Thyroid Hormone – The Most Overlooked Treatment For Fibromyalgia

Thyroid Hormone - The Most Overlooked Treatment for Fibromyalgia

A reader named Jules contacted me a few months ago with chronic pain from fibromyalgia so bad she was struggling to walk and to take care of her young son. Her symptoms included extreme swelling, fatigue, hair loss, pressure in her throat, and loss of the outer-third of her eyebrows. Anyone who has read my article 300+ Hypothyroidism Symptoms…Yes REALLY would consider hypothyroidism as a possible cause, and yet doctor after doctor insisted her thyroid was fine with a normal TSH (thyroid stimulating hormone). They insisted her symptoms especially her pain from fibromyalgia could not possibly be thyroid related. Turns out Jules had several large thyroid tumors pressing up against her throat.

Thyroid Hormone & Chronic Pain

I read an excellent book by Dr. Mark Starr called Hypothyroidism Type 2: The Epidemic. Dr. Starr is a Diplomate of the American Board of Pain Medicine and is licensed by the Arizona State Board of Homeopathic and Integrated Medicine Examiners. He has studied with President Kennedy’s famous pain specialist Hans Kraus, M.D., and Lawrence S. Sonkin, M.D., renowned endocrinologist at the New York Hospital – Cornell Medical Center.

In 1998, Dr. Starr decided to review his chronic pain patients’ medical histories, symptoms, and physical findings after realizing the pervasiveness of hypothyroidism. Random chart reviews were performed on 162 adult patients. I was amazed to read the following in Dr. Starr’s book on pages 24-25.

Most chronic pain is just one symptom of a much greater problem, which accounts for the majority of patients’ illnesses. The problem is hypothyroidism.

On their initial examination, many of my patients’ complaints and physical findings (consistent with hypothyroidism) would be listed in their patient summary. A typical list for one of my chronic pain patients  would read:

Patient has a history of dry skin, fatigue, menorrhagia (heavy periods), chronic sinusitis, TMJ with persistent teeth clenching, insomnia, chronic pain, as well as a positive family history for hypothyroidism, high blood pressure, diabetes, heart disease, allergies and cancer.

Regarding the physical exam: “The patient has moderate myxedema (swelling) over the proximal upper and lower extremities with vey dry skin that is tender to the pinch. Her hands and feet are cool and clammy to the touch, nails yellowed and ridged, dry hair, lateral thinning of the eyebrows, delayed ankle reflexes, as well as diffuse tender points and trigger points throughout her muscles.”

This patient already had a hysterectomy, gallbladder surgery, and two C-sections. Her basal body temperature was later found to be about 97.0 degrees Fahrenheit. A list of symptoms such as these was the rule rather than the exception among my chronic pain patients.

Every single one of these symptoms is listed in my article 300+ Hypothyroidism Symptoms…Yes REALLY. Thyroid hormone is needed by every cell of the body for proper functioning, therefore low thyroid can affect hundreds of bodily functions.

Natural Desiccated Thyroid

Dr. Mark Starr discovered that natural desiccated thyroid was an effective treatment for his patient’s chronic pain. Even more surprising, natural desiccated thyroid dramatically improved symptoms more than Synthroid (T4). Why is this so important?

Levothyroxine is a thyroid hormone replacement drug that contains the synthetic form of one thyroid hormone, T4. Levothyroxine is the drug of choice by mainstream doctors for hypothyroidism and Synthroid is the most commonly prescribed brand name.

A list of the 25 most prescribed drugs in 2011 was released in a report by the IMS Institute of Healthcare informatics. Levothyroxine was listed the SECOND MOST-PRESCRIBED DRUG in the U.S., with 104.7 million prescriptions in 2011.

I’ve received countless messages from readers around the world suffering from symptoms of hypothyroidism including pain while on T4-only drugs like Synthroid. I’ve heard so many stories of doctors refusing to try the other thyroid medication options including natural desiccated thyroid even though their patients are suffering debilitating symptoms on their current T4-only medication.

Is it really any wonder then why so many thyroid sufferers are suffering from chronic pain?

Thyroid Disease & Fibromyalgia

Dr. Joseph Mercola interviewed thyroid pioneer Dr. John Lowe on the connection between thyroid disease and fibromyalgia. Dr. Mercola’s article The Simple Fibromyalgia Treatment that’s Nearly Always Overlooked… is a must-read. He wrote:

Interestingly, inadequate thyroid hormone regulation may be one of the primary underlying factors in many patients with fibromyalgia.

Dr. Lowe explains:

“I had prior training as a research psychologist and was able to pull forth that training and enlist physicians on the research team. It was a loose net research team until it eventually became a non-profit organization called the Fibromyalgia Research Foundation.

Seven or eight years ago, I gave a presentation at the Fibromyalgia Coalition International based in Kansas City… I got there late and heard none of the other presentations.

When I gave my presentation, people began saying, “Dr. Lowe, you’ve used the word “integrative metabolic therapies” for getting patients free from chronic fatigue and fibromyalgia. It just so happens, every single one of the — at that point, considered alternative doctors — have said exactly the same things.”

Through their personal, clinical experiences they had come to the same conclusions we had. If they used metabolic integrative therapies, nutritional deficiencies, anti-inflammatory diet, exercise, getting off medications that impede metabolism, and possibly treating cortisol deficiency, possibly balancing sex hormones, and treating the patients with effective thyroid hormone therapy… They got the patients well.

I said the same thing they had said, but my experience was based on rigorous scientific testing. Their experience was based on intuition and the wisdom that comes from listening to patients and working with them.”

When I think of all the people at Hypothyroid Mom writing to me about chronic pain, I feel so upset. There are so many people with thyroid disease needlessly suffering. So few people know the connection.

Enough is enough.

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About Dana Trentini

Who knew that little butterfly-shaped thyroid gland at the base of my neck could affect my life so completely? I founded Hypothyroid Mom in memory of the unborn baby I lost to hypothyroidism. Winner of two 2014 WEGO Health Activist Awards: Health Activist Hero & Best In Show Twitter. *Hypothyroid Mom includes Affiliate links. Connect with me on Google+


  1. what is the treatment for chronic pain?
    I have hypo/hashi, chfonic fatique, hips/foot pain, very low cortisol and insomnia.
    I am taking 30mg Armour and (2) adepten-all for adranels and selemuim.
    my Doctor tells me this is what I have to do til I bring my cortisol up.
    and I an also gluten free too, any advise or info would be greatly recieved
    thank you. Karen

    • May I ask – What is adepten?? then I will try to respond.

    • Dana Trentini says:

      Hi Karen,

      Thyroid pioneer was quoted in Dr. Mercola’s interview that I included in this article saying this about doctors who successfully treated fibromyalgia patients: “If they used metabolic integrative therapies, nutritional deficiencies, anti-inflammatory diet, exercise, getting off medications that impede metabolism, and possibly treating cortisol deficiency, possibly balancing sex hormones, and treating the patients with effective thyroid hormone therapy… They got the patients well.” I am happy your doctor has tested your low cortisol because as you can see from Dr. Lowe’s comment that is equally important to get resolved. As well be sure to have your sex hormones tested as balancing sex hormones was another major factor included. Also Dr. Lowe mentioned nutritional deficiencies so be sure your doctor tests your nutrient levels including vitamin D3, B12, magnesium, zinc, and selenium.

