When hypothyroidism is painful: Musculoskeletal manifestations

When hypothyroidism is painful: Musculoskeletal manifestations

Pain.
I can’t bear it.
Help!
Doctors tell me it’s not my thyroid.
They say there is nothing more they can do.
Some say it’s all in my head.

Scope of this pain issue

Musculoskeletal disorders are conditions affecting the bones, muscles, and connective tissues. The most common symptom of most musculoskeletal disorders is pain.

According to the 2016 Global Burden of Diseases, Injuries, and Risk Factors Study, the most common leading cause of disability for men was low back pain “resulting in the highest age-standardised rates of years lived with disability (YLDs) in 133 of 195 countries and territories, including every country in the high-income regions, central and eastern Europe, central Asia, Andean and Tropical Latin America, and eastern and central sub-Saharan Africa, as well as most countries in southeast Asia, north Africa and the Middle East, and western sub-Saharan Africa. Low back pain was the leading cause of age-standardised YLD rates for women in 104 of the 195 countries and territories.” Neck pain and other musculoskeletal disorders ranked in the top ten of more than half of the countries and territories.[1]

Half of all American adults (126.6 million of U.S. adults over the age of 18) reported being diagnosed with musculoskeletal conditions in 2012 according to the Executive Summary of The Burden of Musculoskeletal Diseases in the United States: Prevalence, Societal and Economic Cost” by the USA Bone & Joint Initiative.[2]

Musculoskeletal manifestions in hypothyroidism

“Thyroid hormones play an important role in the development, maturation and maintenance of morpho-functional integrity of locomotor system structures,” wrote a researcher in the Romanian Journal of Rheumatology.[3] The relationship between hypothyroidism and musculoskeletal conditions has appeared in the scientific literature since the 1800s.[4]

Shoulder pain and its relationship with thyroid disorders has been suspected since the late 1920s. More recently, the implication of thyroid disease in rotator cuff tendon tears has been studied.[5]

The neck stiffness and joint pain associated with hypothyroidism have been known for centuries.[6]

In 2016, 52 rheumatoid arthritis patients underwent thyroid function testing and 20 of the 52 patients (38.4%) had hypothyroidism.[7]

Carpal tunnel syndrome was discovered in 32.5% of patients with untreated primary hypothyroidism. Women were more vulnerable to develop carpal tunnel syndrome.[8,9]

Adhesive capsulitis (frozen shoulder), Dupuytren’s contracture, trigger finger, and limited joint mobility are common in patients with hypothyroidism as well.[9]

The prevalence of fibromyalgia is approximately 2-7% in the general global population but as high as 30-40% in the population with the thyroid autoimmune disease Hashimto’s thyroiditis.[10]

Based on a study which analyzed data from individuals who participated in health screening programs at Chang Gung Memorial Hospital in northern Taiwan (2000–2010), both hypothyroidism and hyperthyroidism were significantly associated with gout.[11]

Tendinitis is another common painful presenting complaint in hypothyroidism. The Journal of Medical Case Reports includes the unusual (or maybe not so unusual) case of spontanous rupture of the long head of the biceps tendon in a 48-year-old woman with severe hypothyroidism.[12]

In a 2013 study published in the Indian Journal of Rheumatology, the following disorders were found to be significant in 120 patients with primary hypothyroidism[13]:

body ache and myalgia (83.33%)
muscle cramps and stiffness (83.33%)
osteoarthritis (66.7%)
mild inflammatory arthritis involving hand joints (50%)
low back pain (50%)
arthralgia (25%)
adhesive capsulitis (20.8%)
limited joint mobility (16.67%)
rheumatoid arthritis (16.67%)
myopathy (8.33%)
systemic lupus erythematosus (8.33%)
carpal tunnel syndrome (6.6%)
fibromyalgia (5%)
trigger finger (4.1%)
Dupuytren’s contracture (3.33%)
Raynaud’s phenomenon (1.66%)
mixed connective tissue disease (1.66%)
tarsal tunnel syndrome (1.6%)

Conclusion

The relationship between hypothyroidism and musculoskeletal disorders is significant. Comprehensive thyroid testing including thyroid antibodies should be part of the workup of a patient presenting with musculoskeletal conditions. Musculoskeletal manifestations can serve as early signs of undiagnosed hypothyroidism and warning signs of hypothyroidism that is not optimally treated.

