as well. I was finding it hard to walk smoothly. I think a message therapist might be a good compromise. I’m thinking about going there next since the Physiatrist is very busy and far from home.
Find a functional medicine clinic. I switched from Synthroid (synthetic) to Nature Throid and feel much better. I also started supplements and adaptogens. Don’t believe the “practical Drs” they don’t search for the source they just treat the symptom. Go see a functional medicine doctor ! Trust me
I had my thyroid removed almost 20 years ago (Thyroid Cancer) and have suffered all of this for years and as I get older it seems to get worse. I pretty much just get to work and home. I have no energy and have lost all interest in everything as I am too exhausted and sore. I have 8 grandchildren, 7 of which are 5 and under. I feel guilty as I have no energy to be with them and therefore avoid them…I want to be with them but all I can do is sleep.
I am on the synthroid supplement and my GP says my numbers are great and he doesn’t want to mess with that. I ache, I hurt, some days the pain is so much I just go back to bed. Every morning is a struggle to get moving. My joint aches are getting worse and spreading from one joint to the next. Some (most) days are worse than others. GP gave me
To top it off I am a type 2 diabetic and I can’t get my sugars under control. I also suffer from accute pancreatitis (lost my Mom to Pancreatic Cancer).
My GP says I don’t need an Endo as he has everything controlled.
I hope you don’t mind me adding my penny ‘s worth so late in the day but your GP doesn’t have your symptoms under control just some blood test, You are within your right to ask for a referral to a Endocrinologist He cannot refuse to refer you ,remind him about your Thyroid cancer and if he still refuses your options or
either change your GP,
tell him you will go Private,
or report him to the local ombudsman
I identified with your story as far as your symptoms so I know what you are going through and this is no way to live your life and you feel you haven’t the ability to fight but please don’t give up seeking help. Write a list of the catalogue of problems (symptoms)you have from your head to your toes on another list write down your all your medication including non prescribed. You would be surprised by how many over the counter meds or supplements interact with medications or have a negative effect on our bodies. Beside each one write down and any side effects (you will find these on the patient information leaflet inside the box)which are also on your symptom list. Make two copies incase your GP keeps one to use when he writes his referral letter to the Endocrinologist Consultant . The other you keep for your hospital appointment. As two of the ,many, symptoms are brain fog and anxiety you will need the list as a memory jogger to yourself and to give the Consultant a complete history I case your GP didn’t add it to his referral letter
I wish you all the very best in getting your condition controlled enabling you to have a wonderful active relationship with your grandchildren
Debbie I am so sorry you’ve endured this for 20 years. I had my thyroid removed because of cancer 4 years ago and know exactly the pain and feelings of tiredness. No energy for anything, just wanting to sleep all the time. Depression and just not wanting to live like this anymore. I hated it I hated myself . I tried to drink the pain away and then realized that was part of the problem. This past January 2020 I decided to do something about it because I had also gained about 40 lbs which was as also hard on my body and my mind. I joined a gym gave up the pop and alcohol and started eating healthy. I don’t eat junk or snacks and eat clean most every day. I really believe if you put clean food into your body it’s amazing the pain and inflammation go bye bye. Sugar is the enemy. And flour too in my opinion. I started intermittent fasting and that has tremendously helped with bloating and the way I felt. I workout every day now and before all I wanted to do was sleep. I have dropped 35 lbs since January and have lost 20 some inches and I have way more energy. I hope you get the help you need. I also have 4 grandchildren under the age of 7 and I want to spend as much time with them as I can. Hugs girl
I have had problems for 25 years, never really got back to being me! I met a women at a spa day who was severely debilitated with thyroid problems, she gave me the name of a book The Thyroid Diet,or something like that,I never pursued this ,but after reading your post I will try to find the book and try to help myself .thanks
My GP had told me they were over budget and couldn’t afford to refer me!!!! Huh!!!
You need to do what I did!! Make an appointment privately to see an Endocrinologist who also has a local NHS Clinic. That’s shat I did! Saw him once, started me on Liothyronnine (T3) then he has continued to see me for 8 years under the NHS at my local hospital! I just paid the initial consultation fee one time! Well worth the money!!
Good luck!!
See and Endocrinologist ASAP. My primary Dr. keep telling me my levels were fine. Just kept getting sicker and sicker. She finally sent me to an Endocrinologist he was a jerk. Didn’t listen to what I was saying lowered my meds said said see u in 3 months u will feel better in 2 weeks. Well felt no better in 2 weeks. Found my own Endocrinologist who has hasimotos herself. Put me on a low does of a different medication. With in 3 days I could not believe how much better I was feeling. She is also sending me to a doctor to check all my hormone levels too.Hope this helps.
This is very interesting.its a shame that most doctors dont know about these things or are trained on the symptoms of certain things like hypothyroidism and the hyper too. They should find the cause and treat that instead they are taught to just concerntrate on t4 and tsh and give a tablet to people with it. You have to do your own research and do the best you can by altering your lifestyle and diet, try vitamins etc. I could go on…. but maybe if the root cause is identified then people wouldnt get more autoimmune issues and maybe their health wouldnt deteriorate.
Would the removal of the Thyroid not relieve some or most/all of these chronic symptoms?
No, since most symptoms are caused by the Thyroid not working to begin with.
WHY is this such a SECRET and not tested across the board with CBC, when it is so prevalent and the most common complaint amongst patients, Year most mid or inder diagnosed disease? It’s a tragedy and doesn’t have to be! Pathetic!
I was diagnosed with under active thyroid two years ago although had been suffering symptoms for much longer.I also have high cholesterol,osteoporosis and depression.
Earlier this year I went to my G.P. with a list of symptoms:-
Continual tiredness and fatigue,feeling of a lump in my throat,headaches,aching joints and muscles,anxiety,low libido etc.etc.
He glanced at the list,handed it back to me and said that all the physical tests had been done so it must be a mental issue.
Since then I have not returned to see him and as he is the only G.P. available at the practice I just do not know what to do next.
