Miscarriage in New York City…Be Thyroid Aware

Miscarriage in New York City...Be Thyroid Aware

“Everyone is invited to light a candle on October 15th at 7PM in ALL Time Zones, ALL Over The World. If everyone lights a candle at 7PM and keeps it burning for at least one hour, there will be a continuous WAVE OF LIGHT over the entire world on October 15th, Pregnancy and Infant Loss Remembrance Day.” October15th.com “Because EVERY baby deserves a first birthday.” Firstcandle.org. This post is written today in memory of the baby I lost to hypothyroidism.

When I was a girl, my father would sing Frank Sinatra’s song “New York, New York”. He would sing at the top of his lungs, “If I can make it there, I’ll make it anywhere. It’s up to you, New York, New York!” In New York City, one of the greatest cities in the world, I expected the best possible medical care. I trusted my doctors implicitly, never once thinking they might not know everything there was to know about hypothyroidism, especially the dangers of hypothyroidism and pregnancy.

I was diagnosed with hypothyroidism, a low thyroid, following the birth of my first son. When I became pregnant for the second time, I followed my thyroid drug protocol to the letter never once doubting my Ivey League medical school trained and top awarded NYC doctors.

In my first trimester, I was overcome by a sick, tired, weak feeling. I recall the night I told my husband, “I am worried that something is wrong with the baby.” My body was whispering a warning to me, but I trusted my doctors and didn’t question them when they responded that my thyroid levels were safe for pregnancy and that it was normal in early pregnancy to be tired. Somehow this “sick, tired, weak” feeling didn’t seem normal but I disregarded my body’s warning. In hindsight, I was also too sick and exhausted to do the research to help myself. I miscarried at 12 weeks pregnancy.

Frank Sinatra’s song resonates with me now more than ever. If a miscarriage due to hypothyroidism can happen in New York City, it can happen anywhere.

TSH Levels in Pregnancy 

Thyroid Stimulating Hormone (TSH) is a measure taken from a blood sample to test thyroid functioning. High TSH levels above the reference range are interpreted as an underactive thyroid, known as hypothyroidism. Low TSH levels below the reference range are interpreted as an overactive thyroid, hyperthyroidism.

Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum were updated in 2011. They recommend the following trimester-specific reference ranges for TSH in pregnancy:1

First Trimester, TSH 0.1 – 2.5 mIU/L

Second Trimester, TSH 0.2 – 3.0 mIU/L

Third Trimester, TSH 0.3 – 3.0 mIU/L

As published in The Journal of Clinical Endocrinology & Metabolism in 2010, a study conducted on a large cohort size of 4123 women in Southern Italy revealed that higher TSH levels (between 2.5 and 5.0 mIU/L) increased the risk of miscarriage by 69%. This study provided strong physiological evidence to support defining the TSH upper limit of normal in the first trimester of pregnancy to 2.5 mIU/L.2

The European Journal of Endocrinology published a study in 2009 entitled “Higher Maternal TSH levels in pregnancy are associated with increased risk for miscarriage, fetal or neonatal death”. In a cohort of 2497 pregnant Dutch women without overt thyroid dysfunction, the incidence of child loss increased significantly with increasing TSH levels during early pregnancy.3

The 2007 Endocrine Society’s clinical guidelines for the Management of Thyroid Dysfunction during Pregnancy and Postpartum includes the following recommendations:4

  • If hypothyroidism has been diagnosed before pregnancy, thyroid hormone replacement medication dosage should be adjusted to reach a TSH level not higher than 2.5 mIU/L prior to pregnancy.
  • If overt hypothyroidism is diagnosed during pregnancy, thyroid function tests should be normalized as rapidly as possible to TSH levels of less than 2.5 mIU/L in the first trimester (or 3 mIU/L in the second and third trimester).”

Throughout my first trimester, my TSH remained higher than the above recommended 2.5 mIU/L, soaring as high as 10.0 mIU/L. My doctor said that everything was fine and that TSH was only a concern in pregnancy above 10.0 mIU/L.

Wait…rewind…yes you read that correctly.

My doctor was not concerned about TSH levels below 10.0 in pregnancy, because she was not aware of the danger to pregnancy with a TSH at that high range, and I wasn’t aware of it either.

According to a study published in Thyroid in 2010, three waves of mail surveys were distributed to 1601 Wisconsin health care providers with a history of providing obstetric care. Survey participants were members of the American College of Obstetricians and Gynecologists or the American Academy of Family Physicians. The study determined that ONLY 11.5% of providers actually read the 2007 Endocrine Society’s “Guidelines on the Management of Thyroid Dysfunction During Pregnancy and Postpartum.”5

In another study a survey was distributed to 260 surgeons attending the 2009 American Association of Endocrine Surgeons’ meeting. ONLY 23% had read the 2007 Endocrine Society’s guidelines. Reading the guidelines was associated with a significantly greater likelihood of the doctors informing patients of the TSH guidelines for pregnancy, however I repeat only 23% actually read the guidelines.6

If only my doctors had just read the Endocrine Society’s 2007 clinical guidelines, my child would be alive today. What an unnecessary and tragic loss. I can’t go back in time no matter how much I wish it, however I can make sure this never happens to anyone else ever again. I can do everything in my power to drive awareness about the dangers of hypothyroidism and pregnancy.

Elie Wiesel said, “Whoever survives a test, whatever it may be, must tell the story. That is his duty.” Hypothyroid Mom is my story. I feel deep within me that it is my duty to share it, so that not one more child will be unnecessarily lost to hypothyroidism. Please take a look at Hypothyroid Mom’s first YouTube video and help build awareness.

YouTube Preview Image

A special thank you to MetroMoms for publishing my article “October Is Miscarriage Awareness Month” in their MetroMoms.net online Magazine on this important day October 15th, Pregnancy and Infant Loss Remembrance Day.

What about you?

Have you experienced pregnancy or infant loss?

Were you aware of the trimester-specific TSH ranges in pregnancy?

Are you certain your doctor is aware of the TSH ranges for pregnancy?


  1. Stagnaro-Green, A., Abalovich, M., Alexander, E., Azizi, F., Mestman, J., Negro, R., Nixon, A., Pearce, E.N., Soldin, O.P., Sullivan, S., and Wiersinga, W. Guidelines of the American Thyroid Association for the Diagnosis and Management of Thyroid Disease During Pregnancy and Postpartum. Retrieved from http://thyroidguidelines.net/pregnancy
  2. Negro, R., Schwartz, A., Gismondi, R., Tinelli, A., Mangieri, T., Stagnaro-Green, A. Increased Pregnancy Loss Rate in Thyroid Antibody Negative Women with TSH Levels between 2.5 and 5.0 in the First Trimester of Pregnancy. The Journal of Clinical Endocrinology & Metabolism 2010; 95(9):44-48
  3. Benhadi, N., Wiersinga, W.M., Reitsma, J.B., Vrijkotte, T.G.M., Bonsel, G.J. Higher Maternal TSH Levels in Pregnancy are Associated with Increased Risk for Miscarriage, Fetal or Neonatal Death. European Journal of Endocrinology 2009; 160:985-991
  4. The Endocrine Society. Management of Thyroid Dysfunction During Pregnancy and Postpartum: An Endocrine Society Clinical Practice Guideline. Journal of Clinical Endocrinology & Metabolism 2007; 92(8)(Supplement):S1-S47
  5. Haymart, M.R. The Role of Clinical Guidelines in Patient Care: Thyroid Hormone Replacement in Women of Reproductive Age. Thyroid 2010 March;20(3):301-307
  6. Haymart, M.R., Cayo, M.A., Chen, H. Thyroid Hormone Replacement in Women of Reproductive Age: Is Surgeon Knowledge Related to Operative Volume? Thyroid 2010 June;20(6):627-631

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About Dana Trentini

Who knew that little butterfly-shaped thyroid gland at the base of my neck could affect my life so completely? I founded Hypothyroid Mom in memory of the unborn baby I lost to hypothyroidism. Winner of two 2014 WEGO Health Activist Awards: Health Activist Hero & Best In Show Twitter. *Hypothyroid Mom includes Affiliate links. Connect with me on Google+


  1. You are really onto something here, Dana. I have met alot of women who will benefit from your findings. I will start tonight at the gym! Thank you for this monumental work you have done.