Psssst! Your pain is NOT in your head.

References:

1. GBD 2016 Disease and Injury Incidence and Prevalence Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. The Lancet. 16 September 2017;390(10100):1211-1259.

2. Bone and Joint Initiative USA. The Impact of Musculoskeletal Disorders on Americans – Opportunities for Action. boneandjointburden.org

3. Parasca, I. Manifestari reumatologice in bolile tiroidei. EMCB. 01.07.2008.

4. Radu, I., et al. Musculoskeletal Impairment in Primary Hypothyroidism. Rev Med Chir Soc Med Nat Iasi. 2016;120(2):244-251.

5. Oliva, F., et al. Thyroid hormones enhance growth and counteract apoptosis in human tenocytes isolated from rotator cuff tendons. Cell Death Dis. 313;4(7):705.

6. Doyle, L. Myxoedema: some early reports and contributions by British authors, 1873-1898. J R Soc Med. 1991;84(2):103-106.

7. Joshi, R., et al. Prevalence of hypothyroidism in rheumatoid arthritis and its correlation with disease activity. Sage Journals. 20 Jan 2016;47(1):2017.

8. Eslamian, F., et al. Electrophysiologic Changes in Patients with Untreated Primary Hypothyroidism. Journal of Clinical Neurophysiology. June 2011;28(3):323-328.

9. Cakir, M., et al. Musculoskeletal manifestations in patients with thyroid disease. Clinical Endocrinology. Sep 2003;59(2):162-7.

10. Haliloglu S, et al. Clinical Rheumatology. July 2017;36(7):1617-1621.

11. See, L.C., et al. Hyperthyroid and hypothyroid status was strongly association with Gout and Weakly Associated with Hyperuricaemia. PLoS One. 2014;9(12):e114579.

12. Pantazis, K., et al. Spontaneous rupture of the long head of the biceps tendon in a woman with hypothyroidism: a case report. Journal of Medical Case Reports. 2016;10:2.

13. Alakes, K.K., et al. Rheumatic manifestations in primary hypothyroidism. Indian Journal of Rheumatology. March 2013;8(1):8-13.

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About Dana Trentini

I founded Hypothyroid Mom October 2012 in memory of the unborn baby I lost to hypothyroidism. Hypothyroid Mom is for informational purposes only and should not be considered a substitute for consulting your physician regarding medical advice pertaining to your health. Hypothyroid Mom includes affiliate links to favorite resources including the Amazon Services LLC Associates Program. Connect with me on Google+

Comments

  1. amber smith says:

    My daughter(14yo) is hypo and has been having very bad pain in her feet. Her orthopedic people are no help and she just has to “tough it out”. I’m going to make sure her levo dose is right and hope that helps her. Thanks!

    • Donna Berke says:

      Check into Low Dose Naltrexone. And have they checked her for Hashimotos? Low dose naltrexone is used to treat many auto immune diseases. I go to a Pharmacy that makes my drugs for me after reading my blood work. It has helped my pain tremendously. My life has greatly changed.
      Donna Berke

    • Kelly Pettit says:

      I have Hypothyroid and Hashimotos and my doctor is treating me for RA and Gout. My body hurts everywhere. My hands, feet and knees are the worst. I was at a Rheumoligist? and he thinks I have fibermyalgia, and possibly vitamin D deficiency. I have issues with my fingers being numb(all the time). I’m not sure if this is carpel tunnel? I have to go for a series of blood tests and will know more after that…..I guess. Looking for some support with these issues, the doctor just seems to give me pills but I’m not knowing how to look after some of the pain without taking pills for this and pills for that.

