Comments on: Real people share their worst (downright awful) hypothyroidism symptoms

By: Dianne

Dianne

In reply to SarahR.. I have lymphedema and lipedema, in addition to Hashimotos since I was 10. I thought the armpit pain and swelling was just me!! I can also see my breasts and arms swell when I get this pain. In @ 100 years, they'll find all my issues stem from thyroid. Just found a new Endo willing to try some new ideas with me....and he's retiring in 2 months

By: Dana Trentini

Dana Trentini

In reply to Shari.

Hi Shari, I’m happy you’ve found what works best for you. It really is like fitting together a puzzle to find the pieces that work for each person. It would be so much easier if there was one medication that worked for everyone but it is more tricky than that. I hear from many that do wonderfully on LDN. Few doctors know about it and hopefully more people will discover it. Here’s an article about it in case there are people reading these comments and wonder what we are referring to. Good to have you at Hypothyroid Mom.
https://hypothyroidmom.com/most-doctors-dont-know-about-low-dose-naltrexone-for-autoimmune-diseases/

By: Shari

Shari

For 4 years I’ve struggled with Hypo/Hashi. It wasn’t bad at first then I started losing hair/thinning. Weight gain/puffy face, used to be skinny. My primary wouldn’t test anything but TSH so I found a functional medical doc. She tested TSH, T3, & T4. Was on Levo but Synthroid worked best. The next two years was trying to get #’s & symptoms right. Went thru higher Synthroid, Armor, Naturethroid, NP thyroid with varying amounts. When I’m on desiccated thyroid I get bad heartburn & super fatigued. Finally found Synthroid 50 & Armor 15 worked best. My hair loss stopped, hardly any constipation, still some fatigue. My doc also had me try Naltrexone & has helped but will see how my labs do. Research all you can. Find what works for you. A good doc is essential! It’s been a hard road. I hope my kids don’t have my genes for it!