    • Dana Trentini says:

      Thank you for commenting Johann. I appreciate your help in spreading awareness. This is an emotional day for me to see my blog up and running for October 15th, Pregnancy and Infant Loss Remembrance Day.

  2. Amazing work Dana.. I too beleive you are on to something amazing. keep up the good work and God Bless you 🙂

  3. Dana, thank you for sharing your story to help other women prevent miscarriages.

  4. Dana,

    What an amazing resource your blog is. I am past the childbearing years, but I know where to send people when they need information about this important issue. My deepest condolences on the loss of your precious baby. How brave you are in that kind of sorrow to be concerned for others. I love that Wiesel quote. I’m writing that one down.

    • Dana Trentini says:

      Thank you for commenting on my blog. I am honored. I had a vision of helping mothers with hypothyroidism but I had zero experience with blogging. Your blog “Judy Lee Dunn” inspired me with your genuine posts and powerful imagery. What do I say to you who through your blog inspired me to create Hypothyroid Mom? Thank you Judy so much.


  5. Dana, on one level, I’m so sorry you’re our modern-day Elie Wiesel who has this story to tell. Miscarriage is a never-forgotten loss. On the other hand, I can’t think of a better advocate than you. Your mission here at Hypothyroid Mom is clear: so that not one more child will be unnecessarily lost to hypothyroidism. And for that, so many, many families will be ever grateful to your warnings, education and advocacy. Keep writing!

  6. First of all, thank you for so much information. My husband and I have been trying to get pregnant for about 3 months now, I too have a low thyroid. I had no idea about how serious this condition is when considering children. I’ll be honest, I haven’t always followed thru with taking good care of myself with regards to my thyroid. Now that I know how much it can affect my potential future family, I will be sure to talk to my doctor and stay on top of my health. Again, thank you.

    • Dana Trentini says:

      You have no idea how happy I am to receive your comment Justina. For 3 years I envisioned this blog since my miscarriage. My hope was to find hypothyroid women like us who were trying to conceive and warn them to be careful. There is hope for us to have healthy pregnancies however you have to be an advocate for yourself and in many cases know more than you doctor about hypothyroidism.

  7. Married age 36; first miscarriage age 37 at around 12 weeks; infertility thereafter; 2nd miscarriage age 40 at around 10 weeks – was told was low side of normal for thyroid; infertility; conceived age 42 and breathed sigh of relief after first trimester; went full term, actually over, baby was breech at 37 weeks so did version procedure successfully; presented in labor at 40 weeks plus a few days – told to go to local motel and get in warm hot tub; presented next morning to hospital and no heartbeat; never pregnant again; my mother was diagnosed with hypothyroidism when she was carrying me and given medication, but she did not remember what she took, if she ever learned it to begin with. I have had symptoms of hypothyroidism all my life, so this was my normal, even though many other people should have seen the signs – low energy levels (asked several doctors about it from time to time – got tired of being told that some people just don’t have as much energy as others). I believe the medical profession will have much, much, much to answer for on the other side. At age 56, my symptoms became intolerable – I guess my overworked menopausal adrenals could no longer overcompensate for my flagging thyroid. I went to several practitioners and finally started on NDT, but still trying to get everything optimized. I live in Nashville, TN and “healthcare” is supposedly our number one industry – maybe for money making, but definitely not for patient welfare.

    • Dana Trentini says:

      Oh Beverly I read your message, then put my head down on the desk and closed my eyes for how sad I am about your losses. I can only imagine the pain of carrying a sweet baby to term and then lose their precious life at the very last moment. I am so sorry for what has happened to you. No one should go through that! I am happy you found me at Hypothyroid Mom Beverly. Thank you for sharing. Still birth is linked to hypothyroidism in the literature. There may be other hypothyroid women reading your comment right now who had the same experience. They will know they are not alone. Thank you.

  8. I have delivered 6 times prematurely. And lost one sweet baby at 22 weeks. And NONE of my drs have suggested my thyroid levels, which run around 7 had anything to do with it. Thank you.

    • Dana Trentini says:

      Thank you for sharing your story Trina. So few hypothyroid moms are aware of the TSH range for pregnancy. We depend on our doctors to care for us but many of them have not read the thyroid guidelines for pregnancy. To me this shameful. I am sorry for the loss of your sweet baby. Premature birth is very common for hypothyroid moms. My son came premature too and I am so thankful he is doing well today. By sharing your story you will reach other hypothyroid moms who don’t know the dangers and will encourage them to take charge of their thyroid for the sake of their babies. Thank you for commenting Trina.

  9. I had a tsh level of 8.4 when I got pregnant. My free t3&t4 were normal. It was amazing I got pregnant in the first place. The first doctor I went to knew I was trying to get pregnant but didn’t treat me as my t3 & t4 where normal when I was pregnant she said I didn’t need to be treated. I wasn’t happy with that so I went and got a second opinion. The next doctor I went to but me on thyroxine straight away. But my levels where so high. I miscarried last week. Reading now I was pretty much guaranteed to miscarry and I wish I had been put on medication by my first doctor when she knew I was ttc it may had stopped me from having to go through this miscarriage.

    • Dana Trentini says:

      Meg, I am very sorry about your miscarriage. I know too well the pain of losing your little one. I wish more doctors were aware of the seriousness of thyroid health in pregnancy. If not for my own loss that was the result of my doctor’s not know the guidelines for pregnancy with hypothyroidism, I would have never created Hypothyroid Mom. This blog was written to find women like you trying to conceive to let you know the seriousness of getting your thyroid optimally treated. Please seek a second even third, fourth, fifth opinion until you find a doctor who listens to you and gets you thyroid healthy. There is hope to have healthy beautiful babies despite hypothyroidism, you just have to be in great thyroid health prior to conceiving. Best of luck to you and welcome to Hypothyroid Mom!


      • I suffered through 4 second trimester pregnancy losses in the late ’80s and 90’s. I was screened for clotting disorders after the third loss, but my thyroid was never checked until 1991 and I was told it was normal at 6.8. My practitioner did not check my antibodies at that time, telling me my thyroid was normal,
        I was not diagnosed hypothyroid until I was 48 with a TSH of 36. I had classic symptoms for years- only to be told I was depressed and referred to a psychiatrist.
        I will never let my daughters go through any of this.

        • Dana Trentini says:

          Oh Debbie, I am very sorry for the losses of your 4 babies. It never ceases to amaze me the number of hypothyroid women who lose their babies. I believe there are millions of babies lost to us and no one even realizes it.

  10. Maryanne says:

    I started treating my hypothyroidism before I tried to conceive. I was at 6.5. The Dr. said this wasn’t so bad so not to take anything. A month later I saw a different doctor who recommended I start Synthroid 75micrograms. After 6 weeks my number went to 0.6. So the meds were lowered to 50. Stupid me waited 3 months to get rechecked and the number jumped to 8.22. He was baffled and said that couldn’t be possible. I was taking the med properly on an empty stomach. He said I might have had a bad batch which sounds unlikely. He put me on 100 micrograms. ( I just found out I am 5 weeks pregnant now.) I hear all the important baby development happens in the first 12 weeks. It’s hard to trust doctors (the first one was telling me things were swell at 6 so not to bother). I am less concerned about miscarriage at this point and more about the baby’s brain and body development. I don’t want to have created a problem. I’m so stupid for not checking this early. I had been on 50 for a few months and thought i was doing enough.