How can I be feeling like this if my medication is supposedly o.k?
I feel same way. You are not alone with this!
I feel the exact same way. Everything is normal or fine. I just need to exercise & eat right. Start being more active. I’m too tired to be active..
Same here! Doctor said to me to be more active. Really? I have very few days that I feel like being active at all. After running errands like going to the grocery store, post office, drug store, etc., I’m exhausted! I get home and get my pjs on and that’s about it for the day.
What do they charge? I’m sure that my health insurance will not pay for this
I’ve tried to be more active. Mild exercise, walking etc. instead of invigorating me as it used to do, I’m in such pain that I can barely walk for a day or two after.
I had all these symptoms, and more. I was finally sent to an endocronologist. At last I was given a reason as to why why I felt all theses symptoms. I was put on medications for hyporthyroidism and I have blood tests 2 -3 time a year to track my elevations. It has helped but will never go away. There are good days and there are other days where separate medical issues come into play. Just don’t give up. It’s not “just in your head” – its in your WHOLE body. Never feel quilty or weak for not feeling up to doing things, because its not you making this choice.
Hi Nancy.
Wondering what the Endo prescribed/suggested that has helped you? I’ve tried generic and brand Synthroid alone and with T3 cytomel. The pains and other symptoms are getting worse. Always curious what others have tried that are working 😁
Some fare well on Tirosint (T4 hormone, no fillers like Synthroid- expensive though ) with their cytomel (T3 hormone ). Others like Armour Thyroid as it’s T1, T2, T3, T4. Not good if you have a heart condition. This is made from animal thyroid gland. It’s important to have all labs drawn 3-4 times a year . Every 6 weeks if you are trying to get stable on a new dose . Always a full panel, TSH plus all other labs .
Hi Fleur, I was diagnosed with Hashimoto’s autoimmune thyroiditis in January. I don’t think I would have gotten a diagnosis if I hadn’t gone to a Functional med dr. They do testing beyond the T3 and T4. Thyroperidase Ab and Thyroglobulin antibodies. TSH doesn’t give enough info if it’s autoimmune. My Dr. has me going gluten free and dairy free. Eating a diet big on vegetables and fruit and lean meats. He also prescribed LDN , low dose naltrexone. It might be hard to find a Dr. that prescribes LDN. I’ve done some research and am hoping it will work over time. Apparently it can take months for it to make the changes in the brain that are needed. He is hoping I will get better numbers making these changes. I suggest researching Dr. Amy Myers and Dr. Izabella Wentz.
Try going to an ob/gyn. Have them test your hormones. Idk where you are but O found someone that would listen & really helped me. I found out my T3 was low as well as my testosterone!
Diana, It was your writings which led me to understanding the hypothyroid and Hashimoto’s I was experiencing along with Dr. Wentz. Thank God because I suffered horribly for 5 years. On top of that the endocrinologist I was seeing tried me on Levothyroxine and Synthroid which only compounded the misery. I ended up suffering for more years every time those meds got into my system I would get horrific migraines, and feel so sick that I just couldn’t wait to get the meds out of my system. It was then that I found your site and learned about the nature-throid. I’m still working on a lot but in finally getting back on track. You have contributed so much to my health and wellness. Thank you for caring and sharing. I can5 thank you enough.
What is nature-throid. Had thyroid out and put on Levothyroxine at first I dropped 60 lbs and a year and a half later my legs started hurting, my back everything basically. I gained all weight back . I have no energy I can hardly get my things done in house. He cut my Levothroxine from 7 days to 5 days a week take 200mcg 1 pull a day skip 2 days. Is that normal. Wouldn’t I be better with an even amount daily. And shouldn’t I be on a t3 too, not just a t4? Really hope to feel better someday!
The problem I have is the doctors. This can’t be related to your thyroid because you’re on medication for it. Well I’ve been on medication for this for 28 years but I am still having symptoms
I think,my high blood pressure,also comes from my thyroiditis hashimoto, can be? I was last Friday,in emergency clinic with 299/104 BP,and u know what? They say: go and tablets for BP. Somebody can help me,what can I do? I’m going now to homeopath doctor,I’m desperate really,I also got rheumatoids arthritis.
I experienced high blood pressure with Hashimoto’s and hypothyroidism in my early 20s (when women usually struggle with low blood pressure). I don’t know if it was strictly related to Hashi’s though, as I was also under a lot of stress, depression, and anxiety–all of the issues were feeding each other. They put me on Lisinopril for the blood pressure, Fluoxetine (generic Prozac–worked well for me but wouldn’t recommend that particular one because it contains fluoride which is a thyroid suppressant) for the depression, and monitored my thyroid levels closely until everything calmed down, treating with Synthroid. That managed to calm down my immune system enough and over time I weaned myself off of the Lisinopril and Prozac. This was six years ago and I haven’t had any major issues with blood pressure or depression since, but I learned to be very careful about stress mangement. Everyone is different though, so treatment for Hashimoto’s can vary depending on what the trigger(s) are. I hope your homeopathic doctor can help you.
I have had hypothyroidism for 30 years since the birth of my son. After hair thining and trouble losing the baby weight, blood test revealed I needed the synthroid meds to replace my thyroid hormones. All went well, lost the weight, felt a lot better and hair loss stopped. Until 5 years ago, I started gaining weight and feeling tired so I started drinking coffee, several cups in the morning. My hair was thinning again, I had four trigger finger surgeries and two Morton neuroma surgeries. Recently I read if you drink coffee with Thyroid meds it will not work. Well the proff is in the coffee. I do not drink it within 30 minutes before or after meds and I am less tired, losing weight and hair is not as thin. Hope this life experience helps others in need.
I make sure I wait 60 minutes before having a cup of coffee… also don’t eat walnuts.. they counter act the meds too
Actually, this is totally incorrect! Walnuts have omega’s and very good for inflammation and do not have any counter productive properties for thyroid meds. You should eat walnuts. Make sure they are gluten free. Anyone with thyroid problems should be gluten free.