      As for your thyroid treatment. How do you feel since starting Armour? I’m on Nature-throid, another natural desiccated thyroid, and I personally only feel my best when my Free T3 is top quarter of the normal ranges as thyroid advocate Mary Shomon writes in this article attached. It’s very important to check your Free T4 and Free T3 levels to see where they are in the ranges. Mary Shomon wrote: “More innovative doctors are beginning to believe that a TSH of around 1 – 2 — in the low end of the normal range — is optimal for most people to feel well and avoid having hypothyroid or hyperthyroid symptoms. Similarly, some practitioners feel that optimal hypothyroidism treatment includes Free T4 in the top half of the normal range, and Free T3 in the top 25th percentil of the normal range.”

      • Hi Dana, thank you for answering me. I currently still feel all my symptom But not as hard as there were, but I fine myself going hypo/hyper sometimes.
        My Doctor is treating me with
        D3–gluten free-progesterone 150mg-Armour 30mg
        Adapten-all twice aday. I added the selenium 400mcg and magnesium.
        I would like to up my dose of Armour again but kinda chicken to do it on my own, Doctor lower it because my heart was racing at 60mg, but it did’nt start doing that right away.

      • I am sitting here in tears as I read all of what no one has ever told me. I have been in intense pain for many years and have seen many doctors since this all started. I have it all. Only found when I went for bad ear pain to an endo dr. She felt my throat and this all took off from that point. I had 3 masses and many nodules on my thyroid. Big enough they wanted to take it out which they did before it turned into cancer. Many years my TSH and all were fine. They told me nothing wrong with your thyroid. Only the mess on it now. I am angry, hurt and in amazement that this could have ever happened to me. Your sight is the best in months of research for this.I am now to a specialist who is regulating meds. Not sure what happens next. Thanks so much for your education on this topic. I still am in tears.
        Sincerely-Donna Jane Schwartz Wapakoneta Ohio

        • I went thru 10 long miserable years trying to get thyroid support starting in 1991 and slapped with anti depressants all those years….. long story short…

          In 2002 at 63 yrs I was given Armour called in by my then osteopath, no labs nadda, he knew, he was an old timer and not the young docs coming out of med school living by the numbers…..

          During that 10 yr saga, I was hit with an FM trauma and it’s all been downhill….now believe IF my thyroid had been supported the trauma would not have been so bad…..

          I know your story well, but still have my thyroid thank goodness and take today 120mg armour, Iosol Iodine and selenium.

          Thanks for your story Donna Jane…….J

      • I am a vegan vegetarian for ethical reasons and I am not able to bring myself to take the ‘natural’ thyroid medications made from pig or any other animals thyroids.

        Is it possible to get well or at least improve using a combination of synthetic thyroid medications ? I finally found a doctor who was prepared to prescribe thyroid medication but he only offered me the dessicated pig thyroid saying the synthetic don’t work. This contradicts experiences of others I have spoken to so I am just wondering if there might be some combination that could work for me.

      • Hi Dana,

        I am a vegan vegetarian for ethical reasons and I am not able to bring myself to take the ‘natural’ thyroid medications made from pig or any other animal’s thyroid.

        Is it possible to get well or at least improve using a combination of synthetic thyroid medications perhaps ? I finally found a doctor who was prepared to prescribe thyroid medication for what he described as a ‘sluggish thyroid’ but he only offered me the dessicated pig thyroid saying the synthetic don’t work.

        This contradicts experiences of others I have spoken to with hypothyroidism so I am just wondering if there might be some combination that could work for me ?

        • Hi Dana,

          I had the worst reactions while on natural desiccated thyroid. I tried Armour and Nature Thyroid. Alternatives are Tirosint (the purest form of synthetic T4) or Levoxyl and either quick release T3 (Cytomel or compounded) or slow release T3 (compounded from a compounding pharmacy).

          • what were your worst reactions? Just curious. My arthritic pain was a little better on dessicated thyroid, but it has caused heart palpitations. So am going off of it

    • Look into iodine on amazon and buy J. Crows to CURE hypothyroid.

      • Aidan Walsh says:

        How much does a Man have to take daily & for how long plus best time to take this ‘just this iodine’ or other products/meds etc thanks Aidan

        • 1997 I went to my reg dr for a migraine and was told I needed to see an endocrinologist adapt ( I was 27 at the time with 3 babies and no one to talk to) I went to see this endocrinologist the next day and he ran a bunch of tests then took me into his office and told me I had a severely hyper active thyroid and that I need to do something about adapt he told me my 3 options and basically told me I could leave his office and get into a fender bender and have it kill me and that I need to do something within the next 48 hours…. I was terrified and confused and thought I was going to die so I went home talked to my husband whom was no help and made the decision to have radio active iodine done because it was the quickest, safest , and least evasive. Well almost eighteen years later I have had a complete domino affect… My thyroid bounces from hyper to hypo and I am on medication for the rest of my life…. I am now diabetic because of it…. I have severe depression and was diagnosed with fibromyalgia a year ago…. My body is completely dying on me and I am useless to fix it all because I had a migraine
          Honestly no I have not seen an endocrinologist in many years because I don’t trust them for obvious reasons however my regular doctor does test my tsh and hba1c as well as Cbc a full lipid panel urine panel every 3-4 months and I see a Nuerologist every 4 months as well but I feel as though nothing changes I feel worse and no one listens. Like doctors hear people complain constantly and just learned to tuned it all out and no longer help….. I’m dying inside I need help…. I’m tired of this constant pain everywhere, always tired but I cannot sleep, I’m weak when I walk, my mind is not right if forget things all the time whether it was five minutes ago , a week ago, or five years ago, I have muscle spasms, trembling., dry skin and most recently I’m losing feeling in my lower legs and feet when I sit or stand….. Please help…. Send me in the right direction …. My kids are just growing up I want to enjoy my life alone with my husband and eventually grand babies but if I keep going like this I will be dead in five years…. I don’t want that I want my life back

          • AIDAN WALSH says:

            Amy, in all the time you have been ill have you ever undergone an Ehlers Danos Syndrome evaluation or ‘partial incomplete’ or full Marfans Syndrome? If EDS it comes with possible partial Marfans plus MCAD Mast Cell Activation

            Disorder with Syncope and/or P.O.T.S. *EDS is a born mutation Collagen deficiency Dr Anne Maitland New York Immunologist put out a pdf plus youtube video recently on Mast Cell Activation Disorder she also connect it

            with EDS types there are 9+ types the hypermobility type has no Genetic test available yet other types do plus one can have what are called ‘crossovers’ numerous types…Also there are 3 kinds of Connective tissue disorders 1. EDS

            Types 2. Marfans Syndrome & last one called Beales…In London U.K. Dr Rodney Grahame Hypermobility Unit Ehlers Danlos Syndrome also look up EDS Wikipedia as well…2 types of point scales used in Doctors Office one for

            EDS one for Marfans…Hope this finally puts you in any right directions be betta soon hugs/Luv blesses Aidan :)’s p.s. some things found in ‘some’ not all attached ear lobes or tiny ears with lobes, thin nose in some, thin upper lip in

            some, elasticity stretchy skin, hypermobile joints or stiff joints, thin skin veins can be seen, top of hands skin could look aged or elasticity, under elbow large amount of skin pulls down, in some able to bend over put palms of hands on

            floor, also read about Stars on Wikipedia who had Marfans Syndrome look at the volleyball athlete woman who died, they later realized she had undiagnosed ‘full’ Marfans they then diagnosed her brother this involves the Aorta vale in