    • Dana Trentini says:

      Hi Maryanne, Congratulations on your pregnancy first off. TSH can change quickly in pregnancy since your baby needs your thyroid hormones for growth and development in the first months of pregnancy they depend entirely on mom’s thyroid hormones until they produce their own thyroid gland. Now you know from this article that the American Thyroid Association recommends a TSH less than 2.5 in the first trimester so your TSH of 8.22 is too high and you need to get that TSH down. When will you be seeing your doctor again for retesting? The good news is that you have read this article and know that your TSH is too high and now you have to get your TSH down. So your doctor increased your dose to 100 please be sure to have your levels tested again soon to be sure your TSH comes down less than 2.5 as recommended.

  11. Tired One says:

    Thank you, Dana. Your dedication to this site most likely answered my haunting question of, ‘What happened?’ I’ve been TTC for 2.5 years and finally sought out fertility expertise. After 2 IUI treatments, I finally got the news I’ve been waiting to hear, ‘You’re pregnant.’ My hCG levels were tested every three days to make sure the numbers were doubling and they were! I had ultrasound #1- good results, ultrasound #2- good results, and ultrasound #3- should have been my graduation day at the fertility clinic, but it was not. No growth after ultrasound #2, which was 6w 4d with no heartbeat. A D&C was completed for fear of passing the miscarriage while working full-time and just wanting the nightmare to be over.

    Looking back, all the signs were there. Last July (21012), I was diagnosed with Hashimoto’s Disease by my GYN. In December, when I went to the fertility clinic, I told them of the disease and another autoimmune disease. I told them of my extensive family history of hypothyroidism & diabetes. I told them I was over 30 years old and my height (5’5″) and weight (200 lbs) puts me at obesity, although I’ve religiously tried Weight Watchers over the last year with no success. The clinic had me schedule a thyroid test with my primary doctor before they began the IUI cycles. I was placed on Levothyroxine 25 mcg. The primary doctor never called me back with the results of my follow up weeks later, so I called his office and staff reported my numbers were good and I could proceed with IUI’s. They transferred my records to the fertility clinic. We proceeded and IUI try #2 resulted in the good news I mentioned above.

    Here is where it goes South… When the fertility clinic told me I was pregnant, the nurse stated on the phone to call my Endocrinologist. I explained I did not have one since I was diagnosed by my GYN in July 2012, tested by my primary doctor in Dec. 2012/ Jan. 2013 and this was March 8, 2013. She asked who retested my first hypothyroid results and I said the primary doctor. She said, ‘Okay, you should be fine. Keep taking your medicine and make an appt. with your GYN and make sure he knows to test you.” Now, I was told I would be released to my GYN after the 3rd ultrasound, so I made my appt. a few days after that was to be completed. While on the phone with my GYN receptionist, I had explained my infertility, thyroid problem and need to be tested and she said I didn’t need to come in any earlier than normal and scheduled me at 10 weeks. WRONG, WRONG, WRONG. I knew something was wrong, but I listened to my doctors, took my medicine, took the old advice of drink lots of water, get lots of rest, and excercise (I picked up yoga). But NO ONE tested my thyroid, even with all the documentation of being high-risk and with me questioning the professionals.

    So, here I am. I have joined the Angel Mommies Club. The club no one wants to join. I had joy, shared it with my family, and felt heartache that I will carry the rest of my life. But, I didn’t know. I didn’t know how important these numbers were. In my profession, I’m in the legal field, not the medical field. When nurses and doctors talk numbers, I always hamg onto the translation for either, everything is okay or we need to make changes.

    More than likely, this site- your efforts, just saved my next baby. Thank you. I will educate those around me and pay it forward.

  12. Dana Trentini says:

    Dear “Tired One”, I wrote this blog to find women like us who lost our babies in most likelihood from our doctor’s lack of awareness about thyroid conditions in pregnancy. There is so little awareness that it scares me. I worry there are more babies lost to hypothyroid women than anyone realizes. It is shameful. Yes the first regular pregnancy visit with the OB/GYN is about 10 weeks pregnancy but that’s too late to wait when you have a thyroid condition. Before I got pregnant I had a plan. I bought boxes and boxes of pregnancy tests so that as soon as I started conceiving I would test as early as possible even before a missed period because I knew that when you have hypothyroidism including Hashimoto’s that our TSH will increase quickly in the early weeks of preganncy because our baby relies on us in the first months for our thyroid hormones for its growth and development. So our thyroid has to meet the increased demand for thyroid hormone, but if our thyroid is not functioning properly, than it may not be able to meet the increased demand this is why the American Thyroid Association indicates that a large percentage of us need an increase in our dosage in the early weeks. Before trying to conceive I had my thyroid doctor provide me the lab requisition form for my TSH, Free T4, Free T3, and thyroid antibodies so that as soon as my pregnancy test showed pregnancy I would go get my labs way before the 10 week appointment normally scheduled with the ob/gyn. Now that you know what may have been the cause, you will be an advocate for yourself with your next pregnancy. You must find a great thyroid doctor now and get as healthy as possible before trying to conceive and then make a plan. There is hope to have healthy beautiful babies. It’s about empowering yourself with knowledge and being an advocate for you and your baby. Best wishes to you.


    • Tired One says:

      I’m getting my plan together. I’ve printed several of the medical journal articles you have sited on the website. I plan to highlight the necessary sections and provide a copy to my fertility clinic, OB/GYN, and endocrinologist doctors. I plan to have a lengthy conversation with each of them and express my concerns and plan of action.

      I am fortunate that I live in the Baltimore, Maryland area and have access to excellent medical care. I have located Bay West Endocrinologist (http://www.bayendocrinology.com/aboutus.html) at Greater Baltimore Medical Center/ GBMC and will be calling tomorrow to get an appointment in the near future to adjust my medication for a baseline reading before TTC again. Thank you for the idea of having the lab test referral ready to go once a positive pregnancy test is received. I’ve also received good information to get a hard copy of all future test results, so I personally know my numbers.

      I’m feeling more confident about the next pregnancy and can’t wait to get started. I’m also excited to share my experience with others to help them in their journey!

      “You never know how strong you are until being strong is the only choice you have.”

      “Even miracles take a little time.” – Cinderella

  13. First, I’m very sorry for your loss. I know you have a little angel that will help you raise your toddler and any other babies that will come (yes, they will).
    Now, I’m the total opposite of your narration. I’ve been hypothyroid all my life (not by birth), during my first pregnancy, my doctor’s obsession with keeping the TSH below 2 gave me a very tough hyperthiroidism condition, with rough heart palpitations, agitation and so on. I had to lower the dose gradually on my own if I wanted to keep the baby inside until he wanted out. Later on, I found out the vitamins I was prescribed had soy, which alters the levels and results, and doctors completely overlooked that little detail.
    In my second pregnancy, my TSH was NEVER below 15, always around 20. All doctors told me that I should have had a miscarriage. But what I have iis a very active and healthy 7 month old.
    Yes, the increase gave me tons of palpitations again, which came out of nowhere, even though I did not take soy based vitamins and was taking my hormones religiously.
    So I’m sorry to say, but a TSH higher than 2 is NOT a miscarriage cause.

    • Dana Trentini says:

      Hi Irina, Your story shows how different we all are. For me with a TSH close to 10 I had extreme hypothyroid symptoms everything from extreme fatigue, hair loss, cracking skin, inability to keep my eyes open, rapid weight gain, no a TSH that high in pregnancy was not okay for me. Absolutely we are all individual in what TSH is right for us however the point is that in pregnancy doctor’s should be listening to their patient’s and asking what symptoms they are experiencing and in my case my TSH was causing hypo symptoms in my pregnancy. How I am certain this was the cause of my miscarriage is that when I got pregnant again with my second son, I had done my research, my TSH jumped up quickly in the first trimester to above 5.0 and I had the same hypo symptoms like with my miscarriage, I walked in the doctor’s office and insisted to have TSH testing. My TSH was above 5.0 and they increased my dose and those hypo symptoms went away. No matter how you look at this, thyroid levels in pregnancy are critical to the life of our babies. More awareness is needed. I would have lost my son too had I listened to my doctors that my TSH above 5.0 was normal but I knew from my miscarriage that they were wrong. I had researched for years so I knew it and walked in their office and insisted they were wrong. My hypo symptoms were raising quickly.

