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  1. Georgiann Kocherzat says:

    I had my cortisol tested and it is high. I have had it done years ago and now it is 22.8 high
    My t4 is good but my t3 is a little low. I had my ACTH antibodies was done and it was normal. I am very scared about my cortisol. I can’t get the doctor get back to me.

  2. I just found you. I am not sure what I have, and my TSH (Reflex 3 T4) says : 4.22 with comment high, but the review says everything is good. Yet my goiter is growing, lymph nodes are somewhat solid, my hair is falling out, my arms hurt when you need, lichen planus, feet are like leather, endema, sores on my scalp, memory issues of recent events, geographic tongue, sensitivity to light & noise, and though my cholesterol is normal, I have one artery blocked at 70%, and my aortic valve was fully calcified, and recently had it replaced. I have full heart failure and am live because a doctor recognized it. That is a sampling. Today’s test results imply I’m ok, but that is not possible. Joint & muscle pain is not fun. I was 6 feet tall. Now they list it as 5’6”. What should I do?

    1. Hi Lorrie, The first step is to get a copy of your lab results and check that you’ve had all 6 thyroid lab tests outlined in this article here: https://hypothyroidmom.com/order-your-own-thyroid-labs-2/ Getting multiple medical opinions is key when you have a mysterious disease like ours. If you struggle to find a good doctor, consider booking a consultation with me. I’ve been collecting the names of good thyroid doctors from my Hypothyroid Mom readers for the past ten years. I have lists of doctors for every U.S. state as well as the UK, Australia, Canada, New Zealand, South Africa, and many countries in Europe and South America. Here is my booking calendar in case this might be of interest: https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min

  3. Georjanne says:

    I have Hypothyroidism now I have high blood pressure and high cholesterol and other problems. Why are these issues prone to this disorder

    1. Hi Georjanne, There are nuclear receptors that bind to thyroid hormones found in cells all over the body which is why every body part including the heart. To give you a sense of the power of thyroid hormone regulation to alter the heart, here is a quote by researchers in this study https://pubmed.ncbi.nlm.nih.gov/17923583/ published in the journal, Circulation: “The cardiovascular signs and symptoms of thyroid disease are some of the most profound and clinically relevant findings that accompany both hyperthyroidism and hypothyroidism.” Good to have you at Hypothyroid Mom.

  4. So I’ve been on 100mcg of levothyroxine for2 years now. I’ve never had a thyroid problem before diagnosed 2 years ago. I went for my yearly checkup and the doctor said I have high cholesterol now, she lowered my dose to 75 mcg but never said why. She recommended I watch my diet, which I always have so I’m not sure if the high dose of meds contributed to my high cholesterol. When first diagnosed she put me on 100 mcg of levothyroxine why such a high dose then 2 years later drops me to 75mcg. I always thought they start you with low dose and increase if needed. Also never had any checkups to see how the med’s are working only yearly checkups. Please give me some advice. My cholesterol is high, i don’t smoke, I eat healthy and I’m average weight for my age and height. I’m frustrated

    1. Hi Carol, The first step is to know the thyroid medication options. Levothyroxine is a synthetic T4 thyroid hormone replacement medication. It is the most commonly prescribed medication for hypothyroidism. It works for some but not all. Here is an article about the alternative medication options. https://hypothyroidmom.com/which-is-the-best-thyroid-drug-for-hypothyroidism/

      In case you struggle to find a doctor open to prescribing NDT in your area, I’ve been compiling lists of doctors based on recommendations from my Hypothyroid Mom readers for the past ten years. I have lists for every US state as well as the UK, Canada, and Australia. I provide a list of doctors in a person’s region for every person that I meet for an individual virtual consult in case it is of interest:
      https://ny786.infusionsoft.app/app/orderForms/Talk-with-Dana-Trentini-30min

      Great to have you at Hypothyroid Mom.

  5. Thank you for the information on the heart and your thyroid. I experience a low heart rate. When I was first diagnosed with hypothyroid, I was placed on a heart rate monitor. A few years later, a different doctor, informed me to wear the monitor again. My resting heart rate averages around 42 and can dip down to 38. The results were to see a cardiologist, several other tests, with the conclusion my heart is fine. ” You must exercise a lot!” The thyroid was never suggested as a reason for my low heart rate. I am very grateful for this article, and how more professionals are bringing awareness to thyroid health.

    1. Jan, You are not alone. I hear from many of my Hypothyroid Mom readers who experience unusually low heart rate. I wish the medical community was more aware of the many cardiac symptoms of thyroid disease. Good to have you at Hypothyroid Mom.