            ‘full’ Marfans types…Collagen is involved in ‘all’ organs including thyroid…It is no doubts more than thyroid…hope this helps Doctors are ‘useless’ it is the most ‘undiagnosed’ conditions on the Planet & that’s an understatement :)’s Sorry you

            are not well I know exactly how you are feeling…Get diagnosed that is ‘crucial’ its not Lyme b.s. lies ‘pure lies’ they called CFS Chronic ebv in the 80’s it was proven not the case now a large fad online its Lymie pure b.s. hype…It’s

            Ehlers/partial or full Marfansor Beales with MCAD/Syncope and/or P.O.T.S. * even P.O.T.S. can be diagnosed in Office settings if only these Doctors would

            use their scales instead of always on their Computers not doing proper physicals on patients…

          • Adian Walsh …. This sounds like a lot of technical talk I really don’t understand … Are you telling me I need to find an endocrinologist and push for answers? I know my tsh is .40 and Drs don’t want to change my meds and should but I really feel like I’m being told I have fibromyalgia it’s really not but they have tested me for lupus, ms, etc typical things you look for and found nothing… However they never checked me for Lyme which is good point I will ask to be checked for that… I’m a simple person I don’t understand a lot anymore I just know something is wrong and I need help

          • AIDAN WALSH says:

            Amy do searches on Ehlers Danlos Syndrome there are numerous sites the term CFS/Fibro will not be used soon they will do away with them entirely the NIH/CDC now know they have made grave mistakes in patients, the good news though the Pyhcologists/Phyciatrists will loose all fundings from now on EDS is a physical illness not phycosomatic or P.T.S.D. pure b.s.

          • Jeannie Hoots says:

            Amy, First of all {{{{HUGS}}}} I know exactly how you are feeling. Now my left hand has started to draw up and become numb, tingling, and painful as well as useless. My neurologist diagnosed me with neuropathy and my body has a mutated gene that is causing the nerve damage which then causes atrophy. Our nerves have a protective lining called Myelin, it protects and insulates our nerves. Dysfunction in the myelin of nerve fibers causes the interruption of smooth delivery of information. Either nerve impulses can be slowed, or mixed up, its called demyelination, an auto-immune reaction, our body attacks our own healthy myelin, deteriorating and scarring the important lining. This permanently weakens and damages the entire nerve, resulting in compromised axons. I am living (trying to make it through) with this and every day it is effecting another part of my body and my life. Two years ago I was a normal happy, working mother of three and grandmother of four, living in my own home with a social life. Today I live with my sister and I spend 90% of my day in bed, the least amount of pain, but yet not pain free. If I sit for more than fifteen minutes pains start shooting up and down my spine from my head to my toes and my feet get numb and tingling. The same with standing, well leaning, and walking is like a tight rope act. I am now experiencing the dizziness issues and that mixed with balance problems has caused several falls. No ER will touch me because I have had spinal fusion on several occasions and I’m a liability for them. I fell in the bathroom and my entire body weight was on my chin/jaw on the back of the toilet, I was alone and after several attempts I was able to get myself up and back to bed. I see several different Doctors, Orthopedic, Neurologist, General Practice, Mental Health and now waiting for a Rheumatologist, and Endocrinologist. I wish you luck but remember we are our best advocates. You know more about your body than anyone else.

    • I had a doctor put me on Cortisol Manager about 8 years ago. I used to take 2 around dinner time in the evenings. Within a week I was going to sleep easily and getting good restful sleep all night. I woke each morning feeling refreshed. I now only take 1 each evening. During times of high stress I may increase the dose to 2 for a short period. If you’ve never tried it, it is worth a try. I buy it online. It is made by Integrative Therapeutics. I usually buy mine from Natural Healthy Concepts, but you can also get it from Amazon and lots of other places.

  2. Great article Dana! So glad Jules is beginining to feel better – it’s a testament to what you’re doing with Hypothyroid Mom! The information you are providing for women is crucial.

    Love the radio interview!

    • Dana Trentini says:


      Thank you so much for commenting. It means a lot. One of the best things for me about creating Hypothyroid Mom is meeting people like you.

      Congratulations on your upcoming Hormone Soup TV! So proud of you.

      • Brenda Lewis says:

        I wish I could find a Dr. in my area who treats in this way.

        • Dana Trentini says:

          Hi Brenda, there are good doctors out there worth searching for. Here are resources to help you locate one.

          • I have recently found your facebook page and I have to say I made a list of everything I’ve learned to bring to my doctor next week!! Especially I will tell my doctor that I want a Full Thyroid Blood Panel done. My grandma,mother ans aunt all had thyroid problems. I have gained a lot of weight and I’m always tired, even if I sleep all through the night(which is rare), I still wake up feeling like I haven’t slept at all. Thank you so much for being you and doing what you have to help so many of us out here that are so uninformed about this disease! You truly are a blessing 🙂 I absolutely love reading all this information!! Thank you again 🙂 🙂

  3. how does one find dessicated thyroid?
    as of now my internist has me on synthroid a micro dose at that and it is still not controlled dose. for many years i was on armour thyroid taking between 1 grain(60 mg) and as much as 2 grains(120 mg) and felt wonderful no aches or pains. then in 2008 they quit making armour thyroid and didn’t start again for almost a year by this time i had to change my primary care doctor(previous one closed his practice) and he does not like nor use armour at all. I do not like synthroid it does not work for me, never has.

    • Dana Trentini says:

      Hi Sandra,

      Since you did well on Armour before it’s worth it for you to find a new doctor, one who is open to natural desiccated thyroid. Natural desiccated thyroid are available by prescription at regular pharmacies and compounding pharmacies. I’m personally on Nature-throid and don’t have trouble finding a pharmacy that carries it. I compiled a list of the top 10 resources to help readers find good thyroid doctors in their area. Be sure to call all local pharmacies too to ask the names of doctors that prescribe natural desiccated thyroid because that’s one way many readers have found good doctors for themselves.

  4. Sherry Bennett says:

    I was diagnosed with hypothyroidism 20 years ago and have taken levothyroxine since then. I am currently up to 200mg and still don’t feel well. I can’t sleep, I’m lethargic, I have hair loss, can’t handle noise and feel confused a lot. I had a full range of thyroid testing done, but the doctor doesn’t seem concerned based on the outcome. His answer was to lower my levothyroxine. Can you give me any assistance?
    My T4 Free is 1.52 H
    My thyroid stimulating hormone is .01 L
    My Thyroid Peroxidase is 74 H
    My Triiodothyronine, Free Serum is 3.7
    My Antithyroglobulin Ab is <20

    They sent me for a sonogram to check if I had a goiter, but found nothing. I need an awesome thyroid doctor in or near Clarion, Pennsylvania. Does anyone know of one?

    Thanks in advance,

    • Dana Trentini says:

      Hi Sherry,

      Did your doctor discuss Hashimoto’s with you due to your high thyroid peroxidase levels? Hashimoto’s is considered the number one cause of hypothyroidism in the US. It is a thyroid autoimmune condition. There are many potential underlying issues causing high thyroid antibodies that should be tested including adrenals, iron, D3, B12, selenium, sex hormones, bacteria/viral infections, Candida, food intolerances especially gluten.

      Levothyroxine is the most prescribed drug for hypothyroidism. It works for some people but not all of us. As mentioned in this article Dr. Mark Starr and thyroid pioneer Dr. John Lowe recommended natural desiccated thyroid for fibromyalgia.