      Now of course if as in your case a person experiences hyper symptoms at these ranges, then listening to the patient is key. However to date there is so little awareness that if anything I hope doctors will be more aware.

      • Dana, we are agreeing in something very important: doctors need to listen to patients’ symptoms. And I would add that TSH is not as standard as they claim. In my case, I was having blood drawn at every visit and being monitored for every thyroid level under the sun, referred to endocrinology (yeah, as if I was going to get an appointment in less than 2 months, they don’t know what emergency means) and cardiology (all fine). I was in BPP monitoring weekly and basically, it was a completely normal pregnancy with a lot of heart palpitations. My case was so rare that my doctor said he was officially “perplexed” (and he’s specialized in high risk).
        So, a high TSH should come with a full thyroid profile to really give the doctor an idea of what’s going on. Big hugs

  14. I just found your blog as I sit in the outpatient waiting room to have a biopsy of a large nodule on my thyroid. I have had two miscarriages in the past year. Both healthy baby boys. One at 14 weeks and one at 13 weeks. I am very thankful for my two beautiful daughters. I know something is wrong with my thyroid because it is visably enlarged. My endocrinologist insist that it is fine even though my THS is 4.7, which is where it was when I lost the last baby. The doctor says I just have to live with an enlarged neck and even suggested that my neck was fat. I have the feeling that something is stuck in my throat but he says I shouldn’t be able to feel the large nodule on my windpipe. I am so glad he knows my body better than I do. I am ALWAYS exhausted and know something is not right. Your blog lets me know that I am not crazy and I will not stop until I get answers!

    • Dana Trentini says:

      Julie, I see that you posted this today at 12:05PM, so your biopsy may be completed now. What a coincidence you found my blog in the waiting room to have a biopsy done on your thyroid nodule! Things happen for a reason! TSH of 4.7 may be “normal” by the lab reference range but thyroid advocates have been pushing for a narrowing of the TSH range for years. Thyroid advocate Mary Shomon wrote: “More innovative doctors are beginning to believe that a TSH of around 1 – 2 — in the low end of the normal range — is optimal for most people to feel well and avoid having hypothyroid or hyperthyroid symptoms. Similarly, some practitioners feel that optimal hypothyroidism treatment includes Free T4 in the top half of the normal range, and Free T3 in the top 25th percentil of the normal range.”


      Be sure to request complete lab testing. This article below includes the recommended lab work to have done beyond TSH. TSH does not provide a complete picture of a thyroid condition.


  15. Thank you, Dana, for sharing about your lost baby. Your information has proven so valuable to me. I had 3 miscarriages in 11 months in 2012-2013. After my third MC, I got my thyroid levels checked. My OB/Infertility Specialist said that my TSH level of 3.51 was within the normal range, so they saw no need to put me on medication. I test negative for TPOs. I’ve since researched and fully believe that I have a subclinical hypothyroid condition based on a lot of symptoms. My question is based on your comment that the American Thyroid Association recommends a TSH less than 2.5 in the first trimester. Does that mean that a person trying to conceive should have a TSH less than 2.5?

    • Dana Trentini says:


      I am very sorry to hear about the loss of your 3 babies. So tragic. I am so upset to hear that. According to the American Thyroid Association guidelines for pregnancy.



      Treated hypothyroid patients (receiving LT4) who are planning pregnancy should have their dose adjusted by their provider in order to optimize serum TSH values to <2.5 mIU/L preconception. Lower preconception TSH values (within the nonpregnant reference range) reduce the risk of TSH elevation during the first trimester.

      Now technically this recommendation is for "treated" patients but in my mind every woman trying to conceive should have a TSH less than 2.5 because the TSH recommendations for pregnancy are as follows:


      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L. Level I-USPSTF

      My recommendation would be to get a second medical opinion before trying to conceive to be sure you are as thyroid healthy as possible prior to trying to conceive. TSH is not the only test to give a full picture of thyroid health. Testing should include Free T4, Free T3, Reverse T3, thyroid antibodies (the other antibody for Hashimoto's besides TPO-Ab is Thyroglobulin Antibodies (TgAb), adrenals, full iron panel, sex hormones, D3, B12, magnesium, zinc, selenium at a minimum.


      I was interviewed recently by thyroid advocate Mary Shomon about fertility and pregnancy. Excellent show. Here is a recording:


  16. Thank you for this post. I’m 10 weeks pregnant and my TSH came back 250 (or that’s what the doctor told me), but I’ve had hashimoto’s for years. This is the lowest TSH I’ve had in years. I was happy to hear the normal results, but as I delve into research, 250 is not an ideal number. Yes, it’s borderline and could be a lot worse, but I’m looking for a doctor that keeps my health ideal, not borderline. Also, he didn’t run any other tests, like T4 or antibodies.. which concerns me. I have a new doctor I’m hoping to see ASAP.

    • Dana Trentini says:

      Hi Grace,

      The normal TSH for non-pregnancy is around 0.5 to 5.0 so perhaps it was a mistake when you wrote 250. Be sure to see your new doctor soon to have proper testing and bring a copy of the American Thyroid Association guidelines for pregnancy. Many of us need an increase in medication dosage in pregnancy to meet the needs of the baby. Best wishes to you and your baby.


      If trimester-specific reference ranges for TSH are not available in the laboratory, the following reference ranges are recommended: first trimester, 0.1–2.5 mIU/L; second trimester, 0.2–3.0 mIU/L; third trimester, 0.3–3.0 mIU/L.


      There exists great interindividual variability regarding the increased amount of T4 (or LT4) necessary to maintain a normal TSH throughout pregnancy, with some women requiring only 10%–20% increased dosing, while others may require as much as an 80% increase.


  17. Stephanie Chase says:

    This is very upsetting as I just recently lost a baby and I was 15 weeks pregnant. My first blood work was at 7 weeks and my TSH levels were 2.74 which is higher than the recommended TSH level 2.5 and now realizing what really happened to my baby!! 🙁 This is so upsetting because they specifically asked me if I was on thyroid medication as my TSH was high!! I then asked if it was dangerously high and they said NO!! Well SHOCKER…THEY WERE WRONG!!!! 🙁 Now my baby is dead and I’m a grieving mother because of it!! 🙁

    • Dana Trentini says:


      I am very sorry to hear about the loss of your baby. I know there are no words to make the loss of your baby better. I remember that raw numb feeling all too well. In time I hope you know that there is hope to have babies if you wish to in future. Now you know that the American Thyroid Association and the Endocrine Society recommend a TSH less than 2.5 so make sure your TSH is below 2.5 before trying to conceive again. I hope that readers will read this article who are thinking of getting pregnant and know what to do to ensure a healthy pregnancy. Now of course there are other reasons besides low thyroid that can cause miscarriage but at least the thyroid factor is something in our control. Best wishes to you.