    2. Doctors don’t want to go there Jan. Struggling with all those symptoms – on synthetic thyroid hormone, medication for cholesterol and high BP! Sigh! Just have to live with it – is the unspoken underlying message.
      My symptoms have never been treated – my dr only goes by the TSH reading!😌

      1. Hi Ivy
        I struggle with hair shedding st an alarming rate. My primary doctor, like yours would only go by T3 and T4. Perhaps I would suggest (because I found Dr. Mandych in March 2021) and have had a great ongoing relationship with since: trying to find a Natural Path. After many years of being ignored by dermatologists and primary care providers I brought Dr. Mandych on board to find out why my hair was shedding. This past year, I have been undergoing many tests. Of which a few weeks ago I had a auto-immune test, poopie for microbiom and a heavy metals test. There were a few flags on those results (what the levels were pointing towards is Hashimoto’s Disease (para hypothyroidism). Now to be sure a second blood test round and should have the results next week.

        1. Thank you Lisa. I wish you all the best with your blood test results. x

  6. Dx with Graves Disease in 2002, 32 yo female. Treated with radioactive iodine. Have been hypothyroid since, taking Armour Thyroid x 20yrs, currently 120mcg.
    My endo says I am genetically resistant to thyroid hormone & can tolerate this dose forever. TSH 0.02 & has been at this value for many yrs. Now 51, my CRP has been >10 on numerous lab draws. I’ve have uveitis in both eyes, scleritis in one eye and now developing a complicated cataract secondary to the steroids used to tx the eye issues. My cholesterol is slowly climbing total,LDL & triglycerides despite a healthy diet, active lifestyle & stress management.I’ve had a complete work up w/rhum and all testing was negative. I’ve had genetic testing for cholesterol and eye disease which were negative. Theres 1 more genetic test my endo wants (cardiac) related I haven’t had yet. My PCP doesn’t like the dose of Armour I’m on or that my TSH is so low. She’s worried about cardiac issues going forward even though I don’t have a cardiac hx. I just need to know if there’s something else I should be looking into or if my endo is spot on. I’m concerned that my PCP is concerned & that my cholesterol values are continually increasing. Any guidance you can offer would be greatly appreciated.

  7. I lost my thyroid from car accident. Took 3 years to get a doctor to believe me that I was not an overwhelmed housewife with 6 children. Got a Dr’s. Assistant to finally give me a thyroid panel since that doctor did not want to deal with me anymore. Tests came back cancer. After three years, why wouldn’t it be cancer. I’ve had no treatment and the thyroid was cut in half from my shoulder strap seatbelt. Now, gained 100 pounds and a quadruple bypass surgery. If only I had been heard. I am still suffering Terribly. Why can’t doctors offer a transplant because this is not quality of life. It is torture. If I knew in 2005 what I know now. I would have rather been left to die. I have an awful life. Even dogs get put down humanely. LIFE DOES NOT HAVE TO BE FAIR, BUT IM REALLY SUFFERING!

    1. I know exactly how you feel. I too had thyroid cancer. I had my parathyroid as well as the thyroid removed 6 years ago. I am very overweight and can’t seem to be able to lose any weight

  8. John Hockett says:

    What can a hypothyroid (a 7) left untreated for days, weeks, months do to person’s heart who has already had heart surgery (3 new arteries and 2 medal valves) both temporary and permanent affects?

  9. What info can you give on patiences who have lupus with low thyroid

      1. I, too suffer from Hashimoto for years. Some info on the internet about these disease suggests that selenium is good for hypothyroidism, but not good for Hashimoto( it does nothing to improve it).When I complained to my primary obout shortness of breath, he practically ignored it ( knowing my history). My cholesterol is high, triglycerides too. I think, that I tolerate Levothyroxine well. The clue is not to change the brands or distributors. Even manufacturers say it. Stay with the same, as long, as you can. With every change is a hair loss (temporary) and acne. The person can eat half an hr after taking Levothyroxine, but for coffee it takes an hr. Take it with planty of water, I mean plenty. If you take magnesium supplement, wait with it four hr after taking Levothyroxine. It is important and dr. don’t tell such things . Otherwise you may take your medicine and complaining that it does not do anything to you. Before going to the lab, stop taking Biotin for tree days, if not, your results will be out of wack, although you thyroid maybe under control and working. My dr didn’t know that, so of course he is not advising his patients, when giving them the order. I am also on high dose of omega 3. All together I don’t suffer like some people here. Probably things I do,help on some level. How you take your meds is important.