I realize you posted this awhile ago but I’m reading about hypothyroidism because I’m convinced that’s what’s wrong with me and then I see your comment mentioning trigger finger surgery & Morton’s neuromas….out of the blue I had trigger finger really bad in my ring finger and had surgery 6 months ago. Like two months after it first appeared. There’s days I can’t put slippers on without my toes killing me. They hurt in the bathtub! I have pain literally head to toe and everyone thinks I make it all up and I quit going to Drs since it’s a waste of everybody’s time they don’t do anything or listen.
Twenty five years ago I was treated for psychiatric illnesses I was diagnosed as morbidly obese, bipolar, ADHD, severely depressed and suffering from PTSD. The medications I was given to treat my symptoms made me extremely ill. I have been completely off medications for over 20 years now and have done everything to clean up my diet which has done wonders; no sugar, no flour (no gluten), and I am intolerant of all grains so I eat no bread or cereals. Today I am emotionally stable and spiritually well . I still suffer from weight issues and extreme food sensitivities like bloating, hives, and poor digestion but it presses me on to take care in my diet; I eat good fats, small amounts of meat, mostly greens for vegetables and only berries for fruit (I can’t digest anything else). The worst of the symptoms still is the chronic fatigue, and the severe insomnia. I still suffer from many symptoms but every doctor I have seen in the last 10 years just tells me that there is nothing wrong with me because my blood tests are fine. I am still far from fine but I am not without hope.
Thank God for your web site and Dr’s that are well informed that have written books about adrenal fatigue and hypothyroidism (there are some fantastic Dr’s out there); I have hope for that reason and continue to educate myself.
I shall also let food be my medicine. The journey though it be long is toward healing; we can all help to encourage one another to never give up hope. Today I am free from mental illness, I am 50 lbs lighter and my diet is amazing. I have God to thank for my life and the strength to press on even when things were at there worst. Never give up, never give up, never ever give up hope. (Winston Churchill)
Hello, your blood test are fine because of how you are eating. I have had some of the same problems as you until one day I went to the doctor and the nurse told me to stop doing all of the natural things that I had been doing while also eating the things that made me sick. When I did this the thyroid test came back stating that I had hypothyroidism.. Now for the last three months I have stopped taking all of my all natural supplements so that my doctor can determine what to do next..
I was treated with radiation 19 years ago. I had a cancerous tumor T the back of my tongue. After 35 treatments to head & neck it was about a few months later i started losing my hair. I was told my thyroid was damaged even though they had it blocked. I have been o synthroid 100mg ever since. I have most of the symptoms of hypothyroidism especially muscle pain & soreness all over. If I take Tylenol it helps. My annual blood tests are coming back ok as the Dr says. I have had 4 family doctors since i had my treatment. They checked my T3 & T4 & said it was ok “for me”.
I experienced a thyroid storm last June and was first diagnosed hyperthyroid. Months later, I am now hypothyroid, and this article listed exactly what I am feeling. I have been very sick, very scared and very confused by all of this without much help from my doctor’s. Thank you for sharing all of this.
I was diagnosed with fibyrmialgia then hypothroidism RHEUMATOID ARTHRITIS lupus Raunauds hypoglycemia
I have had this problem for years.I have been told it’s Fybro & Arthritis
This article is amazing as I also discovered that hypothyroidism that I have had for over 20 years could also have been the start of ME and antagonism of brain tissue injury causing epilepsy requiring me to have neurosurgery. Amazing how much you can discover in one week. But also gives complete inner peace 👍🏻😁
I’ve had a thyroid condition for 30+years, 3 years ago was diagnosed with fibromyalgia. I’ve been on Synthroid for years I go every 6 mos for blood work to have my levels checked always comes back normal. My body is always in pain lower/upper bacl/back pain. Arthritis on my spine, bone spurs and some buldging disks. Arthritis in both hands plus carpal tunnel… and because of this darn pinch nerve that I have in my neck I guess it’s causing my migraines. I’ve tried traction for my neck but that was too painful. I’ve also tried different meds for migraines and pain none seem to work. I’m at a loss.
I’ve had similar experience and the thing that unexpectedly helped my chronic migraines was a low dose muscle relaxer at night. All those tissue knots are gone, sleep quality improved and it lessened the tension headaches and migraines.
Hi I have suffered with underactive thyroid for 28 years I’m a very active person and have mostly been OK ,the last 18 months I’ve had severe pain in my knees,shoulders, ankles,fingers, feet and back. My doctor just tells me it’s arthritis I think due to the amount of avtivity I do. I’m not convinced this is so I’m due for my twelve monthly thyroid check up so what should I ask to be check in my blood test.?
I have many of the symptoms listed, including surgery on both hands for carpal tunnel. Severe neck pain since I was in my 30’s (I’m 62 now). My thyroid was removed due to a benign tumor. When I bring up the issue of Hashimotos or anything related to the thyroid I’m told since it was removed and I’m on thyroid medicine now it’s like I have a normal fully functioning thyroid. Although I don’t know how my doctor knows this since I don’t know when the last time he checked it was. It’s like they just don’t believe there could still be a problem. It’s so frustrating but I appreciate your letting us vent about it. Thank you!
Hi Becky, Since Hashimoto’s is an autoimmune disease, removal of the thyroid gland doesn’t eliminate the fact that the immune system mistakenly attacked a body part and can continue to do so with other parts of the body. Which explains why often times a person with one autoimmune disease has multiple autoimmune diseases over time. Also, it may be that you are not optimally treated, which is so important if you’ve had your thyroid removed. Here is information about the various thyroid medication options that you should know about.
https://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/
Omg..I have been dealing with thigh/ hip pain..ortho says arthritis..going to great chiropractor, my rt3 is high as are my antibodies. I thought I was on optimal t3 but now not sure.