  18. I too suffer from hypothyroid diagnosed at 17 and mismanaged by doctors for years before taking over and being my own advocate. Which can be incredibley intimidating. I lost three pregnancies (one a twin pregnancy) before giving birth to my first daughter. It was determined that I lost those three pregnancies because of my thyroid problem. I have two girls now and during their pregnancies I was a nervous wreck the entire time. I was tested every 2-4 weeks and they are both healthy and active love able kiddos. I am now 10 weeks along in my 6th pregnancy. My thyroid levels are not getting lower but higher even though my medication is being raised. Right now my levels are at 29.5. I am so worried about this. The only reason I can think of why this is happening is when Lyvoxyl was taken off the market I was put of Synthroid. I do not believe Synthroid is working. Lyvoxyl worked for me and when I was on it I actually felt good and could lose weight. Ever since switching to Synthroid even though my numbers were at a 2 before pregnancy I felt awful and gained weight. I have been talking to my doctor this morning but nothing is getting resolved. I feel helpless. I am 35 years old and honestly I just can not go through another miscarriage. Thank you for your article. I knew everything you were talking about because I had done so much research before finally getting and remaining pregnant. My hope is that doctors will really start listening and taking our concerns to heart.

  19. Dana, first of all, I am sorry for your loss. Your work here is incredible. It was too late for me, but you will help countless women have successful pregnancies. Here’s my story. Married at 36 with our first pregnancy at 38. Was diagnosed hypo at week 4 or 5. I don’t remember what my levels were but I do remember that they were not sky high. Was put on meds and was told at my 13 week ultrasound the baby was dead and had died at 8 weeks. I carried around a dead baby for a month and had no idea. My body still felt totally pregnant. Waited for 8 hours in day surgery in that crappy hospital gown and those useless blankets before being wheeled in to the OR. Our second pregnancy was similar only we only got to 9.5 weeks before hearing the devastating news. I had later found out my TSH was around seven and was told that was an acceptable level and my meds did not need to be adjusted.
    Once again, I had my heart ripped out when I was 41. I didn’t even get the chance to get scared and it was all over. The fourth one was really difficult. My TSH was at 5 which was considered the high side of normal by the old standards. My b12 was good, iron good. Was put on progesterone and a baby aspirin for clotting issues just in case. Then I had the wonderful experience of hearing the ultrasound technician say “I see a heartbeat” and the tears streamed down my face. I had never gotten to that point before. My husband and I were ecstatic at the thought of FINALLY having a child. Well a week later my entire world came crashing down as I lay on the bed in the ER. After being there for five hours I was sent home with “sorry for your loss, try again in three months”.
    I can not stress enough of how important it is to get your levels checked and treated RIGHT away. The thing that people forget is that with inital treatment, it can take WEEKS for it to take effect. Those weeks mean life or death to our little ones growing inside us. It is IMPERATIVE to have yourself monitored often if you are of child bearing years.
    I hope that my nightmare can help shed some light to women trying to conceive. We don’t want any more members in our club. It’s full. Good luck to you all and don’t forget to light a candle october 15. I will be lighting four.

    • Dana Trentini says:


      I am so sorry for the loss of your babies. I had goose bumps reading your message. It’s so tragic what’s happening to the babies of hypothyroid women. Best wishes to you. I appreciate you sharing your story. There will be readers who will see your story and their babies will be saved thanks to it.

  20. I totally agree with your statement in being your own advocate. I’ve literally watched everyone one of my doctors shrug their shoulders when asked about the links between my hypothyroidism and recurrent miscarriage. It is such a sad and hopeless feeling losing a baby, which is then compounded when noone knows the cause or will not put forth any effort to help you find out.

  21. hi Dana…
    i’m 23yrs old…i was diagnosed with hypothyroid in this feb…i was given thyroxine 50mcg initially… i dint feel better…i started gaining weight…thn dose was increasd to 100mcg…tsh was 0.09…thn doctor gagin changd dose to 50mcg…again tsh increasd…so he again increasd dose to 100mcg 🙁 i got married recently in this sep…im jus worrying so much abt conceiving a baby…so worried whet thyroid will affect whil trying to conceive….and often my palms are itching when i get up early morning….it bcums so dry….feeling so stressed bcoz of this thyroid problem

    • Hi Priya, I don’t know much about your case, but wanted you to be aware that you can take 75 mcg. You don’t have to be bouncing between hipo at 50 and hiper at 100. Talk to your doctor.

    • Dana Trentini says:

      Hi Priya, many of us do better on a combination of T4 and T3 meds. Thyroxine contains T4 hormone only and our bodies are supposed to convert this largely inactive hormone to the active T3 hormone our bodies need. However for many of us our bodies don’t convert it properly leaving us with symptoms. This is why many of us do better with both T4 and T3 treatment. Here is a description.


  22. ya tanq fr ur reply..

  23. Hi, great blog. Thank you for this information. It’s sometimes difficult to partner with your dr. You want to trust them, but you(me) have gut feelings, but you(me) am not a dr and they always have reasons to what they say, and then I feel defenseless. This article is very helpful. I have a question for you. I have had 2 m/cs, and after each one, it has taken my body 4-6 months to even ovulate again. The first time, once I ovulated (thanks to acupuncturist and chinese herbs) I got prey after 4 months of ovulating. The second time, I’ve ovulated 3 times and been on climid for 2 cycles, but still no prey. Anyways, My Dr. does watch my thyroid levels, but says that your body doesn’t fully adjust to the amounts or changes in your body for 6 weeks and therefore doesn’t check more often than 6 weeks. I wonder if last time, we checked my thyroid too late for it to matter. So this time around, if I get pregnant before its been 6 weeks since a change in meds, can the dr still test and would the test mean anything and could we even react to whatever the tests say if it hasn’t been 6 weeks?

    • Dana Trentini says:

      Melissa, when you start trying to conceive again, take pregnancy tests regularly so that you determine when you are pregnant as soon as possible even before a missed period. I showed a positive pregnancy test around 3 weeks pregnancy and went right away to get my thyroid labs done. DO NOT WAIT! In early pregnancy the baby relies on you to provide thyroid hormone for its growth and development so for many of us our meds have to be increased quickly in pregnancy. Here is more on this:


  24. Frustrated but Determined says:

    Thank you for writing this! I am adding it to the pile of articles to print off for my doctor.

    I am currently pregnant with my second and as soon as I found out I googled hypothyriodism & pregnancy and discovered my levels were not in the correct range (even though my doctor had known I was TTC).

    I saw my doctor at six weeks and told her (and showed her) that levels for the first trimester should be 2.5 or lower and she dismissed me! She said their lab didn’t have different levels for pregnancy TSH and refused to raise my prescription for me despite the fact that my labs taken four days prior showed my TSH at 5.9!

    I left her office shaking I was so upset. I have upped my dose myself and am on the hunt for a new doctor but plan on giving her boatloads of research so hopefully she doesn’t put anyone else’s baby at risk!

    • Hi Frustrated!

      I’m happy to see that you are searching for a different doctor. Not only her answer was wrong, but a TSH of 5.9 is an indicative of increasing medication even if you were not pregnant. According to my pediatritian when I grew up, the standard increase is about 25% in the first trimester and 50% the second on average, depending on lab tests and symptoms, so you can have an idea of how much more you can take.

  25. I am 52 years old
    I was diagnosed with hypothyroidism at age 40 when pregnant with my third child

    After my first two children (born when I was age 32 and 35) I had two miscarriages

    When I was pregnant with my third child in 2003, I constantly asked questions about my thyroid and levels etc. and thank god she was born with little or no difficulties.

    However at age 8 she was diagnosed with a brain tumor that they believe she was born with but have no way of knowing since she did not have an MRI of her head until she has had a emergency craniotomy for removal of the tumor; sadly now at age 10 the tumor is back;

    I do know there is literature to suggest that being on thyroid medication during pregnancy can lead to lack of fetal brain development; what I don’t know is if this can include the growth of tumors or abnormal development of her ventricles in her brain(where the tumor is located).The ventricles are essential because that is how your spinal fluid drains from your head to your spine. My daughter currently has a shunt in her head to help with the flow of her spinal fluid.

    If you know of any articles on such, please share. I plan to research it as well but your breathe of knowledge on this subject is extensive.I think your website is amazing and you and a wonderful person to bring awareness and education of thousands of women who have this disease

    Lastly, do you know what Levioxl was taken off the market? I too do not feel Synthoid is as effective for me. Do you know if there are natural remedies to control the thyroid function?