      • Sherry Bennett says:

        No, my doctor hasn’t discussed anything with me regarding that. He is not an endocrinologist, but is the Oncologist I have been seeing for about 4 years since I was diagnosed with Breast cancer and effectively treated.

        I can’t tell you how much I appreciate your input and am currently searching for a doctor in my area. I have found some on our referral list in Pittsburgh, but that is roughly 2 hours from my home. I am hoping to find someone closer to Clarion, PA that is sensitive to the problems and treatments of hypothyroidism.

        • Dana Trentini says:

          Best wishes Sherry finding a good doctor. It’s worth it to search for one because they can make a world of difference to your health.

  5. My thyroid levels are “normal” but my TPO was greater than 1300 and I literally have EVERY symptom. I also have the enlarged thyroid/goiter with nodules. I have been struggling with this for 15 years. What drugs do I need to research? Which ones are natural? What combinations are good? I’ve seen too many doctors that don’t know how to treat this, I want to know how myself so that I can tell them. 🙂

    Thank you so much for this website. God bless you!!!

  6. This is not really new, for many years a few patients have seemed to have some response to thyoid replacement hormone for chronic fatigue and fibromyalgia but this is a long ways from a universally helpful therapy. Controlled studies are lacking and it is really left to a therapeutic trial with all of the placebo and subjective aspects this entails. Thanks for the post though.

    • Dana Trentini says:

      Hi Dr. Pullen,

      Thanks for sharing. What have you found helpful to treat chronic fatigue and fibromyalgia in your patients?

  7. Does anyone know of a good thyroid doctor in Georgia? I have taken my granddaughter to Emory only to have the following lab done.
    TSH 1.04
    T4 11.7
    Free T4 1.2
    T3 92
    and Anti-TPO @ Negative < 10 WHat does this mean?
    Ultra sound revealed several small cyst in the cm range.
    Their comment your thyroid does not explain the pain.
    She suffers from extreme fatigue not to mention about 50 other of the symptons for thyroid problems.
    Thanks so much

    • Dana Trentini says:

      Hi Dicky,

      You wrote T3 but check her lab results for FREE T3. Let me know the score and the reference range to the right of the score. If her Free T3 (which is different than Total T3) was not done then ask for it. Also ask for her Thyroglobulin Antibodies. They did her Anti-TPO for Hashimoto’s (which was normal) but the Thyroglobulin Antibodies should be done too. It would also be helpful to have her adrenals, ferritin/iron, and vitamin D3 tested.

      I put together resources to help readers find good doctors in their area. Check each one for names of doctors in Georgia. Also call all the local pharmacies and pharmacies driving distance to you to ask for the names of doctors that prescribe natural desiccated thyroid brands like Armour and Nature-throid because doctors that prescribe these medications tend to be more open minded in their diagnosis and treatment. Best wishes for your granddaughter.

  8. Great blog and I’d like to add my miserable story and struggle on the HypoT and Fibro scene, I don’t have a website what does that mean…..before I add more I want to make sure this “works”……

    • Ok, looks like this does work, I hope.

      I go back to 1991 when I first had nasty depression going on, I knew nothing about the thyroid, I was 51 and trust the doc….

      I kept getting you are normal and more anti depressants, for 10 miserable years..

      In early July 1999 I went to see Dr. St Amand since he was listed as an endo….said “you are fine” after touching my neck and telling me then “you have fibro”….I had NEVER heard of it.
      He worked like “H” to get me on his guaifanson (sp) and I totally resisted….walked out and never returned….

      Then toward the end of July I lost a job I planned to retire from, I was 61 and at a loss as to what I’d do…..that is when the Fibro Trauma hit me. Body thrown so off track and that was the beginning…. Long story and I went on and did fulltime child care until social security was available at age 62, I took it.

      Then in early 2002, I called my D.O. and talked about thyroid and he called in Armour and that was getting to the end of the thyroid saga…..

      I believe I would NOT have been so traumatized with the Fibro Wall had I been supporting my thyroid, but the docs were just horrible….except for the D.O. who knew as he was “old school” and knew about the symptoms and thyroid….a goodsend….

      The long depression lifted in 4 days on 30mg, I’m now taking 120mg of Armour…it’s the best for my body/mind…

      Then in 2006 a lowness was coming on and I found how empty my Vit D tank was, 16 as I recall…..worked on that and in 6 months that lowness went away.

      I got up to 80 or so and in 2010 I opted for a hip replacement, what a mess it’s left my body….groin was bone grinding on bone on right side…. at that time my Vit D level dropped 40 pts with the surgery….I had read that could happen….

      So I continue on, getting my Vit D back up and now take a Vit K complex…

      So I guess the crux of this is, I may not have gotten the Fibro stuff if my thyroid was being supported….

      Work to get that right doc to help you….I knew nothing back in 1991 as I said and now I could write my book. jam

      Oh, I also deal with lifelong OA and refuse anymore surgery knives….I have some shoulder issues too but do alternative work to keep moving. I’m 75..

      • Dana Trentini says:

        Hi Jam,

        Thank you for sharing your story. So happy you discovered natural desiccated thyroid. It’s changed my life too. Yes absolutely vitamin D is a real issue even for those in warm weather climates. If you are on Facebook, feel free to visit my Hypothyroid Mom Facebook page where you’ll see thousands of hypothyroidism sufferers sharing their story, asking questions and giving support. Everyone is welcome.

  9. Hi Dana,

    I’m in a completely different class. I have Hashimoto’s and have been on synthetic Oroxine since 1977.

    Since 2000, I suffered terribly from Fibromyalgia, and none of the doctors had a clue what to do. I was overdosing on asperin because that’s all they’d recommend. Finally, a rheumatologist who was willing to talk to me and think about my history thought to adjust my thyroid dosage. Well, what do you know? My pain, the pain that I was certain was killing me, kept me from sleeping, and was destroying my life, was gone! Happy ending? Not quite.

    Last June I was diagnosed with nsclc (lung cancer). None of my doctors will entertain the possibility that there is any connection between my lung cancer and my thyroid. Not one. But a study out of Italy did that. See the link in this to the study, which they say needs more clinical study:

    So, while being treated by chemotherapy, I’ve now discovered that I am sorely hypothyroid. I thought it was a side effect of the chemo, but I can barely walk across the room without getting exhausted. Well, my tsh has dropped from 0.77 to 0.03. My Free T4 is 20.4, and my Free T3 is 4.7.

    Today I decided to find someone who will work with me with the Natural Desiccated thyroid. Tomorrow I start to look.

    It’s too late for me to do anything for the lung cancer, but something has to be done to make more people aware that there is something really, really wrong with the way thyroid problems are treated.

    I’d be interested to hear any comments you might have about my story.

    Kind regards,

    • Dana Trentini says:


      I apologize for the delay in responding. I’ve had about 4 million people visiting my site and Facebook page every week for months now and I’ve received so many messages that I’m struggling to get through. Sorry for the delay in getting to you. I am so very sorry to hear about your lung cancer. I hope all is well with your recovery from chemo. I imagine that takes a huge toll on your health. Be sure your adrenals are tested. Stress both physical and emotional wreaks havoc on our adrenals which then wreaks havoc on our thyroid and sex hormones. So be sure to be tested for all three: thyroid, adrenals and sex hormones. It’s amazing what a connection they have to one another. I am deeply touched by your story. My father passed away of lung cancer 10 years ago. Prayers for you for recovery and good health.