      • Jessica Byford says:

        I haven’t been tested for Hashimotos but diagnosed with Hypo, vitamin D deficiency take 50,000 units once a week, B12 shots twice a month, Raynauds years ago my primary doctor seems to just want to give me the pills and not listen or check out other issues I have. Fingers go numb, and my feet swell extremely bad idk if others experience this? (Edema that’s what my PCP says it is) but again another pill an I end up dehydrated. Being sent for a DEXA scan as well but my insurance won’t cover PCP says I’m too young to have osteoporosis (33) but I’ve suffered with symptoms that every doctor ignored for years…hope you find some answers as well, and curious if vitamin D is extremely low.

  2. Lorraine Faulds says:

    For the second time in two years, I am in physical therapy for rotator cuff impingement. I am on Armour thyroid daily. PT does help. I have joint and muscle pain in different areas and then it just goes away after a few days. My husband thinks it is just “getting old” but it’s not. The pain is real people…make the medical field aware of this!!

    • Tara Morris says:

      i thought the “getting old” thing too, but i’m only 46–that ain’t “old” is it? lol

      • I had this as well and was diagnosed with plantar fasciitis, I got good orthotics and good runners. My podiatrist recommends New Balance runners because they have a good solid sole. He says you should not be able to bend the runner in half. Hope this helps you a bit. And yes get her dose adjusted as that will help also.

      • Diane Tuck says:

        No, Tara, 46 is not old! I was able to rebuild a mobile home in my 60s, and that was with this disease!

  3. Tara Morris says:

    i’ve had many of these aches and pains for quite some time! it began in my shoulders and now hurts so badly in my left that i can’t reach around to the middle of my back to fasten my bra! had no idea it could be Graves-related!

  4. Marion Zottarelli says:

    I suffer from bone spurs on my foot and right shoulder. My right shoulder was frozen for almost a year excruciating pain.. difficult to sleep… suffered through this episode without pain pills just heating blanket and bio freeze spray. I my back is killing me I couldn’t jump out of bed if my life depended on it.I blame my 5 miles runs and numerous marathons. Somehow somewhere you get used to pain.

  5. OMG I have had/ have so many of these symptoms, been hypo for over 10yrs, at times my feet feel like they are being crushed, my joints are stiff and painful and I was diagnosed with carpel tunnel….I need to look into this in more detail.

  6. My entire spine has fused,called Diffuse Idiopathic Skeletal Hyperostosis or Forrestiers Disease.Found not long after I was found to have Hashimoto’sat 39 years old.The spurs in connective tissue are spreading everywhere

  7. Unbelievable. I’ve been hypothyroid for 10years on 125-150mcg levo. I’ve had calcific tendonitis in both shoulders (6mths apart). Severe shoulder pain…only an xray will show the calcific build up causing the pain..also Bone spurs. Also, bursitis in various joints. I’ve been told there is no known cause but I’m convinced its thyroid or the medication for thyroid. Research like this helps.

    • I suffer bursitis as well in my hips. I have found timeric helps control my pain when nothing else would. Has to be a good quality tablet though not the basic grocery store brand.

  8. Christinr says:

    I have calcium deposits in my rotator cuff. After 9 months of shots, physical therapy and two needle aspiration to break it up I have to have surgery. I also have calcium deposits in my hip. The ortho drs say could be coming from parathyroid but endocrinologist won’t listen to me. It is so hard to find a good endocrinologist that listens

  9. My daughter & I BOTH have so many of these symptoms but neck pain, carpal tunnel, low back pain /stiffness are regular every day pains!! Doctors do say it’s all “in your head” thank you for this article!