I am hypothyroid and sometimes The muscles in my thighs and arms hurt, but nothing that will require me to see a doctor I will just get in a warm tub with Epson salt and it helps, or I will massage my thighs and my arms and it goes away. I thought it was because I was getting older lol
Hypothyroid 24 uneventful years then 2 years ago everything went wrong TSH 177 then 100 on same day…early retirement at 50, over last 2 years swollen joints in hands & knees, depressed & TSH after 2 years of increasing / decreasing thyroxine TSH 80 so permenantly exhausted & zero progress, sole carer for mybedbound palliative care 22year old…I don’t honestly know how long I can go on
oh wow Yvonne I can’t imagine all you’ve been through with such high TSH levels. Please know there is hope to be well with hypothyroidism. I wonder if your fluctuations in thyroxine are due to rising and falling TSH levels? I ask because the number one cause of hypothyroidism is the thyroid autoimmune disease Hashimoto’s, which can come with swings up and down and back up again in thyroid lab levels. Here is an article with thyroid lab tests to have run and the optimal ranges so that you can check your results. Thyroxine contains T4 thyroid hormone only and as you’ll read in this article those types of medications don’t work for us all.
https://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/
You can also order them yourself:
https://hypothyroidmom.com/order-your-own-lab-tests/
Hi all my hypothyroidism isn’t auto , it is thyroiditis i was hyper then hypo, started on thyroxine 8 weeks ago, at first i began to feel better but 8 weeks on i have severe pain in my back and side , dose is due to increase im hoping it will help .my question is most people seem to have the auto form of hypo but because i haven’t as test came back negative would my pain still be related to my thyroid
Wow.. What an eye opener. I was having an annual physical in 2002, and based on TSH levels, I was told I had Hypothyroidism. I went to an endocrinologist, and he found a nodule in my thyroid. I was prescribed levothyroxine, and have taken it since then until recently switching to Synthroid. I never felt any different after starting this medication years ago, because I didn’t know how I felt was tied to thyroid issues. I always thought, how I feel, is just how I am… I am experiencing a high multitude of symptoms still. Time for a change. Thank you for all the info.
Hi. I was actually diagnosed with Hashimoto’s about 7-8 months ago. The doctor that I went to gave me that diagnosis, but didn’t prescribe me anything for thyroid at all. Instead, it’s a “female” clinic kind of thing, and they wanted me to have a “pellet” type medication inserted under my skin. (Hormones) Still yet, NOTHING to do with thyroid. I said no, of course. So, they put me on a a prescription for Progesterine, which didn’t really help anything at all. So, after that I started developing such awful knee pain, I was directed to an orthopedic doctor. He gave me shots, some medication, and said you have Osteoarthritis. I’m telling you, my knees hurt so bad, I couldn’t even raise up out of a chair right it hurt so bad! Walking every day was the worst pain in my life. Medication didn’t help much, and here I am…about 12 months down the line now, and STILL nothing for thyroid! Still have horrible knee issues. Now starting to have shoulder and hand joint issues. I have every single classic symptom: dry skin, weight gain, awful hair, sore hands, sore knees, mental fog, intolerance to cold…all of it! My only hope is I have an appointment with a new doctor tomorrow, and I am praying that she knows what she is doing! I am about on my last limb here, and my whole life has gone to crap!! I can’t find a doctor who will help in the right ways. I need relief! And a doctor with a some common sense.
I have hashimoto’s due to autoimmune diseases and the worse dr in the world I tell them I need different meds , I ache like someone to a sledgehammer to my hips mostly . I have read up on Armour medicine and it clearly shows it treats the adrenal part for me that I need but my dr refuses to prescribe it
I’m only just now finding out, through life experience, what an impact hypothyroidism has on joint and connective tissue pain. My lab work has revealed that I do not have Hashimotos, do not have Grave’s. I have an inherited predisposition to poor T4-to-T3 conversion. Before starting on T3 meds, I had such bad pain and stiffness in my feet, ankles, knees, sometimes both shoulders and elbows; and a thumb joint! After starting on 30mcg of T3 daily, I was startled at how good it felt to be in substantially less pain!! I would say, the pain has reduced by maybe 80%! And it took less than 10 days to feel the difference!
Hi again the problem is how many of us go untreated even after hashimotos is discovered BC they say oh but your numbers are in range besides high antibodies ? Anyone w the twitching nerves muscles and pains? Thx
I would say nothing surprises me, but still, my mind is blown after reading this… I have had surgery on both of my shoulders due to adhesive capsules, RC tears and a major SLAP tear on one shoulder… chronic stiff necks, and arthritis pain throughout my body when I’m flaring… I was only diagnosed with Hashi’s (hypothyroidism) 8 months ago at age 53, but realize I have likely had it for years! It is amazing (and sad) that nobody thought to check my antibodies until now. I’m hopeful that AI disease and the research that seems more prevalent now continues to improve!!!
I too have been diagnosed with hypothyroidism in my menopausal years 10 or more years ago and have been trying to live normally with it taking Armour 180 mgs daily along with many supplements geared to help my aging body. I am 61. I have been following every comment and newsletter of Hypothyroid Mom for awhile now. I pray for all to figure this disease out to maintain somewhat of a decent life. I found for my painful feet a supplement that was like a miracle, pain gone in a week called Green Lipped Mussel 500 mg daily. I could not work out, jumping jacks and jogging out of the question still to this day until a buddy of mine with hip issues started taking it and another friend was referred to this for arthritis. It worked for me is all I can tell you. I still get pain in my shoulders and knees but it’s tolerable but my feet never have swelled again unless I jogged or jumped to aggravate it. Just try it, Swansons or Amazon has it and it’s affordable.
Hello,
I was diagnosed with Hashimoto’s in 2015. I have experienced chronic neck and shoulder pain at least 10 years prior to my Hashimoto’s diagnosis. I am currently having what I call a flare up (where it gets more painful than my normal).
Is there any help out there, both from a medical standpoint as mentioned above and possibly a disability standpoint? I am concerned about being able to keep pace (work full time) until I can retire 15 or more years from now.
