I love the community gathering on the Hypothyroid Mom Facebook page. One of my readers named Samantha wrote that when her doctor discovered her sky high TSH levels, he responded, “You hypo’d like a rock star!” Now you know I couldn’t get that image out of my mind. A common scenario with Hashimoto’s is one in which the thyroid condition fluctuates between being underactive and overactive. For these Hashimoto’s sufferers, their symptoms fluctuate from hypothyroid to hyperthyroid and back again and forth like a rock star partying hard then crashing with a hangover then partying hard again. Their TSH swings up and down like a rock star gone wild!
Hashimoto’s thyroiditis is considered the number one cause of hypothyroidism in the US, yet thyroid antibodies are often NOT tested.
There may be readers here right now reading this article with Hashimoto’s and they have no idea.
Hashimoto’s disease is an autoimmune condition in which the body attacks and destroys its own thyroid gland. Piece by piece your body chews up and destroys your own thyroid gland as if it is the enemy. In a healthy immune system, antibodies act as the body’s army to detect and destroy invaders not normally present in the body, such as bacteria, viruses, fungi, and parasites. In the case of Hashimoto’s disease, a defective immune system wreaks havoc on the body by directing antibodies against its own thyroid gland as if it is a foreign invader.
Vulnerability To Other Autoimmune Diseases
A Hypothyroid Mom reader left this comment on my Facebook page that was so important it stuck in my mind for months. When you have one autoimmune disease you are more likely to develop others.
Teri Nichols wrote:
After researching in 2009, I asked to be tested for Tg-Ab, TPO-Ab, and TSIG, the 3 thyroid antibodies. All 3 of mine were very high. I also asked for T4 Free, T3 Free. Both of mine were very high. I also asked for these tests (lupus/sjogrens): ANA, ANA Patterns, SSA Antibody and SSB Antibody. My ANA was 1:640, pattern was speckled, and positive for SSA. I was dx with Graves’ disease, Hashimoto’s, and Sjogrens. Later, I asked for these tests: DQ ALPHA 1, DQ BETA 1, GLIADIN AB, IgA and GLIADIN AB, IgG. All came back positive, which means I have the pair of Celiac genes and gluten sensitive. Research your symptoms, find the possible diseases you may have, research the labwork for those diseases and politely insist your doctor runs the lab work for you.
Dr. Gerald Mullin from Johns Hopkins says statistically somebody with an autoimmune disease is at risk of a total of 7 autoimmune diseases in his or her lifetime.
If nothing is done to calm down the autoimmune attack on your thyroid gland, the risks are high that your immune system will then begin attacking other parts of your body. You become vulnerable to develop other autoimmune diseases.
- Type 1 Diabetes
- Multiple Sclerosis
- Celiac Disease
- Addison’s Disease
- Cushing’s Disease
- Alopecia Areata
- Sjögren’s Syndrome
- Rheumatoid Arthritis
- Pernicious Anemia
- Systemic Lupus Erythematosus
Mary Shomon provides an Autoimmune Disease Checklist, a list of symptoms that can point to different possible autoimmune conditions to bring to your doctor’s attention.
Many readers have contacted me suffering from multiple autoimmune diseases in addition to common hypothyroidism symptoms, yet their doctors have NEVER tested their thyroid antibodies. There are two thyroid antibodies for Hashimoto’s to test: Thyroid Peroxidase Antibodies (TPOAb) and Thyroglobulin Antibodies (TgAb). Elevated antibodies above normal for either of these antibodies is used for diagnosis.
If your doctor refuses to test your thyroid antibodies, you have the option to order your own thyroid lab tests. A trusted place you can order a Hashimoto’s panel (U.S.) and a thyroid panel including thyroid antibodies (Europe) yourself is True Health Labs. Use coupon code Limited_5 for 5% off an order.
Refusal To Treat Thyroid Antibodies
Many readers have written to say their thyroid antibodies are sky high but their doctors refuse to treat them because their TSH is “normal”. This is particularly disturbing given that in the early stage of Hashimoto’s TSH can be normal while the immune system continues attacking the thyroid. As well, for Hashimoto’s sufferers who cycle up and down with fluctuating TSH levels, their doctor may happen to test their TSH at the low point in the swings and mistakenly determine TSH is “normal”.
It’s a controversial subject, and many endocrinologists will simply dismiss you if you ask about it. But new research has been published that supports the understanding that autoimmune Hashimoto’s disease may be preventable, slowed, or even stopped entirely before it progresses to destruction of the thyroid gland and hypothyroidism.
Failure To Address The Autoimmune Condition
The standard care for a Hashimoto’s patient is to simply wait until the immune system has destroyed enough thyroid tissue to classify them as hypothyroid, and then give them thyroid hormone replacement. If they start to exhibit other symptoms commonly associated with their condition, like depression or insulin resistance, they’ll get additional drugs for those problems.
The obvious shortcoming of this approach is that it doesn’t address the underlying cause of the problem, which is the immune system attacking the thyroid gland. And if the underlying cause isn’t addressed, the treatment isn’t going to work very well – or for very long.
There is more to treating Hashimoto’s than thyroid hormone replacement medication. Optimal thyroid medication of course is an important part of a person feeling well but in the case of Hashimoto’s there is more to consider. Hashimoto’s is more than a thyroid condition it is an autoimmune condition. There are many possible underlying triggers for that person’s autoimmune condition that need to be checked.
Here are possible triggers to investigate. Should your doctor not be open to this testing, I’ve included links where you can order your own testing:
- Gluten sensitivity
- Food sensitivities
- Adrenal dysfunction
- Chronic inflammation
- Leaky Gut
- Blood sugar imbalance
- Sex hormone imbalance
- Nutrient deficiencies
- Vitamin D deficiency
- Selenium deficiency
- Iron imbalance
- Toxic exposure
Dr. Izabella Wentz wrote an excellent book addressing the underlying triggers for Hashimoto’s and available treatment options. This is a must-read book for every person with Hashimoto’s Hashimoto’s Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause.
Natural Desiccated Thyroid for Hashimoto’s
There is controversy over whether natural desiccated thyroid (NDT) is an ideal treatment option for Hashimoto’s. Some suggest that NDTs are derived from pig thyroid which is biologically very similar to the human thyroid gland. The thinking goes that if your immune system is attacking your thyroid gland then adding a drug that closely resembles it would worsen the condition. While the opposing camp says that NDTs are a great option for Hashimoto’s sufferers.
I personally here from many Hashimoto’s patients at Hypothyroid Mom doing great on NDTs then others say they feel better on synthetics. We’re all individual. The key is finding a doctor who will explore the thyroid drug options to find the treatment that works best for YOU.
Dr. Alan Christianson, author of Healing Hashimoto’s: A Savvy Patient’s Guide, provides this description of Hashimoto’s.
It can be a real struggle to find a good thyroid doctor but there are good ones out there – 30 online resources to find a good thyroid doctor.