    Thank you!

  26. Deepshikha says:

    Hi Dana,
    Just came across your blog today. I had a very healthy first pregnancy that gave me a beautiful and lovely boy who is now 3 yr old. He is very mature for his age and when he started asking for a little sister called rosy, we knew it was time to have another baby. I tested positive on HPT in Feb (the same month as my son’s bday). We told him and the only thing he talked about was rosy,rosy,rosy. Unfortunately we could never even find out if it was a boy or a girl. My much anticipated 7 week ultrasound turned the worst day of my life when the doctor told me my pregnancy was only 5 weeks. i miscarried 2 days later. Its been the lowest point in my life and the most difficult part wast to explain a 3 yr old that there is no baby in mummy’s tummy . My doctor called me a few days later to tell me I may be on the lower end of the normal range of thyroid and that could be the reason of my miscarriage. I know nothing about thyroid except that my sister had to get her child aborted at 13 weeks coz of it. I will be going for another test soon . Can you please tell me how much TSH is a cause for concern?What should I be asking my OB/GYN? We do plan to start planning 3 months later and I dont think i have it in me to go through it again. So thanks a lot for spreading the awareness

    • Dana Trentini says:

      Hi Deepshikha, I’m sorry to hear about your lost child. Thyroid dysfunction can affect pregnancy because for the first weeks of life the baby does not have its own thyroid gland yet developed so he/she depends on the mother for thyroid hormone for its growth and development. As you know from this article, the American Thyroid Association recommends a TSH between 0.1 – 2.5 mIU/L in the first trimester. Those of us who are hypothyroid (higher than normal TSH) should get our TSH in this range before trying to conceive. Bring a copy of the American Thyroid Association guidelines. Bring a copy of the guidelines to your doctor:


  27. Hi Dana,

    Thank you for your article. Is there less chance of miscarriage if a woman is hyperthyroid than hypothyroid because the hyperthyroid woman would definitely have a TSH of less than 2.5 and some close to 0.1. Is there any dangers to the baby ( that you are aware ) if the TSH goes to 0.1 for whatever reason?

  28. First I’d like to thank you for what you’re doing, it helps women learn more about hypo and hyper thyroids, a lot more then in some doctor’s offices. I am so grateful I came across your website. I’ve had hypothyroidism for about 12 years now, only recently found a doctor that prescribed me Armour this Jan, 15mg 3 pills 2/day; and only after reading your website 🙂 I got proactive. I am also pregnant again with baby #2, 4 or 5 weeks along, but my TSH result came back at 8.5, T3: 3.0 and T4: 0.4 and I got so stressed out about my TSH level. My doctor told me to increase to 4 pills am and 3 pills pm, but I can’t help but worry and I hope it’s not too late. Looking back with my first I had no clue about hypo and pregnancy, but I looked and I was at 4.5 in that 1st trimester, I carried that pregnancy to term and have a healthy baby, Thank you Lord. I hope this will be a healthy pregnancy too. Thank You again

  29. Thank you so much for ALL of this.

    My husband and I decided to have children and were having trouble conceiving. I was worried it was my age (I’m nearly 33) but I’d also had very irregular periods for 3 years. My HMO bounced me around from one Dr. to another and none of them seemed to be able to put all the peices together. I complained about brittle nails, constipation, fatigue and all of that (not knowing about HYPO yet). It was getting very frustrating!

    Eventually an OBGYN put me on Clomid and I was able to conceive. This resulted in 2 pregnancies–both of which ended in miscarriage. My doctor said testing wasn’t typically done until a woman has 3. What?!

    I came across your blog then went on to research Hypothyroidism as thoroughly as I could only to find I had almost ALL of the symptoms. They’d worsened after my 2nd loss.

    I pushed for my OBGYN to run the tests you mentioned here, and he did. Everything was in normal range except my TSH, which was 6.5. I have started 25mcg of Levothyroxine and am finally hopeful.

    I felt great for the first week but am feeling tired again, though. I’m hoping I get good test results in 5 weeks, anyway, and if not I hope we can get my levels sorted as my husband and I would love to have two children and I feel like time is not on my side!

    Thank you so much for pointing me and so many other women in the right direction.

    • Maria, so happy your doctor tested your thyroid. All the best to you and yes there is hope to have miracle babies now that you’re getting your thyroid health under control. All the best.

  30. Dear Dana,
    Thank you for sharing you experience and taking the time to help and inform other women. I was diagnosed with an underactive thyroid ten years ago after the birth of my daughter who thankfully is a happy and healthy child. About two years ago I stopped taking my medication as my thyroid appeared to have levelled out. I continued every few months to have it checked and was told it was coming back normal. I am thirteen weeks pregnant. At no point did my doctor raise the issue of thyroid to me during this pregnancy or seek to have it tested. Only when I visited the midwife for the first time ten days ago did she raise concerns and have me referred to a thyroid consultant. I had my appointment yesterday and it turns out that although my TSH is 3.6 which is perfectly acceptable outside of pregnancy, but as you have stated it should not be above 2.5 during pregnancy. She also believes that I was never properly diagnosed and actually suffer from Hashimotos. She started yesterday on 50mcg of levothyroxine although she suspects that 75mcg may be more suitable. I have to return in four weeks to be reassessed. I am very concerned by this. From what I can understand there is a very real risk that my child could be born with some form of physical or mental retardation as a direct result of something that is completely preventable. That is assuming that my pregnancy goes to term. Do you have any idea if this is a case of too little too late?

    • I’m in the same boat as you. 5 weeks pregnant and just tested my TSH level which showed it at 3.5. My RE put me on 25mg of the same medication. I’m worried about what has happened to my baby in the few weeks I’ve been untreated. Did you get any feedback on your questions or learn anything about this? Any feedback would be great!

  31. I recently had a miscarriage at 12 weeks I went in for a routine sonogram and there was no heart beat. My husband and I were devastated. I was told all of my test results were normal that 90% of miscarriages are caused by chromosomal issues. My cousin, two weeks before had a miscarriage and her doctor went through the results and noticed her THS levels were a little abnormal and put her on medication for the next pregnancy. I followed up with my doctors office they told me that my results were abnormal but it wasn’t the cause of my miscarriage. My levels were 7.0 I was the definition of lethargic my entire pregnancy. I went from tons of energy to being in bed as soon as I got home from work in the evening and dragging myself out of bed every day. This was my second pregnancy where I felt this way and my second miscarriage. In between I had one healthy pregnancy. After a long discussion with the nurse she continued to state that my THS level had nothing to do with my abnormal weight gain, exhaustion or my miscarriage. I am beyond frustrated, and I’m upset that the doctor I have gone to for years wouldn’t consider something risky as an issue worth discussing.

  32. I was diagnosed with Thyroid cancer 5 years ago, as a result I had a total thyroidectomy and started Synthroid. I had 2 healthy pregnancies prior to my cancer diagnosis. As of this spring we were given the “all-clear” to try for our 3rd baby. I recently had a miscarriage, we were able to get pregnant on the first try. I heard the heartbeat at 6.5 weeks and at 9 weeks there was no fetal heartbeat. I was told my TSH levels were 16 and the levels were not a factor with the miscarriage. I am heartbroken! I don’t have words to describe my loss. My husband and I would like to try again for a third child but I am really anxious this time. I don’t know what my TSH levels are now because my Synthroid dose was decreased because of the miscarriage. What are your suggestions on how to discuss the current recommendations re: thyroid levels with my doctor? My heart cannot handle another pregnancy loss (I am crying as I am writing this). Should I have my TSH levels checked before we start trying to conceive again? I feel so helpless.

    • I wonder if you’d be better off going to an infertility clinic to see if they can monitor you closely and maybe put you on a low asprin dose. That is what I’m thinking of doing next time around. I can’t handle another miscarriage either. This was my second one and it hurts just as much.