  10. I have been on medication for hypothyroid for 6 weeks, I have been dieting and working out every day and have not lost a pound, is this a cause of this medicine or my age, 56. I am eating 1200 calories a day and walking 3 miles a day and weight twice a week

  11. i take synthroid for my thyroid doctor says my levels are fine but im not so sure or what is going on..i stay tired all the time i have n o energy which my b12 level stays low and my iron count but i have alot of pain n my legs and back ..i was told i have rld restless leg syndrome .i am just so tired of feeling the way i do all the time and no answers and my family or no one else understands what im going threw n i cant explain it to them were they understand i am on disability n my insurance wont cover alot of things and it makes it difficult to get ne kind of treatment and my doctors arent tring ne thing new i have been on b12 shots ofr yrs now..i had gastric bypass it back fired on me i almost dies lost 4 pints of blood had 15 blood clots it was a horrible experience.. due to health n pain complications i have fatty tumors all over my legs n feet and insurance company refuses to remove them i have some bigger than a grape fruit i did have one removed that grew to my bone they had to shave my bone to get it off n that set up arthritis in my legs i have no cartlidge in my the tumors are getting bigger n bigger the pain is worse everyday and i dont know what else to do but give up

    • Dana Trentini says:

      Hi Teresa, As you know from this article there thyroid experts who recommend natural desiccated thyroid for chronic pain. Synthroid doesn’t work for all of us. Many of us do better on a combination of T4 and T3 medications. Here’s more on this topic:

    • Hi Irene:

      I know your post is 2 years old, but I just want to chime in.

      I had severe hyperthyroidism for a long time, was prescribed medication to bring it down (hypothryoidism) and it messed me up real bad. Finally in 2006 they found out I had thyroid tumor, so they took out my thyroid. I was also prescribed Synthroid, which did not work for me at all. And sadly, most doctors, first thing they do is push Synthroid to you…and I learned later on it’s not for my best interest, but theirs. They get paid huge bonus, benefits and all that whenever they promote Synthroid. Anyways, I went to a holistic doctor for thyroid, and they were using compounding pharmacy, and one of the medication they used is Armour Thyroid, which is the most similar form of thyroid to the human, it’s derived from pig hormone. I felt much better, and I have taken that since. I used to pay $100 per month to CVS to get my Synthroid. Now, thankfully, Costco has Armour thyroid, and my monthly expense for Armour is $29.00. It’s worth paying the $55/year membership fee. You will save more in the long run, and furthermore, you are doing good for your body.

      I had trouble looking for doctors who will prescribe Armour. The minute I mentioned ARmour, they said no. Finally I found one and I am so thankful I found him. I am in Houston, Texas btw.

      Hope this helps.

      P.S. ARmour Thyroid is made by Forrest Laboratories.

  12. Hi! I’m so fibro-brained that I’m sorry to admit that I’m not able to take in everything here. Sleep deprivation isn’t helping either. But I’m now in a desperate situation.
    I’ve been on Synthroid since the spring of 2012 and it STILL hasn’t kicked in. Oh recently the tests came back normal, but the symptoms are still there, with new ones appearing. I’ve been doing research tonight on a horrible new symptom I never associated with hypothyroidism: I now gasp for air, sounding like I’ll expire, with the slightest exertion. (I’m basically bedridden due to severe MECFS & fibro which have caused so many other problems over the last 38 years.)
    I’m seriously thinking of changing to Armour. Getting to see my very capable endo is a long process b/c he IS so good. We will try to call him tomorrow to at least discuss the change.
    I suppose that my question is, am I nuts for having held on this long? Do you have any words of “wisdom”?
    Recently, I was hospitalized because of impaction: it extended from my ascending colon to the transverse and descending colon and I believe almost into the sigmoid. I was in the hospital for 10 days to get disimpacted and had an NG tube for 8 days so I could breathe at all. What a nightmare. A few weeks later, I was hospitalized again but this time the impaction wasn’t as severe because I got myself in as soon as I realized I was having a problem again. My attendings are STILL talking about this: 30-40 yrs in practice, yet they’d seen nothing like this before and were scared I would perforate.
    I’ve made a comment before because I loved your post on constipation. But that was way before this whole impaction mess, which is like a nuclear version of constipation! My hair is continuing to fall out, my nails keep peeling, my appetite is too often completely out of control, my voice is hoarse, the symptoms go on and on. I cannot believe that with everything I’ve “gotten” over the years, hypothyroidism is a problem: I always thought that it was so very treatable.
    Thanks for listening. Any suggestions would be greatly appreciated. (And thanks for stopping by my blog ocassionally! I appreciate it!) Xx

    • Irene, make the Change if you have not done so. I have been taking Armour since 2010 and I have been very stable. Synthroid did not work for me at all, it seems like my body is not “getting it in.”

      Many doctors will not prescribe Armour, so it’s better you call them first and find out if they can prescribe Armour. Also, Costco sells Armour Thyroid. It only costs me $29/month and my dosage is 120 mcg.

  13. Prior to labs and SynCrap, MD’s gave out Armour to those with long lists of symptoms leading to hypoT……I had a short time on Syn and threw it away…I’m on Armour since 2002 and it works as good as it can work for me I believe.

    I deal with Fibro, OA and a mess from hip replacement and have NEVER had the brain fog thing…..I’ve been taking Grape Seed Extract since 1995 and if you do a search on grape seed ex and the fog, you will find results……

    I wouldn’t give a nickel for endos, they are the worst in my book for thyroid help….I have long stories and need to stop for now. joy

  14. I just want to say thank you so much Dana for all the wonderful information you provide. I really wish I saw your articles before this year. Jules and my story sound so familiar. For over three years (since 2009) I dealt with, fatigue, joint pain, muscle pain, insomnia, etc. I wasn’t diagnosed with Fibromyalgia until August 2012. It wasn’t until my doctor did a routine wellness check, she noticed swelling in my neck. She tested me every year for my thyroid all levels were “normal” since 2007. I had an ultra sound done which revealed I had nodules in my thyroid. December 7, 2012, three days after having a fine needle biopsy. I was diagnosed with thyroid cancer. That is when I went on a campaign to find out as much information I could regarding the relationship between fibromyalgia and thyroid health. I strongly believe in exactly what Dr. Lowe is saying. My world has completely change, I have to constantly fight in order to get the treatment I need. Even with the cancer, I had to threaten my doctor that I would not get the thyroidectomy done if I didn’t a CT scan. I wanted to be sure and clear on what to expect with the thyroidectomy. It was a good thing I did, in getting the CT scan done it revealed the cancer had spread to neighboring lymph nodes. Yet, the ultra sound(the only test they relied on) that was done a week before surgery showed all was well with my lymph nodes. After surgery, I was told they had to remove lymph nodes. The endocrinologist I went to was the worst! I inquired about Nature Thyroid and Amour Thyroid. He refused to prescribe them because it was made from animals and it was not safe because of Mad Cow disease and Swine Flu he could not prescribe them. I was appalled. Needless to say I left his office and never went back. If it wasn’t for the information posted by you and Mary and so many others who actually live with issues of their Thyroid, I don’t know where I would be today. Thank you again!!!

  15. Good post…Fibromyalgia is the most common musculoskeletal condition after osteoarthritis. Fibromyalgia is a common and chronic disorder. When a health illness or condition is chronic it means it is long-lasting. visit our site for good tertments for Back Pain, Diabetes, Fibromyalgia, Thyroid.

