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19 Comments

  1. blank Frustrated! says:

    Hi!
    I have had a 6year battle with my thyroid. It has been super frustrating. I feel best on natural supplements, but my TSH is high. Pharmaceutics are good at lowering my TSH, however, i have tried 3different ones and had 4negative reactions. Synthroid:within 24hours of going on it, i had 2episodes where I could not breathe. Dr convinced me to give is another shot and I went from only missing periods to having every symptom of hypothyroid. As in, what other people take synthroid to get rid of I developed. Euthroxin: muscle pain in my leg that had me wake up screaming at night. Staying on it for a year and a half until i could not take it anymore. It affected my sleep, my energy and I gained 40pounds. Desicated thyroid: i was so excited to try this one. But it caused an adominal pain which put me off work for 3 days. Drs did everything from pee tests to a ct scan only to find out that everything in my body is great-except my thyroid. The mental andvemotional anguish was high as i was rushed for emergency tests to make sure my appendix was ok and to check my ovaries for cysts. This is also the only hypothyroid drug that did nothing for my TSH. I was on over the counter Thyrosmart and my TSH was 5.28. Went on this drug on June 10.Aug 30blood test showed my TSH at 6.14. I am so frustrated! I have never been on high doses of any of these and I take the medicine as directed. Has anyone else had these strughles? If so, how did you get your body to take the medication without adverse reactions?

  2. blank Debra Stewart says:

    A few years ago, I was told by my doctor to take DHEA 50mg. I did, and I lost 45% of my hair! Thankfully, I realized it & stopped immediately. It took approximately one year for my hair to fully grow back in. It was devastating.

  3. blank vaginal itching during pregnancy says:

    yes, vaginal dryness causes many sexual health issues as I have also found that if your vagina is dry then it can cause scratch during penetration.
    all your information is just best to know and treat the dryness. thank you.

  4. Monday i had a total thyroidectomy, i am on heavy painkillers, levo, antidepressants, stool softener. now i haven’t been peeing alot, i do know i need to up my liquid intake. i have noticed since i ave been home i was a bit itching but i thought that was do to the painkillers. of course i did itch, everywhere. i didn’t noticed until now Thurs. four days after surgery that my lips are swollen. no burning when i pee, clear discharge, just sore lips. I did but new pj set for when i was in hospital.

  5. So I was having a lot of issues with weight and chronic fatigue. I had my thyroid checked and it was normal but because I was taking a supplement with extra iodine my doctor checked my iodine levels and found them to be really low even with the extra iodine in my diet. I am now actively taking iodine supplements and what a difference it has made. I have more energy, I sleep better at night and a lot of those other issues are slowly resolving themselves. I would really look into this as the root cause of many peoples issues with their thyroid. Iodine deficiency also affects more than just your thyroid it affects your digestive system as well as your ovaries and probably some other parts as well. According to one article over 70% of people are iodine deficient. People don’t use as much salt and the salt they now use contains very little iodine. This creates a major health issue. I’d seriously research the effects of iodine deficiency. I am taking 500 mcg daily now and plan to bring myself up to 1000 mcg as it seems to be a safe level. Japanese people eat a lot of foods with iodine and have less health issues overall and they generally take in over 3000 mcg on a daily basis. So I would seriously consider this a root cause of your health issues. Anyway something to think about.

  6. Nicole, this is well said and often adding topical DHEA like with Julva feminine cream for a sustained period can help with repair and rejuvenation in women with LS. I do recommend concurrent therapy with a topical antifungal at least for the first 2 weeks as well. I agree that looking deeper for the cause such as Lyme is a very important step.

    1. Thank you so much Dr. Cabeca for answering comments here at Hypothyroid Mom. Much appreciated. It is a pleasure to include you on my site and congratulations on the 1 year anniversary of Julva. I’m using your cream and love it 🙂

  7. Lichen Schlerosis is usually a primary INFECTION of Staphylococcus aureus (with delta toxin), Corynebacterium (usually Corynebacterium mastitidis and Corynebacterium bovis but can be others) and Lyme (Borrelia burgdorferi). Patients can also have secondary INFECTION of yeast species including candidia albicans. Lack of response to estrogens is a sign that lichen schlerosis is progressing to squamous cell carcinoma usually within 4 years. Hypothyroid patients are especially at risk for skin infections because of the increased interstitial space between cells.

    1. Nicole, this is well said and often adding topical DHEA like with Julva feminine cream for a sustained period can help with repair and rejuvenation in women with LS. I do recommend concurrent therapy with a topical antifungal at least for the first 2 weeks as well. I agree that looking deeper for the cause such as Lyme is a very important step.