  10. Kimberly says:

    I’ve had psoriasis since I was a toddler and ever sincewhen I went to the doctor with pain, “its growing pains, there’s nothing wrong with you, its all in your head.” Psoriatic arthritis was finally diagnosed at 52. I often get the rotator cuff tendonitis, my trapezius muscle in my back locks up so I can’t turn my head and there is some nerve impingement in my cervical spine. Still it took sinus bradycardia before anyone thought to run a thyroid panel. All of this to say…its rampant inflammation, in my case, caused by my immune system run amok. Getting doctors to pay attention is still my biggest job…

  11. I was distracted hypo 17 yrs ago after my pregnancy. My Dr only noticed the bad thyroid levels because of the frequent blood work. I have since been on 180 mg of levothyroxine and still feel like crap. At the age of 46 I had my knee replaced and have been told that my other knee and my shoulders will need replacing also. I finally started seeing a rhumatologist who has found an inflammatory issue that we haven’t been able to name. I now take metheltrexate which has helped with a lot of the discomfort. I have also been diagnosed with carpel tunnel and Reynauds. While my rhumatologist is helping me immensely, I am still shocked at how little Drs are willing to listen to you about just not feeling “right”.

    • Hi Karin, Be sure to have your thyroid antibodies for Hashimoto’s tested. It’s the number one cause of hypothyroidism but the antibodies are not routinely tested. I mention this because Raynaud’s is often associated with autoimmune diseases like lupus, scleroderma, and rheumatoid arthritis. What I find interesting whenever I hear from a Hypothyroid Mom reader with Raynaud’s is how often they come back to tell me that they were then diagnosed with the thyroid autoimmune disease Hashimoto’s. When you have one autoimmune disease you are more vulnerable to develop others. Here is more information about Hashimoto’s:

      https://hypothyroidmom.com/hashimotos-your-body-is-not-supposed-to-destroy-itself-right/

      • Hi Dana, I can totally associate with what your going through.

        It’s amazing how much of how doctors fluff you off. After a while, so discouraging. You get tired of having the same conversation, same glazed over glance. When they think you read too much. We the public have to do research, to see why this goes unsolved. Why today’s doctors so easy to put their ears off and their performed thoughts on. You can tell the second that starts to happen. So frustrating. Praying for hope and nlightment in the medical field.

        • OMG, that is unfortunately so true and I thought it’s was only happening to me!!!!! Our medical system is so out of touch on what’s really going on it’s impossible to find a doctor that will actually listen to you then follow through with what’s needed. Been hypo myself for 10+yrs.

      • Hi Dana, I can totally associate with what your going through.

        It’s amazing how much of how doctors fluff you off. After a while, so discouraging. You get tired of having the same conversation, same glazed over glance. When they think you read too much. We the public have to do research, to see why this goes unsolved. Why today’s doctors so easy to put their ears off and their performed thoughts on. You can tell the second that starts to happen. So frustrating. Praying for hope and nlightment in the medical field.

    • Jessica Byford says:

      HI Karen, did you notice your symptoms getting or got worse after pregnancy?? I had my last child at 32 and 9 yrs apart but I felt like I was falling apart in a way, my body ached and I couldn’t hold my own baby to feed because of the shoulder pain! Which I never noticed or had prior to giving birth….finally diagnosed with Hypo after bugging my PCP and my OB/GYN contacting him.

  12. I was diagnosed with Hashimotos about 3 yrs ago. Prior to that (11 yrs ago) i had my first Lyme infection. Diagnosed late stage. 2 yes later had 2nd Lyme infection (anaplasmosis). Suffered for years with extreme foot pain, neck pain, pain in fingers and toes (joints). Fatigue and headaches Really debilitating. Lots of antibiotics. Diagnosed with Fibromyalgia (Cymbalta helped) before finally begging to be seen by an Endocrinologist when my weight spiraled out of control. He told me my Thyroid wasn’t bad. Got lucky and he referred me to another Dr who diagnosed me with Hashimotos and put me on Levo. It’s helped but I call it manageable pain now. I’m convinced everyone with Fibromyalgia is undiagnosed Lyme. Lyme is at the root of so many of these problems. It causes inflammation and an autoimmune response which results in so many of these problems. It’s horrible

    • Thankyou so much for your post. I have a daughter with fibro and lots of trial and error in treatment as GP not versed in the condition, so we now have a referral to someone who is. I am in the process of dealing with affects of paralysis tick bite from which I have never recovered. Now allergic to meat and gelatin. Took me a long time to work it out and have severe gut problems until sorted. I will also be seeking a referral to an endo. Thanks again, and I wish you well.