  16. Interesting article. There are some yoga poses which help to maintain thyroid under balance. Sun salutation practiced in slow pace motion, does wonders.

  17. Goodness, so much great info. Have history of hyperthyroid, put on PTU for a year and half. Thyroid leveled out or so I was told. No other treatment. Hair loss, fatigue, chronic constipation, insomnia, mood swings and brittle nails continued and still continue. Not to mention the chronic pain. In 2004 I was diagnosed with Hashimoto disease, still no treatment, was told TSH levels normal. Diagnosed with Fibro in 2005. Changed medical plans and had Free T4 test only (?)= .086 to 0.9 and yesterday doctor tested for antibody, TPO is 133.6 . I don’t know why doctor didn’t test Free T3. TSH levels ran the gamut .88 to 6.97 then most recent down to 3.94. When I questioned the 6.97 result the doctor said they don’t treat w/medication until TSH level is 10. Meanwhile, I am going bald, I hurt all the time and don’t feel well. I don’t sleep well which contributes to my fatigue and pain. I have a HMO so I understand the doctors have to treat according to the guidelines of their health plans and they may not have been fully trained in this area but even I, a lay person know how important Thyroid health is to the entire body! I live in the Henderson Nevada area and will be looking for a doctor who is up to speed on this. Any suggestions?

  18. Please offer a site where we can find physicians that can write Rx for Armour for us.
    I have an RD that practices Functional Medicine….however she is not able to write the
    Rx for the thyroid meds. Dx’s w/ Fibro, OA and Hypo.
    Thank you.
    Miss Yuki

  19. Sonia Prime says:

    I was diagnosed with hyperthyroidism in 1992 I hadn’t been well since the birth of my second child in 1970. I was fluctuating between hyper and hypo I would be freezing cold gain weight then hot and felt like my blood was boiling and lose weight along with a host of other symptoms. I was finally diagnosed with Graves in 1994 I had been on medication for 2yrs with no results. I had radio active iodine in 1994. Told we will get yr levels right and you will be fine. Not so I am taking 125mcg of Oroxine. I have Brain Fog bad I have now been told I have Fibro and I have C/F My levels are TSH 0.10 T4 24. Oesto Arthritis I take Tramadol 300mg daily and now want me to take Lyrica which I have refused. Do you suggest I try the natural Thyroxine? Any help would be appreciated. I have no sex drive at all.

    • I have the same feelings of fluctuation. For a month, I was sleeping with an electric blanket , a comforter and another blanket. Now I am sweating profusely, and I am sleeping with the ceiling fan on and no blankets.

  20. Hi i have fibro and bad chronic pain all the time i have been gaining weight for the last 10 months and keep gaining. I weighed 12 and now i weigh 175 but i look pregnant my stomach is just like a pregnant belly. i went to an endocrinologist and my TSH was 0.17 my TFREE 4 was 0.71 My TFREE3 was 3.7 plus he did these other blood test FSH 79.2 Prolactin 21.8 Luteinizing 5601 what does this all mean he really ddidnt explain so im going to try to find a different doctor because something is causing me to gain weight, please help my life has changed im not the wife or mother i use to be im either so tired and hurting i dont get out of bed or i stay up all night plus i have migraine headaches im only 42 To young to be this way i dont even have a sex drive oh its just sad what we go thur when we cant find a doctor that really cares anymore. Thank You so much,Lisha

    • Ann Nonymous says:

      I look pregnant too! My stomach is big, round and kind of hard. It may be Candida. Try supplementing with coconut capsules or put coconut oil 1-2 T. in coffee or black tea. Look up Ted’s Alkalyzing Remedy on the Earth Clinic site. They also have advice on lots of health issues and remedies. Good luck!

  21. Amy Tidwell says:

    I have Hashimotos and have recently begun treatment for adrenal fatigue. My meds include Armour 60mg, cytomel 5mg bid, cortef 5mg and then Tegretol for bi polar. I have been suffering with Plantar Fashitis for about a year, now I have horrible cramping and pain in both feet and one hand. RA is neg . My Potassium was low but we corrected that, B12, D and Ca were normal. My most recent labs TSH0.383, T4 0.75 and Trilodothyryonine Free 3.8
    I started a clean diet and thought my labs were looking up but this pain want budge

  22. On adrenals, I’ve tried so many helpers so to speak, from cortef, HC, Isocort, adaptagens and others, but am now off them all and finding help with Pantothenic Acid B5 and finding myself much better….I’m 76 and worked with this for many years….

    Pantothene is good too, but more pricier….check this out….

  23. hi I’m 30 and have been diagnosed with fibromyalgia and mid-mild scoliosis. I’m always tired and I have an enlarged thyroid but all my blood work comes back normal but on the low end but nothing is being done what do I do next

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  25. Jacqueline says:

    Hello I just joined and was recently diagnosed with Fibromyalgia. I also Had my T3 Total come back low. All this was found out in the last 2 days. Thyroid dr. suggests I see what Fibro treatment does for me and see if T3 improves before starting thyroid treatment. Everything else on thyroid came back normal so, he is thinking the tsh and t4 may compensate for the low t3?? Shouldn’t it be the other way around? Get the thyroid treatment to improve fibro? Confused. What a long road this has been. Thanks ahead!

    • Hi, I just believe so much of this fibro issue is HypoT…I take Armour and would not think of the synthetic products…… desiccated support to me is the best way to go.

      Read Stop The Thyroid Madness book…..

      • Jacqueline says:

        Hi Joy,
        Another doc just recommended Armour among another holistic therapy. I’m assuming Armour is effective?

        • Armour has been tried and tested for 100some yrs….when the synthetics hit the marketplace they have been doing their best to discredit desiccated thyroid support…the medical schools get a lot of funding from synthroid people…..

          For me, I can’t imagine anything by desiccated support…..I see only integrative MD for my overall health…..MOST of these type docs, prescribe desiccated. J

  26. Need help and you have been searching for one about a homeopathy doctor to treat your disease

    Contact Dr. Alex on ([email protected])

    He will b of help to you cos he did same to me when i was in a difficult situation

  27. Hi, reading all this makes me so angry. I was diagnosed with Hashimotos/hypothyroidism when I was 12, that was over 21 years ago. Since I was 8 years old till today I have been diagnosed with migraines, sinusitis, IBS, stomach ulcers, asthma, tension headaches, fibromyalgia, ovarian cysts, insomnia, and so many symptoms that drive me nuts. I’m unable to work I’m in constant pain all day. Not one of my doctors after all these years has referred me to an endocrinologist. My doctor now I have practically begged to be referred to one. The only thing I have ever been tested for my thyroid is my TSH level. I ask to have my cortisol levels tested and my hormones levels tested. But my doctor says I’m fine. No I’m not fine, I’m far from fine. I’m on levothyroxin 88mcg and have been for years. I read about other meds and treatments and how people just being treated for one thing, T4 still causes so many symptoms. It’s agrivating. I live in a small town and finding an endo isn’t easy. I just wish doctors took thyroid issues more seriously. I think a lot of my issues are because of my thyroid. But every three months I get test results back saying I’m within range. I just don’t know what to do anymore. Even if I go to an endo are they going to take me seriously or brush me off like most of my doctors. They probably think I’m a hypochondriac.

