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  1. blank Samantha Hayes says:

    Hello,
    I have Hashimoto’s Disease. It took a number of years and firing a number of doctor’s, when I decided to ask my Internal Med doctor if we could just try T3 meds. The fog lifted and I got my first clue. We tried all the pre made thyroid meds and they all made my stomach hurt within one to two days. Then I read about Compounded formulas. I asked him if we could try that and he agreed. I was on my way or so I thought. I got the thyroid under control but not losing weight because about that time my muscles started acting up—spasms whenever, wherever, for reasons, for no reasons. I was going to Physical Therapy, we would get to a good place, start strengthen exercises and bamm–spasms. It was while I was talking to my Endo Doctor that he mentioned a little known Syndrome called Stiff Man Syndrome now renamed Stiff Person Syndrome. Very little is known about it. I’ve seen so many doctors, even more than I had for the thyroid disease. With muscle spasms happening all the time, trying to exercise to get some weight off was not happening, not even mild stretching. Going to PT, helped me Maintain. I could go into further details but it gets worse. I have tried working on the inner me and loving the inner me, the me that is almost 60 lbs overweight, but with Hashi’s messing with my head and body, and SPS messes with my body and mind—I am just thankful to make it through another day. I don’t know where all to these “things” are leading me but I will hold out for as long as I can. I’ve been married almost 30 years and my husband has seen the changes and he understands. I feel like there is a war going on between these two “illnesses”, neither with a cure. The SPS has turned me into a hermit because loud noises and high energy can and does trigger off muscles spasms and seizures.

  2. blank Virginia Nuttall says:

    I’m 53 years old and was diagnosed with Hashimotos Disease right before my 50th birthday, right after I successfully gave up smoking and just before I hit menopause!mimcall it my ‘triple whammy’. My entire life I had struggled with weight but for 10years I had been my ideal weight, I had won the battle, or so I thought then ‘Hashimtos hit” I went to Weight Watchers (because it had worked for me before) and I lost 9kgs yayyyy, no not yayyyy, I put it straight back on again while I was on holidays. So then my husband and I joined a gym…nearly every day for 6 months I went and slogged my guts out, whilst all the beautiful 20 somethings made it look easy, but the scales kept heading up. I saw the gym nutritionist who at 23 had Hashimotos herself…the diet she put me, well yes I lost 4 kgs but I may as well have been eating cardboard and at the weekly weigh-in/torture session, if my measurements went up or the scales did, I got a little condescending look or a never-mind, keep going, you just have to be more strict, stick to the plan, blah bla bla! So here I am 6 month later, still going to the gym but now maybe 4 times a week to stay fit and back to the weight I was before WW and after the Hashimotos diagnosis. I just want to live and love my life again. My husband still loves me unconditionally, our kids have all moved out of home, the 20 year old baby having just left recently, I want to enjoy my life, lose 10kgs and keep it off. I would like to travel, buy clothes off the rack again, sleep a full 8 hours, go out to dinner and not feel guilty about what I’m eating, but mostly I want to stop the horrible ‘internal dialogue’ I have with myself…”you are fat, you are ugly, you are worthless, look at that butt, yuck…’ any suggestions would be greatly appreciated?
    HAPPY BIRTHDAY Hypothyroid Mum, I love your work and have been following you for a coupe of years.

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