      • All the best to you and your daughter Lyn. I hear from too many of my readers struggling with fibromyalgia and their thyroid is one important place to check. As for tick bites, wow it’s sad what it can do to a person’s health.

    • Hi Wendy, I’m convinced too that Lyme is a major root cause of many health issues. I hear from reader after reader with Lyme. So many that the connection is obvious. Have you found a good doctors to help with your Lyme?

  13. i have been hypo since the 3rd grade or 40 years i feel like crap everyday , my feet hurt so bad at times its hard to walk, swelling of the joints , low back pain , neck and shoulder pain, also overweight , now i read people with the same problem , so i guess I’m not the only one

    • I’m so sorry to hear you have been struggling Rick. That’s a long time to be struggling and I hope this article points you in the direction of getting another medical opinion about the treatment of your thyroid. There are two important things that get missed too often when it comes to hypothyroidism, and really is the reason I am well today and started this site.

      1. Proper thyroid testing should be comprehensive not just TSH. Here in this article you’ll find a chart of thyroid lab tests and optimal ranges so get a copy of your recent labs and check if they’ve been done and that your levels are “optimal” as in the chart and not just normal because there is a big difference.

      https://hypothyroidmom.com/top-5-reasons-doctors-fail-to-diagnose-hypothyroidism/

      2. Thyroid medication. T4 levothyroxine medications like Synthroid are the most commonly prescribed but they don’t work for everyone. Here is information about the other options.

      https://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/

  14. J. Leonard says:

    I am a 37 year old with Hashimotos & just got my 1st steroid injection for shoulder tendinitis. I had no idea this could be related to my thyroid. I also suffer from lower back pain, stiff/painful joints & weight gain & more…thanks for the info!

  15. So glad I read this because last year I tore up both shoulders and really waited to know if it was thyroid related! I tried to take T3 and went from Hypo to Hyper… felt like crap and got labral tear in both shoulders plus tendonitis and a bit of rotator cuff tear also in the right one! I had been working out for years there was no other reason besides maybe age, but of course, the doctor is t gong to admit he screwed me up!!

    • Hi Lesley, There are a couple of important things to check when one doesn’t react well to T3 medications including natural desiccated thyroid. One is that the dosage may have been too high or upped too fast. Also discuss with your doctor testing your iron and adrenals because issues with both of these are common reasons why some react poorly as well.

  16. I’ve had upper, middle and lower back pain all of my adult life. The fatigue started 10 years ago and then came what felt like 2 broken feet. Numerous blood tests and doctor visits later, I was diagnosed with Fibromyalgia. I think the stabbing pains are the worst, the fact that my feet still hurt was the most depressing.
    I started using fibromyalgia herbal remedy i purchased from Best Health Herbal Centre february this year. I only used it for a month and two weeks, my condition changed automatically, all my symptoms are gone. Am now living fibromyalgia free.
    All thank to Best Health Herbal Centre, i will never stop telling the world about your good work…..To know more about Best Health Herbal Centre visit w ww .besthealthherbalcentre. com. Thanks..

    • Thanks for sharing Tina. I always love hearing what works for my readers.

    • Tina…what exactly did you start adding to your diet from that center to create such awesome paun relief? I have Fibro and Hashimoto’s and am 5 yrs post thyroidectomy for Cancer. I suffer from many many areas of daily pain espec shoulders/neck/elbows/hands
      and generalized body…

    • Hi Tina, what is the herbal remedys name? please

  17. Well, I’ll be! Since my Thyroidectomy in 2014. I’ve had a wrist sprain, right Rotator cuff & tennis’s a elbow at same time. Left & right foot fasciitis. I have constant right & left shoulder aches. I have had a spontaneous bicep lump appear with pain then reside. I never had any of these types of issues before my tgyroidectomy. (Due to nodules & encapsulated cancer).