        1. RubyTinaMarie says:

          Excellent advice.
          I recently found out about Biotin affecting TSH test results. Doctors don’t seem to mention this. I had my dose lowered because of it and sure enough, Hypothyroid symptoms started, especially hair loss. So grateful I found out. I am still waiting to be tested again. Unfortunately I don’t have a primary care person I feel confident with.
          I still have fatigue, chronic constipation, and now shortness of breath. I take Synthroid 112 mcg (brand only so I pay out of pocket). I tried nature throid but after three months and alot of hair loss, the dose was off. After trying to to regulate the dose, it was recalled. I went back to Synthroid. After being on Synthroid so long it is more difficult for me to switch to natural. I have been taking thyroid medication for 26 years. I am 66. I cannot find anyone to guide me properly, unfortunately.

  10. Louise Foreman says:

    Hi I’d like to know if there is any difference and proof. Of this with taking different meds ie levothyroxine. Ndt /t3. My thyroid is now gone. I can only get levothyroxine on the nhs. And it made me so ill. So for the last eight years I’ve been self medicating on ndt. However getting much harder to get it. So trying to get ndt on nhs through my Dr. Was told ages ago needed t3 for a healthier heart.

  11. I have hypothyroidism and hand my thyroid removed. Triad is all since I wear 19 years old and I am now 48. 7 years ago I had open heart surgery due to a anurasim and also a bycuspid heart valve. I struggle daily with all the symptoms. I have always struggled with my weight. I need help. Please. Thank you

  12. Jane Ashley says:

    A very good book to help with thyroid issues is Stop The Thyroid Madness. It can be found on Amazon and there is an edition with healthcare providers’ input. You will learn a huge amount from reading these books.
    NP Thyroid med was helping me so much until Acella Pharmaceutical changed the formulation. Now I’m on Armour which is ok, but I’m constantly fatigued and out of breath. So I’m not optimal yet.

  13. Andrea Wells says:

    I had thyroid cancer 5 years ago my thyroid was removed my legs do swell and I have high blood pressure I have eye problems legs hurt stomach hurt that’s my problems they keep changing my medication every two months my levels has never been good for more than 3 months for the last five or six years

    1. Hey,
      What medicine are you taking?

    2. What medication are you taking now. I’ve been on levo liquid for 12 months after the doctors neglected my thyroid and its effects my heart and I have constant high blood pressure and bad kidney pain etc etc. I feel like I’m being poisoned now. Endo won’t listen to me, I don’t feel well at all.

  14. Is it necessary/advisable to take medication to reduce your high blood pressure if it is caused by taking Levothyroxine ? [TSH .26 mcIU/dl. and Free T4 1.34ng/dL]. Endocrinologist stated finding the proper dosage should correct the problem. I have been on Levothyroxine since 1987

    1. Bit tjeu aren’t going to figure out dosage by just testing tsh and ft4. You need the full thyroid panel and need optimal results, not just “in range”.

  15. Wanda Vail says:

    I would like to recommend blogs written by Dr. Westin Childs, DO. Dr. Child’s switched from conventional medicine to Integrative/Functional medicine and never looked back. He closed his practice in 2017 to focus on educating physicians, formulating new supplements, providing blog posts and researching new topics. He has written 200+ articles on hormone balance, thyroid disorders and weight loss. I can honestly say that I know more about my hypothyroidism than the many PCPs and Endos I’ve been to over the years. Never once, in 42 years, did I have a doctor tell me that T4 is an inactive thyroid hormone and it needs T3 to activate it so it an get into your cells. I had a thyroidectomy due to cancer and went to many doctors over the years for help with my symptoms, but they didn’t know how or understand. After learning this from Dr. Childs, I mentioned this to my PCP and cautiously asked if I could try adding T3 (Cytomel or Liothyronine). Reluctantly, she started me on 5 mcg, then to 7mcg, now taking 10mcg. That doctor moved away. The third one I’ve been to since is “cautiously” letting me continue. My symptoms…no energy, weight loss resistance, brain fog, panic attacks, chronic constipation, sleep issues…have greatly improved. It was Dr. Childs that taught me this. He gives you suggestions for talking to your doctor and he provides case studies (I copied 15 pages) to back up his research. He recently posted a blog for people without a thyroid and recommended 9 supplements that we should be taking in addition to our thyroid meds. I will continue to “gently” be my own advocate since no one knows my body like I do.