  28. Glad to read this article. I have been treated for hypothyroid and adrenal insufficiency for several years. I was on Armour for a long time (2007-2011), they kept upping the dosage, and I never really felt better. In 2011, my doc switched me to Synthroid 125 per day AND Cytomel – we’ve played with this dose for awhile, as well as Cortef for the adrenals. In spite of all of this, I still have never felt “well”. I have lethargy all the time, and lately what I call “body pain” especially in the morning….they gave me Mobic for it, maximum dose, doesn’t seem to help.

    Two issues I have:

    We have military medicine and our PC doesn’t believe in giving thyroid meds or adrenal insufficiency if you test “normal” – he refuses to run all the right tests; he only does two thyroid tests. So we have been paying cash to a concierge hormone balancing doctor to get this treatment for the past 5 years. We had a big income hit and can no longer pay for that doctor, so no more refills. I have a large stockpile of Cytomel (T3) but hardly only a few Synthroid left…I’ve been cutting them in half. My husband has a lot of Armour left (the PC on base did for some reason give him synthroid, so he has switched from Armour to Synthroid). Is my decreased Synthroid dose causing me to be more lethargic and in pain? Should I switch to Armour – and if so what dose do I take since I am already getting T3 with the Cytomel?

    Second issue is I am 9 weeks out from my left knee replacement surgery, so I am sure some of the lethargy and pain (at least in one leg!) is from that. So not sure what is causing the all over joint/muscle/bone pain. (Tests for RA and other auto-immune came back negative).

    Thanks for your insight.

  29. I confused, I posted about starting wth Acella NP Thyroid and can’f find my comments.

  30. Hi
    I have hypothyroid, fibromyalgia, cfs. Have been fighting for more than 10 years now. Started with levothyroxine ( now up to 300 mcg) few years back but still have all my symptoms. Infact the pains are gradually increase making be disable to do anything. My tsh keeps fluctuating, thyroid is enlarged/ goiter causing choking, thyroid anti bodies are very high. Feels my adrenals are not normal. Can u suggest test to undergo for adrenals as my doc is not interested in it. Also help me resolve my pains as am unable to do the basic daily cores. Hope to get some answers. Thanks

    • I don’t do WELL at all on synthetic thyroid, desiccated thyroid ONLY. Armour and will soon go to NP made by Acella as it’s the generic to Armour which has gotten too pricey for my pocketbook.

      I see ONLY integrative MD for probably the last 10 yrs or so….no conventional doc unless I’m dying. Naturopath would be a good way to go, they don’t do Numbers so much as symptoms.

      I’m doing P5P now for adrenals as I’ve run the gamit on adrenal supports for years….P5P which is B5 supports adrenals.

      Again, see about leaving the conventional MD world….

      • Also, you COULD feel so much better OFF gluten.

        I have not brought breads into my house for about 6 yrs or so….make my sandwich with beautiful romaine lettuce leaves.

  31. You are so right on. So glad I found you. I’ve been doing some writing on thyroid and adrenals and I have been saying this for so long.

    Blessings on you and your work. I would love to stay in touch w/ you.

  32. AIDAN WALSH says:

    yes, Amy very technical but this is what is being found now by top research teams experts in this field, its long but you will now have to look up these links to get wider picture & a hopeful proper diagnosis…hope it helps, fibro is just another ‘label’ refuse labels

  33. Can anyone recommend an integrative MD that is good at figuring out complicated Hashimoto’s hypothyroid problems and will prescribe time-release T3 in the Los Angeles, CA area? Thanks, Linda

    • I’ve been seeing Jennifer Sudarsky, Integrative MD for many years….she was with Cynthia Watson, also integrative for all those years. Jennifer went off recently and now with OneMedical group in Santa Monica.

      I would recommend both of these integrative MD’s and both have web sites. I don’t know about time release T3 but either of these two MD’s could. I use NP Thyroid now, the Armour generic.

    • Thank you for the recommendations, Joy, I hope that they take my insurance. I will look them up. I have gone through so many doctors that can’t solve the pains in my legs and cramps in my feet that I have had since Hashimoto’s. Thanks for answering. I really appreciate it.

      • I have achy legs and foot cramps but KNOW it’s advancing OA in my body. And a mess from hip replacement. So many other things go on in our bodies. Hope you can see one or the other. Cynthia Watson has many more years of medicine on her record. So many integrative MD’s don’t take insurance, Jennifer has always taken my medicare….but things change and you gotta check them out.

        Another solid integrative MD is David Allen in WLA.. He was with Hans Gruenn also integrative but is now retiring. David is knowledgeable. good luck

        • Joy, thanks for any information you are willing to share about doctors in L.A. I am in Porter Ranch (Northridge-SF Valley). I checked out Dr. Hans Gruen before. David Allen I checked out and called but didn’t take my insurance. I have Medicare also with an Anthem/Blue Cross supplementary. One Medical Group will take Medicare, but they charge a $200 fee per year per patient for their practice to be a subscriber. They have two locations, Santa Monica and Beverly Hills. My current doctor is down in Fountain Valley (OC) and is a 1.5 hour drive one way, Dr. Evelyn Llorente so am looking for someone closer who will prescribe time-release T3 in addition to T4. I don’t do well with natural thyroid meds. Thank you very much for your information. I will check them out and am open to anyone else you know about most doctors won’t give you T3, especially endocrinologists. I can’t function without it.

          • Jennifer S just changed her practice and current patients don’t pay that fee first year but after we do. Check Watson, she never took insurance but I thought I heard she does now. It’s hard to find a GOOD smart holistic MD. Too many of the medicore ones.

      • Joy, thanks again for the recommendation. Neither doctor is taking new patients but Dr. Watson’s office put me on a waiting list. Meanwhile, my search is on for right doctor. If anyone else knows of a good integrative doctor in Los Angeles who takes insurance, please let me know.

  34. Hi, I am writing from the UK and have been following Hypothyroid Mum for some time. I find the same thing here, nobody wants to know. I was diagnosed with Mixodoema?, back in 1995 a very severe form of Hypothroidism and was almost at coma stage. I just couldn’t stay awake. I have the majority of your listed symptoms as well as Fibromyalgia, one symptom that seems different from everyone else else is that I do not have insomnia, in fact I sleep approximately 18 hours a day and STILL feel shattered and seem to be losing my grip on reality which is very scary. I take Thyroxine 75mcg and Liothyronine 25mcg daily (T4 and T3) which does nothing to alleviate any of the symptoms. I have put on a good 5 stone and eat very little, in fact I find food boring and only eat because I must. I talked to my GP about Armour and got a flat no as it was too expensive to prescribe. I always get the usual “all your levels seem fine”!!. So in other words get on with it. I don”t know where to turn next, and as one of your other sufferers said I dread walking into my GP’s surgery as I am sure they all think I am a hypochondriac!. Can anyone make any suggestions of who to contact in the UK or have any advice?.

  35. Catherine Ordóñez says:

    Hi, My thyroid was remove one year ago, because I have cancer nodules follicles type. I never suffer from thyroiditis, until the surgery. But I suffered about 14 years ago from fibromyalgia, it’s horrible my life change a lot. This is the first time I read that they are relationed. I take daily one levotiroxin 100mg and my tsh now is in 7.0 and the calcium 7.6 and also magnesium is low.
    Thanks a lot

  36. Hi all! I started an ndt from an online site last year & couldn’t stick with it because I was getting headaches and had no dr to help. Fast forward to this summer and I started Naturethroid with a D.O. Helping me. The first 2 weeks I felt great & I also went gluten free & have lost weight & inflammation in my face. However, some buzzing/tingling started in my hands almost from the start & 2 weeks in I started getting some muscle twitches/spasms, a very painful left hip and peripheral neuropathy. I never had any of these symptoms prior to my Hashimotos diagnosis and treatment (Tirosint 75mcg for 4 years). Has anyone experienced this going to a t4/t3 combo med? Am I over medicated or undermedicated maybe? Thanks for your help!