  18. For years I had pain in my neck, shoulders, and back every single day. I was diagnosed with Fibromyalgia when I was in my teens, so I just thought that’s what it was. But, almost 20 years later, I found out I had Hypothyroidism, and as soon as I started getting treated for it, the pain almost completely disappeared. I broke down crying the first day I didn’t have pain. I had become so used to it that I forgot what it was like to not have it.

    It’s worth noting I still had some joint pain once in a while, especially in my fingers. I thought it was either part of my Hypothyroidism or arthritis. But, when I quit eating dairy, the rest of my pain went away completely.

  19. Connie Robinson says:

    If you no longer have your thyroid what category do you go under? Hypo or hyper?

  20. I have been convinced of the connection between my hypothyroid and musculoskeletal pain. As soon as I was on a working dose of levothyroxine my body pains went away and I recovered so much faster after workouts. Now I’m struggling to hit a moving target again with my levo dose and have pain and plantar fasciitis again. Thanks for the article.

    • Hi Jenny, It’s good to have you at Hypothyroid Mom. The number of HM readers that contact me struggling with pain is unbelievable. I am certain that for many hypothyroid people, if only doctors would help them find the right type and dosage of thyroid medication for their body, their pain would go away.

  21. Sheila Pollard says:

    I’ve been to two Endocrinologist over the past three years plus my GP. All have said nothing is wrong with my thyroid yet I’m in constant pain. 10 years ago I was diagnosed with fibromyalgia. I’ve since then have come off all medications for pain. I have opted to proceed with yoga. I do stretching Exercises and I walk.however no amount of exercise relieves my pain it’s not too bad on days that I don’t do any of my routine activities, but there some days I don’t move to easily. I’m very sore. But I keep it moving. I am often very stiff. I watch what I eat and I drink plenty of water. On occasion I do have one or two glasses of wine or other type of libation. I’m praying One day I will be free.

  22. Hi there do any of u get nerve pain tingling in head eyes some days shooting nerve pains . Hashimotos dx almost 4 years ago. Low dose levo . The nerve pain can be anywhere along with twitching muscles ? Drs keep saying it’s not my thyroid ? Thx

  23. Good artivle validating ME. I am working with my Hashimotos – taking 100 T4 and doing Carcadian Dosing Method for 50 T3. Am also Gluten Free. Current FT3:RT3 Ratio of 14.1 so I am still in cellular hyopthyroid – ugh.
    Experiencing spinal issues which are progressing since about 1986- ugh I adapt.
    7 months ago I developed Adhesive Capsulitis (aka Frozen Shoulder) which is responding well to Chiropractic therapy (once a week) plus range of motion exercises daily. Added 1,000 mg Longvida Curcumin (anti anflamitory and neuron enhancer) also using 1-TDC cream twice a day. I now have about 40% shoulder movement.
    My Chiropractor is also a Naturopath and he says gluten usually triggers Frozen Shoulder in people with thyroid problems. I dont recall eating anything with gluten – but thought that was interesting. With my cellular hypothyroid issues I am sure the frozen shoulder can be atributed to that.
    For joint and/or muscle pain I highly recommend 1-TDC Cream by Elite Science – it not only provides some soothing warmth; but also contains special natural ingredients that go directly into the joints and help lubricate them. Its available on Amazon – pricey but worth every cent.

  24. “Fiona” and “Christine”, You both mentioned thyroid meds. I am allergic to many synthetic meds including most levo products. My side affects were not physical, like you but invasions of my normal, comfortable mental processes. I tracked them to my thyroid meds, switched to a naturopath and now take straight T3/T4. and feel better than I have in years. In my research I have heard of many problems with thyroid and I believe many have to do with the meds given patients… and traditional drs, endocrinologists and others only believe in the tests they give after a no of months to properly diagnose hypothyroidism. Wrong. I found that I react immediately to any change in my t3/t4 and am able to judge myself what is good for me and what is not. Look into Natural medicine for all disease. It should be your first line of defense.