      1. Dr Cabeca, What topical antifungal do you suggest and is this important to do with a topical DHEA? What do you think of Intrarosa and do you think Julva is a better approach. Thank you in advance and thank you for all the ways you are helping women. Karen

  8. blank Laura Ingham says:

    Unless I missed it, you didn’t address the issue of Lichen Schlerosis which is yet another auto immune disease and affects the Vulva etc.?

  9. Hi Aleta, can you tell me how you found out or knew you had mold in your home? I live in an apartment and suspect there may be a mold issue here.

  10. Hypothyroid women with pain should also make sure that they are tested for vaginal INFECTIONS. High vaginal pH is usually a sign of an infection. In some patients pain on intercourse is also a sign of endometriosis and an infection of gardnerella, α-Streptococcus, Enterococci and/or Escherichia coli. Most gynecologists will tell you that the pain is in your head and not test for hypothyroidism and will not treat any infection or do the proper testing. If you have an infection this will also impact your ability to convert T4 to T3 and it may affect your body’s ability to transport active T3 to damaged tissues. There should also be a stronger push to test for Reverse T3 in patients with infections.

  11. This is exactly how I feel, almost everything that was mentioned in the top half of this article resonated with me. It’s pretty sad to be in your early 30s and want nothing to do with sex. . i mean even the tickling. . I can’t seem to make things better. . I have quit gluten and I try to eat healthy fats and low carbs. . I have done extensive blood panels and nothing yet. . Thanks for sharing such a great article, its nice to know that this is all linked to something thyroid related, even if I still cant figure out how to get my libido back-

  12. Great information regarding Thyroid levels, also find interesting facts on 7downloads

  13. My vitamin D3 has been low since 2014 when I insisted my doctor check my level.
    All the women in my family have low D3( below 25) yesterday it’s down to 22.7.
    My mother has severe osteoporosis and I am an x-ray tech who was trained on DEXA years ago.
    I did my own research on the T score and Z score so I could understand what I was advised to give my patients regarding calcium and vitamin D3,K .
    Under the supervision of the doctors I worked for of course!
    I can not get my D3 levels above 25 and had been told my thyroid levels are normal.
    I am experiencing chronic pain in my spine due to DDD and OA, muscle pain and weakness, severe and chronic fatigue, insomnia, HTN and a host of other terrible things that are affecting my job, life and mental health .
    I am 53
    I found your site today after getting my yearly physical and blood drawn for my D3.
    It’s was 24 in August 2017 and now down to 22.7.
    I did switch from taking the gummies at night (2000 ) to a soft gel of 5000 because it was on sale..
    So I did stop taking it for awhile.
    I don’t know why.
    I am now wondering if my thyroid levels were overlooked.
    I will go back into my e chart to check it.
    Bottom line is that had I not asked my primary care physician to check my level when I first saw her a few years ago when I presented with my chronic pain , muscle weakness and depression I wouldn’t have known I am definitely deficient.
    Now add plantar fasciitis with chronic ankle swelling to the mix.
    Thank you for your blog and am hoping to get some answers.
    My sister also has low D and we both had terrible fibroid uterus (mom too) so it runs in the family.
    What Thyroid levels should I ask my doctor to check?
    Im also going to get the liquid D3 with k and take it with dinner.
    My doctor doesn’t seem to know much about this subject or she is making loads of money on my appointments.

    1. I felt the urge to reply to you. I have dealt with the D3 problem for three years. My daughter from 9-13 had six –yes six broken bones. Her level was a 17. This was all from mold in my home. I remediated carpet, paint cabinets, duct work, etc and we both take the D3 drops found at Earthfare or WholeFoods (about $10) and take about 6-7000 units per day. Mine is up to 37 and Stella is up to 32 and we’ve almost made it one year with no broken bones. Please, check your air quality in your home and most likely the home you shared with your mom and sister. I am experiencing the same health problems as my mom and her house is so mold ridden I cannot visit her without tremors and sores and vomiting (-!: an insomnia like a crazy person) I finally moved and bc I didn’t replace furniture the leather held the mold and infiltrated my HVAC in my new house. Yikes! Had it sucked out and. Leaned with peroxide and Lysol (I swear this works!) look through the yeast overgrowth sites –even one on here is spot on! But my supplements saved my life. My liver began to go nuts and my hemoglobin and rbcs. All of it was/is mold. Not black mold. Just cladosporium aspergillosis and penicillum. I have researched it extensively I wouldn’t pass any advice along I hadn’t done for myself. Good luck and I’m sending good thoughts your way –kindly, Aleta R.

      1. blank Kristal Jetkins says:

        Hi Aleta, can you tell me how you found out or knew you had mold in your home? I live in an apartment and suspect there may be a mold issue here.

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