    • You might want to talk to the folks on the Stop The Thyroid Madness blog….I take 2 grains Armour and will starting with NP thyroid (generic to armour) very soon. Armour prices went skyhigh and found the NP thru the STTM folks…..

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  38. What type of doctor/specialist do I need to see for thyroid issues. I had my right thyroid removed in 2008 & haven’t been the same since. I have a hard time walking because I get pain in my right upper leg & hip, always tired, swelling in feet, hands, etc., very moody. I have been on Levothyroxine…..175mcg since 2008. I don’t feel my doctor takes my concerns, that I listed above seriously. He does do blood work each visit, but always says everything is fine, but I don’t feel fine. Any help or advice you can offer would be greatly appreciated. Thank you in advance for your time and help.

  39. I have under active thyroid gland for last 2 months I seem to be in a lot of pain lower back,both my legs are also affected with pain I’ve been put on difene and tramadol for this been honest it hasn’t done anything to ease pain been back to my doctor twice with this,my dosage of eletroxin was increased in March from 100mg eletroxin to 150mg eletroxin,still feel sick,tired all the time would sleep 24/7, any advice would be greatly appreciated I’m from Ireland,thank u for reading my comment.

    • If one can get to an integrative MD or naturopath and OFF the conventional thyroid drugs, they could feel better. I went thru a 10 yrs struggle with a conventional MD……… I’m off the conventional wagon. thank goodness we have integrative MD’s and naturopaths in our area.

      Back pain could be other issues like arthritis.

  40. Aidan Walsh says:

    95% of patients diagnosed with Fibromyalgia /Chronic Fatigue Syndrome have ‘undiagnosed’ Ehlers Danlos Syndrome type(s) some have crossovers plus in some they also have ‘partial incomplete’ Marfans Syndrome or do not have EDS they have full Marfans Syndrome all above are genetic connective tissue disorders…It also comes with MCAD Mast Cell Activation Disorder plus Syncope and/or P.O.T.S. Dr Rodney Grahame Hypermobility Unit London U.K. * Collagen ‘glue’ deficiencies passed on at Birth by either or both Parents it runs in families children are 50% chance of getting EDS Type(s) from Parents…

  41. I have an enlarged thyroid, plus a multiple array of health problems. I’m a coeliac, suffer hypertension, asthma and allergies, COAD, Osteo arthritis, sinus and hay fever, and chronic pain. I have had my gall bladder removed, and many other surgeries, including spinal fusion, surgery on both shoulders,feet, and wrists, and total knee replacement of right knee.
    I was just wondering from what you have to say could I have hypothyroidism? I don’t understand it, that’s all.

    • Aidan Walsh says:

      Have yourself checked fully for Ehlers Danlos Syndrome, as soon as I see knee replacement it set of alarm bells for a Collagen glue deficiency also rule out ‘partial incomplete Marfans Syndrome or even not EDS but full Marfans…Do the Scales at home 1.Breighton Scale 2. Beighton Scale plus there also is a scale measurent as well for Marfans Syndrome, EDS also now comes with MCAD Mast Cell Activation Disorder see online from New York Dr Anne Maitland MD Phd Immunologist/Alergy…She is the best also rule out CVID or Systemic Mstocytosis tryptase levels blood test which she does all of the above mentioned…95% of CFS/Fibro, so called Lymies have EDS type(s) or Marfans…Vascular EDS is the severe form all are Chronic there is no Cure & yes Collagen causes thyroid issues plus in some thyroid measurement is low which they rarely do so is in some measurement of heart is low…Hope this helps I am on Facebook Twiiter MySpace gold Angel is me Southampton area…be well soon ‘get diagnosis’ Vitmamin C may help if you can tolerate it builds Collagen…

    • Aidan Walsh says:

      Have yourself checked fully for Ehlers Danlos Syndrome, as soon as I see knee replacement it set of alarm bells for a Collagen glue deficiency also rule out ‘partial incomplete Marfans Syndrome or even not EDS but full Marfans…Do the Scales at home 1.Breighton Scale 2. Beighton Scale plus there also is a scale measurent as well for Marfans Syndrome, EDS also now comes with MCAD Mast Cell Activation Disorder see online from New York Dr Anne Maitland MD Phd Immunologist/Alergy…She is the best also rule out CVID or Systemic Mstocytosis tryptase levels blood test which she does all of the above mentioned…95% of CFS/Fibro, so called Lymies have EDS type(s) or Marfans…Vascular EDS is the severe form all are Chronic there is no Cure & yes Collagen causes thyroid issues plus in some thyroid measurement is low which they rarely do so is in some measurement of heart is low…Hope this helps I am on Facebook Twiiter MySpace gold Angel is me Southampton area…be well soon ‘get diagnosis’ Vitamin C may help if you can tolerate it builds Collagen…

  42. Hi, I was told my thyroid was of and prescribed Levothyroxiane over a year ago. I took it for 2 months but was tolds I’d have to be on it for life. So in the end I decided to stop taking it. However, I have lots of pain in my leg, right ear, inflamation, and self diagnosed candida overgrowth. My question is. …..does it cause me more problems to not take anything for my thyroid?

    • Someone posted about heart palps on desiccated thyroid….I have been taking desiccated since 2002 and recently switched to NP thyroid, I love it. Is everyone taking ENOUGH magnesium? Do research on magnesium and heart palps. My friend is going thru heart issues now and she has NOT been taking enough mag for years.

      Selenium is important.

  43. Donna Boehm says:

    I take tyriod mess for a long time but switched to the drug armour thyroid 60 am 60 pm milligrams my fibro started afterwards
    Is this medicine or just something than just happened I suffer horribly from it

  44. I had my thyroid removed when I was 13 due to having family history of MEN2A, which i tested positve for. I am now in my forties with two children whom both also tested positive and had to have their thyroid removed as well. I have learned so much by reading your website and all of the comments! More than any doctor has told me or explained! It has helped me start getting contol back and i can help my kids and other family members! I am very thankful for everyone on here! Thank you!!

  45. I’ve just found your website and have read so much information. I am 50 and I’ve been using synthroid 88mcg for about 6 years. I exercise every day and eat right, but I do admit that I’ve got too much stress in my life. I have many of the symptoms everyone has mentioned. I have just recently been diagnosed with fibromyalgia due to my terrible neck, back and leg pain along with peripheral neuropathy. I’m frightened and want to get to the bottom of the problem, but don’t know any good doctors in NJ. My PCP and Endo sound the same….blah, blah,….here’s lyrica and a muscle relaxer. I’ve had a thyroid ultrasound because for the past year it has felt like there’s a softball in there. Endo told me that it is inflamed, but that’s just “the disease”. I’ve never had a biopsy. Endo said it’s not necessary unless the ultrasound shows an issue. Can anyone suggest a good dr in NJ? I did receive a recommendation from a few people for a wonderful dr, but she is not accepting new patients. Please help. Or you can email me at [email protected].


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