  25. I have been interested in reading the comments in this site. I was diagnosed with hypo a year ago after years of doctoring with absolutely no response to my symptoms from GPs. It’s almost as if I said nothing at all. Over the last two years prior to my diagnosis my health deteriorated exponentially. I could barely walk without walking next to a wall for stability, my legs were extremely swollen, my feet so painful to walk on I wanted to cry. I had been diagnosed a couple years prior to that with plantar fasciatis in both feet ( the only show I could tolerate at all were soft crocks for over a year) and then ended up wearing the soft sided walking boot (casts) on both feet for another year. I couldn’t concentrate and exhausted all the time. It want until I had surgery on my foot (unrelated???) Now I don’t know, that I decided to go to a much higher quality local facility, since I was in medical leave, to see if they could help me. By this time I could not see myself even returning to work since I could hardly balance myself enough to step up a stair or a curb without support. (I wanted to mention that I am an elementary teacher and With these symptoms I was in a downward spiral to having to quit my job). With 6 weeks of testing and several diagnosis, hypothyroidism being one of them and severe adrenal insufficiency, I now have a name at least. Fast forward to today and I’m once again doiralng, my local endocrinologist has read the lab reports from the diagnosed in ng clinic along with some updated tests and he states “your lab results are interesting to say the least!”. He has no clue on what is going on. I’m trying to continue to educate myself on this, but when you talk to doctors and they know you are looking on the internet for help, they are quite unimpressed to say the least. Can anyone recommend some published journals/articles that I can refer to as well? I see some here and will also look into them but ad a lay person we are at the mercy of the doctors in our area. When I first started taking my new meds after being diagnosed I couldn’t believe a person actually could feel that good. I never had! It was short lived though for some reason. I am in desperate mode as I’m not seeing a future with a doctor that had any idea where to go or what to do. I am trying to return to the large (first diagnosing) facility but have not been getting any responses from them regarding getting an appointment. Help is appreciated.

  26. I was diagnosed with thyroid autoimmune disease Hashimoto’s. 4 years ago. I was prescribed levothyroxine 112. Shortly after I started to experience swelling of the joints , low back pain ,stiff neck and shoulder pain. Most morning I would wake up crying due to the pain. My joints were so swollen I couldn’t sit up I would get a sharp pain in my lower back when I tried. Every morning I didn’t look forward to waking up. I am so grateful to my wonderful husband he would be woken up every morning by my cries. If it wasn’t for him helping me sit up I would of never got out of bed. Most nights I sleep four hours If I’m lucky. I never sleep soundly I toss and turn because of shoulder pain or a cramp in my shin the pain is unbearable I wake screaming in pain, It feels as if the the meat in my shin is being ripped from the bone. My job require a lot of walking 3 to 12 miles in a day. I never had any problem with it until the last 6 months, I find myself changing my shoes three to four times at work because my foot pain make it extremely painful to walk. I spent hundreds of dollars on shoes and I have yet to find ones that I can work in without pain. Lately I have found something that has made my pain bearable ( CBD PAIN SALVE) I know most people are dead set against it. But if you think about it , the ingredients are all natural it contains mostly essential oils. That’s more than I can say for the pharmaceuticals. When I feel any bit of pain I rub it on and the pain is gone .It has totally helped with the pain in my feet and the shin cramps. I also stopped taking levothyroxine and switched to synthroid 112 . I feel so much better but I’m not out of the wood yet , I have regularly been taking Adrenal supplements, B=complex Vitamin D=3 and probiotics which helps with feeling fatigued.