Despite my efforts, lifestyle changes and many of thousands of dollars spent since 2015 there always seems to be a battle. Getting tired here and not sure if I will be able to hold out at the current pace for 15 or so more years. Thanks.
I was diagnosed with thyroid autoimmune disease Hashimoto’s. 4 years ago. I was prescribed levothyroxine 112. Shortly after I started to experience swelling of the joints , low back pain ,stiff neck and shoulder pain. Most morning I would wake up crying due to the pain. My joints were so swollen I couldn’t sit up I would get a sharp pain in my lower back when I tried. Every morning I didn’t look forward to waking up. I am so grateful to my wonderful husband he would be woken up every morning by my cries. If it wasn’t for him helping me sit up I would of never got out of bed. Most nights I sleep four hours If I’m lucky. I never sleep soundly I toss and turn because of shoulder pain or a cramp in my shin the pain is unbearable I wake screaming in pain, It feels as if the the meat in my shin is being ripped from the bone. My job require a lot of walking 3 to 12 miles in a day. I never had any problem with it until the last 6 months, I find myself changing my shoes three to four times at work because my foot pain make it extremely painful to walk. I spent hundreds of dollars on shoes and I have yet to find ones that I can work in without pain. Lately I have found something that has made my pain bearable ( CBD PAIN SALVE) I know most people are dead set against it. But if you think about it , the ingredients are all natural it contains mostly essential oils. That’s more than I can say for the pharmaceuticals. When I feel any bit of pain I rub it on and the pain is gone .It has totally helped with the pain in my feet and the shin cramps. I also stopped taking levothyroxine and switched to synthroid 112 . I feel so much better but I’m not out of the wood yet , I have regularly been taking Adrenal supplements, B=complex Vitamin D=3 and probiotics which helps with feeling fatigued.
I have been interested in reading the comments in this site. I was diagnosed with hypo a year ago after years of doctoring with absolutely no response to my symptoms from GPs. It’s almost as if I said nothing at all. Over the last two years prior to my diagnosis my health deteriorated exponentially. I could barely walk without walking next to a wall for stability, my legs were extremely swollen, my feet so painful to walk on I wanted to cry. I had been diagnosed a couple years prior to that with plantar fasciatis in both feet ( the only show I could tolerate at all were soft crocks for over a year) and then ended up wearing the soft sided walking boot (casts) on both feet for another year. I couldn’t concentrate and exhausted all the time. It want until I had surgery on my foot (unrelated???) Now I don’t know, that I decided to go to a much higher quality local facility, since I was in medical leave, to see if they could help me. By this time I could not see myself even returning to work since I could hardly balance myself enough to step up a stair or a curb without support. (I wanted to mention that I am an elementary teacher and With these symptoms I was in a downward spiral to having to quit my job). With 6 weeks of testing and several diagnosis, hypothyroidism being one of them and severe adrenal insufficiency, I now have a name at least. Fast forward to today and I’m once again doiralng, my local endocrinologist has read the lab reports from the diagnosed in ng clinic along with some updated tests and he states “your lab results are interesting to say the least!”. He has no clue on what is going on. I’m trying to continue to educate myself on this, but when you talk to doctors and they know you are looking on the internet for help, they are quite unimpressed to say the least. Can anyone recommend some published journals/articles that I can refer to as well? I see some here and will also look into them but ad a lay person we are at the mercy of the doctors in our area. When I first started taking my new meds after being diagnosed I couldn’t believe a person actually could feel that good. I never had! It was short lived though for some reason. I am in desperate mode as I’m not seeing a future with a doctor that had any idea where to go or what to do. I am trying to return to the large (first diagnosing) facility but have not been getting any responses from them regarding getting an appointment. Help is appreciated.
“Fiona” and “Christine”, You both mentioned thyroid meds. I am allergic to many synthetic meds including most levo products. My side affects were not physical, like you but invasions of my normal, comfortable mental processes. I tracked them to my thyroid meds, switched to a naturopath and now take straight T3/T4. and feel better than I have in years. In my research I have heard of many problems with thyroid and I believe many have to do with the meds given patients… and traditional drs, endocrinologists and others only believe in the tests they give after a no of months to properly diagnose hypothyroidism. Wrong. I found that I react immediately to any change in my t3/t4 and am able to judge myself what is good for me and what is not. Look into Natural medicine for all disease. It should be your first line of defense.
Good artivle validating ME. I am working with my Hashimotos – taking 100 T4 and doing Carcadian Dosing Method for 50 T3. Am also Gluten Free. Current FT3:RT3 Ratio of 14.1 so I am still in cellular hyopthyroid – ugh.
Experiencing spinal issues which are progressing since about 1986- ugh I adapt.
7 months ago I developed Adhesive Capsulitis (aka Frozen Shoulder) which is responding well to Chiropractic therapy (once a week) plus range of motion exercises daily. Added 1,000 mg Longvida Curcumin (anti anflamitory and neuron enhancer) also using 1-TDC cream twice a day. I now have about 40% shoulder movement.
My Chiropractor is also a Naturopath and he says gluten usually triggers Frozen Shoulder in people with thyroid problems. I dont recall eating anything with gluten – but thought that was interesting. With my cellular hypothyroid issues I am sure the frozen shoulder can be atributed to that.
For joint and/or muscle pain I highly recommend 1-TDC Cream by Elite Science – it not only provides some soothing warmth; but also contains special natural ingredients that go directly into the joints and help lubricate them. Its available on Amazon – pricey but worth every cent.
Hi there do any of u get nerve pain tingling in head eyes some days shooting nerve pains . Hashimotos dx almost 4 years ago. Low dose levo . The nerve pain can be anywhere along with twitching muscles ? Drs keep saying it’s not my thyroid ? Thx
I’ve been to two Endocrinologist over the past three years plus my GP. All have said nothing is wrong with my thyroid yet I’m in constant pain. 10 years ago I was diagnosed with fibromyalgia. I’ve since then have come off all medications for pain. I have opted to proceed with yoga. I do stretching Exercises and I walk.however no amount of exercise relieves my pain it’s not too bad on days that I don’t do any of my routine activities, but there some days I don’t move to easily. I’m very sore. But I keep it moving. I am often very stiff. I watch what I eat and I drink plenty of water. On occasion I do have one or two glasses of wine or other type of libation. I’m praying One day I will be free.