      • Hi Clara,

        I’m so sorry to hear of your second loss, it’s heart wrenching. I don’t have a fertility problem per se….as I can get pregnant. My first 2 are now 6 & 9 – I had them before I was diagnosed with cancer. I don’t have a thyroid so it’s more of a thyroid problem. Having said that I know the thyroid is are hormone regulator. I am seeing an endocrinologist. Having said that – I was being monitored throughout this pregnancy but was told a high TSH isn’t concerning. I’m worried that maybe I wasn’t being followed under the new guidelines. It’s all so confusing. I have an appointment this week with my family doctor to discuss my concerns re: future pregnancies and next steps. Thanks for your comments. It helps to know that we are not alone. I hope you are able to get some answers too. I hope that sometime next year we will both be pregnant with healthy pregnancies and healthy babies. Hugs.

        • Amber, I’m very sorry you had to go through with that too along with all the other women on here. It is very frustrating that your Doctor along with the ones I had don’t know any better. That this could have been prevented and time could have been spared. I feel like I wasted 5 years trying to conceive. Until I went to a real Specialist, an infertility clinic, they were able to monitor me and give me what I needed to carry my son who is 1 now. I do believe I went through a lot of that to inform others and to give comfort to other women going through this. I really pray you get the answers you need and have a healthy pregnancy. I don’t want to go through any more miscarriages if I can help it. It’s taken me far to long to get to where I am. A lot of times the Doctors tell you there was nothing you did or nothing you could have done to prevent it. I’m seeing the error of this just through articles like this. Another thing is commending the braveness to even discuss this on a post like this. Good for you and the other women here. We need to talk about it and not be ashamed. May God open your womb again and bless you with another bundle. xoxo

          • Hi Clara,

            I am grateful that I found this site, it helps a lot to know that we are not alone in our experiences. It empowers us to advocate for ourselves and take an active role in our treatment. I hope you will be blessed with a new little bundle of joy soon too. Hugs

  33. How crazy that October 15th was the Pregnancy and Infant Loss Remembrance Day and October is Miscarriage Awareness Month and I just miscarried for the second time October 13th. It sucks. Just the Friday before that I had heard the baby’s heartbeat and it was strong, and I thought all was well. I even had them check my thyroid and it was under the 2.0 range. I don’t understand why it happened this time. I know the first time I miscarried, it would have been because I had an undiagnosed underactive thyroid. I got that fixed, had a healthy pregnancy (my son who is 1 today, thanks to an infertility clinic monitoring me constantly). This time, I got pregnant the same way I did the first time, with out assistance but again it resulted in a miscarriage. I just feel so cheated by the many Doctors who never informed me of this, and most likely other things they could be missing. Thank you for this article. I know my baby is with the Lord now. I’m going to continue on educating myself and others so that their babies have a chance.

  34. Hello,

    Thank you so much for all of this information. I am currently five weeks pregnant, after 10
    months of infertility treatment, and just had my TSH level tested as a routine task that my reproductive endocrinologist does. It showed “slightly elevated” at 3.5, she stated she wanted it under 2.5 and prescribed meds to take 25mg. I’m so worried about this and my TSH levels have always been in the normal range and this is something I’ve never experienced before. As it is still very early in my first trimester I’m wondering about the effects that my thyroid has had on my baby? I’m starting my first medication tomorrow morning and hopeful to get everything under control soon but I’m worried that this is already affected the baby? Any information that you could give me about not being treated throughout your whole first trimester would be great. I will be closely monitored now so i feel fortunate i figured it out early but I’m worried about the effects on the baby as far as development goes. Anyone with Input would be great. Thank you!

    • Hi Jill,

      I actually have an experience similar to yours! I was tested at about 5 weeks for my thyroid levels as a routine part of my first pregnancy check-up at my OBGYN. My TSH levels were 3.3, so my OBGYN prescribed 25 mg of Synthroid and a visit to an endocrinologist. After being on that dosage of Synthroid for a little more than 2 weeks, my TSH levels went down to 2.3. Now that I’m entering my second trimester, my TSH levels have gone back up to 3.1, and my dosage of Synthroid is being upped. I was a little concerned about all of this when I first found out, but so far everything has been going well. We had an ultrasound the other day and saw the baby move, and measurements were taken of the baby and everything was within the normal range of development. Starting the medicine is a great first step! Hopefully everything continues to progress well for you!

  35. I’ve unfortunately and probably also suffered a 12 wk loss as I had 7.18 then 3.78 TSH readings which my general practitioner interpreted as within the normal range so nothing was done. Being my first pregnancy I believed what I was told. Only after trying to conceive and consulting a naturopathic doctor was I alarmed to find out that in fact 3.78 was still above the guidelines for first trimester. I was very dissapointed. Although I think my M.D. Is good and caring it is a lack of knowledge of the critical role this may play for pregnant women. This time around I had preliminarily done blood work early on during this 2’nd pregnancy, so far my patter is similar 3.48 and 7.25. I expressed my concern and findings about these readings and their relationship to miscarriage. My dr’s now put me on a low dose thyroid meds and my naturopathic doctor recommended iodine & thyroxine to support the production. Here in Canada we take for granted that our doctors are often overworked, underpaid and have little time to review your files or new guidelines. I can help but wonder if the outcome of my first pregnancy might have different had I been treated then. I also hope that this time around I will be able to protect this pregnancy. The bottom line is we have to be advocates, look for alternatives and look for answers. Why would so many women have to face loosing their babies to be just because no one pays attention to this?! I’m shocked that more attention isn’t given to this. Countless women must have suffered, hopes and dreams dissapointed and hours, weeks, months of stress and frustrations.

  36. Hi Hypothyroid Mom,
    I just read your post and first of all Im sorry for your loss. Im training to be a Dr. most likely Ob/gyn, I actually went to medical school twice and I never learned that high TSH over 2.5 could endanger a pregnancy. Now Ill know that ,and to pay special attn to hypothyroid moms like yourself. So thanks. I guess you could always file a lawsuit for malpractice, which I would probably do, having been through a malpractice situation myself, but that doesnt bring back your baby. Have you ever watched WhatsupMoms on youtube, its a channel by Elle Walker, maybe if you hooked up with her you could spread the word or collaborate, she has a broad following. You actually look like her a little bit. – David

    • Priscilla says:

      Hi David!

      If possible, take the time to review my post dated 3/2/15.

      I’m not a legal expert nor am I an M.D. but its hard to understand what happened to Me when all I was told “these things happen” after my stillbirth.

      Like you said, a lawsuit will not bring our babies back but I believe that legal attention must be made to this matter. I live in California and I’m not really familiar with medical malpractice lawsuits however, the thought of anyone else going through what I went through brings tears to my eyes.

      If you have any suggestions, please share.

      Thank you!

  37. I have had 3 miscarriages. I have hypothyroid but they weren’t monitoring my levels at all and no one even mentioned it as a reason for the MC. I’m so grateful I found this post.

  38. Hey there, You have done an incredible job. I’ll certainly digg it and personally recommend to my friends.
    I’m sure they will be benefited from this website.

  39. Priscilla says:

    Hello Dana and all the Mommies,

    I lost my Baby Mark 2 days after my due date. After a “healthy” pregnancy and up until my last Dr’s appointment everything was fine. The day I went into labor I was told there was no heartbeat when I got to the hospital. 24hrs later I delivered a 7.3oz 20 1/2in. Baby boy.

    like many who have mentioned i too spend all of my pregnancy very sick and very tired with asthma like symptoms and even received breathing treatments but I’ve never had asthma in my life. I was told it was “normal”. I was very careful about what I ate but still showed unexplainable weight gain. I was told I must be eating all the wrong foods and that I needed to walk more but I could barely walk a block before going into a cough attack.

