Remembering Our Babies Lost To Thyroid Disease

Remembering Our Babies Lost To Thyroid Disease

“Everyone is invited to light a candle on October 15th at 7PM in ALL Time Zones, ALL Over The World. If everyone lights a candle at 7PM and keeps it burning for at least one hour, there will be a continuous WAVE OF LIGHT over the entire world on October 15th, Pregnancy and Infant Loss Remembrance Day.” October15th.com “Because EVERY baby deserves a first birthday.” Firstcandle.org. This post is written in memory of all the babies lost to thyroid disease.

When I was a little girl, my father would sing Frank Sinatra’s song “New York, New York”. He would sing at the top of his lungs, “If I can make it there, I’ll make it anywhere. It’s up to you, New York, New York!” In New York City, one of the greatest cities in the world, I expected the best possible medical care. I trusted my doctors completely.

I knew something was very wrong during my pregnancy. My body was shouting warning signs that my hypothyroidism was worsening.

I didn’t listen to my body and I will live with that regret the rest of my life.

The loss of an unborn baby no matter the cause is tragic. Then when a child is lost all because doctors have failed to read the guidelines for the management of thyroid dysfunction during pregnancy, it’s absolutely UNACCEPTABLE.

Frank Sinatra’s song resonates with me now more than ever. If a miscarriage due to hypothyroidism can happen in New York City, it can happen anywhere.

Elie Wiesel said, “Whoever survives a test, whatever it may be, must tell the story. That is his duty.”

Hypothyroid Mom is my story. I feel deep within me that it is my duty to share it, so that not one more child will be unnecessarily lost to hypothyroidism.

I launched Hypothyroid Mom on October 1st, 2012. I intentionally launched on that day.

October is National Miscarriage Awareness month in the U.S., and October 15 in particular is Pregnancy and Infant Loss Remembrance Day. I intentionally timed the launch of Hypothyroid Mom during Miscarriage Awareness Month in memory of my baby I lost so needlessly to hypothyroidism.

My Guest Blog Post for Your Thyroid Pharmacist

Dr. Izabella Wentz is a pharmacist, Hashimoto’s patient, and author of the book Hashimoto’s Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause.

Izabella invited me to write a guest blog post for her great site Your Thyroid Pharmacist. I am thankful to her for giving me the opportunity to spread awareness about the dangers of thyroid disease in pregnancy. I welcome all my readers to read my guest blog post at Izabella’s site.

Hashimoto’s and Pregnancy: 6 Things You Need To Know

Hypothyroid Mom Birthday GIVEAWAYS

Hypothyroid Mom celebrated its first birthday on October 1st. To thank my readers for all their support, I am celebrating with a series of giveaways throughout the month of October.

Izabella has graciously offered 4 of her books Hashimoto’s Thyroiditis: Lifestyle Interventions for Finding and Treating the Root Cause for this week’s prize.

Hashimoto's Thyroiditis: Lifestyle Interventions for Finding and Treating the Root CauseEnter for your chance to win by completing this form below. Your entry is free. The giveaway will end on Thursday, October 17 at 1:00 PM EST. The FOUR WINNERS will be contacted by email and listed here in this post.

a Rafflecopter giveaway

Remembering Our Babies Lost To

Thyroid Disease

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About Dana Trentini

Who knew that little butterfly-shaped thyroid gland at the base of my neck could affect my life so completely? I founded Hypothyroid Mom in memory of the unborn baby I lost to hypothyroidism. Winner of two 2014 WEGO Health Activist Awards: Health Activist Hero & Best In Show Twitter. *Hypothyroid Mom includes Affiliate links. Connect with me on Google+

Comments

  1. Nicole lujan says:

    I was diagnosed but was in denial so I never have done anything about it out if fear. I have my first endo appt on nov 5th. I feel scared and alone in this disease and need more info and support. Thank you

  2. I have been diagnosed with hypothyroid since birth I have always taken my medications I never really understood why I was this way or why I felt as bad as I have my whole life.at one point in my life at 18 yrs old I ran into a doctor who perscribed me armour thyroid I was feeling so much better and I had everything under control my mind and body I never felt so much better in my life I had two children my first pregnancy went well then my son was born I later found out he had arterial septal defect I never knew if it was from my hypothyroid . My second pregnancy 2 1/2 yrs later was a lil more complicated because I was switched back to levothyroxine due to a change of doctor …..they said she might be mentally delayed because of my hypothyroid .my daughter was born and she has no signs of mental delay ment she is actually pretty advanced for her age of 3 .as for me I have been dealing with depression and anxiety since I given birth to my daughter I feel as if I have not enjoyed my children as much as I should I’m always sleeping moody and I feel like I’m going nuts sometimes I was pregnant a third time 1 year after my daughter was born and I miscarried at 4 months due to my low thyroid my medication was increased to 150mcg and was told I couldn’t switch to armour thyroid for I don’t know what reason my depression anxiety has gotten worse along w a lot of other symptoms like dull pains in my body mental fog n I decided to quit all medication (levothyroxine,depression ,anxiety, pain killers ) I have been off my medications for two years and I’m fighting this alone :”( I don’t know what to do any more I lost faith in doctors I pray for my health I been alive this long but only thing now is I have not had a menstrual for 1 whole year

  3. My boy was born at 6 months. Now I know that the final trimester needs more thyroid hormones no wonder I gave birth prematurely. God was with us and he is now 25 but he is delicate and has issues from the premature birth. Of course I was also on antidepressants from my hypothyroidism being incorrectly treated so poor little mite had to withdraw off the effects in the womb and he kept twitching. He was so tiny and so vulnerable. I never wanted to go through it again so I haven’t had any more children.
    This is a worthy cause.
    Hugs and best wishes to all
    Dawnx

  4. Samantha Sholar says:

    I have been going through hypothyroidism for 7 to 8 years. It hasn’t bothered me in a while but lately maybe within the last 3 to 4 months I have been noticing that it is getting worse. I have a doctors appointment with my primary doctor on Thursday and I am scared. I just want answers. I feel like I have been alone in feeling this way and no one seems to know what I am going through. So I am happy that I found this website. Thank you.

  5. Diane Gonzales says:

    Dana, your website is wonderful and it’s been helpful to find a voice in the internet with such similar experiences.

    After having my first child, I was finally diagnosed with hashimoto’s and hypothyroidism. I knew for years something was off but the doctors would not find anything. I am being treated with levothyroxine and cytomel. I also took a holistic approach and went gluten/dairy/sugar free and quickly started to feel better and better each day. Two years after my daughter was born, I became pregnant but recently found out I miscarried at around 10 weeks. It was the most devastating experience. I truly feel lost now because I was doing everything I was supposed to. My TSH levels were at a safe level the entire time. I am meeting with my endo in a few weeks and he mentioned I may be a candidate to remove my thyroid since my TPO antibodies are extremely high.
    Do you or any of your readers have any guidance into having your thyroid removed to lower the antibodies? Should I try to get pregnant again?

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