I have been convinced of the connection between my hypothyroid and musculoskeletal pain. As soon as I was on a working dose of levothyroxine my body pains went away and I recovered so much faster after workouts. Now I’m struggling to hit a moving target again with my levo dose and have pain and plantar fasciitis again. Thanks for the article.
Hi Jenny, It’s good to have you at Hypothyroid Mom. The number of HM readers that contact me struggling with pain is unbelievable. I am certain that for many hypothyroid people, if only doctors would help them find the right type and dosage of thyroid medication for their body, their pain would go away.
If you no longer have your thyroid what category do you go under? Hypo or hyper?
I had mine removed 14 years ago and my endo says I’m euothyroid.
For years I had pain in my neck, shoulders, and back every single day. I was diagnosed with Fibromyalgia when I was in my teens, so I just thought that’s what it was. But, almost 20 years later, I found out I had Hypothyroidism, and as soon as I started getting treated for it, the pain almost completely disappeared. I broke down crying the first day I didn’t have pain. I had become so used to it that I forgot what it was like to not have it.
It’s worth noting I still had some joint pain once in a while, especially in my fingers. I thought it was either part of my Hypothyroidism or arthritis. But, when I quit eating dairy, the rest of my pain went away completely.
Thank you for sharing your amazing success story Kari. I love hearing from my Hypothyroid Mom readers.
Well, I’ll be! Since my Thyroidectomy in 2014. I’ve had a wrist sprain, right Rotator cuff & tennis’s a elbow at same time. Left & right foot fasciitis. I have constant right & left shoulder aches. I have had a spontaneous bicep lump appear with pain then reside. I never had any of these types of issues before my tgyroidectomy. (Due to nodules & encapsulated cancer).
Thyroidectomy. Predictive text. Lol.
Hi Joy, I’m sorry to hear all the pain you have experienced. It wouldn’t be a surprise at all if your hypothyroidism is not being well treated. Seek another medical opinion. Here is one a list of resources that I put together in the hopes that will help my Hypothyroid Mom readers find good thyroid doctors:
https://hypothyroidmom.com/300-hypothyroidism-symptoms-count-how-many-you-have/
I’ve had upper, middle and lower back pain all of my adult life. The fatigue started 10 years ago and then came what felt like 2 broken feet. Numerous blood tests and doctor visits later, I was diagnosed with Fibromyalgia. I think the stabbing pains are the worst, the fact that my feet still hurt was the most depressing.
I started using fibromyalgia herbal remedy i purchased from Best Health Herbal Centre february this year. I only used it for a month and two weeks, my condition changed automatically, all my symptoms are gone. Am now living fibromyalgia free.
All thank to Best Health Herbal Centre, i will never stop telling the world about your good work…..To know more about Best Health Herbal Centre visit w ww .besthealthherbalcentre. com. Thanks..
Thanks for sharing Tina. I always love hearing what works for my readers.
Tina…what exactly did you start adding to your diet from that center to create such awesome paun relief? I have Fibro and Hashimoto’s and am 5 yrs post thyroidectomy for Cancer. I suffer from many many areas of daily pain espec shoulders/neck/elbows/hands
and generalized body…
Hi Tina, what is the herbal remedys name? please
So glad I read this because last year I tore up both shoulders and really waited to know if it was thyroid related! I tried to take T3 and went from Hypo to Hyper… felt like crap and got labral tear in both shoulders plus tendonitis and a bit of rotator cuff tear also in the right one! I had been working out for years there was no other reason besides maybe age, but of course, the doctor is t gong to admit he screwed me up!!
Hi Lesley, There are a couple of important things to check when one doesn’t react well to T3 medications including natural desiccated thyroid. One is that the dosage may have been too high or upped too fast. Also discuss with your doctor testing your iron and adrenals because issues with both of these are common reasons why some react poorly as well.
I am a 37 year old with Hashimotos & just got my 1st steroid injection for shoulder tendinitis. I had no idea this could be related to my thyroid. I also suffer from lower back pain, stiff/painful joints & weight gain & more…thanks for the info!
I’m happy you read this article on my site J. A closer look at your thyroid may explain the root cause of your pain.
i have been hypo since the 3rd grade or 40 years i feel like crap everyday , my feet hurt so bad at times its hard to walk, swelling of the joints , low back pain , neck and shoulder pain, also overweight , now i read people with the same problem , so i guess I’m not the only one
I’m so sorry to hear you have been struggling Rick. That’s a long time to be struggling and I hope this article points you in the direction of getting another medical opinion about the treatment of your thyroid. There are two important things that get missed too often when it comes to hypothyroidism, and really is the reason I am well today and started this site.
1. Proper thyroid testing should be comprehensive not just TSH. Here in this article you’ll find a chart of thyroid lab tests and optimal ranges so get a copy of your recent labs and check if they’ve been done and that your levels are “optimal” as in the chart and not just normal because there is a big difference.
https://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/
2. Thyroid medication. T4 levothyroxine medications like Synthroid are the most commonly prescribed but they don’t work for everyone. Here is information about the other options.
https://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/
I was diagnosed with Hashimotos about 3 yrs ago. Prior to that (11 yrs ago) i had my first Lyme infection. Diagnosed late stage. 2 yes later had 2nd Lyme infection (anaplasmosis). Suffered for years with extreme foot pain, neck pain, pain in fingers and toes (joints). Fatigue and headaches Really debilitating. Lots of antibiotics. Diagnosed with Fibromyalgia (Cymbalta helped) before finally begging to be seen by an Endocrinologist when my weight spiraled out of control. He told me my Thyroid wasn’t bad. Got lucky and he referred me to another Dr who diagnosed me with Hashimotos and put me on Levo. It’s helped but I call it manageable pain now. I’m convinced everyone with Fibromyalgia is undiagnosed Lyme. Lyme is at the root of so many of these problems. It causes inflammation and an autoimmune response which results in so many of these problems. It’s horrible
Thankyou so much for your post. I have a daughter with fibro and lots of trial and error in treatment as GP not versed in the condition, so we now have a referral to someone who is. I am in the process of dealing with affects of paralysis tick bite from which I have never recovered. Now allergic to meat and gelatin. Took me a long time to work it out and have severe gut problems until sorted. I will also be seeking a referral to an endo. Thanks again, and I wish you well.