    I’m not 100% sure this was all cause of hypothyroid issues but I am 99% sure. I’ve done a lot of research that relates to Thyroid health and pregnancy as well as iodine levels for proper thyroid function.

    No one can ever understand this pain unless you’ve lived it. I do not wish it upon anyone. I’m so sorry for everyone’s loss. I believe that if we are reading anything documented on this blog then we are doing our part to be aware and hopefully enlighten others.

    has any successful legal action been taken? everything I read regarding this matter sounds like too much negligence that has to stop.

    • Hi Priscilla, I’m sorry to hear what happened to your son. Heartbreaking to reach your due date and lose your child. I don’t think we ever get over the loss of our children. I wondered too about taking legal action but in my case decided not to. I wonder sometimes if I should have at that time.

  40. Dear Dana,

    You helped us with your blog. I am now 17 weeks pregnant. It is my second pregnancy. My story started when I was pregnant at the first time, I got a problem with the right side thyroid but it was working normally. after I gave birth to my sweet baby, I removed the thyroid partially. All tests were done and in normal value. But now, I did another TST and TFH, the TSH is 4.47, Free (FT3) 3.95 pmol/l out of 3.50-6.50, and Free (FT4) 15.05 pmol/l out of 9-20. I still did not go to the Doctor and I am pretty afraid as a result of the increament of the results and what I read about the desease.
    I hope that no one will go through what we goi

  41. Dear Dana,

    You helped us with your blog. I am now 17 weeks pregnant. It is my second pregnancy. My story started when I was pregnant at the first time, I got a problem with the right side thyroid but it was working normally. after I gave birth to my sweet baby, I removed the thyroid partially. All tests were done and in normal value. But now, I did another TST and TFH, the TSH is 4.47, Free (FT3) 3.95 pmol/l out of 3.50-6.50, and Free (FT4) 15.05 pmol/l out of 9-20. I still did not go to the Doctor and I am pretty afraid as a result of the increament of the results and what I read about the desease.
    I hope that no one will go through what we are having.

  42. Alexandra says:

    Dear Dana,
    I am almost 43 yr, trying to get pregnant for 1.5 yrs, after 2 miscareges ( 16 wk – trysomy 18, 9 wk unknown cause). We have 3 children , but we would really like to have one more. My gyny says I am simply too old.
    I never think thyroid could be the problem, until after long months driving my daughter ( 11yr) to doctors, she has been diagnosed with avtoimune tyroiditis (ths- 1080).
    My test does not show tyroid problem, but ths went in one year from 2.01 to 2.77 and t3 and t4 are normal. So docs say it is ok, thyroid is not un issue, i am old.
    Since you have many experience, do you think lowering ths might help me get pregnant. Thank you so much for your opinion.

  43. Hello Dana,

    I was searching on net regarding complications of higher thyroid level during pregnancy & there i found ur blog. I must say you shared a very important information for all the women. I need your guidance on my situation, I am 18 weeks pregnant, & recently diagnosed with a high TSH level of 6.93 in my test. Prior to pregnancy my TSH level was normal & it was normal during my first trimester also. It has increased during my pregnancy. My doctor has suggested me for medication i.e.; one tablet of 75 mg empty stomach. I am just worried that is that taking this medications will be safe for my baby or shall i avoid this medication?? Plz guide me….

    • Hi Dana,

      I’m on a lower dosage of medicine than you, but my doctors told me that the risk of taking the medicine while pregnant is far less than the risk of NOT taking it in terms of the baby’s development and pregnancy complications. Hope this helps!

  44. Brandi Newland says:

    Has anyone sued their doctors? Dana did you? I have had 3 miscarriages and now I know it was due to my Thyroid. I would think that the my same doctor would have taken a simple blood test for something that is known for miscarriages.

  45. Hey i am really worried about my situation. i am almost 7 weeks pregnent and my doctor said my thyroid level is lil bit high. its 5.1 and he said it will be dangrous if crossed 6. I was wondering if you know when should i start treatment or should go to an endocrinologist. Because due to some reasons i can’t see any endocrinologist before my three months of pregnancy. Please let me know if u have any idea about it. How can it cause any harm to my baby and what type ot harm? I know nothing about it. Its my first pregnancy.

    • Get it checked out immediately. I was at around those levels when I was tested at 4 weeks. I started treatment. Don’t wait. Why can’t you see your endrocrinologist? Anyway you OBGYN can still start you on meds. Baby needs thyroid. Low thyroid has been show to affect the baby if not treated.

  46. Apologies for loosing your baby. Its so painful, Doctors are just professionals like others and some of them need to put extra research and a bit of hard work in their work .So unfortunate

  47. Hi Dana,

    Thank you for your post. I am 40, and 15w+5d into my first pregnancy. My TSH level as of 2 weeks ago was 2.9 so my GP said to retest in a month and see what it is then. Since I am borderline, she did not seem concerned, and commented that I made it to the second trimester. I feel pretty ok for the most part, but the whole ‘fatigue’ thing seems so subjective!

    What I find so shocking is that if TSH levels are so important why aren’t we tested for them sooner? I did not get the test until I was 12 weeks …. Seems kind of moot and I hope everything developmentally is ok with my baby.

    I have a requisition for monthly blood tests but not for a complete test. Do I need to ask for that separately?

    Hugs to all the mamma’s out there, and to the grieving mamma’s. Amy

    • Hi Amy.
      I saw an endocrinologist 4 months ago, on my third trimester. She could not believe that
      1) I was sent to see her and
      2) The referral was made at that time, and not at the beginning of the pregnancy.

      The first trimester is the most important one, since the thyroid is still not formed and the baby depends on you. Afterwards, there are 2 thins to consider: your own well being and your antibodies. So, I would ask the doctor to get tested for Anti TgAb and mainly regulate your T4 dosage for where you feel the best.

  48. Hi,
    I am in pregnancy of 5 month (2 trimester); I have test my TSH and found it is at 0.07;
    Could you suggest what is the consquencec and wht is a cure or content to be increas in my medicine.

  49. I am so glad that I found this blog post, and also so sorry that you had to go through this! I am pregnant, entering my 13th week, and my TSH levels were slightly elevated at 3.3 in my first trimester. After starting Synthroid, they went down to 2.3, but entering the second trimester went back up to 3.1. My doctor (also a renowned NY endocrinologist) recommends upping my dosage of Synthroid. While my TSH levels are nowhere near 10, I feel like no one has really been explaining to me what they SHOULD be or if me or my baby are in any danger. I don’t want to lull myself into a false sense of security, but I also don’t want to be freaking out. My OBGYN seems obsessed with talking about miscarriage to me. Anyway, I feel like I’m rambling now. This is my first pregnancy, and so I already feel like I have no idea what to expect and then to throw hypothyroidism into the mix is just really confusing!

  50. I would so love to have a conversation with you. I’m 24 and I’ve been through this recebtly. My doctor would even check my thyroid levels though I mentioned it repeatedly.
    I was so distraught when it happened I didn’t do any research. I didn’t even look to find this. It just so happened that someone shared a funny meme from your page and I happened to catch the name of the group. At that time I was pregnant so I liked it. When I miscarried I was fully prepared to unfollow but I started seeing posts about your miscarriage and they helped me get through what I was going through.
    Now I’m doing research and working to find answers and your page has been so tremendously helpful. It means so much to me.


  1. […] my first trimester, my TSH remained higher than the above recommended 2.5 mIU/L, soaring as high as 10.0 mIU/L. Despite my raging hypothyroidism symptoms, my doctor said that […]

  2. […] my post “Miscarriage in New York City…Be Thyroid Aware”, I outlined the TSH ranges for pregnancy and provided trimester-specific ranges. In this post I […]

  3. […] miscarried my child at 12 weeks needlessly from maternal hypothyroidism. I knew deep inside me that something was wrong with my pregnancy. I should have gone for a second […]

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