    1. Thank you for that excellent comment and recommendation. I am going to research more about that Dr as like many readers who have found themselves here, I am at a loss of where to go to get the help and advice I need to restore my well-being. (I have partial hypopituitarism and Hashimoto’s). I had hoped this article on the effects of the heart would be useful but I experience the opposite and have low blood pressure episodes which lead to fainting. It is such a convoluted journey seeking answers and so your type of comment here is much appreciated. I thought I’d just stop by and say thank you.

    2. Hi im very interested in your post. Ive been taking oroxine for 16 yrs now. Diagnosed with graves disease. My weight has increased over the yrs and fatigue and mucsle stiffness just to name a few is getting worse. Im interested in what other medications that this dr suggested to you. Im a 42 yr old in Australia. My endocrinologist keeps increaseing my oroxine but nothing seems to help. Im an active person and a full time nurse and mum but nothing seems to shift my weight.

      1. Amanda…
        Many of us hypothyroids do not convert T4 only meds to the useable T3 form in our bodies easily. This can be addressed by adding selenium and tyrosine to our list of supplements to help the thyroid convert. The T4 is getting converted to RT3 instead of T3. Getting your RT3 levels tested would be the first step. If it is elevated (see Janie Bowthorp’s website Stop The Thyroid Madness), then taking a T3 only med will help clear it. Then taking T4 and T3 will help keep you optimal. Janie has a link about what labs to request. Checking your adrenals with a 24hr saliva cortisol test would be a good idea as well as checking your ferritin and magnesium levels. Endocrinologists are really clueless about the thyroid and think throwing synthroid at it will cure us. It rarely does.

        1. Thank you for your excellent information

  16. Nicholette Deacon says:

    I have had Thyroid problems for the past40 years i am now 81 my problem now is i have thyroid eye diseise very bad double vision. had 2 oporations on both eyes and has not corrected the problem its very frustrating as i am unable to go out unles with company because i have problems with curbs, stairs, and treffic, I do have some of the other symptoms but i cope with them but the double vision i find really difficult

  17. Patience Mambo says:

    I have found this information to be so insightful and relevant. Thanks

  18. I’m hypothyroid- Hashimoto and ive had 3 ephysiology studies with ablation bc many years I was supraventricular tachycardia , at the time with an undiagnosed thyroid. All clinical symptoms pointed to hyperthyroid but the lab came back hypothyroid. I’m 5’7 and my body weight went to 104. I’m back to 125 but still not ideal weight. Thyroid disease has a long way to go with research.

  19. I was diagnosed 2 years ago. I’ve been having symptoms for over 20 years. Every doctor so far has sent me to another Dr. No one can figure out what’s going on. Had a heart attack last year Endo said thyroid does not cause heart attacks. Heart Dr said thyroid caused the heart attack. I’m tired of fighting the Dr . The last one told me to seek therapy all in my head.

    1. Doctors don’t want to go there Jan. Struggling with all those symptoms – on synthetic thyroid hormone, medication for cholesterol and high BP! Sigh! Just have to live with it – is the unspoken underlying message.
      My symptoms have never been treated – my dr only goes by the TSH reading!😌

  20. This is valuable information. I experience some of the issues mentioned. I haven’t been on thyroid meds for years they did not do anything for me. Dr get offended when you ask them to do specific tests. With this addition information I keep on searching for a supportive Dr. I will share this with some friends. Thanks for sharing this information.

  21. It amazes me how little dr know and understand about Thyroid issues. I had total hysterectomy couple years ago and my world fell apart! It was all due to hormones and thyroid. Took almost 2 years to figure out what was causing all my different issues. I was the one that figured it out, not my Dr. He finally asked me one day if I was over thinking things/my issues. (Yes, I was severely pissed at him and his remarks). It all started about 6 months after hysterectomy, with quickly changing vision, then shortness of breath and heart palpitations. I was also having a lot of upset stomach w/ nausea. Then my blood pressure was fluctuating and it’s always been low. I had all sorts tests and no answers. Finally saw someone post on a friend’s Facebook about a functional medicine Dr and her hormone therapy. Major game changer. My primary care dr said my thyroid was fine. The functional med Dr disagreed and started me on NP Thyroid.