All the best to you and your daughter Lyn. I hear from too many of my readers struggling with fibromyalgia and their thyroid is one important place to check. As for tick bites, wow it’s sad what it can do to a person’s health.
Hi Wendy, I’m convinced too that Lyme is a major root cause of many health issues. I hear from reader after reader with Lyme. So many that the connection is obvious. Have you found a good doctors to help with your Lyme?
I was distracted hypo 17 yrs ago after my pregnancy. My Dr only noticed the bad thyroid levels because of the frequent blood work. I have since been on 180 mg of levothyroxine and still feel like crap. At the age of 46 I had my knee replaced and have been told that my other knee and my shoulders will need replacing also. I finally started seeing a rhumatologist who has found an inflammatory issue that we haven’t been able to name. I now take metheltrexate which has helped with a lot of the discomfort. I have also been diagnosed with carpel tunnel and Reynauds. While my rhumatologist is helping me immensely, I am still shocked at how little Drs are willing to listen to you about just not feeling “right”.
Hi Karin, Be sure to have your thyroid antibodies for Hashimoto’s tested. It’s the number one cause of hypothyroidism but the antibodies are not routinely tested. I mention this because Raynaud’s is often associated with autoimmune diseases like lupus, scleroderma, and rheumatoid arthritis. What I find interesting whenever I hear from a Hypothyroid Mom reader with Raynaud’s is how often they come back to tell me that they were then diagnosed with the thyroid autoimmune disease Hashimoto’s. When you have one autoimmune disease you are more vulnerable to develop others. Here is more information about Hashimoto’s:
https://hypothyroidmom.com/hashimotos-your-body-is-not-supposed-to-destroy-itself-right/
Hi Dana, I can totally associate with what your going through.
It’s amazing how much of how doctors fluff you off. After a while, so discouraging. You get tired of having the same conversation, same glazed over glance. When they think you read too much. We the public have to do research, to see why this goes unsolved. Why today’s doctors so easy to put their ears off and their performed thoughts on. You can tell the second that starts to happen. So frustrating. Praying for hope and nlightment in the medical field.
OMG, that is unfortunately so true and I thought it’s was only happening to me!!!!! Our medical system is so out of touch on what’s really going on it’s impossible to find a doctor that will actually listen to you then follow through with what’s needed. Been hypo myself for 10+yrs.
Hi Dana, I can totally associate with what your going through.
It’s amazing how much of how doctors fluff you off. After a while, so discouraging. You get tired of having the same conversation, same glazed over glance. When they think you read too much. We the public have to do research, to see why this goes unsolved. Why today’s doctors so easy to put their ears off and their performed thoughts on. You can tell the second that starts to happen. So frustrating. Praying for hope and nlightment in the medical field.
HI Karen, did you notice your symptoms getting or got worse after pregnancy?? I had my last child at 32 and 9 yrs apart but I felt like I was falling apart in a way, my body ached and I couldn’t hold my own baby to feed because of the shoulder pain! Which I never noticed or had prior to giving birth….finally diagnosed with Hypo after bugging my PCP and my OB/GYN contacting him.
I’ve had psoriasis since I was a toddler and ever sincewhen I went to the doctor with pain, “its growing pains, there’s nothing wrong with you, its all in your head.” Psoriatic arthritis was finally diagnosed at 52. I often get the rotator cuff tendonitis, my trapezius muscle in my back locks up so I can’t turn my head and there is some nerve impingement in my cervical spine. Still it took sinus bradycardia before anyone thought to run a thyroid panel. All of this to say…its rampant inflammation, in my case, caused by my immune system run amok. Getting doctors to pay attention is still my biggest job…
My daughter & I BOTH have so many of these symptoms but neck pain, carpal tunnel, low back pain /stiffness are regular every day pains!! Doctors do say it’s all “in your head” thank you for this article!
I have calcium deposits in my rotator cuff. After 9 months of shots, physical therapy and two needle aspiration to break it up I have to have surgery. I also have calcium deposits in my hip. The ortho drs say could be coming from parathyroid but endocrinologist won’t listen to me. It is so hard to find a good endocrinologist that listens
Unbelievable. I’ve been hypothyroid for 10years on 125-150mcg levo. I’ve had calcific tendonitis in both shoulders (6mths apart). Severe shoulder pain…only an xray will show the calcific build up causing the pain..also Bone spurs. Also, bursitis in various joints. I’ve been told there is no known cause but I’m convinced its thyroid or the medication for thyroid. Research like this helps.
I suffer bursitis as well in my hips. I have found timeric helps control my pain when nothing else would. Has to be a good quality tablet though not the basic grocery store brand.
Do you mean Turmeric? If so what dose or do you use tea? Thanks.
My entire spine has fused,called Diffuse Idiopathic Skeletal Hyperostosis or Forrestiers Disease.Found not long after I was found to have Hashimoto’sat 39 years old.The spurs in connective tissue are spreading everywhere
OMG I have had/ have so many of these symptoms, been hypo for over 10yrs, at times my feet feel like they are being crushed, my joints are stiff and painful and I was diagnosed with carpel tunnel….I need to look into this in more detail.