  27. Hello,

    I was diagnosed with Hashimoto’s in 2015. I have experienced chronic neck and shoulder pain at least 10 years prior to my Hashimoto’s diagnosis. I am currently having what I call a flare up (where it gets more painful than my normal).

    Is there any help out there, both from a medical standpoint as mentioned above and possibly a disability standpoint? I am concerned about being able to keep pace (work full time) until I can retire 15 or more years from now.

    Despite my efforts, lifestyle changes and many of thousands of dollars spent since 2015 there always seems to be a battle. Getting tired here and not sure if I will be able to hold out at the current pace for 15 or so more years. Thanks.

  28. I too have been diagnosed with hypothyroidism in my menopausal years 10 or more years ago and have been trying to live normally with it taking Armour 180 mgs daily along with many supplements geared to help my aging body. I am 61. I have been following every comment and newsletter of Hypothyroid Mom for awhile now. I pray for all to figure this disease out to maintain somewhat of a decent life. I found for my painful feet a supplement that was like a miracle, pain gone in a week called Green Lipped Mussel 500 mg daily. I could not work out, jumping jacks and jogging out of the question still to this day until a buddy of mine with hip issues started taking it and another friend was referred to this for arthritis. It worked for me is all I can tell you. I still get pain in my shoulders and knees but it’s tolerable but my feet never have swelled again unless I jogged or jumped to aggravate it. Just try it, Swansons or Amazon has it and it’s affordable.

  29. I would say nothing surprises me, but still, my mind is blown after reading this… I have had surgery on both of my shoulders due to adhesive capsules, RC tears and a major SLAP tear on one shoulder… chronic stiff necks, and arthritis pain throughout my body when I’m flaring… I was only diagnosed with Hashi’s (hypothyroidism) 8 months ago at age 53, but realize I have likely had it for years! It is amazing (and sad) that nobody thought to check my antibodies until now. I’m hopeful that AI disease and the research that seems more prevalent now continues to improve!!!

  30. Hi again the problem is how many of us go untreated even after hashimotos is discovered BC they say oh but your numbers are in range besides high antibodies ? Anyone w the twitching nerves muscles and pains? Thx

  31. Jeanne says:

    I’m only just now finding out, through life experience, what an impact hypothyroidism has on joint and connective tissue pain. My lab work has revealed that I do not have Hashimotos, do not have Grave’s. I have an inherited predisposition to poor T4-to-T3 conversion. Before starting on T3 meds, I had such bad pain and stiffness in my feet, ankles, knees, sometimes both shoulders and elbows; and a thumb joint! After starting on 30mcg of T3 daily, I was startled at how good it felt to be in substantially less pain!! I would say, the pain has reduced by maybe 80%! And it took less than 10 days to feel the difference!

  32. Hi. I was actually diagnosed with Hashimoto’s about 7-8 months ago. The doctor that I went to gave me that diagnosis, but didn’t prescribe me anything for thyroid at all. Instead, it’s a “female” clinic kind of thing, and they wanted me to have a “pellet” type medication inserted under my skin. (Hormones) Still yet, NOTHING to do with thyroid. I said no, of course. So, they put me on a a prescription for Progesterine, which didn’t really help anything at all. So, after that I started developing such awful knee pain, I was directed to an orthopedic doctor. He gave me shots, some medication, and said you have Osteoarthritis. I’m telling you, my knees hurt so bad, I couldn’t even raise up out of a chair right it hurt so bad! Walking every day was the worst pain in my life. Medication didn’t help much, and here I am…about 12 months down the line now, and STILL nothing for thyroid! Still have horrible knee issues. Now starting to have shoulder and hand joint issues. I have every single classic symptom: dry skin, weight gain, awful hair, sore hands, sore knees, mental fog, intolerance to cold…all of it! My only hope is I have an appointment with a new doctor tomorrow, and I am praying that she knows what she is doing! I am about on my last limb here, and my whole life has gone to crap!! I can’t find a doctor who will help in the right ways. I need relief! And a doctor with a some common sense.

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