    1. Can Jennifer tell me more about her Functional doctor’s approach? I’m 61 and just this morning was diagnosed with Hasimoto’s Disease (HD). My BP and heart rate have been low for a while. Reading the article above possibly links this to HD. Scheduled for a biopsy early March (two enlarged nodules). I am researching naturopaths and/or Functional Medicine. I’d appreciate feedback from anyone who has experience treating hypothyroidism this way. Thank you, Jami

      1. I read a book on Hashimoto protocol. Some library’s have it and it helped me to understand Thyroid issues. Also Dr Hyman on Instagram has been doing research for many years he was the first Dr I learned about hypothyroidism.

      2. Christina Gold says:

        Apart from Hashimoto’ s disease which is an auto-immune inflammation of the thyroid,
        given the result of your pending thyroid nodule biopsy you my have an under-functioning thyroid due to an adenoma (benign) of the thyroid.

        Mine was removed with and I have been on thyroid medication ever since. Just like you I was diagnosed with Hashimoto’s at age 69. My thyroid levels always tested normal. Until then I never had my thyroid antibodies tested, the results came back very high.
        Basically I was told that there was little I could do about it.

        Not wanting to accept that opinion I started to search for information on the computer and found three books written by Izabella Wentz, a pharmacist. All three books are available on Amazon. Ms. Wentz had Hashimoto’s and has done intensive research into the subject, all gathered in the books.
        The most important take away for me was the link to gluten intolerance with 75% of people she monitored. I have always wondered why I could not lose that extra 15 pound of weight with regular exercise and a decent diet.
        That was answered for me through DNA testing by 23 and Me which I did 7 years ago, sending me even now genetic information. A year ago they told me that I was gluten intolerant and that I have one gene for celiac disease.
        Diet is a big factor in Hashimoto’s and certain substances are beneficial, like Selenium a mineral which aids to protect cells. Ashawagandha, a adaptogene can help with auto -immune conditions.
        Hoping that my limited information helps you to learn more about your condition.
        Reading the above article, having the described BP problems occasionally which worried me, gave me the insight that many cardiologists will be better in connecting the link between certain conditions. More and more of us can control our healthcare information on the computer. In the past medical doctors had to sort through badly hand written stacks of medical records. If your health care provider offers this system, you will love it. All the information about your health history is easy to read and concise because you have access to it and can correct mistakes and helps physicians to access information faster.

        Kind regards,

        Christina Gold

        1. Vickie Karnes says:

          I need help my family thinks I’m crazy and my Heath issues I make up. I need new drs to hep me and the cold weather is horrible for me. I eat all the time yet weight less every day. My right foot swells all the time and I’ve been not feeling my best at all 2021. I live near Charlotte NC just got medical equipment last week. Im 63 and depression will soon kick my butt. How can I get my family to understand how serious my health is. They are clueless. 🛌❤️💗💟

  22. Everyones Thyroid is out and should have a FULL Thyroid panel test. could save alot of lives. Be your own health advocate. tell your Dr. has to be a Full panel tho

  23. I found this very informative. Especially since over the past year or so my blood pressure numbers have been whacky. It seems most doctors aren’t aware of all the issues that come with hypothyroidism.
    I’m currently on naturethroid. Although my numbers appear good my blood pressure and swelling isn’t. I need recommendations. Thank you

    1. Sandy P in NC says:

      I haven’t actually started taking it yet, but I did research thyroid drugs with no fillers and came across Tirosint. My insurance does not like it, so I am on my own. I am in the throws of getting a written prescription to a specialty pharmacy out of state. There is a program called Tirosint Direct, where I can get 30 pills for $50 and 90 for $120. Better than AARP Medicare Drug Plan of $132 for 30 pills. Anyway, it’s my last hope. I have been through the wringer with shortness of breath, diarrhea, palpitations. I went to the endo within six weeks of beginning the Levothyroxine. Both the Duke Endo and her NP told me it was not the Levothyroxine and sent me to my primary doctor. I have been sent for a myriad of tests, both cardiac and pulmonary. I underwent a sleep study. Found to have Obstructive Sleep Apnea. When using the CPAP I developed Central events. Now I am awaiting the Corona Virus to abate somewhat so I can have the Inspire implant procedure for that. Meanwhile I still suffer from breathlessness for over nine months now. Only the cardiologist listens. My PA just recently said she would try a new medication. I think I am annoying every medical person I see, but it IS my life we’re talking about here.

      1. A. Dillard says:

        Another thyroid replacement you might want to look into is Armour Thyroid. It is made from the natural pig hormone and has both T3 and T4. Additionally, using Synthroid instead of Levothyroxine may help. I crashed when taking the Levothyroxine, which is generic Synthroid, but am fine on Synthroid.

        Best wishes.

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