I suffer from bone spurs on my foot and right shoulder. My right shoulder was frozen for almost a year excruciating pain.. difficult to sleep… suffered through this episode without pain pills just heating blanket and bio freeze spray. I my back is killing me I couldn’t jump out of bed if my life depended on it.I blame my 5 miles runs and numerous marathons. Somehow somewhere you get used to pain.
i’ve had many of these aches and pains for quite some time! it began in my shoulders and now hurts so badly in my left that i can’t reach around to the middle of my back to fasten my bra! had no idea it could be Graves-related!
For the second time in two years, I am in physical therapy for rotator cuff impingement. I am on Armour thyroid daily. PT does help. I have joint and muscle pain in different areas and then it just goes away after a few days. My husband thinks it is just “getting old” but it’s not. The pain is real people…make the medical field aware of this!!
i thought the “getting old” thing too, but i’m only 46–that ain’t “old” is it? lol
I had this as well and was diagnosed with plantar fasciitis, I got good orthotics and good runners. My podiatrist recommends New Balance runners because they have a good solid sole. He says you should not be able to bend the runner in half. Hope this helps you a bit. And yes get her dose adjusted as that will help also.
Sorry this reply was supposed to be to Amber Smith, idk how it ended up here.
No, Tara, 46 is not old! I was able to rebuild a mobile home in my 60s, and that was with this disease!
I’m so glad to hear this! I’m 46 and feel like I’m at the end of life. Body aches, memory issues, just feeling unproductive. My dream is ti build a house on my property in the country, but I don’t know if I’ll ever have enough energy. I’m alasys searching for these inspirational stories about big accomplishments at my age. “I found my dream job at 46.” or “having a great love life after menopause”. Keep sharing your achievements. It gives me and others hope!
There is hope to feel fabulous with hypothyroidism Trista. I know because hope happened to me. And Hypothyroid Mom was born.
My daughter(14yo) is hypo and has been having very bad pain in her feet. Her orthopedic people are no help and she just has to “tough it out”. I’m going to make sure her levo dose is right and hope that helps her. Thanks!
Check into Low Dose Naltrexone. And have they checked her for Hashimotos? Low dose naltrexone is used to treat many auto immune diseases. I go to a Pharmacy that makes my drugs for me after reading my blood work. It has helped my pain tremendously. My life has greatly changed.
Donna Berke
What dose of low dose naltrexone have u seen improve thyroid/muscular/joint type fibromyalgia pain?
i take 4.5 mg. Most Doctors will start you at 1.5 and you take that for a week then increase take 2 a day at night for week , then week 3 take 3 & you r up to 4.5. If your pain lessons and you feel better by only taking two then that is your does. keep increasing until your pain feels less and it will take about 30 days to feel full effects.
I have Hypothyroid and Hashimotos and my doctor is treating me for RA and Gout. My body hurts everywhere. My hands, feet and knees are the worst. I was at a Rheumoligist? and he thinks I have fibermyalgia, and possibly vitamin D deficiency. I have issues with my fingers being numb(all the time). I’m not sure if this is carpel tunnel? I have to go for a series of blood tests and will know more after that…..I guess. Looking for some support with these issues, the doctor just seems to give me pills but I’m not knowing how to look after some of the pain without taking pills for this and pills for that.
I haven’t been tested for Hashimotos but diagnosed with Hypo, vitamin D deficiency take 50,000 units once a week, B12 shots twice a month, Raynauds years ago my primary doctor seems to just want to give me the pills and not listen or check out other issues I have. Fingers go numb, and my feet swell extremely bad idk if others experience this? (Edema that’s what my PCP says it is) but again another pill an I end up dehydrated. Being sent for a DEXA scan as well but my insurance won’t cover PCP says I’m too young to have osteoporosis (33) but I’ve suffered with symptoms that every doctor ignored for years…hope you find some answers as well, and curious if vitamin D is extremely low.
Your not alone with this. I too have problems with my hands going to sleep also have neuropathy in my feet and my hip joints ache so much that I can barely walk some days without the aid of a cane. My chiropractor helps me a lot because your hands and fingers falling asleep stems from the neck area sometimes. It helps when she makes adjustments. No cure but aid in mobility. I am hypo for 42 years.
I have hipo and I had numb hands and fingers I had my carpal tunnel done in one Hand it didn’t stopped the pins and needles but not the numbness then I had realising of both elbows it’s worked
As for pains in my back foot ankles knees and kneck not a lot they can do just give me pain killers
I am not on any medication for my hypo as it’s level
I don’t think it is
I am loosing my hair
shakes pulpitations
One month I’m up loosing Waight and going at 100 miles an hour
the next I am putting waight on falling to sleep
moody and could cry if someone said boo I think by the time I get a blood test it’s changi again I am at my wits end they don’t seem to care
Thanks for listening x
Hi Julie, Get a second medical opinion about your thyroid and be sure full thyroid testing is done including thyroid antibodies for Hashimoto’s, the number one cause of hypothyroidism. Hashimoto’s can come with highs and lows and up and down again of TSH levels leaving the person with both hypothyroid and hyperthyroid symptoms like a roller coaster so that should be tested for you. Here is my article about Hashimoto’s with the two thyroid antibodies that should be tested for you:
https://hypothyroidmom.com/hypo-like-a-rock-star-hashimotos/
I have been to my GP and two endocronologists to no avail. All my tests, thyroid and auto-immune, Vitamin D, etc. come back normal. I do have thyroid nodules. In my mix is tapering off long prescribed use of clonazepam. From head to toe I have problems. I am very good at diagnosing usually. Medical background and taking care of my entire family. In fact, my aunt was ill, in the hospital and they were releasing her stating they had no idea what was wrong with her. I accurately diagnosed her with Myasthenia Gravis; however, I am completely perplexed with my symptoms. Why I initially thought thyroid is because of familial and auto-immune because issues such as described in this article can come and go several times in one day. Losing hair and horrid condition, skin problems, scalp problems, eye problems, edema, joint pain that comes and goes, etc.. I am so over it and my entire family is gone. I have friends but no living relatives. Am thinking of taking Salus Silver? No energy to keep begging doctors to find something.